ʻO Hodgkin Lymphoma, Non-Hodgkin Lymphoma a me Chronic Lymphocytic Leukemia (CLL) nā ʻano maʻi maʻi koko me nā ʻano koho lapaʻau like ʻole. Hiki i nā lāʻau lapaʻau no ka lymphoma ke manaʻo e hoʻōla a mālama i kou maʻi ʻoiai e hāʻawi pū ana iā ʻoe i ka maikaʻi o ke ola. Hiki iā ia ke komo i nā ʻano lāʻau lapaʻau like ʻole e like me ka chemotherapy, radiation, monoclonal antibodies, immunotherapy, nā mea lapaʻau i hoʻopaʻa ʻia, hoʻololi ʻia i nā cell stem, CAR T-cell therapies a me nā mea hou aku.
Ma kēia ʻaoʻao e hāʻawi mākou i kahi ʻike o nā ʻano lapaʻau like ʻole a me nā mea pono e noʻonoʻo ai i ka wā lapaʻau. Eia nō naʻe, no ka ʻike kikoʻī hou aku e pili ana i ka CLL a me ka lymphoma lapaʻau no kāu ʻano sub-type, e ʻoluʻolu e ʻike i kā mākou pūnaewele ma Nā ʻano Lymphoma.
Nā Pahuhopu o ka Lapaʻau
ʻO ka pahuhopu o kāu lapaʻau lymphoma e hilinaʻi ʻia i kou kūlana pilikino. Hiki i kēia mau mea ke komo:
- ʻO kāu subtype o lymphoma (a i ʻole CLL)
- Inā moloā kou maʻi (ulu lohi) a i ʻole ʻino (ulu wikiwiki)
- ʻO ka pae a me ka pae o kāu lymphoma
- ʻO kou olakino holoʻokoʻa a me kou hiki ke ʻae i nā lāʻau lapaʻau.
Ma muli o kāu mau kumu ponoʻī, ʻo ka pahuhopu ke hoʻōla iā ʻoe mai ka lymphoma, kōkua iā ʻoe e neʻe i kahi kala piha a i ʻole kahi kala kala.
hoolaia
Kala piha
Kala kala ʻāpana
Nā paukū lehulehu Halemai pilikino a me nā loea
He mea nui e hoʻomaopopo i kāu mau koho mālama ola kino ke kū nei ʻoe i kahi hōʻailona lymphoma a i ʻole CLL. Inā loaʻa iā ʻoe kahi ʻinikua olakino pilikino, pono paha ʻoe e noʻonoʻo inā makemake ʻoe e ʻike i kahi loea i ka ʻōnaehana pilikino a i ʻole ka ʻōnaehana lehulehu. Ke hoʻouna aku nei kāu GP ma o kahi kuhikuhi, e kūkākūkā i kēia me lākou. Inā ʻaʻohe āu ʻinikua ola pilikino, e hōʻoia e hōʻike pū i kāu GP i kēia, no ka mea, e hoʻouna ʻokoʻa paha kekahi iā ʻoe i ka ʻōnaehana pilikino inā ʻaʻole lākou i ʻike e makemake ʻoe i ka ʻōnaehana lehulehu. Hiki i kēia ke hoʻopiʻi ʻia e ʻike i kāu kauka.
Hiki iā ʻoe ke hoʻololi mau i kou manaʻo a hoʻololi i kahi pilikino a lehulehu paha inā hoʻololi ʻoe i kou manaʻo.
Kaomi i nā poʻomanaʻo ma lalo e aʻo e pili ana i nā pōmaikaʻi a me nā hemahema o ka mālama ʻana i nā ʻōnaehana lehulehu a me nā ʻōnaehana pilikino.
Nā Pōmaikaʻi o ka Pūnaehana Aupuni
- Hoʻopili ka ʻōnaehana lehulehu i ke kumukūʻai o nā lāʻau lapaʻau lymphoma papa inoa PBS a me nā noiʻi no
lymphoma e like me ka PET scans a me ka biopsy. - Uhi pū ka ʻōnaehana lehulehu i ke kumukūʻai o kekahi mau lāʻau i helu ʻole ʻia ma lalo o ka PBS
like dacarbazine, ʻo ia ka lāʻau lapaʻau chemotherapy i hoʻohana mau ʻia i ka
ka mālama ʻana i ka lymphoma o Hodgkin. - ʻO nā kumu kūʻai ma waho o ka ʻeke no ka mālama ʻana i ka ʻōnaehana lehulehu no ka maʻi maʻi ma waho
nā palapala no nā lāʻau lapaʻau āu e lawe waha ai ma ka home. He mea liʻiliʻi loa kēia a ʻo ia
i kākoʻo hou ʻia inā loaʻa iā ʻoe kahi mālama olakino a kāleka penikala paha. - Nui nā halemai aupuni he hui o nā loea, nā kahu hānai a me nā limahana olakino pili, i kapa ʻia ʻo ka
Ke mālama nei ka hui MDT i kāu mālama. - Hiki i nā halemai nui nui ke hāʻawi i nā koho lapaʻau i loaʻa ʻole i ka
ʻōnaehana pilikino. No ka laʻana kekahi mau ʻano o ka transplants, CAR T-cell therapy.
Nā pōʻino o ka ʻōnaehana lehulehu
- ʻAʻole paha ʻoe e ʻike mau i kāu kauka inā loaʻa kāu mau koho. ʻO ka hapa nui o nā halemai aupuni he mau kikowaena hoʻomaʻamaʻa a kula kiʻekiʻe paha. ʻO ia ke ʻano e ʻike paha ʻoe i kahi mea kākau inoa a i ʻole nā mea hoʻopaʻa inoa hoʻomaʻamaʻa kiʻekiʻe i loko o ke keʻena, a laila e hōʻike hou i kāu kauka.
- Aia nā kānāwai koʻikoʻi e pili ana i ka uku uku a i ʻole ka ʻae ʻana i ka lepili i nā lāʻau lapaʻau i loaʻa ʻole ma ka PBS. Pili kēia i kāu ʻōnaehana mālama olakino a ʻokoʻa paha ma waena o nā mokuʻāina. ʻO ka hopena, ʻaʻole loaʻa iā ʻoe kekahi mau lāʻau lapaʻau. Hiki iā ʻoe ke loaʻa i nā lāʻau lapaʻau maʻamau a ʻae ʻia no kou maʻi.
- ʻAʻole hiki iā ʻoe ke hele pololei i kāu haematologist akā pono paha e hoʻopili i kahi kahu hānai kūikawā a i ʻole ka mea hoʻokipa.
Nā pōmaikaʻi o ka ʻōnaehana pilikino
- E ʻike mau ʻoe i ka haematologist like ʻole me ka loaʻa ʻole o nā kauka hoʻomaʻamaʻa ma nā lumi pilikino.
- ʻAʻohe kānāwai e pili ana i ka uku hui a i ʻole ka ʻae ʻana i ka lepili i nā lāʻau lapaʻau. Hiki ke kōkua nui kēia inā loaʻa iā ʻoe nā maʻi hoʻihoʻi hou a i ʻole kahi subtype lymphoma ʻaʻole nui nā koho lapaʻau. Eia nō naʻe, hiki ke loaʻa ke kumukūʻai me nā lilo nui o waho o ka ʻeke e pono ai ʻoe e uku.
- Hiki ke hana wikiwiki ʻia kekahi mau hoʻāʻo a i ʻole hoʻāʻo hana ma nā halemai pilikino.
ʻO lalo o nā halemai pilikino
- ʻAʻole i uhi ka nui o nā kālā mālama ola i ke kumukūʻai o nā hoʻokolohua a/a i ʻole ka lāʻau lapaʻau. Hoʻokumu ʻia kēia ma kāu waihona kālā olakino, a ʻoi aku ka maikaʻi o ka nānā ʻana. E loaʻa iā ʻoe kahi uku komo makahiki.
- ʻAʻole hiki i nā poʻe loea āpau ke uku nui a hiki ke uku ma luna o ka pāpale. 'O ia ho'i, hiki ke loa'a nā kumukū'ai no ka 'ike i kāu kauka.
- Inā makemake ʻoe i ke komo ʻana i ka wā o kāu mālama ʻana, ʻoi aku ka kiʻekiʻe o ka nui o nā kahu hānai ma kahi pilikino i nā haukapila. ʻO ia hoʻi, ʻoi aku ka nui o nā maʻi e mālama ʻia e kahi kahu hānai ma kahi haukapila pilikino ma mua o kahi haukapila aupuni.
- ʻAʻole ʻo kāu kauka hematologist ma ka pūnaewele ma ka haukapila, maʻa lākou e kipa no nā manawa pōkole hoʻokahi manawa i ka lā. Hiki i kēia ke manaʻo inā maʻi ʻole ʻoe a makemake koke i ke kauka, ʻaʻole ia ʻo kāu loea maʻamau.
ʻO ka mālama ʻana i ka Lymphoma me ka lymphoma palaualelo a me ka huhū a me ka CLL
Hiki i nā lymphoma B-cell hoʻopaʻapaʻa ke pane maikaʻi i ka mālama ʻana no ka mea e ulu wikiwiki ana lākou, a ʻo ka mālama ʻana i ka chemotherapy maʻamau ke kuhikuhi nei i nā cell ulu wikiwiki. No laila, mālama pinepine ʻia nā lymphoma koʻikoʻi me ka manaʻo e hoʻōla a hoʻoulu i ke kala piha. Eia nō naʻe, koi pinepine nā lymphoma T-cell koʻikoʻi i ka hoʻomaʻamaʻa ʻoi aku ka ikaika a hiki ke loaʻa i ke kala ʻana, akā hoʻihoʻi pinepine a pono hou ka mālama ʻana.
ʻO ka hapa nui o nā lymphoma palaualelo, ʻaʻole hiki ke ho'ōla ʻia no laila ʻo ka pahuhopu o ka lapaʻau ʻana ʻo ia ke hoʻoulu a kala piha a hapa paha. ʻAʻole pono ka poʻe he nui me nā lymphoma palaualelo a me CLL i ka wā e ʻike mua ʻia ai. Inā loaʻa iā ʻoe kahi lymphoma palaualelo, hiki iā ʻoe ke kiaʻi a kali e hoʻomaka me, a hoʻomaka wale i ka mālama ʻana inā hoʻomaka kāu lymphoma / CLL e holomua (ulu), a i ʻole he mau hōʻailona. Hiki ke kiʻi ʻia ka holomua ma o kāu hoʻāʻo ʻana i ke koko maʻamau a me ka nānā ʻana, a hiki mai paha me ka ʻike ʻole ʻana i kekahi hōʻailona.
ʻO ka ʻike hou aku e pili ana i ka wati a me ka kali ʻana ma lalo o kēia ʻaoʻao.
E kamaʻilio me kāu Kauka Kūikawā
He mea nui iā ʻoe ke hoʻomaopopo i ke kumu e loaʻa ai kāu lapaʻau, a me ka mea e manaʻo ai. Inā ʻaʻole ʻoe maopopo, e nīnau i kāu Kauka inā loaʻa iā ʻoe kahi lymphoma palaualelo a huhū paha, a he aha ka pahuhopu (a i ʻole ka manaʻo) o kāu mālama ʻana.
Ke kali nei ma mua o kou hoʻomaka ʻana i ka mālama ʻana
Ma mua o kou hoʻomaka ʻana i ka mālama ʻana, pono ʻoe e loaʻa i nā hoʻāʻo he nui e ʻike i ke ʻano o ka lymphoma a i ʻole CLL i loaʻa iā ʻoe, he aha ka pae a me ka papa, a pehea kou maikaʻi maʻamau. I kekahi mau hihia, hiki i kāu kauka ke manaʻo e hana i nā hoʻokolohua genetic i kāu hoʻāʻo koko, ka iwi o ka iwi a me nā biopsies ʻē aʻe. Ke nānā nei kēia mau ho'āʻo inā loaʻa iā ʻoe nā hoʻololi genetic e pili ana i ka lāʻau e hana maikaʻi loa iā ʻoe.
Hiki i kekahi manawa ke lawe i nā pule no ka loaʻa ʻana o kāu mau hopena āpau, a ʻo kēia manawa he manawa pilikia a hopohopo. He mea nui e kamaʻilio e pili ana i kou manaʻo me kekahi āu e hilinaʻi nei. Loaʻa paha iā ʻoe kekahi ʻohana a i ʻole he hoaaloha āu e kamaʻilio ai, akā hiki iā ʻoe ke kamaʻilio pū me kāu kauka kūloko a kelepona iā mākou ma kā mākou hotline kahu hānai. Kaomi ma ka "Kāhea iā mā˚ou” pihi ma ka lalo o kēia pale e kiʻi i kā mākou kikoʻī.
He ala maikaʻi nō hoʻi kā mākou pūnaewele media no ʻoe e launa pū me nā poʻe ʻē aʻe e noho ana me lymphoma a i ʻole CLL.
E hōʻuluʻulu i kāu hui - Pono ʻoe i kahi pūnaewele kākoʻo
Pono ʻoe i ke kākoʻo hou i kou hele ʻana i ka mālama ʻana. He ʻokoʻa ke ʻano o ke kākoʻo e pono ai kēlā me kēia kanaka akā hiki ke komo pū kekahi:
- kākoʻo noʻonoʻo a noʻonoʻo paha
- kōkua i ka hoʻomākaukau ʻana i nā meaʻai a i ʻole nā hana hale
- kōkua kūʻai
- hāpai i nā koho
- mālama mālama
- pili
- he hoolohe maikai
Aia ke kākoʻo ʻoihana hiki iā ʻoe ke komo. E kamaʻilio me kāu hui lapaʻau e pili ana i kāu mea e pono ai, a e nīnau iā lākou i ke kākoʻo i loaʻa ma kou wahi. Loaʻa i ka hapa nui o nā haukapila i kahi limahana hana, ʻoihana lapaʻau a i ʻole nā lawelawe aʻoaʻo e hiki ke kōkua nui.
Hiki iā ʻoe ke hāʻawi mai iā mākou ma Lymphoma Australia i kelepona. Hiki iā mākou ke hāʻawi i ka ʻike e pili ana i nā kākoʻo like ʻole i loaʻa, a me ka ʻike hou loa e pili ana i kāu subtype lymphoma/CLL a me nā koho lapaʻau.
Inā he makua ʻoe me nā keiki a ʻōpio a ua loaʻa ʻoe i ka maʻi kanesa, hāʻawi pū ʻo CANTEEN i ke kākoʻo no ʻoe a me kāu mau keiki.
Akā, paipai mākou iā ʻoe e kelepona aku i ka ʻohana a me nā hoaaloha e hōʻike iā lākou i kāu mau pono, a pono paha ʻoe i ke kōkua i ka wā e hiki mai ana. Makemake pinepine ka poʻe e kōkua, akā ʻaʻole ʻike i kāu mea e pono ai, no laila ʻo ka ʻoiaʻiʻo mai ka hoʻomaka ʻana e kōkua i nā mea āpau.
Aia kekahi polokalamu maikaʻi e hiki ai iā ʻoe ke hoʻoiho ma kāu kelepona, a i ʻole ke komo ʻana ma ka pūnaewele i kapa ʻia ʻo "E hōʻuluʻulu i kaʻu hui" e kōkua pū ana i ka hoʻonohonoho ʻana i ke kākoʻo hou. Ua hoʻopili mākou i nā loulou i ka CANTEEN a me ka hui ʻana i kaʻu mau punaewele ma lalo o kēia ʻaoʻao ma lalo o ka ʻāpana "Nā kumuwaiwai ʻē aʻe no ʻoe".
Hiki ke ʻike ʻia ka ʻike hou aku e pili ana i nā ʻōlelo aʻoaʻo kūpono i ka wā e noho ana me ka lymphoma a me ka mālama ʻana ma kā mākou pūnaewele ma lalo nei.
Ka mālama mālamaʻana
Hiki i ka lāʻau lapaʻau no ka lymphoma ke hōʻemi i kou momona (hiki ke hana i nā pēpē). Hiki i kekahi o kēia mau lāʻau lapaʻau ke komo i ka chemotherapy, kekahi mau antibodies monoclonal i kapa ʻia ʻo "immune checkpoint inhibitors" a me ka radiotherapy i kou pelvis.
ʻO nā pilikia fertility i hoʻokumu ʻia e kēia mau lāʻau lapaʻau:
- Ka menopause mua (hoʻololi o ke ola)
- ʻAʻole lawa ka ovarian (ʻaʻole i ka menopause akā hoʻololi i ka maikaʻi a i ʻole ka helu o nā hua i loaʻa iā ʻoe)
- Hoʻemi ʻia ka helu sperm a i ʻole ka maikaʻi o ka sperm.
Pono kāu kauka e kamaʻilio me ʻoe e pili ana i ka hopena o kāu mālama ʻana i kou momona, a he aha nā koho i loaʻa e kōkua i ka pale ʻana. Hiki ke mālama ʻia ka momona me kekahi mau lāʻau a i ʻole ma o ka ovum maloʻo (hua), sperm, ovarian a i ʻole ka ʻiʻo testicular.
Inā ʻaʻole i kamaʻilio kāu kauka me ʻoe, a ke manaʻo nei ʻoe e loaʻa nā keiki i ka wā e hiki mai ana (a i ʻole e hoʻomaka ana kāu keiki liʻiliʻi i ka mālama ʻana) e nīnau iā lākou i nā koho i loaʻa. Pono kēia kamaʻilio ma mua o kou hoʻomaka ʻana a i ʻole kāu keiki i ka mālama ʻana.
Inā ʻoe ma lalo o 30 mau makahiki hiki iā ʻoe ke loaʻa ke kākoʻo mai ke kahua ʻo Sony nāna e hāʻawi i kahi lawelawe mālama hānai manuahi ma waena o Australia. Hiki ke kelepona iā lākou ma 02 9383 6230 a i ʻole ma kā lākou pūnaewele https://www.sonyfoundation.org/youcanfertility.
No ka ʻike hou aku e pili ana i ka mālama ʻana i ka hānau ʻana, e nānā i ke wikiō ma lalo me ka loea fertility, ʻo A/Prof Kate Stern.
Pono ʻoe e ʻike i kahi niho niho?
ʻAʻole hiki iā ʻoe ke hana niho i ka wā o ka mālama ʻana ma muli o ka piʻi ʻana o ka maʻi a me ke kahe koko. Inā pilikia pinepine ʻoe i kou mau niho a manaʻo paha ʻoe pono ʻoe i ka hoʻopiha ʻana a i ʻole nā hana ʻē aʻe e hana ʻia, e kamaʻilio me kāu kauka haematologist a i ʻole ka maʻi oncologist e pili ana i ka manawa maikaʻi loa e hana ai i kēia. Inā he manawa, manaʻo paha lākou e hana ʻoe i kēia ma mua o ka hoʻomaka ʻana o ka mālama ʻana.
Inā loaʻa iā ʻoe kahi transplant cell stem allogeneic e ʻōlelo ʻia ʻoe e nānā i kou mau niho ma mua o ka chemotherapy kiʻekiʻe a me ka transplant cell stem.
Pehea ka hoʻoholo ʻana o kāu lapaʻau?
E nānā kāu kauka i kāu mau hoʻokolohua a me nā hopena scan ma mua o ka hoʻoholo ʻana i nā koho lapaʻau maikaʻi loa no ʻoe. Ma waho aʻe o kāu mau hopena, e noʻonoʻo kāu kauka i kēia mau mea, i ka wā e hoʻoholo ai e pili ana i kāu mau lapaʻau:
- kou ola kino
- nā kūlana olakino ma mua a i ʻole e pili ana i kāu lymphoma a i ʻole CLL
- He aha ke ʻano o ka lymphoma iā ʻoe
- pehea ka wikiwiki o ka ulu ʻana o ka lymphoma – kou pae a me ka pae o lymphoma a i ʻole CLL
- nā hōʻailona āu e ʻike nei
- kou mau makahiki a
- nā makemake pilikino āu i loaʻa ai me nā manaʻoʻiʻo uhane a me ka moʻomeheu. Inā ʻaʻole i kūkākūkā ʻia kēia mau mea e ʻike i kāu kauka e pili ana i kāu makemake.
Hiki i kekahi mau kauka ke hōʻike i kāu ʻike i kahi hui multidisciplinary (MDT). Hoʻokumu ʻia nā MDT i nā ʻoihana olakino like ʻole me nā kauka, nā kahu hānai, physiotherapist, occupational therapists, pharmacists, psychologists a me nā mea ʻē aʻe. Ma ka hōʻike ʻana i kāu hihia ma ka hālāwai MDT, hiki i kāu kauka ke hōʻoia i ka hoʻokō ʻana i kēlā me kēia ʻaoʻao o kou pono olakino.
Kapa pinepine ʻia kāu hoʻolālā lapaʻau he "protocol hoʻoponopono" a i ʻole "hoʻoponopono mālama". Hoʻolālā ʻia ka hapa nui o nā protocol lapaʻau no lymphoma a i ʻole CLL i nā pōʻai. ʻO ke ʻano kēia e loaʻa iā ʻoe kahi pōʻai lapaʻau, a laila hoʻomaha a laila mālama hou aku. ʻEhia mau pōʻaiapuni āu i kāu protocol lapaʻau e pili ana i kāu ʻano subtype, olakino holoʻokoʻa, pehea ka pane ʻana o kou kino i ka mālama ʻana, a me ka pahuhopu o kāu lapaʻau.
Hiki i kāu hoʻolālā lapaʻau ke hoʻokomo i nā lāʻau lapaʻau e like me ka chemotherapy, nā antibodies monoclonal a i ʻole ka lāʻau lapaʻau i hoʻopaʻa ʻia, akā hiki ke hoʻokomo pū ʻia i ke ʻoki a i ʻole radiotherapy. Hiki paha iā ʻoe ke loaʻa kekahi mau lāʻau kākoʻo e kōkua iā ʻoe e palekana a mālama i nā hopena ʻaoʻao āu e loaʻa ai mai ka mālama ʻana.
ʻAʻole loaʻa iā ʻoe kēlā me kēia ʻano lapaʻau - e kamaʻilio me kāu kauka e pili ana i kāu hoʻolālā lapaʻau.
Hōʻike ʻia kahi hiʻohiʻona o kēlā me kēia lapaʻau ma lalo o kēia ʻaoʻao. E kaomi wale ma ke poʻo o ka lapaʻau āu e makemake ai e aʻo hou aku.
Nau pono e loaʻa ka manaʻo ʻelua i kēlā me kēia manawa ma kāu ala lymphoma. Mai hopohopo no ka hōʻeha ʻana i kāu kauka mua, ʻo ka loaʻa ʻana o ka manaʻo ʻelua he mea maʻamau, a hōʻike iā ʻoe i nā koho like ʻole i loaʻa, a i ʻole e hōʻoia paha ua hāʻawi ʻia ʻoe i ka mea maikaʻi loa.
Inā makemake ʻoe i ka manaʻo ʻelua, hiki iā ʻoe ke noi aku i kāu kauka haematologist a i ʻole oncologist e hāʻawi iā ʻoe i kahi kuhikuhi i kekahi. ʻO ka hapa nui o nā kauka loea i hilinaʻi i ka hoʻolālā lapaʻau a lākou i hāʻawi ai iā ʻoe, ʻaʻohe pilikia e hoʻonohonoho i kēia.
Eia nō naʻe, inā ʻaʻole ʻoe e manaʻo hiki iā ʻoe ke kamaʻilio me kāu kauka haematologist a i ʻole oncologist, a i ʻole lākou i hōʻole i ka hoʻouna ʻana i kahi kuhikuhi no ʻoe, e kamaʻilio me kāu GP. Hiki i kāu GP ke hoʻouna aku i kahi kuhikuhi i kahi loea ʻē aʻe, a pono e loaʻa i kāu mau moʻolelo e hoʻouna i ke kauka hou.
ʻO ka ʻimi ʻana i ka manaʻo ʻelua ʻaʻole ia e hoʻololi mau i nā kauka. Hiki iā ʻoe ke ʻike i kekahi kauka ʻē aʻe e hōʻoia ana e loaʻa ana ʻoe i ka ʻike kūpono a aia ʻoe ma ke ala pololei me kāu kauka i kēia manawa. Akā inā koho ʻoe e noho me ke kauka hou, ʻo ia nō kou kuleana.
Ma mua o kou hoʻomaka ʻana i kāu lapaʻau no ka lymphoma a i ʻole CLL, e noho pū kāu kauka lapaʻau a kahu hānai paha me ʻoe a haʻi iā ʻoe i nā mea āpau āu e ʻike ai. Nui nā ʻike e lawe ʻia i kēia manawa, no laila he mea maikaʻi e lawe pū me ʻoe i peni a me ka pepa e kākau i nā mea koʻikoʻi. Hāʻawi pinepine lākou iā ʻoe i ka ʻike i kākau ʻia e like me nā pepa ʻoiaʻiʻo a i ʻole nā brochure hiki iā ʻoe ke lawe i ka home.
Hiki iā ʻoe ke hoʻoiho i kekahi mau kumuwaiwai maikaʻi ma kā mākou kākoʻo no ʻoe pūnaewele. Kaomi ma aneʻi e ʻike i nā mea i loaʻa iā mākou.
Inā makemake ʻoe e aʻo ma kahi ʻano ʻokoʻa, a ʻaʻole makemake ʻoe e ʻōlelo a heluhelu paha ma ka ʻōlelo Pelekania, e ʻike i kāu kauka a kahu hānai paha i ke ala maikaʻi loa e hiki ai iā ʻoe ke aʻo. Hiki i kekahi mau keʻena ke hāʻawi iā ʻoe i nā wikiō pōkole e nānā ai, a i ʻole nā kiʻi e maʻalahi ai ka ʻike. Inā makemake ʻoe, hiki iā ʻoe ke nīnau i kāu kauka a kahu hānai paha inā hiki iā ʻoe ke hoʻopaʻa i ke kamaʻilio ʻana ma kāu kelepona e hoʻolohe ai ma hope.
Inā ʻaʻole ka ʻōlelo Pelekania kāu ʻōlelo mua, a makemake ʻoe e kiʻi i ka ʻike ma kahi ʻōlelo āu i kamaʻāina nui ai, e noi iā lākou e hoʻonohonoho i ka unuhi ʻōlelo e kōkua i ka unuhi ʻana i ka ʻike nou. He manaʻo maikaʻi e hoʻonohonoho i kēia ma mua o ka manawa hiki iā ʻoe. Inā loaʻa ka manawa, hiki iā ʻoe ke kelepona i kāu keʻena haukaʻi a i ʻole ka haukapila ma mua o kou koho ʻana. E noi iā lākou e hoʻopaʻa i ka unuhi ʻōlelo no kāu kau ʻana a me ke kau lapaʻau mua.
Ma hope o ka hāʻawi ʻia ʻana o nā ʻike āpau a loaʻa iā ʻoe nā pane i kāu mau nīnau, pono ʻoe e hoʻoholo i ka loaʻa ʻana o kāu lapaʻau a ʻaʻole paha. ʻO kāu koho kēia.
Hiki i kāu kauka a me nā lālā ʻē aʻe o kāu hui mālama ola ke hāʻawi i ka ʻike e pili ana i kā lākou manaʻo he koho maikaʻi loa ia no ʻoe, akā ʻo ka koho e hoʻomaka, a i ʻole e hoʻomau i ka mālama ʻana, nau nō e hana.
Inā koho ʻoe e lapaʻau, pono ʻoe e kau inoa i kahi palapala ʻae, he ala kūhelu ia e hāʻawi ai i ka hui mālama ola e hāʻawi iā ʻoe i ka lapaʻau. Pono ʻoe e ʻae i kēlā me kēia ʻano lāʻau lapaʻau ʻokoʻa, e like me ka chemotherapy, ʻokiʻoki, hoʻokahe koko a i ʻole radiation.
Hiki iā ʻoe ke hoʻihoʻi i ka ʻae a koho ʻaʻole e hoʻomau i ka mālama ʻana i kēlā me kēia manawa inā ʻaʻole ʻoe e manaʻoʻiʻo ʻo ia ke koho maikaʻi loa iā ʻoe. Eia nō naʻe, pono ʻoe e kamaʻilio me kāu hui mālama ola e pili ana i ka pilikia o ka hoʻōki ʻana i ka mālama ʻana, a me ke kākoʻo e loaʻa iā ʻoe ke hoʻōki ʻoe i ka mālama ʻana.
No ka ʻae ʻana i ka mālama ʻana, pono ʻoe e haʻi i kou maopopo a ʻae i nā pilikia a me nā pono o ka lāʻau i manaʻo ʻia. ʻAʻole hiki iā ʻoe ke mālama inā ʻaʻole ʻoe, kou makua (inā ʻaʻole ʻoe ma lalo o 18 makahiki) a i ʻole kekahi kahu mālama aupuni e hōʻailona i ka palapala ʻae.
Inā ʻaʻole ka ʻōlelo Pelekania kāu ʻōlelo mua a makemake ʻoe e loaʻa kahi unuhi ʻōlelo e wehewehe i nā pilikia a me nā pōmaikaʻi o ka mālama ʻana iā ʻoe ma mua o kou kau inoa ʻana i ka ʻae, e hōʻoia ʻoe e hōʻike i ka hui mālama ola pono ʻoe i kahi unuhi. Ma kahi e hiki ai, he mana'o maika'i ke kelepona i ka haukapila a i 'ole ke ke'ena ma mua o kou koho 'ana e ho'omaopopo iā ia e ho'onohonoho i ka unuhi.
Nā ʻano lāʻau lapaʻau
Nui nā ʻano like ʻole o ka lymphoma a me ka CLL, no laila, mai kāhāhā inā ʻokoʻa ka mālama ʻana i loaʻa iā ʻoe me ka lymphoma ʻē aʻe. ʻOiai inā loaʻa iā ʻoe ka subtype like o ka lymphoma, hiki ke ʻokoʻa ka hoʻololi ʻana o ka genetic ma waena o nā kānaka a pili i ka lāʻau lapaʻau e kūpono loa iā ʻoe.
Ma lalo ua hāʻawi mākou i kahi ʻike o kēlā me kēia ʻano lapaʻau. No ka heluhelu ʻana e pili ana i nā ʻano lapaʻau like ʻole, e kaomi i nā poʻomanaʻo ma lalo.
Inā loaʻa iā ʻoe kahi lymphoma e ulu lohi ana (indolent) a i ʻole CLL, ʻaʻole pono ʻoe e mālama. Akā, hiki i kāu kauka ke koho i kahi wati a kali.
ʻO ka huaʻōlelo kiaʻi a kali paha hiki ke alakaʻi hewa iki. ʻOi aku ka pololei o ka ʻōlelo ʻana i ka "mākaʻikaʻi ikaika", no ka mea e nānā pono kāu kauka iā ʻoe i kēia manawa. E ʻike mau ʻoe i ke kauka, a e hoʻāʻo ʻoe i ke koko a me nā hiʻohiʻona ʻē aʻe e hōʻoiaʻiʻo ai e noho olakino ʻoe, a ʻaʻole e ulu aʻe kou maʻi. Eia naʻe, inā ʻoi aku ka ʻino o kou maʻi, hiki iā ʻoe ke hoʻomaka i ka mālama ʻana.
I ka manawa hea ʻo Watch & Wait ke koho maikaʻi loa?
E nānā a kali paha ʻo ia ke koho maikaʻi loa iā ʻoe inā ʻaʻole nui kāu mau hōʻailona, a i ʻole nā mea pilikia e pono ai ka mālama wikiwiki.
He mea paʻakikī paha ka ʻike ʻana he ʻano maʻi kanesa kāu, akā ʻaʻole ʻoe e hana i kahi mea e hoʻopau ai. Ke kapa nei kekahi poʻe maʻi i kēia manawa "e kiaʻi a hopohopo", no ka mea hiki ke hōʻoluʻolu ʻaʻole e hana i kekahi mea e hakakā ai. Akā, he ala maikaʻi loa ka nānā ʻana a kali. ʻO ia hoʻi, ke ulu mālie nei ka lymphoma i mea e pōʻino ai ʻoe, a ke hakakā nei kou ʻōnaehana pale ponoʻī, a ke hana maikaʻi nei ka mālama ʻana i kāu lymphoma. No laila, ʻoiaʻiʻo, ke hana nui nei ʻoe i ke kaua ʻana i ka maʻi kanesa, a ke hana nei i kahi hana maikaʻi loa ma ia mea. Inā mālama kāu ʻōnaehana pale iā ia, ʻaʻole pono ʻoe i ke kōkua hou i kēia manawa.
No ke aha ʻaʻole pono ka lāʻau lapaʻau?
ʻO nā lāʻau lapaʻau ʻē aʻe e hiki ke hōʻeha iā ʻoe i ka maʻi a i ʻole ke kumu o nā hopena ʻaoʻao lōʻihi, ʻaʻole ia e kōkua i kēia manawa. Hōʻike ka noiʻi ʻaʻohe pōmaikaʻi o ka hoʻomaka ʻana i ka mālama ʻana, inā loaʻa iā ʻoe kahi lymphoma e ulu mālie a CLL a ʻaʻohe hōʻailona pilikia. ʻAʻole e pane maikaʻi kēia ʻano maʻi kanesa i nā koho lapaʻau o kēia manawa. ʻAʻole e hoʻomaikaʻi ʻia kou olakino, a ʻaʻole ʻoe e ola lōʻihi ma ka hoʻomaka ʻana i ka lāʻau lapaʻau ma mua. Inā hoʻomaka kāu lymphoma a i ʻole CLL e ulu nui, a i ʻole e loaʻa iā ʻoe nā hōʻailona mai kou maʻi, a laila hoʻomaka ʻoe i ka mālama ʻana.
Pono paha nā maʻi he nui e loaʻa i ka lāʻau lapaʻau e like me nā mea i helu ʻia ma lalo o kēia ʻaoʻao i kekahi manawa. Ma hope o kāu mālama ʻana, hiki iā ʻoe ke hele hou e nānā a kali. Eia nō naʻe, ʻaʻole pono i kekahi mau maʻi me nā lymphoma palaka.
I ka manawa hea ʻaʻole ʻo Watch & Wait ke koho maikaʻi loa?
He mea kūpono ke kiaʻi a kali inā loaʻa iā ʻoe kahi lymphoma lohi a i ʻole CLL, a ʻaʻole loaʻa nā hōʻailona pilikia. Hiki i kāu kauka ke koho e hāʻawi iā ʻoe i ka lāʻau lapaʻau inā ʻike ʻoe i kēia mau hōʻailona:
- ʻO nā hōʻailona B - ʻo ia hoʻi ka hoʻoheheʻe ʻana i ka wela o ka pō, ke kuni mau a me ka poho kaumaha ʻole
- Nā pilikia me kou helu koko
- ʻO ka pōʻino o ke kino a i ʻole ka iwi iwi ma muli o ka lymphoma
Pehea e mālama ai ke Kauka iaʻu i koʻu wā e kiaʻi ai a kali?
Makemake kāu kauka e ʻike mau iā ʻoe e nānā pono i kou holomua. E ʻike paha ʻoe iā lākou i kēlā me kēia 3-6 mahina, akā e hōʻike lākou iā ʻoe inā pono e ʻoi aku ka liʻiliʻi ma mua o kēia.
E noi aku lākou iā ʻoe e hoʻāʻo a hoʻāʻo e hōʻoia i ka ulu ʻole o ka lymphoma a i ʻole CLL. Hiki i kekahi o kēia mau ho'āʻo:
- nā ho'āʻo koko e nānā i kou ola kino
- he ho'āʻo kino e nānā inā loaʻa iā ʻoe nā ʻōpū lymph a i ʻole nā hōʻailona o ka holomua
- nā hōʻailona koʻikoʻi e pili ana i ke kahe koko, ka mahana, a me ka puʻuwai
- moʻolelo olakino - e nīnau kāu kauka e pili ana i kou manaʻo, a inā loaʻa iā ʻoe kekahi mau hōʻailona hou a ʻino paha
- CT a i ʻole PET scan e hōʻike i nā mea e hana nei i loko o kou kino.
Inā he pilikia kou ma waena o kāu koho ʻana, e ʻoluʻolu e kelepona i kāu hui lapaʻau ma ka haukapila a i ʻole ke keʻena kino e kūkākūkā i kēia mau mea. Mai kali a hiki i ka manawa e hiki mai ana no ka mea pono e hooponopono mua ia kekahi mau pilikia.
I ka manawa hea e hoʻopili ai au i kaʻu kauka?
Pono e hoʻomanaʻo ʻo ka nānā ʻana i kahi kali he ala maʻamau ia e mālama ai i ka lymphoma indolent a me CLL. Eia nō naʻe, inā ʻike ʻoe he pilikia ke ala 'uaki a kali', e ʻoluʻolu e kamaʻilio me kāu hui lapaʻau no ia mea. Hiki iā lākou ke wehewehe i ke kumu o ko lākou manaʻo ʻo ia ke koho maikaʻi loa no ʻoe, a hāʻawi i nā kākoʻo hou āu e pono ai.
Inā he pilikia kou ma waena o kāu koho ʻana, a i ʻole e loaʻa ana i nā hōʻailona hou a ʻoi aku paha ka maikaʻi, e ʻoluʻolu e kelepona i kāu hui lapaʻau ma ka haukapila. Mai kali a hiki i ka wā e hiki mai ana, no ka mea, pono e mālama mua ʻia kekahi mau pilikia a i ʻole nā hōʻailona āu e loaʻa ai.
Inā loaʻa iā ʻoe nā hōʻailona B, e hoʻopili i kāu hui lapaʻau, mai kali no kāu manawa hou.
Hiki ke hoʻohana ʻia ka radiotherapy e mālama i ka lymphoma, a i ʻole e hoʻomaikaʻi i kāu mau hōʻailona
Hoʻohana ʻia ka radiotherapy i nā kukui uila kiʻekiʻe (radiation), e pepehi i nā maʻi maʻi maʻi. Hiki ke hoʻohana ʻia ma ke ʻano he lapaʻau iā ia iho, a i ʻole me nā lāʻau lapaʻau ʻē aʻe e like me ka chemotherapy.
Aia nā kumu like ʻole e hiki ai i kāu kauka ke ʻōlelo aku i ka lāʻau lapaʻau no ʻoe. Hiki ke hoʻohana ʻia e mālama a hoʻōla paha i kekahi mau lymphoma mua, a i ʻole e hoʻomaikaʻi i nā hōʻailona. Hiki ke loaʻa kekahi mau hōʻailona e like me ka ʻeha a i ʻole nāwaliwali inā ʻoi aku ka nui o kou maʻi lymphoma, a i ʻole ke kau ʻana i kou mau aʻalolo a i ʻole ke kuamoʻo. I kēia hihia, hāʻawi ʻia ka radiation e hōʻemi i ke koko a hoʻomaha i ke kaomi. Akā naʻe, ʻaʻole i manaʻo ʻia e hoʻohana ʻia i mea lapaʻau.
Pehea e hana ai ka radiotherapy?
Hoʻopilikia ka X-ray i ka DNA o ka cell (ke genetic material o ke cell) i hiki ʻole ai i ka lymphoma ke hoʻoponopono iā ia iho. ʻO kēia ke kumu e make ai ke kelepona. He mau lā a he mau pule paha ma hope o ka hoʻomaka ʻana o ka mālama ʻana i ka radiation no ka make ʻana o nā cell. Hiki ke hoʻomau kēia hopena no kekahi mau mahina, no laila, ʻo nā mahina ma hope o kou hoʻopau ʻana i ka mālama ʻana, hiki ke hoʻopau ʻia nā cell lymphoma cancerous.
ʻO ka mea pōʻino, ʻaʻole hiki i ka radiation ke haʻi i ka ʻokoʻa ma waena o kāu mau maʻi maʻi a me nā mea maʻi ʻole. No laila, hiki iā ʻoe ke loaʻa i nā hopena ʻaoʻao e pili ana i kou ʻili a me kou kino kokoke i kahi āu e mālama ai i ka radiation. ʻO ka nui o nā ʻenehana radiation i kēia mau lā e ʻoi aku ka pololei o ka huli ʻana i ka maʻi kanesa, akā naʻe, no ka mea e pono ai ke hele ʻana o nā kukui X i kou ʻili a me nā ʻiʻo ʻē aʻe e hiki ai i ka lymphoma, hiki ke hoʻopilikia ʻia kēia mau wahi āpau.
Hiki i kāu kauka lapaʻau oncologist (ke kauka lapaʻau e hana ana me ka radiation) a i ʻole kahu hānai e hiki ke kamaʻilio me ʻoe e pili ana i nā hopena ʻaoʻao āu e loaʻa ai, ma muli o ka wahi o kou ʻōpū. Hiki iā lākou ke aʻo aku iā ʻoe i kekahi mau huahana ʻili maikaʻi e mālama ai i nā ʻeha ʻili āu e loaʻa ai.
Nā ʻano o ka radiotherapy
Aia nā ʻano like ʻole o ka radiotherapy, a ʻo kāu mea e pili ana i kahi o kou kino e loaʻa ai ka lymphoma, ke keʻena kahi āu e mālama ai, a me ke kumu e loaʻa ai ʻoe i ka lāʻau lapaʻau. Aia ma lalo iho nei kekahi mau ʻano o ka lāʻau lapaʻau.
ʻO ka radiotherapy-modulated ikaika (IMRT)
ʻAe ʻo IMRT e hāʻawi i nā ʻāpana like ʻole o ka radiotherapy i nā wahi like ʻole o ka wahi e mālama ʻia. Hiki iā ia ke hōʻemi i nā hopena ʻaoʻao me nā hopena hope. Hoʻohana pinepine ʻia ʻo IMRT no ka mālama ʻana i ka maʻi maʻi e pili kokoke ana i nā kino koʻikoʻi a me nā hale.
ʻO ka lāʻau lapaʻau i komo pū ʻia (IFRT)
Mālama ʻo IFRT i kahi ʻāpana lymph node holoʻokoʻa, e like me nā puʻupuʻu lymph ma kou ʻāʻī a i ʻole ka ʻāʻī.
Hoʻopili ʻia-node radiotherapy (INRT)
Hoʻomaʻamaʻa ʻo INRT i nā ʻōpū lymph i hoʻopilikia ʻia a me ka palena liʻiliʻi a puni.
Ka nui o ke kino o ke kino (TBI)
Hoʻohana ʻo TBI i ka radiotherapy ikehu kiʻekiʻe i kou kino holoʻokoʻa. Hiki ke hoʻohana ʻia ma ke ʻano he ʻāpana o kāu lapaʻau ʻana ma mua o ka hoʻololi ʻana i ke ʻano o nā pūnaʻi allogeneic (donor) e hoʻopau i kou iwi iwi. Hana ʻia kēia i mea e hoʻokaʻawale ai i nā pūnaewele hou. Ma muli o ka luku ʻana i kou iwi iwi, hiki i ka TBI ke hoʻopilikia i kāu ʻōnaehana pale e hoʻonui iā ʻoe i nā maʻi.
ʻO ka radiotherapy electron ʻili holoʻokoʻa
He hana kūikawā kēia no ka lymphoma o ka ʻili (cutaneous llymphomas). Hoʻohana ia i nā electrons e mālama i kou ʻili āpau.
ʻO ka lāʻau lapaʻau proton beam (PBT)
Hoʻohana ʻo PBT i nā protons ma kahi o nā kukui X. Hoʻohana ka proton i kahi ʻāpana ikaika i hoʻopiʻi maikaʻi ʻia e luku i nā maʻi maʻi maʻi. Hiki i ka kukuna radiation mai PBT ke hoʻopaʻa pololei i nā cell, no laila kōkua ia i ka pale ʻana i nā ʻiʻo olakino a puni ka ʻōpū.
ʻO ka mea e manaʻo ai
Hana ʻia ka radiotherapy ma nā keʻena mālama maʻi kanesa. E loaʻa iā ʻoe kahi kau hoʻolālā mua, kahi e hiki ai i ka lāʻau lapaʻau ke kiʻi i nā kiʻi, CT scans, a hana pololei i ke ʻano o ka hoʻolālā ʻana i ka mīkini radiation e hoʻopaʻa i kāu lymphoma.
E loaʻa iā ʻoe kekahi loea ʻē aʻe i kapa ʻia ʻo Dosimetrist, nāna e hoʻolālā i ka nui o ka radiation i loaʻa iā ʻoe me kēlā me kēia lapaʻau.
Nā peʻa uila
E hāʻawi ka poʻe lapaʻau lapaʻau iā ʻoe i nā nila liʻiliʻi e hana i nā freckle liʻiliʻi e like me nā peʻa ma kou ʻili. Hana ʻia kēia i mea e hoʻopaʻa pono ai lākou iā ʻoe i loko o ka mīkini i kēlā me kēia lā i hiki mau ai ka radiation i kou lymphoma a ʻaʻole i nā wahi ʻē aʻe o kou kino. ʻO kēia mau peʻa liʻiliʻi he mau loa, a ke nānā aku nei kekahi poʻe iā lākou i mea hoʻomanaʻo i nā mea i lanakila ai lākou. Makemake paha kekahi e hoʻohui iā lākou e hana i mea kūikawā.
Eia naʻe, ʻaʻole makemake nā mea a pau i kahi hoʻomanaʻo. Hāʻawi kekahi mau hale kūʻai peʻa i ka wehe ʻana i ka peʻa manuahi no ka poʻe i loaʻa iā lākou no nā kumu olakino. E kelepona wale a i ʻole e komo i loko o kou hale peʻa kūloko a nīnau.
ʻO nā mea a pau āu e koho ai e hana me kāu peʻa - mai hoʻololi a hiki i kou wā e kamaʻilio ai me kāu kauka e pili ana i ka manawa maikaʻi loa e hoʻohui ai, a wehe paha iā lākou.
ʻEhia mau manawa e loaʻa iaʻu ka lāʻau lapaʻau??
Hoʻokaʻawale ʻia ke ʻano o ka radiation i kekahi mau lāʻau lapaʻau. ʻO ka maʻamau, e hele ʻoe i loko o ke keʻena radiation i kēlā me kēia lā (Poakahi a Pōʻalima) no 2 a 4 pule. Hana ʻia kēia no ka mea e hiki ai i kāu mau sela olakino ke hoʻōla hou i waena o nā lāʻau lapaʻau. Hiki iā ia ke hoʻopau i nā pūnaʻi maʻi maʻi ʻē aʻe.
ʻO kēlā me kēia kau he 10-20 mau minuke. ʻO ka mālama ʻana iā ia iho he 2 a i ʻole 3 mau minuke. ʻO ke koena o ka manawa e hōʻoiaʻiʻo ana ʻoe i ke kūlana kūpono a ua hoʻonohonoho pono ʻia nā kukui X-ray. Haʻalulu ka mīkini, akā ʻaʻole ʻoe e ʻike i kekahi mea i ka wā mālama.
He aha ka nui o ka radiation e loaʻa iaʻu?
Ana ʻia ka nui o ka nui o ka radiotherapy ma kahi ʻāpana i kapa ʻia ʻo Gray (Gy). Ua māhele ʻia ka Gray i nā ʻano lapaʻau ʻokoʻa i kapa ʻia ʻo 'fractions'.
ʻO kou ʻāhinahina piha a me ke ʻano o ka hana ʻana i nā hakina e pili ana i kāu ʻano subtype, kahi a me ka nui o kou ʻōpū. Hiki i kāu kauka lāʻau lapaʻau ke kamaʻilio hou aku iā ʻoe e pili ana i ka nui a lākou e kuhikuhi ai iā ʻoe.
Nā hopena ʻaoʻao o ka lāʻau lapaʻau
ʻO nā hoʻololi i kou ʻili a me ka luhi nui ʻaʻole i hoʻomaikaʻi ʻia me ka hoʻomaha ʻana (ka luhi) nā hopena ʻaoʻao maʻamau no nā poʻe he nui i loaʻa i ka lāʻau lapaʻau. Hiki i nā hopena ʻaoʻao ʻē aʻe ke hilinaʻi ma kahi o kou kino e ʻimi nei ka radiation.
ʻO nā hopena ʻaoʻao o ka lāʻau lapaʻau e pili pinepine ana i nā ʻili ʻili ma luna o ka ʻāpana o kou kino i loaʻa i ka lāʻau. ʻO ka luhi kekahi hopena ʻaoʻao maʻamau no kēlā me kēia e lapaʻau. Akā aia kekahi mau hopena ʻaoʻao ʻē aʻe e hilinaʻi ʻia ana i ka wahi o ka mālama ʻana - a i ʻole ʻāpana o kou kino i loaʻa ka lymphoma e mālama ʻia.
ʻili ʻili
ʻO ka hopena o ka ʻili e like paha me ka wela ʻino o ka lā a, ʻoiai hiki ke hoʻoulu i kekahi pohū a me ka "laina tan" mau loa ʻaʻole ia he kuni maoli. He ʻano ia o ka dermatitis a i ʻole ka hopena o ka ʻili ʻili e kū wale ana ma luna o ka ʻili ma luna o ka wahi i mālama ʻia.
Hiki ke hoʻomau ka ʻino o ka ʻili i kekahi manawa ma kahi o 2 pule ma hope o ka pau ʻana o ka mālama ʻana, akā pono e hoʻomaikaʻi i loko o hoʻokahi mahina o ka hoʻopau ʻana i ka mālama ʻana.
Hiki i kāu hui radiation ke kamaʻilio me ʻoe e pili ana i ke ala maikaʻi loa e hoʻokele ai i kēia mau ʻili ʻili a me nā huahana e like me ka moisturizer a i ʻole ka ʻaila e kūpono loa iā ʻoe. Eia nō naʻe, hiki i kekahi mau mea ke kōkua:
- ʻAʻahu ʻahuʻula
- Ke hoʻohana nei i ka lole moe maikaʻi
- ʻO ka pauka holoi maʻemaʻe i kāu mīkini holoi - ua hoʻolālā ʻia kekahi no ka ʻili paʻakikī
- Holoi mālie i kou ʻili me nā mea ʻokoʻa "kopa manuahi", a i ʻole kahi kopa maʻalahi
- ʻauʻau ʻauʻau pōkole a mehana paha
- Ke pale nei i nā huahana waiʻona ma ka ʻili
- E pale i ka hamo ʻana i ka ʻili
- E mālama mālie i kou ʻili
- E uhi i waho, a pale aku i ka lā ma kāu wahi i mālama ʻia inā hiki. E hoʻohana i ka pāpale a me ka pale lā i waho
- E pale i nā loko ʻauʻau
'Oloke
ʻO ka luhi ka manaʻo o ka luhi loa ma hope o ka hoʻomaha. Hiki i kēia ke kumu ma muli o ke koʻikoʻi o kou kino i ka wā o ka mālama ʻana, a me ka hoʻāʻo ʻana e hana i nā sela olakino hou, nā lāʻau lapaʻau i kēlā me kēia lā, a me ke kaumaha o ka noho ʻana me ka lymphoma a me kāna mau lapaʻau.
Hiki ke hoʻomaka koke ka luhi ma hope o ka hoʻomaka ʻana o ka mālama ʻana i ka radiation, a mau no kekahi mau pule ma hope o ka pau ʻana.
ʻO kekahi mau mea e hiki ke kōkua iā ʻoe e hoʻokele i kou luhi hiki ke komo:
- E hoʻolālā i mua inā loaʻa ka manawa, a i ʻole e noi i nā mea aloha e hoʻomākaukau i nā meaʻai ma mua e pono ai ʻoe e wela. Hiki i nā meaʻai protein kiʻekiʻe e like me ka ʻiʻo ʻulaʻula, nā hua manu a me nā lau ʻōmaʻomaʻo lau ke kōkua i kou kino e hana i nā mea ola olakino hou.
- Ua hōʻike ʻia ka hoʻomaʻamaʻa māmā i ka hoʻomaikaʻi ʻana i ka pae ikehu a me ka luhi, no laila hiki ke hoʻoikaika i ka hana me ka nele o ka ikehu a me ka hiamoe.
- E hoʻolohe i kou kino a hoʻomaha i ka wā e pono ai
- E hahai i kou luhi, inā ʻike ʻoe ʻoi aku ka maʻamau i kekahi manawa o ka lā, hiki iā ʻoe ke hoʻolālā i nā hana a puni ia
- E mālama i kahi ʻano moe maʻamau - inā paha ʻoe e luhi, e hoʻāʻo e moe a ala i kou manawa maʻamau. Hiki i nā lāʻau lapaʻau kōkua ke kōkua me ka hoʻomaha hoʻomaha, yoga, noʻonoʻo, a me ka noʻonoʻo.
- E pale i ka pilikia inā hiki.
I kekahi mau hihia, pilikia paha nā kumu ʻē aʻe e like me ka helu koko haʻahaʻa. Inā ʻo ia ka hihia, hiki ke hāʻawi ʻia iā ʻoe i ke kahe koko e hoʻomaikaʻi i kāu helu koko.
He mea nui e hōʻike i kāu kauka inā ʻoe e hakakā nei me ka luhi.
Hiki ke komo i nā hopena ʻaoʻao ʻē aʻe:
- ʻO ka lauoho lauoho - akā i kahi wale nō e mālama ʻia
- 'O Nausea
- ʻO ka ʻōpū a i ʻole ka ʻōpū o ka ʻōpū
- ʻAha - i kou mau kino kokoke i ke kahua e mālama ʻia nei
Hāʻawi ka wikiō ma lalo o kēia ʻano ʻano lapaʻau i ka ʻike hou aku e pili ana i ka mea e manaʻo ai me ka lapaʻau radiation me nā hopena ʻaoʻao.
Ua hoʻohana ʻia ka chemotherapy (chemo) e mālama i ka maʻi kanesa no nā makahiki he nui. Aia nā ʻano lāʻau chemo like ʻole a loaʻa paha iā ʻoe ma mua o hoʻokahi ʻano o ka chemotherapy e mālama ai i kāu CLL a i ʻole lymphoma. ʻO nā hopena ʻaoʻao āu e loaʻa ai e hilinaʻi ia i nā lāʻau lapaʻau chemotherapy āu e loaʻa ai.
Pehea ka hana ʻana o ka chemo?
Hana ʻia ka Chemotherapy ma ka hoʻouka ʻana i nā cell e ulu wikiwiki ana. ʻO ia ke kumu e hana maikaʻi ai ia no nā lymphomas ikaika - a ulu wikiwiki paha. Eia nō naʻe, ʻo ia ka hana e kūʻē i nā cell ulu wikiwiki e hiki ke hoʻoulu i nā hopena ʻaoʻao i makemake ʻole ʻia i kekahi poʻe, e like me ka lauoho lauoho, nā ʻeha waha a me ka ʻeha (mucositis), nausea a me ka maʻi maʻi.
No ka mea hiki i ka chemo ke hoʻopili i kekahi cell e ulu wikiwiki ana, a ʻaʻole hiki ke haʻi i ka ʻokoʻa ma waena o nā sela olakino a me nā sela lymphoma cancerous - ua kapa ʻia ʻo ia he "systemic treatment", ʻo ia hoʻi, hiki ke hoʻopili ʻia kekahi ʻōnaehana o kou kino e nā hopena ʻaoʻao i hana ʻia e ka chemo.
Hoʻopiʻi nā chemotherapies like ʻole i ka lymphoma ma nā pae like ʻole o ka ulu ʻana. Ke hoʻouka nei kekahi mau mea maʻi maʻi maʻi maʻi maʻi maʻi maʻi e hoʻomaha ana, hoʻouka kekahi i nā mea e ulu hou ana, a hoʻouka kekahi i nā sela lymphoma nui loa. Ma ka hāʻawi ʻana i nā chemo's e hana ana i nā cell i nā pae like ʻole, aia ka hiki ke pepehi i nā mea lymphoma hou aʻe a loaʻa ka hopena maikaʻi aʻe. Ma ka hoʻohana ʻana i nā chemotherapies ʻē aʻe, hiki iā mākou ke hoʻohaʻahaʻa liʻiliʻi i nā doses ʻo ia hoʻi ka liʻiliʻi o nā hopena ʻaoʻao mai kēlā me kēia lāʻau lapaʻau, ʻoiai e loaʻa ana ka hopena maikaʻi loa.
Pehea ka hāʻawi ʻia ʻana o ka chemo?
Hiki ke hāʻawi ʻia ke kemo ma nā ʻano like ʻole, ma muli o kāu ʻano subtype a me ke kūlana. ʻO kekahi mau ala e hiki ai i ka chemo ke hāʻawi:
- Intravenously (IV) - ma o ka kulu ʻana i kou vein (mea maʻamau).
- ʻO nā papa waha, capsules a wai paha - lawe ʻia e ka waha.
- Intrathecal – hāʻawi ʻia iā ʻoe e ke kauka me ka nila i loko o kou kua, a i loko o ka wai e hoʻopuni ana i kou kuamoʻo a me kou lolo.
- Subcutaneous - he injection (needle) i hāʻawi ʻia i loko o ka ʻiʻo momona ma lalo o kou ʻili. Hāʻawi pinepine ʻia i loko o kou ʻōpū (wahi o ka ʻōpū) akā hiki ke hāʻawi ʻia i loko o kou lima a i ʻole wāwae.
- Topical - hiki ke mālama ʻia kekahi mau lymphoma o ka ʻili (cutaneous) me ka ʻaila hoʻomaʻemaʻe.
He aha ke kaʻina chemotherapy?
Hāʻawi ʻia ka Chemotherapy ma nā "cycles", ʻo ia hoʻi e loaʻa iā ʻoe kāu chemo i hoʻokahi lā a ʻoi aku paha, a laila e hoʻomaha no ʻelua a ʻekolu pule ma mua o ka loaʻa ʻana o ka chemo hou. Hana ʻia kēia no ka mea e pono ana kāu mau cell olakino e hoʻōla hou ma mua o ka loaʻa ʻana o ka lāʻau lapaʻau hou aku.
E hoʻomanaʻo ma luna aʻe a mākou i ʻōlelo ai he hana kemo ma ka hoʻouka ʻana i nā cell ulu wikiwiki. Hiki i kekahi o kāu mau mea ulu wikiwiki ke hoʻokomo pū i kāu mau keena koko olakino. Hiki ke haʻahaʻa kēia mau mea ke loaʻa iā ʻoe ka chemo.
ʻO ka nūhou maikaʻi, ʻoi aku ka wikiwiki o kou ola kino ma mua o kāu mau sela lymphoma. No laila, ma hope o kēlā me kēia pōʻai - a i ʻole ka pōʻai o ka mālama ʻana, e hoʻomaha ʻoe i ka hana ʻana o kou kino e hana i nā sela maikaʻi hou. Ke hoʻi hou kēia mau pūnaewele i kahi pae palekana, e loaʻa iā ʻoe ka pōʻaiapuni aʻe - ʻo ia ka maʻamau ʻelua a ʻekolu paha pule ma muli o ke ʻano o ka protocol āu e loaʻa nei, akā, inā lōʻihi kou ola hou ʻana, hiki i kāu kauka ke ʻōlelo i kahi hoʻomaha lōʻihi. Hiki iā lākou ke hāʻawi i kekahi mau lāʻau kākoʻo e kōkua i kāu mau cell maikaʻi e ola hou. Hiki ke ʻike hou aku i ka ʻike e pili ana i nā lāʻau kākoʻo ma lalo o kēia ʻaoʻao.
ʻIke hou aku e pili ana i nā protocols lapaʻau a me kā lākou hopena ʻaoʻao
Ma muli o kāu ʻano liʻiliʻi o ka lymphoma hiki iā ʻoe ke ʻehā, ʻeono a ʻoi aʻe paha. Ke hui pū ʻia kēia mau pōʻaiapuni a pau, ua kapa ʻia ʻo kāu protocol a i ʻole regimen. Inā ʻike ʻoe i ka inoa o kāu protocol chemotherapy, hiki iā ʻoe e ʻike i ka ʻike hou aku, me nā hopena ʻaoʻao i manaʻo ʻia ma ia mea ma aneʻi.
No ka ʻike hou aku e pili ana i ka chemotherapy, kaomi i ke pihi ma lalo o ka ʻano ʻano lapaʻau e nānā i kahi wikiō pōkole.
Ua hoʻohana mua ʻia nā antibodies monoclonal (MAB) e mālama i ka lymphoma i ka hopena o nā makahiki 1990. Eia naʻe, i nā makahiki i hala iho nei, ua hoʻomohala ʻia nā antibodies monoclonal hou aʻe. Hiki iā lākou ke hana pololei e kūʻē i kāu lymphoma a i ʻole e huki i kāu mau pūnaewele ponoʻī i kāu mau sela lymphoma e hoʻouka a pepehi iā ia. Maʻalahi ka ʻike ʻana i nā MAB no ka mea ke hoʻohana ʻoe i ko lākou inoa maʻamau (ʻaʻole ko lākou inoa inoa), hoʻopau mau lākou me nā huaʻōlelo ʻekolu "mab". ʻO nā laʻana o nā MAB i hoʻohana mau ʻia e mālama i ka lymphoma me rituximab, obinutuzumab, pembrolizumab.
Hoʻohana ʻia kekahi mau MAB, e like me rituximab a me obinutuzumab ma ka ʻaoʻao chemo e mālama i kāu lymphoma. Akā hoʻohana pinepine ʻia lākou e like me kahi “mālama” lapaʻau. ʻO kēia ka manawa i pau ai kāu mālama mua ʻana a loaʻa ka pane maikaʻi. A laila hoʻomau ʻoe i ka MAB wale nō no ʻelua makahiki. Kōkua kēia i ka mālama ʻana i kāu lymphoma i ke kala ʻana no ka manawa lōʻihi.
Pehea e hana ai nā antibodies monoclonal?
Hoʻohana wale nā antibodies monoclonal e kūʻē i ka lymphoma inā loaʻa iā lākou nā protein kikoʻī a i ʻole nā mea hoʻopaʻa palekana ma luna o lākou. ʻAʻole loaʻa kēia mau hōʻailona lymphoma a pau, a hoʻokahi wale nō hōʻailona o kekahi, a ʻoi aku ka nui o kekahi. ʻO nā hiʻohiʻona o kēia mau mea he CD20, CD30 a me PD-L1 a i ʻole PD-L2. Hiki i nā antibodies monoclonal ke hakakā i kou kanesa ma nā ʻano like ʻole:
Direct
Hoʻopili kino
Ke hana nei nā MAB e pili ana i ka immune ma ka hoʻopili ʻana iā lākou iho i kāu mau keena lymphoma a me ka huki ʻana i nā cell ʻē aʻe o kāu ʻōnaehana pale i ka lymphoma. Hiki i kēia mau pūnaewele immune ke hoʻouka pololei i ka lymphoma.
ʻO nā hiʻohiʻona o nā MAB pili pololei a pale ʻole i hoʻohana ʻia e mālama i ka lymphoma a i ʻole CLL rituximab a obinutuzumab.
ʻO nā mea hoʻopaʻa hoʻopaʻa kino
He ʻano hou o ka antibody monoclonal i hoʻopaʻa pono i kāu ʻōnaehana pale.
ʻO kekahi mau maʻi maʻi maʻi, ʻo ia hoʻi kekahi mau mea lymphoma e hoʻololi i ka ulu ʻana i nā "immune checkpoints" ma luna o lākou. ʻO nā wahi hoʻopaʻa palekana he ala ia e ʻike ai kāu mau kelepona iā lākou iho he "cell-self" maʻamau. ʻO ia hoʻi ke ʻike nei kāu ʻōnaehana pale i ka wahi hoʻopaʻa immune, a manaʻo ʻoe he cell olakino ka lymphoma. No laila ʻaʻole hoʻouka kāu ʻōnaehana pale i ka lymphoma, akā e ʻae iā ia e ulu.
ʻO nā laʻana o nā mea hoʻopaʻa hoʻopaʻa i hoʻohana ʻia e mālama i ka lymphoma pembrolizumab a nivolumab.
Hoʻopili ʻia nā mea hoʻopaʻa hoʻopaʻa kino i ka wahi hoʻopaʻa immune ma kāu keena lymphoma i ʻike ʻole ai kou ʻōnaehana pale i ka wahi nānā. ʻAe kēia i kāu ʻōnaehana pale e ʻike i ka lymphoma ma ke ʻano he kanesa, a hoʻomaka e hakakā.
ʻOiai he MAB, ʻo Immune Checkpoint Inhibitors kekahi ʻano o ka immunotherapy, no ka mea, hana lākou ma ka huli ʻana i kāu ʻōnaehana pale.
Hiki ke alakaʻi i kekahi mau hopena ʻaoʻao ʻaoʻao mai ka pale ʻana i ka pale ʻana i nā hoʻololi mau e like me nā pilikia thyroid, ka maʻi diabetes Type 2 a i ʻole nā pilikia fertility. Pono paha e mālama ʻia kēia me nā lāʻau lapaʻau ʻē aʻe a i ʻole me kekahi kauka loea ʻē aʻe. E kamaʻilio me kāu kauka e pili ana i nā pilikia me ka mālama ʻana.
Cytokine inhibitors
ʻOiai he MAB, ʻo Cytokine Inhibitors kekahi ʻano o ka immunotherapy, no ka mea, hana lākou ma ka huli ʻana i kāu ʻōnaehana pale.
Hiki i kekahi mau hopena ʻaoʻao mai ka cytokine inhibitors ke alakaʻi i nā loli mau e like me nā pilikia thyroid, diabetes Type 2 a i ʻole nā pilikia fertility. Pono paha e mālama ʻia kēia me nā lāʻau lapaʻau ʻē aʻe a i ʻole me kekahi kauka loea ʻē aʻe. E kamaʻilio me kāu kauka e pili ana i nā pilikia me ka mālama ʻana.
ʻO nā antibodies monoclonal Bispecific
Hoʻohui
Nāʻike hou
Nā hopena ʻaoʻao o nā antibodies Monoclonal (MABs)
- ʻO ke kuni, ke anu a me ka haʻalulu (koʻikoʻi)
- ʻEha nā ʻeha a me nā ʻeha
- Kōkua
- ʻAhu ma luna o kou ʻili
- Nausea a luaʻi paha
- Ke koko haʻahaʻa (hypotension)
- Nā hōʻailona like Flu.
ʻO ka Immunotherapy kahi huaʻōlelo i hoʻohana ʻia no nā lāʻau lapaʻau e pili ana i kāu ʻōnaehana pale ma mua o kāu lymphoma. Hana lākou i kēia e hoʻololi i kahi mea e pili ana i ke ʻano o ka ʻike a me ka hakakā ʻana i kāu lymphoma.
Hiki ke noʻonoʻo ʻia nā ʻano lapaʻau like ʻole immunotherapy. ʻO kekahi mau MAB i kapa ʻia ʻo Immune Checkpoint Inhibitors a i ʻole Cytokine Inhibitors he ʻano o ka immunotherapy. Akā ʻo nā lāʻau lapaʻau ʻē aʻe e like me kekahi mau mea lapaʻau i manaʻo ʻia a i ʻole CAR T-cell therapy kekahi ʻano o ka immunotherapy.
Ke ulu nei kekahi mau pūniu lymphoma me kahi hōʻailona kikoʻī ma ke kelepona i loaʻa ʻole i kāu mau sela olakino. ʻO nā lāʻau lapaʻau i hoʻopaʻa ʻia he mau lāʻau e ʻike wale i kēlā māka kikoʻī, no laila hiki iā ia ke haʻi i ka ʻokoʻa ma waena o ka lymphoma a me nā cell olakino.
Hoʻopili nā lāʻau lapaʻau i hoʻopaʻa ʻia i ka marker ma ka cell lymphoma a kāpae iā ia mai ka loaʻa ʻana o nā hōʻailona e ulu a palahalaha. ʻO kēia ka hopena i ka hiki ʻole i ka lymphoma ke loaʻa nā meaʻai a me ka ikehu e pono ai ke ulu, e hopena i ka make ʻana o ka cell lymphoma.
Ma ka hoʻopili wale ʻana i nā hōʻailona ma nā pūnaewele lymphoma, hiki i ka lāʻau lapaʻau ke pale aku i ka hōʻino ʻana i kāu mau sela olakino. Loaʻa kēia i nā hopena ʻaoʻao liʻiliʻi ma mua o ka mālama ʻana i nā ʻōnaehana e like me chemo, ʻaʻole hiki ke haʻi i ka ʻokoʻa ma waena o ka lymphoma a me nā cell olakino.
Nā hopena ʻaoʻao o ka lāʻau lapaʻau
Hiki iā ʻoe ke loaʻa i nā hopena ʻaoʻao mai ka therapy targeted. Hiki ke like kekahi me nā hopena ʻaoʻao no nā lāʻau lapaʻau anti-cancer, akā mālama ʻia ʻokoʻa. E ʻoluʻolu e kamaʻilio me kāu kauka a kahu kahu kūikawā paha e pili ana i nā hopena ʻaoʻao e nānā ai, a me kāu e hana ai inā loaʻa iā ʻoe.
Hiki ke komo i nā hopena ʻaoʻao maʻamau o ka lāʻau lapaʻau:
- diarrhea
- ʻeha kino a ʻeha
- ke koko a me ka eha
- maʻiʻaʻai
- nāwaliwali
Nui nā lāʻau lapaʻau i hoʻopaʻa ʻia, kekahi mau chemotherapies a me nā immunotherapies e lawe ʻia e ka waha ma ke ʻano he papa a i ʻole capsule. ʻO nā lāʻau anti-cancer i lawe ʻia e ka waha i kapa ʻia ʻo "oral therapies". He mea nui e ʻike inā he lāʻau lapaʻau i hoʻopaʻa ʻia kāu lāʻau waha a i ʻole ka chemotherapy. Inā ʻaʻole maopopo ʻoe e nīnau i kāu kauka a kahu hānai paha.
E ʻokoʻa nā hopena ʻaoʻao āu e nānā ai, a pehea ʻoe e hoʻokele ai iā lākou e like me ke ʻano o ka lāʻau lapaʻau waha āu e lawe nei.
Aia ma lalo nei kekahi mau lāʻau lapaʻau waha maʻamau i hoʻohana ʻia no ka mālama ʻana i ka lymphoma.
Nā lāʻau lapaʻau waha – Chemotherapy
Ka inoa lāʻau | ʻO nā hopena ʻaoʻao maʻamau |
ʻO Chlorambucil | ʻO ka helu haʻahaʻa Hoʻoponopono Nausea & luaʻi Kōkua |
Cyclophosphamide | ʻO ka helu haʻahaʻa Hoʻoponopono Nausea & luaʻi Pau ka maʻi |
Holapaau | Nausea & luaʻi Pau ka maʻi Kōkua 'Oloke |
ʻO ka lāʻau lapaʻau waha - Hoʻolālā a me ka Immunotherapy
Ka inoa lāʻau | Kuhi ʻia a i ʻole immunotherapy | Hoʻohana ʻia nā subtypes o Lymphoma / CLL | Nā hopena ʻaoʻao nui |
ʻO Acalabrutinib | Manaʻo ʻia (BTK Inhibitor) | Heʻeha Kōkua ʻO ka waiwai loaʻa | |
| Zanubrutinib | Manaʻo ʻia (BTK Inhibitor) | ʻO ka helu haʻahaʻa Hāmeʻa Kōkua | |
Ibrutinib | Manaʻo ʻia (BTK Inhibitor) |
| Nā pilikia puʻuwai puʻuwai Nā pilikia pilikia Nā maʻi maʻi koko kiʻekiʻe |
ʻO Idelalisib | Kuhi ʻia (Pl3K Inhibitor) | Kōkua Nā pilikia ulu Nā pilikia o ka māmā Ka maʻi maʻi | |
Lenalidomide | immunotherapy | Hoʻohana ʻia i kekahi NHL | Paheʻe kaʻili 'O Nausea Kōkua |
Venetoclax | Kuhi ʻia (BCL2 Inhibitor) | 'O Nausea Kōkua Nā pilikia pilikia Hoʻoponopono | |
ʻO Vorinostat | Kuhi ʻia (HDAC Inhibitor) | Pau ka maʻi maloo waha Pau ka lauoho Infections | |
He aha ke ʻano o ke kōkō?
No ka hoʻomaopopo ʻana i ka hoʻololi ʻana o ka pūnaʻi a i ʻole ka iwi iwi, pono ʻoe e hoʻomaopopo i ke ʻano o ke ʻano o ka stem cell.
ʻO nā pūnaewele puʻupuʻu he mau koko ʻoi loa ka ulu ʻana i loko o kou iwi iwi. He mea koʻikoʻi lākou no ka mea hiki iā lākou ke hoʻomohala i loko o kēlā me kēia cell koko e pono ai kou kino, e like me:
- nā koko ʻulaʻula - e lawe i ka oxygen a puni kou kino
- kekahi o kou mau koko keʻokeʻo me kou lymphocytes a me nā neutrophils e pale aku iā ʻoe mai ka maʻi a me ka maʻi
- platelets - e kōkua ana i kou koko e hoʻopaʻa ʻia inā ʻeha ʻoe iā ʻoe iho, no laila ʻaʻole ʻoe e kahe nui a ʻeha paha.
Hana ko mākou kino i mau piliona pūnaewele hou i kēlā me kēia lā no ka mea ʻaʻole i hana ʻia ko mākou mau koko e ola mau loa. No laila i kēlā me kēia lā, ke hana ikaika nei ko mākou kino e mālama i ko mākou mau koko i ka helu kūpono.
He aha ke ʻano o ka hoʻololi ʻana i ka ʻōpū a i ʻole ka iwi iwi?
ʻO ka hoʻololi ʻana i ke kelepona he hana ia e hoʻohana ʻia e mālama i kāu lymphoma, a i ʻole e hoʻomau i ke kala ʻana no ka lōʻihi inā nui ka manawa e hoʻi hou ai kāu lymphoma (e hoʻi mai). Hiki nō hoʻi i kāu kauka ke ʻōlelo aku i kahi transplant cell stem no ʻoe ke hoʻi hou kāu lymphoma.
ʻO ka transplant cell stem kahi hana paʻakikī a invasive e hana ʻia i nā pae. Hoʻomākaukau mua ʻia nā poʻe maʻi e hoʻololi ana i ka stem cell me ka chemotherapy wale nō a i hui pū ʻia me ka radiotherapy. Hāʻawi ʻia ka lāʻau lapaʻau chemotherapy i hoʻohana ʻia i ka hoʻololi ʻana o ke kelepona stem ma nā ʻano kiʻekiʻe ma mua o ka maʻamau. ʻO ke koho o ka chemotherapy i hāʻawi ʻia i kēia kaʻina e pili ana i ke ʻano a me ka manaʻo o ka transplant. ʻEkolu mau wahi e hōʻiliʻili ʻia ai nā pūnaewele kumu no ka transplant:
ʻO nā pūnaewele iwi: ʻohi pololei ʻia nā pūnaʻi kumu mai ka iwi iwi a kapa ʻia ʻo a 'O ka ho'ololi 'ana i ka iwi iwi' (BMT).
ʻO nā pūnaewele pūʻali pili: hōʻiliʻili ʻia nā pūnaʻi kumu mai ke koko ʻokoʻa a kapa ʻia kēia a 'O ka ho'ololi 'ana o ke koko koko pili' (PBSCT). ʻO kēia ke kumu maʻamau o nā pūnaewele i hoʻohana ʻia no ka hoʻololi ʻana.
Koko kaula: hōʻiliʻili ʻia nā pūnaʻi kumu mai ke kaula umbilical ma hope o ka hānau ʻana o kahi hānau hou. Kapa ʻia kēia a 'hoihoi koko kaula', kahi i emi iki ai keia mau mea ma mua o ka ho'ololi 'ana o ka iwi iwi.
ʻIke hou aku e pili ana i nā Stem Cell Transplants
No ka ʻike hou aku e pili ana i ka transplant cell stem e ʻike i kā mākou ʻaoʻao pūnaewele.
Ka hoʻololi ʻana o nā pūnaʻi kumu - he hiʻohiʻona
ʻO ka hoʻololi ʻana o nā pūnaʻi pūʻali autologous - me ka hoʻohana ʻana i kāu mau pūnaewele ponoʻī
Ka hoʻololi ʻana o nā pūnaʻi kumu allogeneic – ka hoʻohana ʻana i nā pūnaewele kumu a kekahi mea ʻē aʻe
He lāʻau lapaʻau hou ʻo CAR T-cell therapy e hoʻohana a hoʻonui i kāu ʻōnaehana pale ponoʻī e hakakā i kāu lymphoma. Loaʻa ia no nā poʻe me kekahi ʻano lymphoma e like me:
- ʻO ka Lymphoma B-Cell Mediastinal mua (PMBCL)
- ʻO Lymphoma B-Cell Large B-Cell Lymphoma (DLBCL) i hoʻihoʻi hou ʻia.
- ʻO Lymphoma Follicular Transformed (FL)
- B-cell Acute Lymphoblastic Lymphoma (B-ALL) no ka poʻe 25 makahiki a ʻoi paha
ʻO kēlā me kēia kanaka ma Australia me kahi subtype kūpono o lymphoma, a kūpono i nā koina e pono ai ke loaʻa iā CAR T-cell therapy. Eia nō naʻe, no kekahi poʻe, pono ʻoe e hele a noho i kekahi kūlanakauhale nui a i ʻole i kahi mokuʻāina ʻē aʻe e komo i kēia lapaʻau. Ua uhi ʻia nā kumukūʻai o kēia ma o nā kālā lapaʻau, no laila ʻaʻole pono ʻoe e uku no kāu huakaʻi a i ʻole ka noho ʻana no ke komo ʻana i kēia lapaʻau. Hoʻopili pū ʻia nā kumukūʻai o hoʻokahi kahu a mea kākoʻo.
No ka ʻike ʻana i ka ʻike pehea e hiki ai iā ʻoe ke komo i kēia lapaʻau e ʻoluʻolu e nīnau i kāu kauka e pili ana i nā papahana kākoʻo maʻi. Hiki iā ʻoe ke ʻike i kā mākou CAR T-cell therapy pūnaewele puni honua no ka 'ike hou aku no ka CAR T-cell therapy.
Ma hea kahi e hāʻawi ʻia ai ka lāʻau lapaʻau T-cell?
Ma Australia, hāʻawi ʻia ka lāʻau lapaʻau CAR T-cell ma nā kikowaena ma lalo nei:
- Western Australia - Halemai Fiona Stanley.
- New South Wales – Ke Aliʻi Aliʻi Alfred.
- ʻO New South Wales - Westmead Hospital.
- ʻO Victoria - Peter MacCallum maʻi maʻi maʻi.
- ʻO Victoria - ka Halemai Alfred.
- Queensland – Royal Brisbane a me ka Halemai Wahine.
- ʻAuseteralia Hema - e hoʻomau.
Aia kekahi mau hoʻokolohua lapaʻau e nānā ana i ka CAR T-cell therapy no nā ʻano subtypes o lymphoma. Inā makemake ʻoe, e nīnau i kāu kauka e pili ana i nā hoʻokolohua lapaʻau āu e ʻae ai.
No ka 'ike no ka CAR T-cell therapy, Bus maanei. Na kēia loulou e lawe iā ʻoe i ka moʻolelo o Kim, kahi āna e kamaʻilio ai e pili ana i kona ʻike i ka hele ʻana i ka lāʻau lapaʻau T-cell CAR no ka mālama ʻana i kāna Diffuse large B-cell lymphoma (DLBCL). Hoʻolako pū ʻia nā loulou no ka ʻike hou aku e pili ana i ka lāʻau lapaʻau T-cell.
Hiki iā ʻoe ke hoʻokaʻaʻike mai iā mākou ma Lymphoma Australia ma ke kaomi ʻana i ke pihi "contact us" ma lalo o kēia ʻaoʻao.
Hiki i kekahi mau lymphoma ke kumu mai nā maʻi. I kēia mau hihia koʻikoʻi, hiki ke mālama ʻia ka lymphoma ma ka mālama ʻana i ka maʻi.
No kekahi mau ʻano lymphoma, e like me nā lymphoma MALT marginal zone, pau ka lymphoma i ka ulu ʻana a make maoli ke hoʻopau ʻia nā maʻi. He mea maʻamau kēia i ka MALT ʻōpū i hoʻokumu ʻia e nā maʻi H. pylori, a i ʻole no nā MALT non-gastric kahi maʻi i loko a puni ka maka.
Hiki ke hoʻohana ʻia ke ʻokiʻoki e wehe i ka lymphoma holoʻokoʻa. Hiki ke hana ʻia kēia inā ʻoe hoʻokahi wahi kūloko o ka lymphoma hiki ke wehe maʻalahi. Pono paha inā loaʻa iā ʻoe ka lymphoma splenic e wehe i kou ʻōpū holoʻokoʻa. Kapa ʻia kēia ʻoki ʻana he splenectomy.
ʻO kou puʻupuʻu he mea nui o kāu ʻōnaehana immune a lymphatic. ʻO ia kahi e noho ai ka nui o kāu mau lymphocytes, a kahi e hana ai kāu mau pūnaʻi B i nā antibodies e hakakā ai i ka maʻi.
E kōkua pū ana kāu spleen e kānana i kou koko, e wāwahi ana i nā ʻulaʻula kahiko e hana i ke ala no nā sela olakino hou a me ka mālama ʻana i nā keʻokeʻo keʻokeʻo a me nā platelets, kahi e kōkua ai i kou koko e ʻā. Inā makemake ʻoe i ka splenectomy, e kamaʻilio kāu kauka iā ʻoe e pili ana i nā hana e pono ai ʻoe e hana ma hope o kāu ʻoki.
He ala koʻikoʻi nā hoʻokolohua lapaʻau e ʻimi ai i nā lāʻau lapaʻau hou, a i ʻole nā hui pū ʻana o nā lapaʻau e hoʻomaikaʻi i nā hopena no nā maʻi me lymphoma a i ʻole CLL. Hiki iā lākou ke hāʻawi iā ʻoe i ka manawa e hoʻāʻo ai i nā ʻano lāʻau lapaʻau hou ʻaʻole i ʻae ʻia ma mua no kāu ʻano lymphoma.
No ka ʻike hou aku e pili ana i nā hoʻokolohua lapaʻau, e kipa i kā mākou ʻaoʻao pūnaewele ma Ka hoʻomaopopo ʻana i nā hoʻokolohua Clinical ma ke kaomi ʻana ma aneʻi.
ʻO ka mālama ʻana i kāu koho. Ke loaʻa iā ʻoe nā ʻike pili āpau, a loaʻa iā ʻoe ka manawa e nīnau ai i nā nīnau, pehea ʻoe e hana ai iā ʻoe.
ʻOiai koho ka hapa nui o ka poʻe e mālama i ka lāʻau lapaʻau, koho paha kekahi ʻaʻole e lapaʻau. Aia nō ka nui o nā mālama kākoʻo hiki iā ʻoe ke komo e kōkua iā ʻoe e ola maikaʻi no ka lōʻihi e hiki ai, a e hoʻonohonoho i kāu mau hana.
He kākoʻo nui nā hui mālama palliative a me nā limahana no ke kōkua ʻana i ka hoʻonohonoho ʻana i nā mea ke hoʻomākaukau nei ʻoe no ka hopena o ke ola, a i ʻole no ka mālama ʻana i nā hōʻailona.
E kamaʻilio me kāu kauka e pili ana i ka loaʻa ʻana o kahi kuhikuhi i kēia mau hui.
Nā hopena ʻaoʻao o ka Lapaʻau
No ka ʻike e pili ana i nā hopena ʻaoʻao o ka mālama ʻana i ka lymphoma/CLL a pehea e mālama ai iā lākou, e kaomi i ka loulou ma lalo nei.
ʻO ka moe kolohe a me ka pilina pili i ka wā o ka mālama ʻana i ka lymphoma
He mea maʻamau a koʻikoʻi ke ola kino o ke kanaka. No laila, he mea nui e kamaʻilio e pili ana i ka hopena o kāu mālama ʻana i kou moekolohe.
Ua hānai ʻia ka nui o mākou me ka manaʻo ʻaʻole kūpono ke kamaʻilio e pili ana i ka moekolohe. Akā, he mea maʻamau loa ia, a he mea koʻikoʻi ke kamaʻilio ʻana no ia mea ke loaʻa iā ʻoe ka lymphoma a ke hoʻomaka nei i nā lāʻau lapaʻau.
He kumu ʻike nui kāu mau kauka a me nā kahu hānai, ʻaʻole ʻoe e manaʻo ʻokoʻa iā ʻoe, a i ʻole e hana ʻokoʻa iā ʻoe ke nīnau ʻoe iā lākou e pili ana i nā manaʻo pili wahine. E ʻoluʻolu e nīnau i nā mea āu e ʻike ai.
Hiki iā ʻoe ke kelepona iā mākou ma Lymphoma Australia, e kaomi wale i ka pihi contact us ma lalo o kēia ʻaoʻao no kā mākou kikoʻī.
Hiki iaʻu ke moe i ka wā e mālama ai i ka lymphoma?
ʻAe! Akā aia kekahi mau mea e pono ai ʻoe e mālama.
ʻO ka loaʻa ʻana o ka lymphoma, a me kāna mau lāʻau lapaʻau hiki iā ʻoe ke luhi a nele i ka ikehu. I kekahi mau hihia, ʻaʻole paha ʻoe makemake e moe kolohe, a ua maikaʻi. ʻO ka makemake e hoʻopaʻa wale a pili kino paha me ka moe kolohe ʻaʻole maikaʻi, a maikaʻi nō hoʻi ka makemake i ka moekolohe. Ke koho ʻoe i ka moe kolohe, hiki ke kōkua i ka hoʻohana ʻana i ka lubricant no ka mea hiki i kekahi mau lapaʻau ke kumu i ka maloʻo ʻana o ka wahine a i ʻole erectile dysfunction.
ʻAʻole pono ka pilina e alakaʻi i ka moekolohe, akā hiki ke lawe mai i ka hauʻoli a me ka hōʻoluʻolu. Akā inā luhi ʻoe a makemake ʻole e hoʻopā ʻia, he mea maʻamau nō hoʻi. E kamaʻilio me kāu hoa e pili ana i kāu mau pono.
He mea koʻikoʻi loa ka kamaʻilio ʻana a me ka mahalo me kāu hoa i mea e mālama pono ʻia ai ʻolua, a e pale i kou pilina.
Pilikia o ka ma'i a me ke koko
Hiki i kāu lymphoma, a i ʻole kāna mau lapaʻau ke hoʻoikaika i ka loaʻa ʻana o ka maʻi a i ʻole ke koko a me ka ʻeha maʻalahi. Pono kēia e noʻonoʻo i ka wā e moe ai. Ma muli o kēia, a me ka maʻalahi o ka luhi, pono paha ʻoe e ʻimi i nā ʻano like ʻole a me nā kūlana no ka moekolohe.
ʻO ka hoʻohana ʻana i ka lubrication hiki ke kōkua i ka pale ʻana i nā microtears i hana pinepine ʻia i ka wā moe, a hiki ke kōkua i ka pale ʻana i ka maʻi a me ke koko.
Inā ua loaʻa iā ʻoe nā maʻi ma mua me nā maʻi i hoʻouna ʻia i ka moekolohe, e like me ka herpes a i ʻole nā kuʻi genital e loaʻa paha iā ʻoe ka lapalapa. Hiki i kāu kauka ke kauoha iā ʻoe i nā lāʻau anti-viral i ka wā o kāu mālama ʻana i mea e pale ai, a i ʻole e hōʻemi i ka paʻakikī o kahi flareup. E kamaʻilio me kāu kauka a kahu hānai paha inā ua loaʻa iā ʻoe ka maʻi maʻi maʻi ma mua.
Inā ua loaʻa iā ʻoe a i ʻole kāu hoa pili i ka maʻi hoʻoili moe kolohe, a ʻaʻole maopopo ʻoe, e hoʻohana i ka pale pale e like me ka pale niho a i ʻole ka condom me ka spermicide e pale ai i ka maʻi.
Pono e pale ʻia koʻu hoa pili?
Hiki ke loaʻa kekahi mau lāʻau anticancer i loko o nā wai kino a pau e like me ka semen a me nā huna huna. No kēia kumu, he mea nui ka hoʻohana ʻana i ka pale pale e like me nā pale niho a i ʻole ka condom a me ka spermicide. ʻO ka moe kolohe ʻole i loko o nā lā 7 mua ma hope o ka mālama ʻana i ka maʻi maʻi maʻi hiki ke hōʻeha i kāu hoa. Mālama ka pale pale i kāu hoa.
Hiki iaʻu ke hāpai (a i ʻole e hāpai i kekahi) i ka wā mālama?
ʻO ka hāʻule ʻana o ka hāpai ʻana i ka wā lapaʻau e pili pū ana i kāu mau koho lapaʻau, a hiki ke alakaʻi i ka lohi i ka mālama ʻana e pono ai ʻoe e kāohi i kāu lymphoma.
Nāʻike hou
No ka ʻike hou aku, e kamaʻilio me kāu hui lapaʻau ma kou haukapila a i ʻole ke kauka, a i ʻole e kamaʻilio me kāu kauka kūloko (GP). Loaʻa i kekahi mau haukapila nā kahu hānai kūikawā i ka hoʻololi ʻana i ka moekolohe i ka wā o ka mālama ʻana i ka maʻi kanesa. Nīnau ʻoe i kāu kauka a kahu hānai paha inā hiki ke hāʻawi ʻia iā ʻoe i kahi mea hoʻomaopopo a loaʻa iā ʻoe ka ʻike kōkua i nā maʻi me kēia mau hoʻololi.
Hiki iā ʻoe ke kaomi i ke pihi ma lalo nei e hoʻoiho i kā mākou pepa ʻike.
ʻO ka hāpai ʻana i ka wā mālama lymphoma
ʻOiai ua kamaʻilio mākou no ka hāpai ʻole ʻana, a i ʻole ka hāpai ʻana i kekahi i ka wā o ka mālama ʻana, no kekahi poʻe, loaʻa kahi hōʻailona o ka lymphoma ma hope o kou hāpai ʻana. I nā hihia ʻē aʻe, hiki ke hāpai ʻia ka hāpai ʻana i ka wā o ka mālama ʻana.
He mea nui e kamaʻilio me kāu hui lapaʻau e pili ana i kāu mau koho.
Nā lāʻau lapaʻau kākoʻo - nā huahana koko, nā mea ulu, nā steroids, ka mālama ʻana i ka ʻeha, hoʻohui a me nā lāʻau ʻē aʻe
ʻAʻole hoʻohana ʻia nā lāʻau kākoʻo e mālama i kāu lymphoma, akā e hoʻomaikaʻi i kou maikaʻi o ke ola ʻoiai e mālama ʻia ana no ka lymphoma a i ʻole CLL. ʻO ka hapa nui e kōkua i ka hōʻemi ʻana i nā hopena ʻaoʻao, hoʻomaikaʻi i nā hōʻailona a i ʻole kākoʻo i kāu ʻōnaehana pale a me ka hoʻihoʻi ʻana i ke koko.
Kaomi ma nā poʻomanaʻo ma lalo nei e heluhelu ai e pili ana i kekahi mau lapaʻau kākoʻo e hāʻawi ʻia iā ʻoe.
ʻO Lymphoma a me CLL a me kā lākou lapaʻau ʻana hiki iā ʻoe ke haʻahaʻa i nā helu koko olakino. Hiki i kou kino ke hoʻololi pinepine i nā pae haʻahaʻa, akā i kekahi mau hihia, ʻike paha ʻoe i nā hōʻailona. I nā hihia liʻiliʻi hiki ke lilo kēia mau hōʻailona i mea weliweli i ke ola.
Hiki ke kōkua i ka hoʻololi ʻana i ke koko i ka hoʻonui ʻana i kāu helu koko ma ka hāʻawi ʻana iā ʻoe i kahi infusion o nā cell āu e pono ai. Hiki i kēia mau mea ke komo i ka hoʻololi ʻana i ke koko ʻulaʻula, ka hoʻololi platelet a i ʻole ka pani plasma. ʻO Plasma ka ʻāpana wai o kou koko a lawe i nā antibodies a me nā mea ʻē aʻe e hoʻopaʻa ʻia e kōkua i ka hōʻoia ʻana i ka hoʻopaʻa ʻana o ke koko.
ʻO Australia kekahi o nā lako koko palekana loa ma ka honua. Hoʻāʻo ʻia ke koko mai ka mea hāʻawi (cross-matched) i kou koko ponoʻī e hōʻoia i ke kūpono. A laila hoʻāʻo ʻia ke koko o nā mea hāʻawi no nā maʻi maʻi lawe koko e like me HIV, Hepatitis B, Hepatitis C a me ka maʻi T-lymphotropic kanaka. Hoʻomaopopo kēia ʻaʻole ʻoe e pilikia i ka loaʻa ʻana o kēia mau maʻi mai kāu hoʻololi ʻana.
Ka hoʻoili ʻana o ke koko ʻulaʻula
Loaʻa i nā pūpū koko ʻulaʻula kahi protein kūikawā ma luna o lākou i kapa ʻia he hemoglobin (hee-moh-glow-bin). ʻO ka hemoglobin ka mea e hāʻawi ai i ko mākou koko i kona ʻulaʻula a nona ke kuleana no ka lawe ʻana i ka oxygen a puni ko mākou kino.Nā Kauliana
He kala melemele nā platelets a hiki ke hoʻololi ʻia - hāʻawi ʻia iā ʻoe i loko o kou aʻa e hoʻonui ai i kou pae platelet.
Intragam (IVIG)
ʻO ka Intragam kahi infusion o nā immunoglobulins - i ʻole e ʻike ʻia he antibodies.
Hana maoli kāu lymphocytes B-cell i nā antibodies e hakakā i ka maʻi a me ka maʻi. Akā inā loaʻa iā ʻoe ka lymphoma, ʻaʻole hiki i kāu mau pūnaʻi B ke hana i nā antibodies e mālama pono iā ʻoe.
Inā hoʻomau ʻoe i ka loaʻa ʻana o nā maʻi, a i ʻole pilikia e hoʻopau i nā maʻi, hiki i kāu kauka ke kuhikuhi i ka intragam no ʻoe.
ʻO nā kumu ulu nā lāʻau lapaʻau i hoʻohana ʻia e kōkua i kekahi o kāu mau koko koko e ulu wikiwiki aʻe. Hoʻohana pinepine ʻia ia e hoʻoulu i kou iwi iwi e hana i nā keʻokeʻo keʻokeʻo hou aʻe, e kōkua i ka pale ʻana iā ʻoe mai ka maʻi.
Hiki iā ʻoe ke loaʻa iā lākou ma ke ʻano o kāu protocol chemo inā makemake ʻoe i ke kākoʻo hou e hana i nā cell hou. Hiki iā ʻoe ke loaʻa iā ʻoe inā loaʻa iā ʻoe ka hoʻololi ʻana i nā pūnaewele puʻupuʻu no laila e hana kou kino i nā pūnaewele he nui e hōʻiliʻili ʻia.
I kekahi mau kumu, hiki ke hoʻohana ʻia nā mea ulu e hoʻoulu i kou iwi iwi e hana i nā ʻulaʻula hou aʻe, ʻoiai ʻaʻole like kēia no ka poʻe me ka lymphoma.
Nā ʻano mea ulu
Mea hoʻoulu ʻia ʻo Granulocyte-colony stimulating factor (G-CSF)
ʻO ka Granulocyte-colony stimulating factor (G-CSF) kahi mea ulu maʻamau i hoʻohana ʻia no ka poʻe me ka lymphoma. ʻO G-CSF kahi hormone kūlohelohe i hana ʻia e ko mākou kino, akā hiki ke hana ʻia i lāʻau lapaʻau. ʻO kekahi mau lāʻau lapaʻau G-CSF he hana pōkole a he lōʻihi ka hana ʻana o kekahi. Aia nā ʻano like ʻole o G-CSF:
- Lenograstim (Granocyte®)
- Filgrastim (Neupogen®)
- Lipegfilgrastim (Lonquex®)
- Pegylated filgrastim (Neulasta®)
Nā hopena ʻaoʻao o ka G-CSF injections
Ma muli o ka hoʻoulu ʻana o G-CSF i kou iwi iwi e hoʻohua koke i nā keʻokeʻo keʻokeʻo ma mua o ka maʻamau, hiki iā ʻoe ke loaʻa kekahi mau hopena ʻaoʻao. Hiki ke komo i kekahi mau hopena ʻaoʻao:
- kuni
- 'Oloke
- Pau ka lauoho
- Kōkua
- Hoʻoponopono
- Hāmeʻa
- Headaches
- ʻEha iwi.
'Ōlelo Aʻo: Hiki i kekahi poʻe maʻi ke loaʻa i ka ʻeha iwi nui, ʻoi loa ma kou kua lalo. Loaʻa kēia ma muli o ka hoʻopiʻi ʻana o G-CSF i ka piʻi wikiwiki ʻana o nā neutrophils (keʻokeʻo keʻokeʻo), ka hopena i ka mumū i kou iwi iwi. Aia ka iwi iwi ma kou pelvic (hip/lalo kua), akā aia ma kou mau iwi a pau.
Hōʻike maʻamau kēia ʻeha e hoʻi ana kāu mau keʻokeʻo keʻokeʻo.
ʻOi aku ka ʻeha o ka poʻe ʻōpio i kekahi manawa no ka mea paʻa mau ka iwi iwi i kou wā ʻōpiopio. He ʻuʻuku ka iwi o ka poʻe ʻelemakule, no laila, ʻoi aku ka nui o ka lumi no ka ulu ʻana o nā keʻokeʻo me ka ʻole o ka pehu. ʻO kēia ka hopena maʻamau i ka liʻiliʻi o ka ʻeha - akā ʻaʻole mau. Nā mea e hiki ke kōkua i ka hōʻoluʻolu o ka pilikia:
- ʻO Paracetamol
- Puke wela
- ʻO Loratadine: he antihistamine ma luna o ka counter, e hōʻemi ana i ka pane inflammatory
- E kelepona i ka hui lapaʻau no ka loaʻa ʻana o ka analgesia ikaika inā ʻaʻole kōkua ka mea i luna.
Kakaʻikahi ʻaoʻao-hopena
I ka loa'a 'ole o nā hihia 'oe e pehu (ho'onui 'ia) kou pu'upa'a.
Inā ʻike ʻoe i kekahi o kēia mau hōʻailona i ka loaʻa ʻana o G-CSF, e kelepona koke i kāu kauka no ka ʻōlelo aʻo.
- ʻO ka manaʻo o ka piha a i ʻole ka hōʻoluʻolu ma ka ʻaoʻao hema o ka ʻōpū, ma lalo pono o nā iwi ʻaoʻao
- ʻEha ma ka ʻaoʻao hema o ka ʻōpū
- ʻEha ma ka piko o ka poʻohiwi hema
- Pilikia ka hele ʻana i ka mimi (wee), a i ʻole ka hele ʻana ma lalo o ka maʻamau
- Hoʻololi i ke kala o kou mimi i ʻulaʻula a ʻeleʻele ʻeleʻele paha
- Ka pehu ma kou mau wāwae a wāwae paha
- Ke hanu nei ka pilikia
Erythropoietin
ʻO ka Erythropoietin (EPO) kahi mea ulu e hoʻoulu ai i ka ulu ʻana o nā ʻāpana koko ʻulaʻula. ʻAʻole hoʻohana maʻamau ʻia no ka mea e mālama mau ʻia nā keʻena koko ʻulaʻula haʻahaʻa me ke kahe koko.
Inā ʻaʻole hiki iā ʻoe ke hoʻokahe koko no nā kumu olakino, ʻuhane a i ʻole nā kumu ʻē aʻe, hiki ke hāʻawi ʻia iā ʻoe erythropoietin.
ʻO nā steroid kekahi ʻano hormone i hana maoli ʻia e ko mākou kino. Hiki nō naʻe ke hana ʻia i loko o ke keʻena hana ma ke ʻano he lāʻau lapaʻau. ʻO nā ʻano steroid maʻamau i hoʻohana ʻia i ka mālama ʻana i ka poʻe me ka lymphoma he ʻano i kapa ʻia ʻo corticosteroids. Aia kēia me nā lāʻau lapaʻau prednisolone, methylprednisolone a dexamenthasone. He ʻokoʻa kēia i nā ʻano steroids e hoʻohana ai ka poʻe e kūkulu i ka ʻiʻo kino.
No ke aha i hoʻohana ʻia ai nā steroid i ka lymphoma?
Hoʻohana ʻia nā steroid me kāu chemotherapy, a pono e lawe wale ia no ka manawa pokole e like me ka mea i kuhikuhi ʻia e kāu hematologist a i ʻole oncologist. Hoʻohana ʻia nā steroid no nā kumu he nui i ka mālama ʻana i ka lymphoma.
Hiki i kēia
- Ka mālama ʻana i ka lymphoma ponoʻī.
- Kōkua i nā lāʻau lapaʻau ʻē aʻe e like me ka chemotherapy e hana maikaʻi.
- Hoʻemi i nā hopena maʻi i nā lāʻau ʻē aʻe.
- Hoʻomaikaʻi i nā hopena ʻaoʻao e like me ka luhi, nausea, a me ka ʻai ʻole.
- E hoemi ana i ka pehu e pilikia ai oe. No ka laʻana inā loaʻa iā ʻoe ka hoʻopaʻa ʻana i ka spinal cord.
Nā hopena ʻaoʻao o nā steroid
Hiki i nā steroid ke hana i nā hopena ʻaoʻao makemake ʻole. ʻO ka hapa nui o kēia mau mea pōkole a ʻoi aku ka maikaʻi i ʻelua mau lā ma hope o kou hoʻōki ʻana iā lākou.
Loaʻa nā hopena ʻaoʻao maʻamau:
- ʻO ka ʻōpū a i ʻole ka hoʻololi ʻana i kāu hana maʻamau
- Hoʻonui i ka ʻai a me ke kaumaha
- ʻOi aku ke koko kiʻekiʻe ma mua o ka maʻamau
- Osteoporosis (nā iwi nāwaliwali)
- Hoʻomaha ka wai
- ʻO ka nui o ka pilikia o ka maʻi
- Nā loli maʻamau
- Paʻakikī i ka hiamoe (insomnia)
- Ka nāwaliwali o ka puʻupuʻu
- ʻO ke kiʻekiʻe o ke kō koko koko (a i ʻole type 2 diabetes). Hiki i kēia ke hopena iā ʻoe
- make wai
- pono e mimi (wee) pinepine
- loaʻa ka glucose koko kiʻekiʻe
- ke kiʻekiʻe o ke kō i loko o ka mimi
I kekahi mau hihia, inā piʻi nui ke kiʻekiʻe o ke kō koko, pono paha ʻoe e lapaʻau me ka insulin no kekahi manawa liʻiliʻi, a hiki i kou haʻalele ʻana i nā steroid.
Hoʻololi ke ʻano a me ke ʻano
Hiki i nā steroid ke hoʻopilikia i ke ʻano a me ke ʻano. Hiki iā lākou ke kumu:
- manaʻo hopohopo a hoʻomaha paha
- naʻau e piʻi ana i luna a i lalo.
- haʻahaʻa haʻahaʻa a kaumaha paha
- ka manaʻo e hōʻeha iā ʻoe iho a i ʻole kekahi.
Hiki i nā loli o ke ʻano a me ke ʻano ke hoʻoweliweli loa i ka mea lawe steroids, a me kā lākou poʻe aloha.
Inā ʻike ʻoe i nā loli i kāu, a i ʻole kāu mau mea aloha i ke ʻano a me ke ʻano i ka lawe ʻana i nā steroid, e kamaʻilio koke i kāu kauka. I kekahi manawa, hiki i ka hoʻololi ʻana o ka dose, a i ʻole ka hoʻololi ʻana i kahi steroid ʻē aʻe ke hana i nā ʻokoʻa āpau e kōkua iā ʻoe e ʻoi aku ka maikaʻi. E haʻi i ke kauka a kahu hānai paha inā loaʻa nā loli i kou ʻano a i ʻole kou ʻano. Hiki ke hoʻololi i ka lāʻau inā pilikia nā hopena ʻaoʻao.
Nā ʻōlelo aʻoaʻo no ka lawe ʻana i nā steroid
ʻOiai ʻaʻole hiki iā mākou ke hoʻōki i nā hopena ʻaoʻao makemake ʻole mai nā steroids, aia kekahi mau mea hiki iā ʻoe ke hana e hōʻemi i ka maikaʻi o nā hopena ʻaoʻao iā ʻoe. Aia ma lalo kekahi mau ʻōlelo aʻoaʻo āu e makemake ai e hoʻāʻo.
- Lawe iā lākou i ke kakahiaka. E kōkua kēia i ka ikehu i ke ao, a me ka manaʻolana e pau i ka pō i hiki iā ʻoe ke hiamoe maikaʻi.
- Lawe iā lākou me ka waiū a i ʻole ka meaʻai e pale ai i kou ʻōpū a hōʻemi i ka ʻeha a me ka nausea
- Mai ho'ōki koke i ka lawe ʻana i nā steroid me ka ʻole o ka ʻōlelo aʻo a kāu kauka - hiki ke hoʻoneʻe ʻia a ʻoluʻolu loa. Pono paha e ho'ōki mālie kekahi mau lāʻau kiʻekiʻe me ka liʻiliʻi liʻiliʻi i kēlā me kēia lā.
I ka wā e launa aku ai i kāu kauka
I kekahi mau hihia, pono paha ʻoe e hoʻokaʻaʻike i kāu kauka ma mua o kāu hālāwai hou. Inā loaʻa kekahi o nā mea i lalo i ka wā e lawe ana i nā steroid, e ʻoluʻolu e ʻike i kāu kauka i ka hikiwawe.
- nā hōʻailona o ka paʻa ʻana o ka wai e like me ka pōkole o ka hanu, ka pilikia o ka hanu ʻana, ka pehu ʻana o nā wāwae a i ʻole nā wāwae haʻahaʻa, a i ʻole ka piʻi wikiwiki ʻana o ke kaumaha.
- hoʻololi i kou ʻano a i ʻole kou ʻano
- nā hōʻailona o ka maʻi e like me ke kiʻekiʻe o ka wela, ka ʻū, ka pehu a i ʻole kekahi mumū.
- inā loaʻa iā ʻoe kekahi hopena ʻaoʻao e hoʻopilikia iā ʻoe.
Hoʻopili kekahi mau lāʻau lapaʻau me nā steroids e hiki ai ke hana i kekahi a i ʻole nā mea ʻelua i hana ʻole e like me ka mea i manaʻo ʻia. E kamaʻilio me kāu kauka a lāʻau lapaʻau paha e pili ana i nā lāʻau lapaʻau a me nā mea hoʻohui āu e lawe nei i hiki iā lākou ke hōʻoia i ka loaʻa ʻole o kahi pilina pilikia me kāu steroid.
Inā ʻōlelo ʻia ʻoe i nā steroids, e kamaʻilio me ʻoe i ke kauka a i ʻole ka lāʻau lapaʻau ma mua:
- Loaʻa i nā lāʻau lapaʻau ola (me nā lāʻau lapaʻau no ka moa, ʻāʻī, mumps a me ka rubella, polio, shingles, tuberculosis)
- ʻO ka lawe ʻana i nā mea kanu lāʻau a i ʻole nā lāʻau lapaʻau
- ʻO ka hāpai ʻana a i ʻole ka hānai ʻana
- Inā loaʻa iā ʻoe kahi maʻi e pili ana i kāu ʻōnaehana pale (ma waho o kāu lymphoma).
Pilikia ma'i
ʻOiai e lawe ana i nā steroids e piʻi nui ana ʻoe i ka maʻi. E hōʻalo i nā kānaka me nā ʻano hōʻailona maʻi a i ʻole nā maʻi.
Loaʻa kēia i ka poʻe me ka maʻi maʻi moa, ka maʻi maʻi, nā hōʻailona anu a me ka maʻi maʻi (a i ʻole COVID), pneumocystis jiroveci pneumonia (PJP). ʻOiai inā ua loaʻa iā ʻoe kēia mau maʻi i ka wā ma mua, ma muli o kāu lymphoma, a me ka hoʻohana ʻana i nā steroids, e piʻi mau ana ʻoe i ka pilikia.
E hoʻomaʻamaʻa i ka hoʻomaʻemaʻe lima maikaʻi a me ka hele ʻana i ka lehulehu i ka lehulehu.
Hiki i kāu lymphoma a lapaʻau paha ke hoʻoulu i ka ʻeha a me ka ʻeha ma kou kino. No kekahi poʻe, ʻeha loa ka ʻeha a pono ke kākoʻo olakino e hoʻomaikaʻi ai. Nui nā ʻano hoʻomaha ʻeha i loaʻa e kōkua iā ʻoe e hōʻeha i kou ʻeha, a ke mālama pono ʻia aole e alakai i ka hoʻohui i ka lāʻau hōʻeha ʻeha.
Hoʻoponopono i nā hōʻailona me ka mālama Palliative - ʻAʻole lākou no ka mālama hope o ke ola
Inā paʻakikī kou ʻeha, hiki iā ʻoe ke pōmaikaʻi mai ka ʻike ʻana i ka hui mālama palliative. Nui ka poʻe hopohopo i ka ʻike ʻana i ka hui mālama palliative no ka mea ʻike wale lākou iā lākou he ʻāpana o ka mālama hope o ke ola. Akā, ʻo ka mālama hope ʻana he ʻāpana wale nō ia o ka hana a ka hui mālama palliative.
He poʻe akamai nā hui mālama palliative i ka mālama ʻana i nā hōʻailona e like me ka ʻeha, nausea a me ka luaʻi a me ka nele o ka ʻai. Hiki iā lākou ke kuhikuhi i ka nui o nā lāʻau hōʻeha ʻeha ma mua o ka hiki iā ʻoe ke mālama i ka haematologist a i ʻole oncologist. No laila, inā pili ka ʻeha i kou maikaʻi o ke ola, a ʻaʻohe mea e hana ana, pono paha e noi i kāu kauka no kahi kuhikuhi i ka mālama palliative no ka mālama ʻana i nā hōʻailona.
ʻO nā lāʻau lapaʻau hoʻohui a me nā mea lapaʻau ʻē aʻe e lilo i mea maʻamau. Hiki iā lākou ke komo:
Nā Hoʻoponopono Hoʻolaha | Nā Huakaʻi'ē aʻe |
lomilomi Acupuncture Hōʻikeʻike ʻO ka noʻonoʻo a me ka noʻonoʻo ʻO Thai Chi a me Qi Gong ʻĀlelo Hoʻomaʻi Uila Kauoha Aromatherapy Kūkākūkā a me ka noʻonoʻo | Naturopathy ʻO nā mea hoʻohui vitamina Homeopathy Laau lapaau Pake Nā Detoxes ʻO Ayurveda Bio-electromagnetics ʻO nā meaʻai paʻa loa (e laʻa me ketogenic, ʻaʻohe kō, vegan) |
Hoʻoponopono hoʻohui
Hoʻopili ʻia nā lāʻau lapaʻau kōkua e hana pū me kāu lapaʻau kuʻuna. ʻAʻole i manaʻo ʻia e lawe i kahi o kāu mau lapaʻau i ʻōlelo ʻia e kāu kauka loea. ʻAʻole hoʻohana ʻia lākou e mālama i kāu lymphoma a i ʻole CLL, akā kōkua i ka hoʻomaikaʻi ʻana i kou maikaʻi o ke ola ma ka hoʻemi ʻana i ka paʻakikī, a i ʻole ka manawa o nā hopena ʻaoʻao. Hiki iā lākou ke kōkua i ka hōʻemi ʻana i ke koʻikoʻi a me ka hopohopo, a i ʻole e kōkua iā ʻoe e hoʻoponopono i nā pilikia koʻikoʻi i kou ola ʻoiai e noho ana me lymphoma / CLL a me kāna mau lapaʻau.
Ma mua o kou hoʻomaka ʻana i kekahi lāʻau lapaʻau kōkua, e kamaʻilio me kāu kauka lapaʻau a kahu hānai paha. ʻAʻole palekana paha kekahi mau lāʻau lapaʻau i ka wā o ka mālama ʻana, a i ʻole pono e kali a hiki i kou mau koko koko i kahi pae maʻamau. ʻO kahi laʻana o kēia inā loaʻa iā ʻoe nā platelets haʻahaʻa, massage a i ʻole acupuncture hiki ke hoʻonui i kou pilikia o ke koko a me ka ʻeha.
Nā hoʻoponopono ʻē aʻe
ʻOkoʻa nā lāʻau lapaʻau ʻokoʻa i nā lāʻau hoʻohui no ka mea ʻo ka pahuhopu o nā lāʻau lapaʻau ʻokoʻa ke pani i nā lāʻau kuʻuna. ʻO ka poʻe i koho ʻaʻole e loaʻa i ka lāʻau lapaʻau me ka chemotherapy, radiotherapy a i ʻole nā lāʻau kuʻuna ʻē aʻe ke koho i kekahi ʻano o ka lāʻau lapaʻau ʻē aʻe.
ʻAʻole i hoʻāʻo ʻia ka nui o nā lāʻau lapaʻau ʻē aʻe. He mea nui e nīnau i kāu kauka inā ʻoe e noʻonoʻo nei i nā lāʻau lapaʻau ʻē aʻe. Hiki iā lākou ke hāʻawi iā ʻoe i ka ʻike e pili ana i nā pōmaikaʻi o nā lapaʻau kuʻuna a pehea e hoʻohālikelike ai kēia mau mea i nā lāʻau lapaʻau ʻē aʻe. Inā ʻaʻole manaʻo kou kauka e kamaʻilio me ʻoe e pili ana i nā lāʻau lapaʻau ʻē aʻe, e noi iā lākou e kuhikuhi iā ʻoe i kahi mea ʻoi aku ka ʻike me nā koho ʻē aʻe.
Nā nīnau hiki iā ʻoe ke nīnau i kāu kauka
1) He aha kāu ʻike me nā lāʻau lapaʻau hoʻomaikaʻi a i ʻole?
2) He aha ka noiʻi hou loa e pili ana (ma kēlā me kēia lapaʻau āu e makemake ai)?
3) Ua nānā au i (ʻano lapaʻau), he aha kāu e haʻi mai ai iaʻu?
4) Aia kekahi mea ʻē aʻe āu e manaʻo ai e kamaʻilio wau e pili ana i kēia mau lāʻau lapaʻau?
5) Aia kekahi mau pilina me kaʻu lapaʻau pono iaʻu e ʻike?
E mālama i kāu mālama
ʻAʻole pono ʻoe e ʻae i nā lāʻau lapaʻau i hāʻawi ʻia iā ʻoe, a iā ʻoe ke kuleana e nīnau e pili ana i nā koho like ʻole.
Hāʻawi pinepine kāu kauka iā ʻoe i nā lāʻau lapaʻau maʻamau i ʻae ʻia no kāu ʻano lymphoma. Akā i kekahi manawa aia nā lāʻau lapaʻau ʻē aʻe i kūpono iā ʻoe ʻaʻole i helu ʻia me ka Therapeutic Goods Administration (TGA) a i ʻole Pharmaceutical Benefits Scheme (PBS).
E nānā i ke wikiō E mālama: Loaʻa i nā lāʻau lapaʻau ʻaʻole i helu ʻia ma ka PBS no ka mea, 'ike hou aku.
ʻO ka hoʻopau ʻana i kāu mālama ʻana no ka lymphoma hiki ke hana i nā manaʻo huikau. Hiki paha iā ʻoe ke hauʻoli, hoʻomaha a makemake e hoʻolauleʻa, a i ʻole hopohopo a hopohopo paha ʻoe i nā mea e hiki mai ana. He mea maʻamau nō hoʻi ka hopohopo no ka hoʻi ʻana mai o ka lymphoma.
E liʻuliʻu ke ola e hoʻi i ka maʻamau. Hiki iā ʻoe ke hoʻomau i nā hopena ʻaoʻao mai kāu mālama ʻana, a i ʻole e hoʻomaka wale nā mea hou ma hope o ka pau ʻana o ka mālama ʻana. Akā, ʻaʻole ʻoe e noho hoʻokahi. Aia ʻo Lymphoma Australia iā ʻoe ma hope o ka pau ʻana o ka mālama ʻana. Hiki iā ʻoe ke hoʻokaʻaʻike mai iā mākou ma ke kaomi ʻana i ke pihi "Contact us" ma lalo o kēia ʻaoʻao.
E hoʻomau nō hoʻi ʻoe e ʻike i kāu kauka lapaʻau i kēlā me kēia manawa. Makemake lākou e ʻike iā ʻoe a hana i nā hoʻāʻo koko a me nā scans e hōʻoia i kou olakino. ʻO kēia mau hoʻāʻo maʻamau e hōʻoia i nā hōʻailona o kāu lymphoma e hoʻi mai e ʻohi koke ʻia.
Hoʻi hou i ka mea maʻamau, a i ʻole ka ʻimi ʻana i kāu mea maʻamau hou
He nui ka poʻe i ʻike ma hope o ka hōʻoia ʻana i ka maʻi kanesa, a i ʻole ka mālama ʻana, e loli ana kā lākou mau pahuhopu a me nā mea nui i ke ola. ʻO ka ʻike ʻana i ke ʻano o kāu 'maʻamau hou' hiki ke hoʻolōʻihi i ka manawa a hoʻonāukiuki. He ʻokoʻa paha nā manaʻolana o kou ʻohana a me kou mau hoaaloha. Hiki paha iā ʻoe ke kaʻawale, luhi a i ʻole kekahi mau manaʻo like ʻole e loli i kēlā me kēia lā.
ʻO nā pahuhopu nui ma hope o ka mālama ʻana i kāu lymphoma a i ʻole ka mālama ʻana iā CLL ʻo ka hoʻi ʻana i ke ola a:
- e ʻeleu i kāu hana, ʻohana, a me nā kuleana ola ʻē aʻe
- e hoʻemi i nā hopena ʻaoʻao a me nā hōʻailona o ka maʻi kanesa a me ka mālama ʻana
- ʻike a mālama i nā hopena hope loa
- kōkua iā ʻoe e kūʻokoʻa e like me ka hiki
- hoʻomaikaʻi i kou maikaʻi o ke ola a mālama i ke olakino noʻonoʻo maikaʻi.
Hiki paha iā ʻoe ke hoihoi i nā ʻano like ʻole o ka hoʻoponopono ʻana i ka maʻi kanesa. Hiki i ka ho'oponopono 'ana i ka ma'i 'a'ai ke komo i nā lawelawe like 'ole e like me:
- kino kino, hooponopono eha
- hoʻolālā meaʻai a me ka hoʻoikaika kino
- ka manaʻo, ka ʻoihana a me ke aʻo kālā.
ʻO ka mea kaumaha, i kekahi mau hihia, ʻaʻole holo maikaʻi ka mālama ʻana e like me kā mākou i manaʻo ai. I nā hihia ʻē aʻe, hiki iā ʻoe ke hoʻoholo i ka hoʻonaʻauao ʻaʻole e loaʻa hou ka lāʻau lapaʻau a ʻike i kou mau lā me ka pilikia ʻole o nā koho a me nā lāʻau lapaʻau. ʻO kēlā me kēia ʻaoʻao, he mea nui e hoʻomaopopo i ka mea e manaʻo ai a mākaukau ʻoe i kou hoʻokokoke ʻana i ka hopena o kou ola.
Loaʻa ke kākoʻo no ʻoe a me kāu poʻe aloha. E kamaʻilio me kāu hui lapaʻau e pili ana i ke kākoʻo i loaʻa iā ʻoe ma kou wahi kūloko.
ʻO kekahi mau mea āu e makemake ai e noʻonoʻo e nīnau e pili ana:
- ʻO wai kaʻu e hoʻokaʻaʻike inā hoʻomaka wau e loaʻa i nā hōʻailona, a i ʻole koʻu mau hōʻailona e ʻoi aku ka maikaʻi a makemake au i ke kōkua?
- ʻO wai kaʻu e kamaʻilio ai inā pilikia wau e mālama iaʻu iho ma ka home?
- Hāʻawi kaʻu kauka kūloko (GP) i nā lawelawe e like me nā kipa home a i ʻole telehealth?
- Pehea wau e hōʻoia ai e mahalo ʻia kaʻu mau koho i ka hopena o koʻu ola?
- He aha ke kākoʻo hope o ke ola i loaʻa iaʻu?
Hiki iā ʻoe ke ʻike i ka ʻike hou aku e pili ana i ka hoʻolālā ʻana no ka mālama hope o ke ola ma ke kaomi ʻana i nā loulou ma lalo nei.
E hoʻolālā i kāu mālama hope o ke ola
Nā kumuwaiwai ʻē aʻe iā ʻoe
Kākoʻo ʻo Lymphoma Australia iā ʻoe i ka ʻaoʻao pūnaewele – me nā loulou hou aku
KĀNEHI - no nā keiki a me nā ʻōpio me ka maʻi kanesa, a i ʻole nā mākua i loaʻa i ka maʻi kanesa.
E hōʻuluʻulu i koʻu poʻe - e kōkua iā ʻoe a me nā mea aloha e hoʻonohonoho i ke kōkua hou āu e pono ai.
Nā polokalamu ʻē aʻe e mālama i nā pono kākoʻo me ka ʻohana a me nā hoaaloha:
eviQ lymphoma lapaʻau protocols - me nā lāʻau lapaʻau a me nā hopena ʻaoʻao.
Nā kumuwaiwai maʻi maʻi ma nā ʻōlelo ʻē aʻe – na ke Aupuni Victoria
