Inā loaʻa iā ʻoe kahi lymphoma e ulu lohi ana (indolent) a i ʻole CLL, ʻaʻole pono ʻoe e mālama. Akā, hiki i kāu kauka ke koho i kahi wati a kali.
ʻO ka huaʻōlelo kiaʻi a kali paha hiki ke alakaʻi hewa iki. ʻOi aku ka pololei o ka ʻōlelo ʻana i ka "mākaʻikaʻi ikaika", no ka mea e nānā pono kāu kauka iā ʻoe i kēia manawa. E ʻike mau ʻoe i ke kauka, a e hoʻāʻo ʻoe i ke koko a me nā hiʻohiʻona ʻē aʻe e hōʻoiaʻiʻo ai e noho olakino ʻoe, a ʻaʻole e ulu aʻe kou maʻi.
Inā ʻoi aku ka ʻino o kou maʻi, hiki iā ʻoe ke hoʻomaka i ka mālama ʻana.
Ka hoʻomaopopo ʻana i ke kiaʻi a me ke kali ʻana (ka nānā ʻana)
E nānā a kali paha ʻo ia ke koho maikaʻi loa iā ʻoe inā ʻaʻole nui kāu mau hōʻailona, a i ʻole nā mea pilikia e pono ai ka mālama wikiwiki.
He mea paʻakikī paha ka ʻike ʻana he ʻano maʻi kanesa kāu, akā ʻaʻole ʻoe e hana i kahi mea e hoʻopau ai. Kāhea kekahi mau maʻi i kēia manawa "E kiaʻi a hopohopo", no ka mea hiki ke hōʻoluʻolu ʻaʻole e hana i kekahi mea e hakakā ai. Akā, he ala maikaʻi loa ka nānā ʻana a kali. ʻO ia ke ʻano o ka ulu mālie ʻana o ka lymphoma e hoʻopilikia iā ʻoe, a ke hakakā nei kou ʻōnaehana pale ponoʻī, a ke hana maikaʻi nei i ka mālama ʻana i kāu lymphoma. No laila, ʻoiaʻiʻo, ke hana nui nei ʻoe i ke kaua ʻana i ka maʻi kanesa, a ke hana nei i kahi hana maikaʻi loa ma ia mea. Inā mālama kāu ʻōnaehana pale iā ia, ʻaʻole pono ʻoe i ke kōkua hou i kēia manawa.
ʻO nā lāʻau lapaʻau ʻē aʻe e hiki ke hōʻeha iā ʻoe i ka maʻi a i ʻole ke kumu o nā hopena ʻaoʻao lōʻihi, ʻaʻole ia e kōkua i kēia manawa. Hōʻike ka noiʻi ʻaʻohe pōmaikaʻi o ka hoʻomaka ʻana i ka mālama ʻana, inā loaʻa iā ʻoe kahi lymphoma e ulu mālie a CLL a ʻaʻohe hōʻailona pilikia. ʻAʻole e pane maikaʻi kēia ʻano maʻi kanesa i nā koho lapaʻau o kēia manawa. ʻAʻole e hoʻomaikaʻi ʻia kou olakino, a ʻaʻole ʻoe e ola lōʻihi ma ka hoʻomaka ʻana i ka lāʻau lapaʻau ma mua. Inā hoʻomaka kāu lymphoma a i ʻole CLL e ulu nui, a i ʻole e loaʻa iā ʻoe nā hōʻailona mai kou maʻi, a laila hoʻomaka ʻoe i ka mālama ʻana.
Mhiki i nā maʻi ke loaʻa ka lāʻau lapaʻau e like me chemotherapy a immunotherapy i kekahi manawa nae. Eia nō naʻe, ʻaʻole pono kekahi mau maʻi me nā lymphoma palaualelo. Ma hope o kāu mālama ʻana, hiki iā ʻoe ke hele hou e nānā a kali.
Prof Judith Trotman, Haematologist, Halemai Concord, Sydney
No ke aha i hoʻohana ʻia ai ka wati a me ke kali?
I ka hapanui o nā hihia, ʻaʻole hiki ke hoʻōla ʻia ka lymphoma Indolent (ke ulu mālie). 'O ia ho'i, e noho 'oe me kou ma'i no ke koena o kou ola. Akā he nui ka poʻe e ola lōʻihi a olakino me ka lymphoma palaualelo a i ʻole CLL.
Loaʻa paha iā ʻoe nā manawa e kiaʻi ai a kali no kekahi manawa, a laila mālama ʻia, a laila hoʻi e nānā a kali. Hiki iā ia ke lilo i kahi rollercoaster. Akā, inā maopopo iā ʻoe ʻoi aku ka maikaʻi o ka wati a me ke kali ʻana i kekahi manawa, a ʻoi aku ka maikaʻi o ka hanana ma mua o ka mālama ʻana me nā lāʻau lapaʻau i kekahi mau hihia, hiki ke maʻalahi ke hoʻokō. Hōʻike nā haʻawina i nā poʻe maʻi e hoʻomaka i ka 'kiaʻi a kali', e ola e like me ka poʻe i hoʻomaka i ka lāʻau ma mua.
ʻO ka pōmaikaʻi o ka kali ʻana e mālama i ka lymphoma a i ʻole CLL, ʻaʻole e loaʻa iā ʻoe nā hopena ʻaoʻao makemake ʻole o nā lāʻau lapaʻau i hoʻohana ʻia e mālama i ka lymphoma. ʻO ia hoʻi e loaʻa iā ʻoe nā koho hou aʻe, inā pono ʻoe e loaʻa i ka lāʻau lapaʻau i ka wā e hiki mai ana.
ʻO wai ka mea hiki ke mālama ʻia me ke ala 'uaki a kali'?
ʻO ka nānā a kali paha ke koho maikaʻi loa no nā poʻe maʻi me nā lymphoma indolent e like me:
- lymphoma follicular (FL)
- ʻO nā lymphoma āpau āpau (MZL)
- Leukemia lymphocytic mau loa (CLL) a i ʻole lymphocytic lymphoma liʻiliʻi (SLL)
- Waldenstroms macroglobulinemia (WM)
- ʻO lymphoma T-cell ʻili (CTCL)
- Hodgkin lymphoma (NLPHL) i hoʻopau ʻia ka lymphocyte nodular
Eia nō naʻe, kūpono ke nānā a kali inā ʻaʻole ʻoe e loaʻa nā hōʻailona pilikia. Hiki i kāu kauka ke koho e hāʻawi iā ʻoe i ka lāʻau lapaʻau inā ʻike ʻoe i kēia mau hōʻailona:
- ʻO nā hōʻailona B - ʻo ia hoʻi ka hoʻoheheʻe ʻana i ka wela o ka pō, ke kuni mau a me ka poho kaumaha ʻole
- Nā pilikia me kou helu koko
- ʻO ka pōʻino o ke kino a i ʻole ka iwi iwi ma muli o ka lymphoma
He aha ka mea e nānā ai a kali?
E nānā pono ʻia ʻoe i ka wā e kiaʻi ana a kali. E ʻike paha ʻoe i kāu kauka i kēlā me kēia 3-6 mahina, akā na kāu kauka e hōʻike iā ʻoe inā pono e ʻoi aʻe paha ma mua o kēia. Hiki i kāu kauka ke kauoha i kekahi o kēia mau ho'āʻo ʻana no ka hōʻoia ʻana e ola mau ana ʻoe, a ʻaʻole e piʻi aʻe kou maʻi.
Hiki i nā hoʻokolohua ke komo:
- He ho'āʻo koko e nānā i kou ola kino
- ʻO kahi hoʻokolohua kino e nānā inā loaʻa iā ʻoe kekahi mau ʻōpū lymph a i ʻole nā hōʻailona o ka holomua
- He hōʻike kino a me ka mōʻaukala olakino
- E nānā ʻia ke kahe koko, ka mahana, a me ka puʻuwai puʻuwai (ua kapa pinepine ʻia kēia mau hōʻailona koʻikoʻi)
- E nīnau kāu kauka inā loaʻa iā ʻoe kekahi mau hōʻailona B
- Hiki ke noi ʻia ʻoe e loaʻa i kahi CT scan a i ʻole PET. Hōʻike kēia mau scan i nā mea e hana nei i loko o kou kino
Inā he pilikia kou ma waena o kāu koho ʻana, e ʻoluʻolu e kelepona i kāu hui lapaʻau ma ka haukapila a i ʻole ke keʻena kino e kūkākūkā i kēia mau mea. Mai kali a hiki i ka manawa e hiki mai ana no ka mea pono e hooponopono mua ia kekahi mau pilikia.
He mea nui e hoʻomanaʻo i ka nānā ʻana i kahi kali he ala maʻamau ia e mālama ai i ka lymphoma indolent a me CLL. Inā ʻike ʻoe he pilikia ke ala 'wati a kali', e ʻoluʻolu e kamaʻilio me kāu hui lapaʻau no ia mea.
