Yintoni uXolelo, ukuBuyela kwakhona kunye neLymphoma eRefractory?
Uxolelo
Uxolelo olupheleleyo kuxa iskeni kunye neemvavanyo zakho zingabonisi zimpawu ze-lymphoma emzimbeni wakho emva konyango.
Uxolelo oluyinxenye kuxa kusekho i-lymphoma emzimbeni wakho, kodwa ingaphantsi kwesiqingatha sento ebiyiyo phambi kokuba unyango.
Ukubuyela kwakhona
I khankanya
Iivesi zoxolelo lunyango
Unyango xa ungenazo iimpawu ze-lymphoma esele emzimbeni wakho kwaye akunakwenzeka ukuba ubuyele. Oogqirha bahlala bekhetha ukusebenzisa igama elithi uxolelo, kuba siyazi ukuba i-lymphoma inokubuya.
Xa uxolelwe ixesha elide, akunakwenzeka ukuba i-lymphoma enobudlova ibuye, ngoko ugqirha wakho unokuthi ekugqibeleni uphilisiwe, kodwa ngokuqhelekileyo baya kusebenzisa igama elithi uxolelo. Oku kungenxa yokuba ngelixa abantu abaninzi bengenakuze babe ne-lymphoma yabo babuyele, asazi ukuba ngubani oya kuthi kwaye ngubani ongayi kuphinda abuyele.
Abanye abantu banokuba nemingcipheko ethile ebangela ukuba kube lula ukubuya, kodwa kufuneka uthethe nogqirha wakho malunga nezinto zakho ezinobungozi kunye namathuba okunyanga, ukuxolelwa okanye ukuphinda ubuyele.
Kwenzeka ntoni xa i-lymphoma iphinda ibuyele?
Ugqirha wakho uya kuqhubeka ekubeka iliso emva kokuba ugqibile unyango, kwaye esinye sezizathu zokuba benze oku kukujonga iimpawu kunye neempawu ze-lymphoma yakho yokubuyela kwakhona. Ngokuqhubeka bekubona rhoqo, baya kukwazi ukuphinda bakubone kwangethuba, kwaye ba-odole uvavanyo olongezelelweyo okanye baqale unyango kwakhona xa lufuneka.
Nangona kunokuba kudimazekile ukufumanisa ukuba i-lymphoma yakho ibuyele kwakhona, kubalulekile ukwazi ukuba i-lymphoma ephindaphindiweyo iphinda iphendule kakuhle kunyango, kwaye inokubangela ukuba uphinde uxolelwe kwakhona.
Ukuphindaphinda kuxhaphake kakhulu kubantu abane-lymphoma engenamsebenzi ngenxa yokuba i-lymphomas engasebenziyo ayithathwa njengonyango. Endaweni yoko, uya kuhlala ne-lymphoma engenamsebenzi ubomi bakho bonke. Nangona kunjalo, phakathi konyango nangexesha loxolelo, abantu abaninzi baphila ubomi obuqhelekileyo kwaye abaninzi banobomi obuqhelekileyo.
Kwezinye iimeko ezinqabileyo, i-lymphoma engasebenziyo inokuguqulwa ibe yinto eyahlukileyo, kunye ne-subtype ye-lymphoma. I-lymphoma etshintshileyo yahlukile ekubuyeleni kwakhona. Ukuze ufunde ngakumbi malunga nokuguqulwa kwe-lymphoma cofa ikhonkco elingezantsi.
Kutheni i-lymphoma iphinda ibuyele?
Ukubuyela umva kunokwenzeka ngenxa yezizathu ezininzi. Ezinye zezi ziquka:
- Akukho unyango olwaziwayo lwe-lymphomas, ngakumbi i-lymphomas engapheliyo. Ngoko ke, ngelixa unyango lusebenza kakuhle ekulawuleni isifo alukwazi ukunyanga. Xa une-indolent lymphoma, kuya kuhlala kukho iiseli ze-lymphoma ezisele ezikwazi ukuvuka nokukhula.
- Olunye utshintsho lwemfuzo alunakunyangeka ngonyango lwangoku. Ngoko, nangona kungekho mqondiso we-lymphoma esele emzimbeni wakho, ezinye iinguqu zofuzo zingabangela ukuba i-lymphoma ikhule kwakhona.
- Naxa iskena kunye novavanyo lubonisa ukuba akukho lymphoma eseleyo emzimbeni wakho, ngamanye amaxesha kunokubakho iiseli ze-lymphoma ezincinci okanye ezincinci kakhulu ukuba zibonwe luvavanyo lwangoku kunye nezikena. Ukuba ezi zikhona, zinokukhula kwaye ziphindaphindeke emva kokuphela konyango.
Kukhawuleza kangakanani ukuphinda kwenzeke?
Ukuba une-lymphoma ehlaselayo efana ne-Hodgkin Lymphoma okanye i-Aggressive (ekhula ngokukhawuleza) i-Non-Hodgkin Lymphoma, unyango lunokwenzeka ngakumbi. Nangona kunjalo ukuba unokuphinda ubuyele, oko kuya kwenzeka kwisithuba seminyaka embalwa yokugqiba unyango.
Ukuba une-indolent (ekhula kancinane) Non-Hodgkin Lymphoma, ukuphinda ubuyele kuqhelekile. Ngelixa ukuphinda kuphinde kwenzeke kwisithuba seenyanga zokugqiba unyango, kaninzi uxolelo luhlala iminyaka emininzi phambi kokuba ubuyele kwakhona.
Funda malunga nokunyanga i-lymphoma ebuyele umva ngoGqr Michael Dickinson
Ugqirha wegazi
Uyazi njani ukuba i-lymphoma ibuyele kwakhona?
I-Lymphoma inokubuya kwindawo efanayo yomzimba wakho okanye inokuchaphazela inxalenye eyahlukileyo yomzimba wakho ukususela xa wawune-lymphoma ngaphambili. Unokuba okanye ungabinazo iimpawu kwaye ukuba uyazenza, zinokubandakanya:
- Amatsha okanye i-lymph nodes okanye amaqhuma angahambelani nosulelo okanye ukugula
- Ukubila ebusuku
- Ukulahleka kwesisindo esingachazwanga
- Ukudinwa okubi ngakumbi kunesiqhelo
- Ukutshiza
- Ukugqithisa isikhumba
- Uhudo
- Intlungu engaqondakaliyo okanye ukungahambi kakuhle
- B-impawu.
Kwenzeka ntoni ukuba i-lymphoma iphinda ibuyele
- I-Biopsy yee-lymph nodes okanye amaqhuma amatsha
- Ukuhlolwa kwegazi
- I-Positron emission tomography (PET) scan
- Icwecwe le-compact tomography (CT)
- I-Lumbar puncture ukuba i-lymphoma ikrokrelwa kwinkqubo ye-nervous central.
Kwenzeka ntoni ukuba i-lymphoma yam ayifuni kunyango?
Kungakhathaza ukufumanisa ukuba unyango lwakho lwangoku alusebenzi ukunyanga, ukumisa okanye ukucothisa i-lymphoma yakho. Ukuziva usoyika, unomsindo okanye ukuxhalaba yinto eqhelekileyo. Kubalulekile ukuqonda nangona kunjalo, ukuba ngenxa yokuba olu nyango lungasebenzi njengoko bekucwangcisiwe, oko akuthethi ukuba ithemba lilahlekile. Iilymphoma ezininzi ezingaphenduli kakuhle kunyango lodidi lokuqala, zisenokuba nempendulo entle kunyango lodidi lwesibini okanye lwesithathu.
I-refractory lymphoma ingenzeka xa iiseli ze-lymphoma ziphuhlisa izithintelo zokhuseleko okanye iindawo zokuhlola ezenza ukuba zikhuseleke kunyango oluqhelekileyo. Utshintsho lwemfuza oluthile lunokwenza ukuba kube lula ukuba unyango oluthile oluchasene nomhlaza lusebenze ngokufanelekileyo.
Xa oku kusenzeka ugqirha wakho uya kufuna ukuzama uhlobo olwahlukileyo lonyango olusebenza ngendlela eyahlukileyo kunyango lwakho lwangoku.
Ndiyazi njani ukuba i-lymphoma yam i-refractory?
Uya kuba nezikena emva kokuba ugqibe ubuncinci imijikelo emibini okanye emithathu yonyango lwakho. Kanye xa unezi scan kuya kuxhomekeka kwimeko yakho, udidi olusezantsi kunye nodidi lonyango. Buza ugqirha wakho xa uya kuba nezikena ezininzi kunye neemvavanyo.
Ngesiqhelo emva kokuqala unyango uya kuqaphela ukuba i-lymph nodes zakho ezidumbileyo okanye ezinye iimpawu ziyaphucuka emva kwemijikelo embalwa yonyango. Nangona kunjalo kwezinye iimeko unokuqaphela, okanye ukuskena kungabonisa ukuba i-lymphoma ayiphucukanga kwaye unokuba neendawo ezintsha ze-lymphoma.
Ugqirha wakho unokuqhubeka nonyango lwakho lwangoku kwaye enze iskeni ngakumbi emva kwemijikelo emininzi yonyango, okanye banokugqiba ekubeni balutshintshe unyango lwakho ngoko nangoko. Baza kuthetha nawe malunga neyona ndlela ilungileyo yokukhetha kwimeko yakho.
Iinketho zonyango lwe-lymphoma ephindaphindayo okanye i-refractory
Ukhetho lonyango olunikezelwayo ukuba unesifo se-lymphoma ephindaphindayo okanye i-refractory iya kuxhomekeka kwizinto ezininzi, kuquka:
- uhlobo olungaphantsi, inqanaba kunye nendawo/iindawo ze-lymphoma yakho
- utshintsho lwemfuza olubandakanyekayo kwi-lymphoma yakho
- ukuba ubunexesha loxolelo kwaye ukuba kunjalo, uxolelwe ixesha elingakanani
- iminyaka yakho kunye nokuphila kakuhle
- indlela oye wahlangabezana ngayo nonyango lwangaphambili
- ukufaneleka kwakho kulingo lwezonyango
- izinto ozikhethayo.
Iintlobo zonyango lwe-lymphoma ephindaphindayo okanye i-refractory
Ngolingo lwezonyango kunye nonyango olutsha oluvunyiweyo kunyango okanye ulawulo lwe-lymphoma e-Australia, sinokhetho oluninzi lonyango lwesibini kunye nolwesithathu kunangaphambili. Ngaloo ndlela, ngenxa yezi zinto zingasentla, akukho ndlela yonyango elinganayo. Nangona kunjalo, olunye unyango olufumanekayo kunyango lodidi lwesibini nolwesithathu lubandakanya:
- Ukuthatha inxaxheba kulingo lwezonyango
- I-chemotherapy edibeneyo
- Ikhemotherapi yokusindisa (idosi ephezulu yechemotherapy)
- Ufakelo lwe-stem cell (autologous & allogeneic)
- Unyango ekujoliswe kulo
- immunotherapy
- Amayeza ebhayoloji
- Radiotherapy
- I-Chimeric antigen receptor (CAR) unyango lwe-T-cell
- Ukufikelela kwileyibhile kumayeza.
Ukufikelela kwileyibhile kumayeza
Ngamanye amaxesha, unokukwazi ukufikelela kumayeza angaxhaswanga ngemali kuluntu, kodwa abhengezwe ekhuselekile kwaye asemthethweni ukuba asetyenziswe e-Australia yi-Therapeutic Goods Administration (TGA).
Izinto ezibalulekileyo ekufuneka uziqaphele:
- Oku akunakukhethwa ngumntu wonke njengoko ilizwe ngalinye linemithetho nemimiselo eyahlukeneyo.
- Kusenokufuneka uhambe olunye okanye lonke unyango.
- Inokubiza kakhulu njengoko kufuneka uzixhase ngokwakho, okanye uzihlawulele ngokwakho. Ke, yinto ekufuneka iqwalaselwe ngononophelo kwaye ixoxwe nogqirha wakho wegazi ukuze uyiqonde ngokupheleleyo.
- Kwezinye iimeko, unokukwazi ukufikelela kumayeza "kwimihlaba yemfesane" apho inkampani yoxubo-mayeza ihlawulela ezinye okanye zonke iindleko zeyeza elingekho ileyibhile. Buza ugqirha wakho ukuba ngaba oku kukhetho lwakho.
Ukufumana uluvo lwesibini
Kuyinto eqhelekileyo ukuba izigulana zicele uluvo lwesibini. Olu lukhetho olulungileyo lokuva iingcinga ze-hematologist yesibini enokuthi iqinisekise ulwazi olunikiweyo yi-hematologist yakho yokuqala, okanye ikunike iindlela ezahlukeneyo onokukhetha kuzo. Akukho sizathu sokuziva kakubi ngokucela uluvo lwesibini. Uninzi lweengcali zeehematologists zikhululekile xa ufuna uluvo lwesibini - yimpilo yakho emva kwayo yonke loo nto.
Ukuba ungathanda ukufumana uluvo lwesibini thetha ne-hematologist yakho. Rhoqo, banokukulungiselela into ethile, okanye ungathetha noGqirha wakho. Eli linyathelo elibalulekileyo ekuqinisekiseni ukuba ufumana ulwazi oludingayo ukuze ufumane unyango oluchanekileyo kwiimeko zakho zomntu ngamnye.
Funda ngakumbi malunga 'nokufikelela kwileyibhile' kwividiyo engezantsi
Ukucwangcisa unyango
Ukujongana noxinzelelo lweemvakalelo kunye nomzimba wokuba ne-lymphoma, kwaye unyango lunokuba nzima. Kubalulekile ukufikelela kwaye ufumane inkxaso xa uyifuna. Sihlala sinabantu ebomini bethu abafuna ukunceda, kodwa abazi ukuba njani. Abanye abantu baxhalabile ngokuthetha ngendlela ohamba ngayo kuba bexhalabile baya kuthetha into engalunganga, bagqithise okanye bakucaphukise. Oku akuthethi ukuba abakhathali.
Inokukunceda ukwazisa abantu into oyifunayo. Ngokuzicacela izinto ozifunayo, unokufumana uncedo nenkxaso oyidingayo, yaye abo ubathandayo banokukuvuyela ukukunceda ngendlela enenjongo. Kukho imibutho eye yahlanganisa izicwangciso onokuzisebenzisa ukulungelelanisa ezinye zenkathalo. Ungathanda ukuzama:
Ukucwangcisa kwangaphambili ukhathalelo
Ucwangciso lokhathalelo lwangaphambili yindlela entle yokuqinisekisa ukuba iqela lakho lezonyango kunye nosapho lwakho bayazi ukuba loluphi unyango olwenzayo, kwaye awufuni ukuba nalo kwixesha elizayo.
Wonke umntu kufuneka abe nesicwangciso sokhathalelo kwangaphambili. Iifomu ezifunekayo kunye nenkqubo yokuphuhlisa isicwangciso sokhathalelo lwangaphambili lunokwahluka ukusuka kwilizwe ukuya kwelinye. Ukufumana ulwazi oluthe kratya malunga nocwangciso lokhathalelo oluphezulu, kunye nokufikelela kwiifomu ezifanelekileyo zombuso wakho, cofa ikhonkco elingezantsi.
Ukunyamekela
Abantu abaninzi bacinga ukuba ukhathalelo lokuthomalalisa lumalunga nokhathalelo lokuphela kobomi. Nangona le yenye yeendima, nabo banenye indima enkulu. Bakwanceda ukulawula iimpawu kunye neziphumo ebezingalindelekanga ekunzima ukuzinyanga onokuthi ube nazo nangaliphi na ixesha ngexesha lakho le-lymphoma. Eyona njongo iphambili kukuqinisekisa ukuba unowona mgangatho wobomi ubalaseleyo ngexesha lonyango lwakho nasekupheleni kobomi bakho.
Ulawulo lweempawu/impembelelo yecala
I-Lymphoma kunye nonyango lwayo inokubangela iimpawu ezahlukeneyo kunye neziphumo ebezingalindelekanga. Ngelixa i-hematologist yakho okanye i-oncologist inokunceda kuninzi lwezi, ngamanye amaxesha iimpawu okanye iziphumo ebezingalindelekanga zifuna ulawulo olukhethekileyo. Iqela lokhathalelo lwempilo ziingcali ekulawuleni ezi. Bayakwazi ukufikelela kumayeza i-hematologist yakho okanye i-oncologist engagunyaziswanga ukuba iwamisele. Iqela lokhathalelo lokuthomalalisa sisixhobo esihle sokuphucula umgangatho wobomi bakho.
Ezinye iimpawu okanye iziphumo ebezingalindelekanga ezinokukunceda ukuba uzilawule ziquka:
- iintlungu - kubandakanywa neuropathy ye-peripheral
- isicaphucaphu kunye okanye ngaphandle kokugabha
- ixhala
- ukuqhawukelwa ngumphefumlo
Ukuphela kokhathalelo lobomi
Ulingo oluyimpumelelo lweklinikhi, luthetha ukuba luninzi lonyango olutsha oluphucule kakhulu iziphumo kubantu abane-lymphoma-bade babuyele kwakhona kunye ne-refractory lymphoma. Abantu abaninzi baphila ubomi obude kwaye obunempilo nangona emva kokuxilongwa kwe-lymphoma. Ngelishwa, ngamanye amaxesha abantu bafa kwi-lymphoma.
Eyona ndima iqhelekileyo iqondwa yokhathalelo lokuthomalalisa kukunceda abantu abasondela esiphelweni sobomi babo babe nolawulo kwindlela abaphila ngayo ubomi babo bonke. Ziyamangalisa ekukuxhobiseni ukuba ucinge ngazo, kwaye ucwangcise iimfuno zakho nalapho ungathanda ukuchitha ixesha lakho, ngelixa uqinisekisa ukuba ukhuselekile, nomgangatho olungileyo wobomi ngeli xesha.
Inkxaso xa usondela esiphelweni sobomi bakho
Ukhathalelo lwentlungu lunokunceda usapho lwakho kunye nabo ubathandayo baqonde okwenzekayo, kwaye baqinisekise ukuba banenkxaso abayidingayo ngeli xesha nabo. Ezinye izinto abanokuncedisa ngazo ziquka:
- ukulungelelanisa izixhobo oza kuzisebenzisa ekhaya ukuba ukhetha ukuhlala ekhaya
- ukuthetha nabantu obathandayo ngemiba enobuzaza efana nokuphela kobomi bakho kunye nezicwangciso zomngcwabo
- zikunxibelelanisa neenkonzo ezahlukeneyo ekuhlaleni
- qinisekisa ukuba iinkolelo zakho zenkcubeko nezomoya ziyagcinwa ekufeni kwakho
- iingcebiso kunye nenkxaso yeemvakalelo.
isishwankathelo
- Unyango kuxa kungekho lymphoma eseleyo emzimbeni wakho kwaye ayibuyi.
- Uxolelo lunokugqiba okanye luyinxenye lubangele ukuba akukho zimpawu ze-lymphoma emzimbeni wakho (zipheleleyo), okanye xa iiseli ze-lymphoma zincitshiswe ngaphezu kwesiqingatha (inxalenye).
- I-Lymphoma inokuphinda ibuyele (ibuye) emva kwexesha loxolelo. Uxolelo lunokuhlala iiveki, iinyanga okanye iminyaka emininzi.
- Xa i-lymphomas enamandla iphinda ibuyele, idla ngokuba kwisibini sokuqala seminyaka emva kokugqiba unyango. Okukhona uxolile, kokukhona amathuba okuba aphile abe mkhulu.
- I-indolent lymphomas ihlala iphinda ibuyele, kodwa iphinda iphendule kakuhle kunyango. Uya kuhlala ne-lymphoma engenamsebenzi ubomi bakho bonke, kodwa unokuphila kakuhle ngexesha lokuxolelwa.
- Kwezinye iimeko, i-lymphoma ayibi ngcono ngonyango lodidi lokuqala – oku kubizwa ngokuba yi-refractory.
- I-Refractory lymphoma isenokuphendula kakuhle kunyango lwesibini nolwesithathu.
- Ukucwangciswa kwangaphambili kokhathalelo kubalulekile ukuqinisekisa ukuba usapho lwakho kunye noogqirha bayayazi iminqweno malunga nokhathalelo lwakho lwempilo.
- Ukhathalelo lwePalliative lunokunceda ngeempawu kunye nolawulo lweziphumo ebezingalindelekanga.
- Abanye abantu baya kufuna ukhathalelo lokuphela kobomi ukuba i-lymphoma yabo ayiphenduli kunyango. Ukhathalelo lwePalliative lunokuba yinkxaso enkulu, kwaye uqinisekise ukuba unomgangatho ophezulu wobomi ngexesha lokugqibela lobomi, kwaye unike inkxaso efunekayo kubathandekayo bakho.
