ʻO Sharon Winton ka Luna Hoʻokele o Lymphoma Australia, he lālā o ka Lymphoma Coalition a ua lilo ʻo ia i ʻelele mea kūʻai olakino ma kekahi mau hui o nā mea kūʻai aku ma Australia a ma waho.
Ma mua o kāna hana i kēia manawa, ua hana ʻo Sharon me kahi hui ʻinikua olakino pilikino i ka pilina a me ka hoʻokele waiwai. Ma mua o kēia kūlana ua hoʻohana ʻo Sharon i ka ʻoihana olakino a me ka hoʻoikaika kino ma ke ʻano he kumu hoʻonaʻauao kino a me ka Luna Hoʻokele o kahi Hui Haʻuki.
Makemake nui ʻo Sharon e hōʻoia i ka loaʻa ʻana o ka poʻe Australia āpau i ka ʻike a me nā lāʻau lapaʻau. I loko o nā makahiki 2 i hala iho nei, ua helu ʻia nā lāʻau lapaʻau hou he ʻumikumamālua ma ka PBS no nā ʻano subtypes like ʻole o ka lymphoma.
Ma ka pae pilikino a ʻoihana, ua komo ʻo Sharon me nā maʻi, nā kahu mālama a me nā ʻoihana olakino ma hope o ka lilo ʻana o ka makuahine o Sharon, ʻo Shirley Winton OAM, i pelekikena hoʻokumu o Lymphoma Australia ma 2004.
Ua hana ʻo Josie i ka ʻoihana waiwai no ka hana no nā makahiki he 18. ʻO kāna ʻike e pili ana i ka ʻohi kālā ʻoihana, ke kūʻai aku ʻana, ka hoʻokele media media a me ke kamaʻilio ʻana i nā hui like ʻole e like me ka lāʻau lapaʻau a me ka waiʻona, dementia, ka maʻi kanesa a me ke olakino noʻonoʻo.
Ua hoʻomaka kāna kuleana me Lymphoma Australia i ka makahiki 2016 a uhi i nā hanana kūikawā, nā hoʻolaha ʻohi kālā, nā leka uila, nā media, nā kālepa a me nā hoʻolālā kamaʻilio a me ke kākoʻo me ka manaʻo e hoʻonui i ka ʻike a loaʻa kālā e kōkua i ke kākoʻo ʻana i ka poʻe me lymphoma.
Ua ʻike ʻia au me ka follicular lymphoma ʻOkakopa 2014 a ua kau ʻia au ma ka wati a kali. Ma hope o ka ʻike ʻia ʻana ua loaʻa iaʻu ke kumu a ʻike wau makemake wau e komo i kekahi ala e hana ai i ka ʻike no ka lymphoma. Ua hoʻomaka wau ma ke kūʻai aku ʻana i nā mea kūʻai lymphoma a me ka hele ʻana i nā hanana ʻohi kālā a ʻo wau ke alakaʻi kākoʻo kaiaulu a hoʻouna i nā kumuwaiwai āpau i nā haukapila a me nā maʻi a me nā hana o ke keʻena nui. Ua hoʻomaka wau i ka mālama ʻana ma ʻOkakopa 2018 me 6 mau mahina chemo (Bendamustine a me Obinutuzumab) a me 2 mau makahiki mālama (Obinutuzumab) Ua hoʻopau wau i kēia ma Ianuali 2021 a hoʻomau i ke kala ʻana.
Inā hiki iaʻu ke kōkua i hoʻokahi kanaka wale nō ma kā lākou huakaʻi lymphoma, manaʻo wau ke hana nei au i kahi ʻokoʻa.
He kahu maʻi hematology ʻo Erica no nā makahiki he 15 i hala ma nā ʻano hana like ʻole, me ke kuleana o Lymphoma CNC ma nā kula kiʻekiʻe ma Brisbane a me Gold Coast. Loaʻa iā ia ka ʻike ma ka haematology lapaʻau, ka iwi iwi a me ka hoʻololi ʻana i ke kelepona, ka mālama maʻi ma waho a me ka hoʻonohonoho mālama. Ke hana nei ʻo Erica me ka hui Lymphoma Australia i ka manawa piha a ke kālele nei i ka hāʻawi ʻana i nā manawa no ka hoʻonaʻauao lymphoma no ka ʻoihana olakino ma waena o Australia ʻoiai e hana pū ana me nā maʻi e hōʻoia i ka poʻe i hoʻopilikia ʻia e ka lymphoma hiki ke komo i ke kākoʻo e pono ai lākou.
Ua loaʻa iā Lisa kāna kēkelē laepua ma ke kahu hānai ma o ke Kulanui o Southern Queensland i ka makahiki 2007. Ua loaʻa iā ia ka ʻike ma ke keʻena Hematology a me Bone Marrow Transplant, ka hui ʻana o ka iwi iwi iwi, apheresis, a me ke kahu kahu maʻi ma ka hale maʻi ma waho o ka Hematology. Mai ka makahiki 2017, ua hana ʻo Lisa ma St Vincent's Hospital Northside i ka Oncology/Haematology ward a ma Cancer Care Coordination. Mālama ʻo Lisa i kēia kūlana i ka hapa manawa ʻoiai e hāʻawi ana i kahi waiwai o ka ʻike lapaʻau i ka hui Lymphoma Australia.
Ua hana ʻo Nicole ma ka ʻōnaehana hematology a me ka oncology no 16 mau makahiki a makemake nui ʻo ia i ka mālama ʻana i ka poʻe i loaʻa i ka lymphoma. Ua hoʻopau ʻo Nicole i kāna mau haku ma ka maʻi kanesa a me ka hānai haematolgy a mai ia manawa ua hoʻohana ʻo ia i kona ʻike a me kona ʻike e hoʻololi i ka hana maikaʻi loa. Ke hoʻomau nei ʻo Nicole i ka hana maʻi ma Bankstown-Lidcome Hospital ma ke ʻano he kauka lapaʻau. Ma o kāna hana me Lymphoma Australia, makemake ʻo Nicole e hāʻawi i ka ʻike maoli, kākoʻo a me ka ʻike olakino e hōʻoia i loaʻa iā ʻoe nā ʻike āpau e hoʻokele ai i kāu ʻike.
Emma He kahu maʻi hematology mai ka makahiki 2014 a ua hoʻopau ʻo ia i kahi palapala puka puka kūikawā i ka maʻi kanesa a me ka maʻi maʻi palliative ma Melbourne University. Emma hana maʻi ma ke keʻena hematology ma Peter MacCallum Cancer Center ma Melbourne kahi āna i mālama ai i ka poʻe me ka lymphoma e hana ana i nā ʻano lapaʻau like ʻole me ka transplant cell stem, CAR-T cell therapy and clinical trials.
No nā makahiki ʻelua i hala iho nei, Emma Ua hana ʻo ia ma ke ʻano he Myeloma Support Nurse no Myeloma Australia e hāʻawi ana i nā poʻe e noho ana me ka myeloma, kā lākou poʻe aloha a me nā limahana mālama ola me ke kākoʻo a me ka hoʻonaʻauao. Emma manaʻoʻiʻo ʻo kekahi o nā mea koʻikoʻi o kāna hana ma ke ʻano he kahu hānai e hōʻoia ana i ka poʻe e noho ana me ka maʻi kanesa a ua ʻike maikaʻi ʻia kā lākou poʻe kākoʻo e pili ana i ko lākou maʻi a me ka mālama ʻana e hiki ai iā lākou ke hana i nā hoʻoholo hoʻonaʻauao a hoʻomaikaʻi i ka maikaʻi o ke ola holoʻokoʻa.
Loaʻa iā Wendy ma kahi o 20 mau makahiki ma ke ʻano he kahu maʻi maʻi maʻi me ka nui o ka ʻike e pili ana i nā ʻoihana pilikino a me ka lehulehu, nā kahu hānai, apheresis, hoʻonaʻauao a me ka maikaʻi a me ka hoʻokele pilikia.
Nui kona makemake i ka ʻike olakino, a me ka hoʻoikaika ʻana i nā limahana, nā mea maʻi a me nā mea kūʻai aku me ka hoʻonaʻauao, nā kulekele a me nā kaʻina hana, a me nā papa hana e hōʻoia i nā hopena maikaʻi loa no nā mea kūʻai olakino.
Loaʻa ʻo Wendy i kahi palapala hōʻoia ma ke kahu hānai a me ka Master of Advanced Practice Nursing- Health Professional Education.
E ʻoluʻolu: Hiki i nā limahana Lymphoma Australia ke pane i nā leka uila i hoʻouna ʻia ma ka ʻōlelo Pelekania.
No ka poʻe e noho ana ma Australia, hiki iā mākou ke hāʻawi i ka lawelawe unuhi kelepona. E kāhea mai kāu kahu hānai a i ʻole ka ʻohana ʻōlelo Pelekania iā mākou e hoʻonohonoho i kēia.
