Kuzindikira kwa lymphoma kapena matenda a lymphocytic leukemia (CLL) kungakhale kovutitsa komanso kutengeka maganizo. Palibe njira yolondola kapena yolakwika yomvera mutapezeka ndi matenda, koma zingakhale zothandiza kudziwa kuti simuli nokha. Tsambali liyankha mafunso omwe anthu ambiri amadandaula nawo omwe angabwere atapezeka ndi lymphoma
Kodi ndingamve bwanji nditapezeka ndi matenda?
Kuzindikira kwa lymphoma kapena CLL nthawi zambiri kumakhala kokhumudwitsa komanso kosokoneza kwa wodwalayo, mabanja awo ndi okondedwa awo. Ndi zachilendo kukhala ndi mantha komanso kusakhulupirira pambuyo pozindikira kuti muli ndi lymphoma kapena CLL. Zingakhale zachilendo kukwiyira kapena kukwiyira anthu omwe ali pafupi nanu, ngakhalenso inuyo. Anthu ambiri amafotokoza kuti poyamba adakwiyira madokotala, akatswiri kapena anamwino chifukwa chosayamba kudwala matenda awo. Komanso kugwedezeka ndi mkwiyo, malingaliro ena angaphatikizepo kukhala ndi nkhawa kwambiri, chisoni ndi mantha okhudza momwe matendawa angakhudzire miyoyo yawo.
Pambuyo pa matenda a lymphoma kapena CLL, odwala akhoza kubwera ndi mafunso ofunika kwambiri.
- Kodi matenda anga amatanthauza chiyani?
- Kodi mankhwala anga akhale otani?
- Kodi ndikuyembekeza chiyani / malingaliro anga / mwayi wopulumuka?
- Kodi ndisamalira bwanji banja langa?
- Adzandichirikiza ndani?
Anthu ambiri amagwiritsa ntchito intaneti kuti adziwe zambiri komanso mayankho. Ngakhale intaneti ikhoza kukhala gwero lachidziwitso, zolemba ndi zothandizira zitha:
- Zosakhudzana ndi inu
- Osalembedwa ndi magwero odalirika
- Zosathandiza kuwerenga panthawiyi
Ndizothandiza kudziwa kuti panthawiyi, kupsinjika maganizo kungakhale pamwamba kwambiri, makamaka podikirira zotsatira zoyezetsa, ndondomeko zachipatala kapena kukambirana mozama. Kupsinjika maganizo ndi nkhawa zimathanso kukulitsidwa ndi zizindikiro za thupi zomwe nthawi zambiri zimatsagana ndi matenda a lymphoma kapena CLL, kuphatikizapo kutopa, kuchepa kwa mphamvu ndi kusowa tulo (kugona kovuta). Malangizo ena othandiza kuthana ndi nkhawa komanso nkhawa panthawiyi akhoza kukhala:
- Kulankhula ndi achibale anu, abwenzi kapena okondedwa anu za momwe mukumvera
- Kulemba kapena kulemba malingaliro anu ndi malingaliro anu
- Zochita zolimbitsa thupi zomwe zimayang'ana kwambiri pakuwongolera kupuma
- Kusankha zakudya zabwino komanso kumwa madzi ambiri kapena madzi
- Chepetsani kumwa mowa mwauchidakwa
- Kusinkhasinkha ndi kuchita mwanzeru
- Kulankhula ndi mlangizi kapena psychologist
Ndikofunika kuzindikira kuti palibe nthawi yeniyeni yomwe zochitika zanu zamaganizo ziyenera kutsatira. Anthu ena angayambe kukonza matenda awo nthawi yomweyo, ena amatha kutenga nthawi yaitali. Ndi nthawi yokwanira, chidziwitso chokwanira ndi chithandizo chochuluka mukhoza kuyamba kukonzekera ndi kukonzekera mutu wotsatira wa moyo wanu.
Mayankho Ambiri Okhudza Maganizo
Kulandira matenda a lymphoma/CLL mwachilengedwe kumayambitsa kusakanikirana kosiyanasiyana. Anthu nthawi zambiri amadzimva ngati ali pamutu wapamtima, chifukwa akukumana ndi malingaliro osiyanasiyana nthawi zosiyanasiyana komanso mosiyanasiyana.
Musanayese kuwongolera momwe mungayankhire, ndikofunikira kuvomereza kuti palibe yankho lomwe liri lolakwika kapena losayenera ndipo aliyense ali ndi ufulu wodzimva yekha. Palibe njira yoyenera yopangira matenda a lymphoma. Zomwe mukumva zingaphatikizepo:
- Thandizo - nthawi zina anthu amakhala omasuka podziwa zomwe ali nazo, chifukwa nthawi zina zimatha kutenga nthawi kuti madokotala apeze matendawa. Kupeza yankho kungakhale mpumulo.
- Kudabwa ndi kusakhulupirira
- Mkwiyo
- nkhawa
- Mantha
- Kusowa chochita ndi kutaya kudziletsa
- Chilakolako
- chisoni
- Kusiya ndi kudzipatula
Kodi kuyamba kulandira chithandizo kumakhala kotani?
Ngati simunalandirepo chithandizo cha khansa m'mbuyomu, kupita kumalo opangira chithandizo kapena kuchipatala kumatha kukhala kwachilendo komanso kosasangalatsa. Mukulimbikitsidwa kwambiri kuti mubweretse munthu wothandizira pa tsiku lanu loyamba, mosasamala kanthu kuti mukumva bwino bwanji. Mukulimbikitsidwanso kubweretsa zinthu zomwe zingakusokonezeni ndikukupumulitsani. Anthu ena amakonda kubweretsa magazini, mabuku, singano zoluka ndi ubweya wa nkhosa, masewera a makadi, ma iPad kapena mahedifoni kuti amvetsere nyimbo kapena kuonera pulogalamu ya pa TV kapena filimu. Makanema a kanema nthawi zambiri amayikidwa pamalo opangira chithandizo.
Ngati mukuwona kuti nkhawa yanu siyikutsitsimutsidwa ndi zododometsazi ndipo muli pachiwopsezo chowonjezereka, zingakhale zothandiza kukambirana izi ndi anamwino anu kapena dokotala wamankhwala, chifukwa zingakhale zothandiza kumwa mankhwala ochepetsa nkhawa. nthawi zina.
Anthu ena amapeza kuti kupsinjika kwawo ndi nkhawa zimayamba kuchepa pang'ono akayamba kulandira chithandizo ndikumvetsetsa zomwe amachita. Kudziwa mayina ndi nkhope za ogwira ntchito m’chipatala kungathandizenso kuti chithandizocho chisakhale chodetsa nkhaŵa.
Ndikofunika kuzindikira kuti si anthu onse omwe ali ndi lymphoma kapena CLL adzafunika chithandizo nthawi yomweyo. Anthu ambiri omwe ali ndi indolent (kukula pang'onopang'ono) lymphoma kapena CLL nthawi zambiri amadikirira miyezi kapena zaka asanafunikire chithandizo.
Malangizo othandiza momwe mungasamalire malingaliro anga panthawi ya chithandizo?
Nthawi zambiri, anthu amalongosola kukhala ndi moyo wabwino pa nthawi ya chithandizo ngati njira yosasunthika yomwe kupsinjika maganizo ndi nkhawa zimatha kuwonjezeka ndikuchepa pang'onopang'ono.
Mankhwala omwe nthawi zambiri amaperekedwa ndi chemotherapy monga steroids, amatha kukhudza kwambiri momwe mumamvera, kugona komanso kufooka kwamalingaliro. Amuna ndi akazi ambiri pa mankhwalawa amafotokoza za mkwiyo, nkhawa, mantha ndi chisoni panthawi ya chithandizo. Anthu ena angapeze kuti akulira kwambiri.
Panthawi ya chithandizo, zingakhale zothandiza kukhala kapena kupanga gulu lothandizira anthu. Maukonde othandizira nthawi zambiri amawoneka mosiyana kwa munthu aliyense, koma nthawi zambiri amakhala ndi anthu omwe amakuthandizani m'malingaliro kapena mwanzeru. Network yanu yothandizira ikhoza kukhala:
- Achibale
- Okwatirana kapena makolo
- Friends
- Magulu othandizira - onse pa intaneti kapena ammudzi
- Odwala ena omwe mungakumane nawo panthawi ya chithandizo
- Ntchito zothandizira kunja monga akatswiri a maganizo, alangizi, ogwira ntchito zachitukuko kapena ogwira ntchito zauzimu
- Lymphoma Australia imayang'anira gulu lachinsinsi la Facebook: "Lymphoma Pansi Pansi": http://bit.ly/33tuwro
Kufikira mamembala a gulu lanu lothandizira pamene mukukumana ndi mavuto aakulu ndi nkhawa zingakhale zothandiza. Kucheza pa khofi, kuyenda mozungulira dimba kapena kuyendetsa galimoto kupita kumasitolo kungakhale kothandiza mukakhala m'mavuto. Nthawi zambiri, anthu amafuna kukuthandizani, koma sadziwa momwe angachitire. Kupempha ena kuti akuthandizeni ndi zoyendera popita ku nthawi yokumana, kukonza zinthu zina zapakhomo kapena kupempha mnzanu kuti akuphikireni chakudya chotentha, kungakhale kothandiza pamene simukupeza bwino. Makina othandizira pa intaneti amatha kukhazikitsidwa pa foni yanu, iPad, piritsi, laputopu, kapena kompyuta kuti akulumikizani ndi omwe ali pa netiweki yanu yothandizira.
Malangizo ena othandizira kuthana ndi kupsinjika maganizo panthawi ya chithandizo
- Kudzipatsa nokha chilolezo kuti mukhale ndi malingaliro anu pamene akuwuka, kuphatikizapo kulira
- Kulankhula momasuka komanso moona mtima ndi ena za zomwe mwakumana nazo ndi anthu omwe mumawakhulupirira
- Kukambilana zakukhosi kwanu ndi namwino wanu, GP, gulu lochizira - kukumbukira kuti zosowa zamaganizidwe ndi zamaganizo ndizofunikanso chimodzimodzi ndi nkhawa zanu zakuthupi.
- Kusunga diary kapena magazini panthawi ya chithandizo ndikulemba malingaliro anu, malingaliro, ndi malingaliro anu tsiku lililonse
- Kuchita kusinkhasinkha ndi kulingalira
- Kumvetsera matupi anu kumafunika kugona, chakudya, ndi kuchita masewera olimbitsa thupi
- Kuchita masewera olimbitsa thupi pafupipafupi momwe mungathere, ngakhale mphindi 5-10 patsiku kumatha kuchepetsa kwambiri kupsinjika panthawi ya chithandizo.
Munthu aliyense amene amalandira matenda a lymphoma kapena CLL amakhala ndi zochitika zapadera zakuthupi ndi zamaganizo. Zomwe zingachepetse nkhawa ndi nkhawa za munthu wina sizingagwire ntchito kwa wina. Ngati mukulimbana ndi kupsinjika kwakukulu ndi nkhawa nthawi iliyonse muzokumana nazo, chonde musazengereze kufikira.
