Kukhala wosamalira munthu yemwe ali ndi lymphoma kungakhale kopindulitsa komanso kovuta. Ndipo, ngakhale ndinu wosamalira, mudzafunikanso kuthandizidwa kuti mukhale bwino ndi kupumula, pamene mukuyang'anira zofuna za m'maganizo ndi zakuthupi za kukhala wosamalira.
Moyo suyima mukakhala wosamalira, kapena munthu amene mumamukonda atapezeka ndi lymphoma. Mutha kuyang'anirabe ntchito, sukulu, ana, ntchito zapakhomo ndi maudindo ena. Tsambali lipereka chidziwitso pazomwe muyenera kudziwa kuti muthandizire munthu yemwe ali ndi lymphoma, ndikupeza chithandizo choyenera nokha.
Masamba okhudzana
Kodi ndiyenera kudziwa chiyani?
Ngati mukusamalira munthu yemwe ali ndi lymphoma pali zinthu zina zokhudza lymphoma ndi mankhwala ake omwe muyenera kudziwa. Pansipa pali maulalo amasamba ena patsamba lino tikupangira kuti muwunikenso pamene mukuphunzira za mtundu wa chisamaliro chomwe wokondedwa wanu angafunikire.
Mitundu ya osamalira
Pali mitundu yosiyanasiyana ya osamalira. Ena a inu mungakhale osamalira olipidwa kumene ntchito yanu yokha ndi yosamalira munthu yemwe ali ndi lymphoma, koma osamalira ambiri ndi achibale kapena abwenzi osalipidwa. Mutha kukhala ndi mgwirizano pazantchito zanu monga wosamalira, kapena mutha kukhala bwenzi, mwamuna kapena mkazi, kholo la mwana kapena wina wodwala lymphoma. Apa mutha kukhala ndi dongosolo losakhazikika pomwe mumapereka chithandizo chowonjezera ngati chikufunika mu ubale wanu wapadera.
Mosasamala kanthu kuti ndinu wosamalira wotani mudzafunika chithandizo chowonjezera. Thandizo lomwe mungafune lidzakhala lapadera kwambiri kwa inu, ndipo lidzadalira:
- zochitika za okondedwa anu,
- omwe ali ndi lymphoma,
- mtundu wa chithandizo chomwe angafunikire,
- matenda ena aliwonse kapena zinthu zomwe munthu wanu yemwe ali ndi lymphoma ali nazo, monga kupweteka, zizindikiro za lymphoma kapena zotsatira za mankhwala, kuvutika kuyenda ndi ntchito za tsiku ndi tsiku,
- komwe mukukhala nonse,
- maudindo anu ena monga ntchito, sukulu, ana, ntchito zapakhomo, ndi magulu ochezera,
- zomwe munakumana nazo m'mbuyomu kapena simunakhalepo nazo monga wosamalira (kukhala wosamalira sikubwera mwachibadwa kwa anthu ambiri),
- thanzi lanu lakuthupi, lamalingaliro ndi lamalingaliro,
- mtundu wa ubale womwe muli nawo ndi munthu wanu yemwe ali ndi lymphoma,
- zinthu zina zambiri zomwe zimakupangitsani inu ndi munthu kukhala wapadera.
Ngati ndi mnzanu, mkazi kapena mwamuna wanu yemwe ali ndi lymphoma, sangathenso kukupatsani chithandizo chofanana, chitonthozo, chikondi, mphamvu kapena changu chomwe anali nacho kale. Ngati poyamba anathandizapo ku ntchito zapakhomo, ndalama kapena kulera ana, angakhale ndi mphamvu zochepa zochitira zimenezi tsopano kotero kuti zambiri za zinthu zimenezi zingakugwereni.
Wokondedwa wanu, mkazi kapena mwamuna wanu
Kusintha ndi kusalinganika kwa maudindo anu kudzakhala ndi kukhudzidwa kwamalingaliro pa nonse. Ngakhale sakunena m'mawu, munthu wanu yemwe ali ndi lymphoma akhoza kumva kuti ali ndi maganizo abwino komanso oipa pamene akudutsa mu lymphoma ndi chithandizo chake.
Iwo angamve kuti:
- olakwa kapena kuchita manyazi kuti sangathenso kukhala ndi moyo komanso zochita zawo,
- kuopa kuti malingaliro anu pa iwo angasinthe,
- kudzimvera chisoni mmene mankhwala amasinthira matupi awo,
- akuda nkhawa kuti kutayika kwa ndalama zawo kungawononge banja lanu.
Ndi zonsezi, iwo adzakhalabe oyamikira kwambiri kukhala ndi inu kuwathandiza kupyola gawo ili la moyo wawo.
Angaganizirenso za imfa yawo kwa nthaŵi yoyamba m’moyo wawo, ndipo zimenezi zingayambitse mantha ndi nkhaŵa, kapena kuzindikira pamene akulingalira zimene zili zofunikadi kwa iwo ndi kuganiziranso za moyo wawo. Ngakhale atakhala ndi mwayi wochiritsidwa, n’kwachibadwa kukhala ndi maganizo amenewa.
Inu, wosamalira
Kuwona wokondedwa wanu kapena mnzanu akudutsa mu lymphoma ndipo chithandizo chake sichikhala chophweka. Ngakhale atakhala ndi mwayi wochira, mungayambe kuganizira mmene zingakhalire atawataya, ndipo zimenezi zingachititse mantha ndi nkhawa. Mudzawathandizira panthawi zovuta, ndipo ngakhale izi zingakhale zopindulitsa kwambiri, zingakhalenso zolemetsa mwakuthupi ndi m'maganizo.
Mudzafunika anzanu, achibale kapena akatswiri azaumoyo kuti akuthandizeni pamene mumayang'anira zonse zomwe mumachita komanso kugwira ntchito komanso kuthandiza okondedwa anu.
Mutha kuona kusintha kwina mu ubale wanu ngati wokondedwa wanu wakhala akukusamalirani, kapena wosamalira, kapena wamphamvu ndi wolongosoka. Ndipo tsopano zili ndi inu kuti mukwaniritse maudindowa pomwe iwo amayang'ana kwambiri zachipatala komanso thanzi lawo. Izi zitha kukutengerani pang'ono kuti muzolowere nonse.
Kugonana ndi ubwenzi
Ndi zachilendo kudabwa za kugonana ndi ubwenzi wapamtima ndi mmene izi zingasinthire mukakhala wosamalira wokondedwa wanu. Zinthu zingasinthe kwakanthawi ndipo kuphunzira njira zatsopano zokhalira wapamtima kumakhala kofunika kwambiri kuti musunge ubale wanu.
Kugonana sikuli bwino ngati inu ndi mnzanuyo mukufuna, komabe pali njira zowonjezera zomwe muyenera kuzitsatira. Onani ulalo womwe uli pansipa kuti mudziwe zambiri zodziteteza nokha, okondedwa anu komanso ubale wanu.
Kukhala wosamalira mukadali mwana kapena wachikulire nokha ndi udindo waukulu. Simuli nokha. Ku Australia kuli olera pafupifupi 230,000 ngati inu! Ambiri amanena kuti n’zopindulitsadi, ndipo amasangalala kuthandiza munthu amene amamukonda.
Izi sizikutanthauza kuti zikhala zophweka. Muphunzira zambiri, ndipo mwina mudzalakwitsa pang'ono - Koma ndi bwino, chifukwa tonse timalakwitsa! Ndipo zonsezi mwina mukuchita mukadali kusukulu kapena kuyunivesite, kapena kufunafuna ntchito ndikuyesera kukhalabe ndi moyo wabwinobwino.
Pali chithandizo chochuluka chomwe chilipo kwa inu ngati wosamalira. Taphatikiza maulalo pansipa amalo omwe angathandize.
Kuwona mwana wanu kapena wachinyamata akudutsa mu lymphoma ndipo chithandizo chake ndizovuta kwambiri kwa makolo ambiri. Mudzawona mwana wanu akudutsa muzinthu zomwe mwana sayenera kuchita nazo. Ndipo, ngati muli ndi ana ena, muyenera kuwathandiza kuphunzira momwe angalimbanire ndi lymphoma ya mchimwene wawo kapena mlongo wawo ndikupitiriza ubwana wawo.
Tsoka ilo, ngakhale akadali osowa, lymphoma ndi khansa yachitatu yofala kwambiri mwa ana, komanso khansa yofala kwambiri kwa achinyamata ndi achinyamata ku Australia. Onani ulalo womwe uli pansipa pa Lymphoma mwa ana, achinyamata ndi achinyamata kuti mudziwe zambiri za lymphoma mwa achinyamata.
Tawonjezeranso maulalo pansipa a mabungwe omwe amadzipereka kuthandiza ana ndi mabanja ngati wina wapezeka ndi khansa. Ena amapereka zochitika monga maulendo oyendayenda, kumanga msasa ndikulumikizana ndi ana ena omwe ali ndi khansa, kapena omwe ali ndi kholo lomwe ali ndi khansa, pamene ena angapereke chithandizo chothandizira.
- Lymphoma mu Ana, achinyamata ndi achinyamata
- Malangizo kwa makolo ndi owalera
- Ana Cancer Charity & Family Support Australia | Redkite
- Camp ndi Retreats kwa Ana Okumana ndi Khansa | Ubwino wa Camp
- Canteen Connect - Gulu la Achinyamata Okhudzidwa ndi Khansa
- Cancer Hub | Ntchito Zothandizira Mabanja Okumana ndi Khansa
- Kulera ana kudzera mu khansa
- Thandizo la Zachuma Kwa Mabanja - Ana Amene Ali ndi Khansa
- Sony maziko - kuthandiza kuteteza chonde.
Sukulu ndi maphunziro
Ngati mwana wanu ali ndi zaka zakusukulu mukhoza kukhala ndi nkhawa kuti apitirize bwanji sukulu pamene akulandira chithandizo. Kapena mwina mwakhala otanganidwa kwambiri ndi chilichonse chomwe chikuchitika mwakuti mulibe mwayi woti muganizire.
Ana anu enanso akhoza kuphonya sukulu ngati banja lanu liyenera kuyenda maulendo ataliatali ndikukhala kutali ndi kwawo pamene mwana wanu yemwe ali ndi lymphoma ali m'chipatala.
Koma kuganizira za maphunziro n’kofunika. Ana ambiri omwe ali ndi lymphoma amatha kuchiritsidwa ndipo adzafunika kubwerera kusukulu nthawi ina. Zipatala zazikulu zambiri za ana zimakhala ndi ntchito yophunzitsa kapena sukulu yomwe mwana wanu yemwe ali ndi lymphoma ndi ana anu akhoza kupitako pamene mwana wanu akulandira chithandizo kapena kuchipatala.
Zipatala zazikulu zili m'munsimu zili ndi ntchito zapasukulu mkati mwa ntchito yawo. Ngati mwana wanu akulandira chithandizo ku chipatala chosiyana ndi chomwe chatchulidwa apa, mufunseni za chithandizo cha sukulu chomwe chilipo kwa ana anu.
Mtengo wa QLD. - Sukulu ya Chipatala cha Ana ku Queensland (eq.edu.au)
VIC. - Victoria, Education Institute: Education Institute (rch.org.au)
SA - Maphunziro a Zachipatala ku Sukulu ya South Australia
WA - Sukulu yachipatala (health.wa.gov.au)
NSW - Sukulu mchipatala | Sydney Children's Hospitals Network (nsw.gov.au)
Kaya ndinu kholo losamalira mwana wamkulu yemwe ali ndi lymphoma, kapena wamkulu yemwe akuyang'anirani kholo lanu ndi lymphoma, kapena mnzanu wosamalira mnzanu, padzakhala kusintha kwa kayendetsedwe ka ubale wanu.
Osamalira makolo
Monga kholo losamalira mwana wanu wamkulu mungafunike kusintha zambiri pa moyo wanu. Izi zitha kukhala zovuta ngati muli ndi mapangano ena. Kusintha kwa ubale wanu kungasinthenso pamene mwana wanu wamkulu amadaliranso chisamaliro ndi chithandizo chanu. Kwa ena izi zimatha kukuyandikitsani pafupi, kwa ena zingakhale zovuta. Dokotala wanu akhoza kukhala wothandizira kwambiri. Ntchito zina zomwe atha kukulozerani zalembedwa pansipa.
Chinsinsi
Mwana wanu wamkulu ali ndi ufulu wosunga chinsinsi cha mbiri yake yaumoyo. Amakhalanso ndi ufulu wosankha kupita okha, kapena ndi amene asankha.
Zingakhale zovuta kwambiri monga kholo kuvomereza izi, koma anthu ena amapirira bwino pamene sakuyenera kugawana chilichonse. Ndikofunika kuvomereza lingaliro lawo la kuchuluka kwa chidziwitso chomwe akufuna kugawana nanu. Komabe, ngati akufuna kuti mupite nawo, ndi njira yabwino yosonyezera chithandizo ndikukhala ndi chidziwitso pazomwe angafunikire.
Afunseni zomwe angakonde ndi kulemekeza chosankha chawo.
Kusamalira kholo lomwe lili ndi lymphoma
Kusamalira kholo lomwe lili ndi lymphoma kungakhale kopindulitsa kwambiri komanso njira yosonyezera chikondi chanu ndi kuyamikira zonse zomwe akuchitirani. Komabe, imathanso kubwera ndi zovuta.
Ntchito ya makolo ndi kuteteza ana awo, choncho nthawi zina zimakhala zovuta kuti makolo ayambe kudalira ana awo - ngakhale ana akuluakulu. Angafune kukutetezani ku zenizeni za zomwe akukumana nazo kapena momwe akumvera, ndipo sangafotokoze zonse zomwe mukuwona kuti mukufunikira kuti muwathandize.
Okalamba ambiri safuna zambiri ndipo angakonde kusiya kusankha kwa dokotala wawo. Izi zingakhale zovuta ngati ndinu wosamalira makolo.
Ndi bwino kulemekeza ufulu wa makolo anu osunga zinsinsi zanu komanso ufulu wawo wodziimira paokha.
Mukanena zimenezo, mukufunikirabe chidziŵitso chokwanira kuti muthe kusamalira ndi kuchirikiza kholo lanu. Kukonzekera bwino kungakhale kovuta ndipo kumatenga nthawi ndikuchita. Ngati kholo lanu likuvomera, yesani kupita nawo pamisonkhano yawo yambiri. Izi zidzakupatsani mwayi wofunsa mafunso ndikukhala ndi malingaliro abwino a zomwe zikuchitika. Dziwani kuti kholo lanu siliyenera kuvomereza izi, koma ngati atero, ndi njira yabwino kwambiri yopangira ubale ndi gulu lazaumoyo ndikukhala ndi nthawi.
Thandizo lowonjezera likupezeka kudzera mwa GP wanu.
Kusamalira bwenzi
Kusamalira bwenzi lanu ndi lymphoma kudzasintha kusintha kwa ubwenzi wanu. Zomwe zidakupangitsani kukhala abwenzi komanso zomwe mumachita limodzi zisintha. Izi zingakhale zovuta, koma anthu ambiri amapeza kuti ubwenzi wawo umakhala wozama kwambiri kuposa momwe zinalili kale lymphoma.
Mudzafunikanso kudzisamalira nokha ndikudziwa kuti mnzanuyo sadzatha kukupatsani chithandizo chofanana ndi momwe amachitira poyamba. Osachepera kanthawi. Tili ndi maupangiri abwino kwambiri patsamba lamomwe mungathandizire mnzanu ndikukhalabe ndiubwenzi pomwe mukuwasamalira.
Kulinganiza chisamaliro ndi ntchito, ana ndi maudindo ena
Kuzindikira kwa lymphoma nthawi zambiri kumabwera popanda chenjezo lililonse. Ndipo zachisoni, ndi ochepa omwe angakhale osamalira omwe ali olemera okha. Mutha kukhala mukugwira ntchito, mukuphunzira kapena mukufunafuna ntchito. Ndipo tonse tili ndi mabilu oti tilipire. Mungakhale ndi nyumba yanuyanu yoti musungitse dongosolo, mwinamwake ana anuanu ndi mathayo ena.
Palibe mwa maudindowa omwe amasintha pamene matenda a lymphoma mosayembekezereka achitika kwa wokondedwa wanu, kapena thanzi lawo likasintha ndipo amafunikira chithandizo chochuluka kuchokera kwa inu kuposa kale. Muyenera kupeza nthawi yokonzekera bwino nthawi yomwe muli nayo yosamalira wokondedwa wanu.
Mungafunike kupeza gulu la anthu, abale ndi alongo, mabwenzi kapena ena amene angagawireko katunduyo. Ngakhale atakhala kuti satenga udindo wosamalira ovomerezeka, atha kuthandizanso pazinthu zina za chisamaliro monga kuthandiza ntchito zapakhomo, kunyamula ana, kuphika chakudya kapena kugula zinthu.
Komanso pansi pa tsamba pansi pa gawoli Malangizo kwa osamalira ndi madontho ena omwe amalumikizana ndi masamba kapena mapulogalamu osiyanasiyana omwe angathandize kugwirizanitsa chithandizo chomwe mungafune.
Emotional zotsatira za lymphoma
Lymphoma imakhudza kwambiri aliyense amene akhudzidwa nayo. Koma nthawi zambiri zimawoneka kuti zimakhudza wodwalayo ndi okondedwa awo mosiyana, ndipo nthawi zina nthawi zosiyanasiyana.
Ziribe kanthu momwe mungayesere, simudzamvetsa bwino momwe zimakhalira kwa munthu wanu yemwe ali ndi lymphoma. Momwemonso, ngakhale atayesetsa bwanji, sangamvetsetse momwe zimakhalira kwa inu kuwayang'ana akudutsa mu lymphoma, ndi machiritso ndikusintha kuti akakamizidwe kukhala ndi moyo wojambula, kuyezetsa, kulandira chithandizo komanso kumva kuti alibe chitetezo.
Kutengera ubale wanu ndi munthu yemwe ali ndi lymphoma, momwe zimakhudzira ubale wanu zimabwera ndi zovuta zosiyanasiyana.
Kupezeka ndi khansa si chinthu chachilendo. Zachisoni, zikuchulukirachulukira, koma si zachilendo. Kotero palibe njira yachibadwa yoyankhira nkhani za khansa kapena zovuta zomwe zimabweretsa.
Zomwe zimachitikira munthu aliyense zidzakhala zosiyana. Ngakhale m'mabanja, aliyense m'banjamo amakhala ndi malingaliro, malingaliro ndi machitidwe osiyanasiyana pa nkhani za iwo eni kapena okondedwa omwe ali ndi khansa.
Chithandizo nthawi zambiri chimakhala chovuta kwambiri kwa wothandizira - Kumaliza kulandira chithandizo nthawi zambiri kumakhala kovuta kwa munthu yemwe ali ndi lymphoma!
Kuzindikira kwa lymphoma ndikovuta kwa aliyense! Moyo usintha kwakanthawi, ndipo mwina mpaka muyaya kumlingo wina. Ngakhale kuti si onse omwe ali ndi lymphoma amafunikira chithandizo nthawi yomweyo, anthu ambiri amatero. Koma ngakhale ngati chithandizo sichikufunika nthawi yomweyo, palinso malingaliro okhudzana ndi matendawa, komanso kuyesa kowonjezereka ndi kuyesedwa kofunikira komwe kungayambitse nkhawa ndi nkhawa.
Ngati munthu wanu sakuyamba kulandira chithandizo nthawi yomweyo, mutha kupeza tsamba ili pansipa kukhala lothandiza.
Patsogolo pa kuzindikiridwa kovomerezeka ndiyeno kuyesa mayeso ndikuyamba kulandira chithandizo, moyo udzakhala wotanganidwa. Monga wosamalira, mungafunike kutsogolera pazinthu zambiri, kupanga nthawi yokumana, kuyendetsa galimoto kupita ku malo ochezera komanso kukhala ndi munthu wanu pazovuta zina zomwe angamve ndi zisankho zomwe ayenera kupanga.
Panthawiyi, munthu wanu yemwe ali ndi lymphoma akhoza kulowa mu bizinesi. Kapena mwina mukukana, kapena kudwala kwambiri kuti muthane ndi zomwe zikuchitika. Kapena mwina adzalira bwino ndipo adzafunikira inu pambali pawo kuti muwatonthoze ndi kuwachirikiza pamene ayamba kuvomereza mmene akumvera. Akhoza kusiya zonse kwa inu pamene akungoganizira za kulandira chithandizo.
Malangizo kwa olera patsogolo, komanso panthawi ya chithandizo
- Khalani ndi buku, diary kapena foda pa chipangizo chanu kuti muzitsatira nthawi zonse zomwe zasankhidwa.
- Lembani Lumikizani nafe kuwonetsetsa kuti inu ndi munthu wanu yemwe ali ndi lymphoma muli ndi mwayi wodziwa zambiri zamtundu wake wa lymphoma, mankhwala, zochitika ndi zida zothandizira mankhwala akayamba. Mutha kudzaza fomuyo ndi kuwonekera kuno.
- Tengani zokhwasula-khwasula ndi zakumwa zopatsa thanzi pokumana ndi anthu - nthawi zina kuchedwa kumatha kuchitika ndipo masiku amankhwala amatha kukhala atali.
- Funsani munthu wanu kuchuluka kwa zomwe akufuna kugawana ndi ena. Anthu ena amakonda kugawana chilichonse pomwe ena amakonda kusunga zinthu zachinsinsi. Ganizirani momwe mungagawire zambiri, malingaliro ena angaphatikizepo:
- Yambitsani tsamba lachinsinsi la Facebook (kapena malo ena ochezera) omwe mutha kugawana ndi anthu omwe mukufuna kuti azikhala osinthidwa.
- Yambitsani kucheza pagulu pa ntchito yotumizirana mauthenga monga WhatsApp, Facebook Messenger kapena zina kuti mutumize zosintha mwachangu.
- Yambitsani Blog ya pa intaneti (diary) kapena VLOG (kanema diary) kuti mugawane.
- Lembani manotsi panthawi yolembera kuti mubwererenso pambuyo pake, kapena funsani dokotala ngati mungathe kulemba nthawiyo pafoni yanu kapena chipangizo china chojambulira.
- Lembani m'buku lanu, diary kapena foni ya munthu wanu subtype ya lymphoma, ziwengo, zizindikiro, dzina la mankhwala ndi zotsatira zake.
- Sindikizani kapena tsitsani Mafunso oti mufunse dokotala wanu kuti mutengere ku makonzedwe anu - ndikuwonjezera zina zomwe inu kapena munthu wanu mungakhale nazo.
- Khalani ndi chikwama cholongedza kuti mugone m'chipatala mosayembekezereka kuti muzisunga m'galimoto kapena pakhomo. Paketi:
- zimbudzi
- pajamas
- zovala zomasuka zomasuka
- nsapato zosasunthika zokwanira bwino
- foni, laputopu, piritsi ndi ma charger
- zoseweretsa, mabuku, puzzles kapena zochitika zina
- zokhwasula-khwasula.
- Nthumwi - funsani banja lanu ndi magulu ochezera kuti muwone omwe angathandize pazinthu zina monga kugula, kuphika chakudya, kuyendera, kuyeretsa m'nyumba, kukatenga ana kusukulu. Zina mwamapulogalamuwa zitha kukhala zothandiza:
Kodi munthu wanu yemwe ali ndi lymphoma ali ndi ana?
- Ana Cancer Charity & Family Support Australia | Redkite
- Camp ndi Retreats kwa Ana Okumana ndi Khansa | Ubwino wa Camp
- Canteen Connect - Gulu la Achinyamata Okhudzidwa ndi Khansa
- Cancer Hub | Ntchito Zothandizira Mabanja Kulimbana ndi Khansa
Kenako mankhwala amayamba!
Nthawi zambiri timamva kwa odwala kuti chithandizo chinali chosavuta poyerekeza ndi moyo pambuyo pa chithandizo. Izi sizikutanthauza kuti chithandizo ndi chophweka. Adzakhalabe otopa komanso adzakhala ndi zotsatirapo za mankhwala. Koma anthu ambiri ali otanganidwa kwambiri ndi kulandira chithandizo kotero kuti sangakhale ndi nthawi yokonza zomwe zikuchitika - Mpaka chithandizo chitatha.
Monga wothandizira, ngati moyo sunali wotanganidwa mokwanira, ndiye kuti chithandizo chikangoyamba! Pali mitundu yosiyanasiyana ya chithandizo cha anthu osiyanasiyana komanso mitundu yosiyanasiyana ya ma lymphoma. Koma mankhwala ambiri amatha kwa miyezi (miyezi 4-6) osachepera, ndipo ena amatha zaka.
Maudindo opitilira
Komanso chithandizo, munthu wanu adzafunikanso kuyezetsa magazi nthawi zonse, kukaonana ndi dokotala wa haematologist kapena oncologist NDI dotolo wakumaloko (GP) komanso mwina PET/CT kapena masikelo enanso. Angafunikenso kuyezetsa zina kuti awone momwe mtima, mapapo ndi impso zawo zikuchitira ndi chithandizo.
Zotsatira zoyipa
Chithandizo chilichonse chimakhala ndi zotsatirapo zake, mtundu wa zotsatira zake ukhoza kukhala wosiyana malinga ndi mtundu wa chithandizo. Anthu osiyanasiyana omwe ali ndi chithandizo chofanana amathanso kukhala ndi zotsatira zosiyana kapena kuopsa kwa zotsatira zake kungakhale kosiyana.
Monga wothandizira, muyenera kudziwa za zotsatirapo izi kuti muthe kukuthandizani kwanu, komanso kudziwa nthawi yoti mukumane ndi dokotala kapena kupita kuchipatala. Onetsetsani kuti mwafunsa za zotsatirapo za mtundu wina wa chithandizo chomwe munthu wanu akulandira. Katswiri wawo wamagazi kapena oncologist, namwino wapadera kapena wazamankhwala azitha kukuthandizani pa izi. Mutha kuyimbiranso anamwino athu 1800 953 081 kuti mudziwe zambiri ngati mukufuna.
Mukadziwa zomwe munthu wanu angakumane nazo, pitani patsamba lathu lazotsatira podina ulalo womwe uli pansipa kuti mudziwe zambiri za iwo.
Mankhwala amatha kukhudza momwe amamvera komanso momwe amamvera
Mankhwala ena a lymphoma, komanso mankhwala ena omwe angakhale akumwa, komanso kupsinjika kwa ma lymphoma kumatha kukhudza momwe munthu akumvera komanso momwe akumvera. Izi zitha kuwapangitsa kukhala olira, okwiya kapena osachedwa kupsa mtima, okhumudwa kapena achisoni kuposa momwe amakhalira. Dziwani zambiri za izi patsamba lathu Maganizo ndi maganizo.
Ndikofunika kukumbukira kuti kusintha kumeneku kwa malingaliro ndi malingaliro sikukukhudzani inu kapena momwe mukuchitira bwino ngati wosamalira. Ndiponso sichisonyezero chenicheni cha malingaliro awo enieni. Ndi momwe mankhwalawa amakhudzira mahomoni osiyanasiyana ndi zizindikiro mu ubongo.
Ngati mukuda nkhawa ndi momwe kusintha kwa malingaliro ndi malingaliro awo kumawakhudzira, inu ndi ena, alimbikitseni kuti alankhule ndi dokotala wawo za izi. Ngati mupita kukakumana ndi munthu wanu, mutha kulankhulanso ndi dokotala za kusinthaku. Nthawi zambiri, izi zimatha kusintha ndikusintha kwamankhwala kapena mlingo.
Chinsinsi
Ngakhale izi zitha kukhala zovuta, monga wosamalira simukuyenera kulandira zolemba zachipatala kapena zambiri za anthu anu. Zipatala, madotolo, anamwino ndi akatswiri ena azaumoyo ali omangidwa ndi malamulo achinsinsi ndipo sangathe kugawana nanu zambiri zachipatala kapena zolemba popanda chilolezo chodziwika bwino, komanso cholembedwa nthawi zambiri kuchokera kwa munthu wanu.
Munthu wanu alinso ndi ufulu wongogawana zomwe ali omasuka kugawana nanu. Muyenera kulemekeza izi ngakhale mutakhala okwatirana, muubwenzi wodzipereka kapena kholo kapena mwana wa munthu yemwe ali ndi lymphoma. Anthu ena amafunikira nthawi yokonza zatsopano ndikupanga mapulani m'mutu mwawo asanakhale omasuka kugawana zomwe akudziwa. Ena angafune kukutetezani ku zovuta zomwe akukumana nazo.
Kuchuluka kapena pang'ono kumene amagawana nanu sikumasonyeza kuti amakukondani kapena kuti amakukhulupirirani kwambiri. Ndi njira yokhayo yothanirana ndi anthu ambiri.
Ngati mungafune kudziwa zambiri, dziwitsani munthu yemwe ali ndi lymphoma kuti akakonzeka, mukufuna kudziwa zambiri kuti muthe kuwathandiza momwe mungathere, ndikupanga mapulani omwe mungafunikire kupanga. Komanso adziwitseni kuti mumalemekeza ufulu wawo wachinsinsi.
Munthu wanu atha kupeza kuti kumaliza chithandizo kumakhala kovuta kwambiri kuposa chithandizo chokha!
Nthawi zambiri timamva kuchokera kwa anthu omwe ali ndi lymphoma kuti anali bwino pamene akulandira chithandizo, koma miyezi pambuyo pomaliza chithandizo chinali chovuta kwambiri. Kupeza komwe akugwirizana ndi moyo, banja, ntchito / sukulu kapena magulu ochezera atha kutenga nthawi. Anthu ambiri atiuza kuti amadzimva otayika m'miyezi itatha chithandizo.
Anthu ambiri omwe ali ndi lymphoma adzakhalanso ndi kutopa kosalekeza, ndi zizindikiro zina kapena zotsatira za mankhwala zomwe zimatha miyezi ingapo mutalandira chithandizo. Ena amatha kukhala ndi zotsatirapo zanthawi yayitali zomwe zimafunikira kuwongolera kosalekeza kwa moyo wawo wonse. Chifukwa chake chidziwitso cha lymphoma sichimatha pamene chithandizo chimatha.
Kwa anthu ena, kukhudzidwa kwamalingaliro atapezeka kuti ali ndi matenda a lymphoma komanso kulandira chithandizo sikufika mpaka atatanganidwa kwambiri, kuwunika, kuyezetsa ndi kulandira chithandizo kutha.
Zoyembekeza zomveka
Chimodzi mwazinthu zomwe timamva kwambiri kwa odwala ndikuti aliyense amayembekeza kuti abwerera m'chimake tsopano chithandizo chatha. Ichi ndi chiyembekezo chosatheka!
Kumbali ina, anthu ena amakhumudwa ndi okondedwa awo osawalola kubwerera kumlingo wina wake.
Afunseni zomwe akufuna!
Njira yokhayo yodziwira zomwe munthu wanu akufunikira ndikumufunsa. Zindikirani kuti zingawatengere nthawi kuti ayambenso kudzidalira, ndipo mwina sangabwererenso mmene analili poyamba. Koma ichi sichiyenera kukhala chinthu choipa. Ino ndi nthawi yabwino yochotseratu zodetsa nkhawa zosafunikira pamoyo wanu ndikuyang'ana kwambiri zinthu zofunika.
Kupanga mapulani
Anthu ena amaona kuti n’zothandiza kupanga mapulani oyembekezera chinachake chithandizo chikatha. Komabe, anthu ena sangakhale ndi chidaliro chokonzekera kalikonse mpaka atakhala ndi nthawi yoti achire ndikubwerezanso kuyesa kuti atsimikizire kuti lymphoma yachiritsidwa kapena yakhululukidwa. Chilichonse chomwe chimagwirira ntchito kwa munthu wanu ndichabwino. Palibe njira yoyenera yochitira izi.
Komabe, mungaganize kuti muyenera kukonzekera ngakhale munthu wanu sanakonzekere. Zimenezi n’zomveka, ndipo chofunika kwambiri n’chakuti muzilankhulanabe kuti mupeze dongosolo limene lingagwire ntchito kwa nonsenu.
Thandizo likupezeka
Palibe wolera amene ayenera kusamalira yekha. Ndikofunikira kuti mulumikizane ndi anthu osiyanasiyana - abwenzi anu, achibale komanso akatswiri azaumoyo.
Adziwitseni anthu zomwe mukufuna
Khulupirirani kapena ayi, anthu ambiri amafuna kuthandiza. Vuto ndiloti, anthu ambiri sadziwa momwe angachitire. Anthu ambiri samaphunzitsidwa kapena kudziwa momwe angayankhulire, kapena kuthana ndi zinthu zovuta monga matenda.
Anthu ambiri akuda nkhawa kuti akamakuuzani za vuto lanu, akhoza kukukhumudwitsani, kukukhumudwitsani kapena kukuchititsani manyazi. Ena samadziwa choti anene. Anthu ambiri amangoganiza zongolankhula za izi ngati mubweretsa. Izi sizikutanthauza kuti sasamala.
Koma zikuwoneka bwino!
Ngati mumangopeza anzanu ndi abale mukakhala amphamvu, owoneka bwino ndikuwauza zonse zili bwino, ndiye mungayembekezere bwanji kuti adziwe kuti mukufuna thandizo?
Adziwitseni anthu zomwe mukufuna. Adziwitseni anthu kuti ndinu omasuka kucheza ndi kugawana nawo mavuto anu. Izi zitha kukhala zoyeserera. Ndipo simungapeze yankho lomwe mumayembekezera nthawi zonse, koma simungayembekezere kuti anthu adziwe zomwe mukufuna pokhapokha mutawadziwitsa.
Osayembekezera kuti angoganiza! Zingakhale zabwino ngati anthu atha kuwerenga malingaliro athu, koma sangathe ndipo sizowona kuyembekezera kuti anthu adziwe zomwe mukufuna, chifukwa chilichonse ndi zosowa za aliyense ndizosiyana.
Ganizirani za maukonde omwe ali pansipa omwe mutha kulankhula nawo kapena kupempha thandizo.
Mutha kutsamira pa atsogoleri a chikhulupiriro chanu ndi mpingo wanu kuti akuthandizeni m'malingaliro, muuzimu komanso mwakuchita. Pezani nthawi yolankhula nawo ndikuwadziwitsa zomwe mukukumana nazo ndikuwafunsa chithandizo chomwe angapereke.
Ngati muli omasuka ndi ganizoli, afunseni ngati atha kulembapo kena kake m'makalata awo kapena kulankhulana pafupipafupi ndi mamembala ena kuti apemphe thandizo lanthawi zonse kapena mongopuma kamodzi. Mwinanso mungathe kuchita zimenezi mosadziŵika ndi okhawo amene amafikira mtsogoleri wa mpingo amene apereka tsatanetsatane wanu.
Anthu ambiri ali m’magulu a zamasewera kapena magulu ena a anthu. Ngati muli ndi gulu ndipo mwalumikizana bwino ndi mamembala ena, lankhulani nawo momwe moyo wanu ukusinthira chifukwa cha udindo wanu watsopano wosamalira. Adziwitseni zomwe mukusowa thandizo ndipo funsani ngati akudziwa aliyense amene angakuthandizeni.
Ngati muli omasuka ndi ganizoli, afunseni ngati atha kulembapo kena kake m'makalata awo kapena kulankhulana pafupipafupi ndi mamembala ena kuti apemphe thandizo lanthawi zonse kapena mongopuma kamodzi. Mutha kuchita izi mosadziwika ndi okhawo omwe amapita kwa mtsogoleri wa gululo atapatsidwa zambiri zanu.
Ngakhale si inu amene muli ndi lymphoma, ndikofunikira kuti mulumikizane ndi GP. Ma GP atha kukhala njira yabwino yothandizira ndikukuthandizani kugwirizanitsa chisamaliro chomwe mungafune.
Tikukulimbikitsani kuti aliyense amene ali ndi lymphoma ndi owasamalira azikhala ndi dongosolo lazaumoyo ndi GP wanu. Izi zitha kuyang'ana zopsinjika ndi maudindo omwe muli nawo tsopano ndikupanga dongosolo lowonetsetsa kuti mukuthandizidwa ndi uphungu, psychologist, mankhwala kapena chithandizo china chomwe mungafune.
Mutha kukhala ndi zovuta zachipatala nokha zomwe muyenera kuzisamalira posamalira munthu wanu. Dokotala wanu athanso kupanga dongosolo la kasamalidwe ka GP kuti awonetsetse kuti zinthuzi sizikuphonya mukakhala otanganidwa kusamalira wokondedwa wanu. Atha kukuthandizaninso kukulumikizani ndi mabungwe amdera lanu omwe angakuthandizeni.
Ntchito Zowonjezera Dokotala wanu angakulozereniko
Ndikofunikira kupeza chithandizo chomwe mukufunikira kuti muthane ndi zosinthazi. Lankhulani ndi GP wanu za chithandizo chomwe chilipo mdera lanu. Atha kuthandizira kukonza chisamaliro chanu pokutumizirani ntchito zosiyanasiyana mdera lanu. Zina zomwe zingathandize ndi izi.
- Akatswiri a zamaganizo kapena aphungu kuti athandize pazovuta zamaganizo ndi zamaganizo zomwe zimadza ndikuthandizira munthu yemwe ali ndi lymphoma.
- Othandizira pantchito omwe angakuthandizeni kuyesa zosowa zanu ndikuthandizira kupeza chithandizo choyenera chakuthupi kuti musamalire munthu wanu.
- Ogwira ntchito zamagulu omwe angakuthandizeni kupeza chithandizo chamagulu ndi ndalama zosiyanasiyana.
Zipatala zambiri zimakhala ndi dipatimenti yothandiza anthu. Mungathe kupempha kuti mutumizidwe kwa social worker pachipatala chanu. Ngati chipatala chanu chilibe dipatimenti yothandiza anthu, dokotala wanu wapafupi atha kukuthandizani kuti mulumikizane ndi m'dera lanu.
Ogwira ntchito zachitukuko atha kukuthandizani ndi uphungu, kutumiza zithandizo zosiyanasiyana kuti mukathandizidwe, kugwirizanitsa chisamaliro cha okondedwa anu, ndi kukulimbikitsani m'malo mwanu.
Atha kukuthandizaninso kupeza chithandizo chandalama, chithandizo chapaulendo ndi malo ogona kapena zina zaumoyo ndi zamalamulo ngati pakufunika.
Carer Gateway ndi pulogalamu ya Boma la Australia yopereka chithandizo chaulere komanso chothandiza kwa osamalira. Mutha kudziwa zambiri za iwo apa: Career Gateway.
Anamwino athu a Lymphoma Australia akupezeka Lolemba - Lachisanu 9am mpaka 4:30pm.
Mutha kulumikizana nawo pa foni pa 1800 953 081 kapena imelo nurse@lymphoma.org.au.
Akhoza kuyankha mafunso anu, kumvetsera nkhawa zanu ndi kukuthandizani kupeza chithandizo kwa wokondedwa wanu kapena nokha.
Lymphoma Down Under ndi gulu lothandizira anzawo pa intaneti pa Facebook. Imayendetsedwa ndi Lymphoma Australia koma ndi ya odwala ndi okondedwa awo. Anthu ambiri amapeza kucheza ndi ena omwe ali ndi lymphoma kapena kusamalira omwe ali ndi lymphoma komanso kumva nkhani zawo kumathandiza kwambiri.
Mutha kulowa nawo poyankha mafunso amembala ndikuvomera malamulo apagulu apa: Lymphoma Pansi Pansi.
Thandizo lazachuma kwa osamalira
Mutha kulandira ndalama kuchokera ku Centrelink kuti zikuthandizeni posamalira wokondedwa wanu. Nonse inu, ndi munthu amene mukumusamalira adzafunika kukwaniritsa zofunika zina kuti mukhale oyenerera.
Zambiri pazamalipiro a olera ndi zololera zingapezeke patsamba la Services Australia.
Kusunga maubwenzi ndi maubwenzi ena
Anthu ambiri amawona kusintha kwa maubwenzi awo ndi zochitika za m'banja akakhala ndi khansa. Anthu ena amapeza kuti omwe ali pafupi nawo amakhala kutali, pomwe ena omwe sanakhale nawo pafupi, amayandikira.
Tsoka ilo, anthu ambiri sanaphunzitsidwe kulankhula za matenda ndi zinthu zina zovuta. Anthu akabwerera, nthawi zambiri amakhala chifukwa sadziwa choti anene, kapena amawopa chilichonse chomwe anganene, chingakukhumudwitseni kapena kupangitsa kuti zinthu ziipireipire.
Ena atha kudera nkhawa za kugawana nawo zabwino kapena zoyipa zawo, kapena zakukhosi kwawo. Mwina sangafune kukulemetsani pamene simukupeza bwino. Kapena, angakhale odziimba mlandu pamene zinthu ziwayendera bwino mukakhala ndi zambiri.
Malangizo a momwe mungasungire ubale ndi anzanu komanso abale
Mutha kuthandiza anzanu ndi abale anu kuti amvetsetse kuti ndi bwino kukambirana za lymphoma kapena chithandizo chomwe wokondedwa wanu ali nacho ngati akufuna. Kapenanso kulankhula za zimene zikuchitika m’moyo wawo. Ngati ndinu omasuka kulankhula za vuto lanu, funsani mafunso monga:
- Kodi mukufuna kudziwa chiyani za lymphoma?
- Kodi muli ndi mafunso otani okhudzana ndi (okondedwa anu) chithandizo ndi zotsatira zake?
- Kodi mukufuna kudziwa bwanji?
- Zinthu zikhala zosiyana kwa ine kwakanthawi, tingatani kuti tizilumikizana?
- Ndikhala wotanganidwa kwambiri kuthandiza wokondedwa wanga kwakanthawi. Ndingafunike thandizo pa zinthu monga kuphika, kuyeretsa, kusamalira ana. Kodi mungathandize ndi chiyani?
- Ndikufunabe kudziwa zomwe zikuchitika ndi inu - Ndiuzeni zabwino ndi zoyipa - Ndi chilichonse chapakati!
- Sindikufuna kulankhula za lymphoma koma ndifunseni (chilichonse chomwe mungafune kulankhula).
- Mukudziwa nthabwala zilizonse zabwino? Ndikufuna kuseka.
- Kodi mungangokhala pano ndi ine ndikulira, kapena kuganiza kapena kupuma?
- Ngati muli ndi mphamvu, mutha kuwafunsa - Mukufuna chiyani kwa ine?
Adziwitseni anthu ngati kuli bwino kudzacheza, kapena momwe mungakonde kumalumikizana
Chithandizo chingachepetse chitetezo cha mthupi mwa okondedwa anu. Ndikofunikira kudziwitsa anthu kuti sikungakhale kotetezeka nthawi zonse kuyendera, koma kuti akatero akhoza kukukumbatirani.
- Adziwitseni kuti asapite ngati akudwala. Ganizirani njira zina zolumikizirana.
- Ngati muli omasuka kukumbatira anthu ndipo ali bwino, auzeni kuti mukufuna kukumbatira.
- Onerani kanema limodzi - koma m'nyumba zanu powonera, kanema kapena foni.
- Tsegulani macheza pagulu pa imodzi mwazinthu zambiri zotumizira mauthenga kapena makanema zomwe zilipo.
- Yambitsani mndandanda, chifukwa mukapitako ndi kolandirika komanso zomwe muyenera kuchita. Mapulogalamu omwe ali pamwambawa angathandize pa izi.
Ndipo potsiriza, ngati muwona kuti ubale ukusintha, kambiranani. Adziwitseni anthu kuti akadali ofunikira, ndipo mukufunabe kukhalabe oyandikana nawo omwe mudali nawo kale.
Zina Zofunikira
Chidule
- Udindo wa wothandizira ndi munthu payekha payekha kutengera ubale wanu ndi munthu yemwe ali ndi lymphoma komanso zosowa zawo.
- Olera atha kukhala achibale, abwenzi kapena kuchokera ku ntchito zolipira.
- Aliyense akhoza kukhala wosamalira kuphatikizapo ana ndipo mukhoza kukhala ndi udindo wosamalira bwino.
- Monga wosamalira simuli nokha, pali mautumiki okuthandizani, komanso malipiro ena omwe mungakhale oyenera kulandira.
- Kumvetsetsa lymphoma, chithandizo chake, ndi zotsatira zake kudzakuthandizani kumvetsetsa momwe mungathandizire munthu wanu bwino.
- Munthu wanu angafunikirebe chithandizo chanu ngati wosamalira pakapita nthawi chithandizo chitatha.
- Ngakhale ndinu wosamalira, mudzafunikanso chithandizo. Adziwitseni anthu zomwe mukufuna.
- Pezani GP wabwino ndikulumikizana nawo pafupipafupi. Atha kuthandizira kugwirizanitsa ntchito zosiyanasiyana zomwe mungafune.
- Mutha kuyimbira mmodzi wa anamwino athu pa 1800 953 081 Lolemba - Lachisanu 9am-4:30 pm nthawi ya Brisbane.
