Kurarama ne lymphoma uye kurapwa kunogona kuva nguva inoshungurudza nematambudziko akawanda akasiyana. Iwe unogona kunge uchinetseka kuti ndeupi rubatsiro runowanikwa kune vanhu vane lymphoma. Peji rino rinopa mamwe mazano anoshanda uye ruzivo pamusoro perutsigiro masevhisi aungawanikwe kwauri. Izvi zvinosanganisira rubatsiro rwezvekufambisa, rutsigiro rwemari, rubatsiro rweutano hwepfungwa nezvimwe zvakawanda.
Inoshanda Zuva Nezuva
Kuwana iwe kana mudiwa ane lymphoma kutyisa kukuru uye kuchachinja zvinhu zvakawanda pamusoro pemararamiro aunoita. Kuziva zvaunoda pakutanga kunogona kukubatsira kuronga pachine nguva kuti uve nechokwadi chekuti unowana rutsigiro rwakafanira paunenge uchichida zvakanyanya.
Kuti lymphoma inobata sei hupenyu hwako hunoenderana nezvinhu zvakawanda, zvakadai se:
- ndeipi subtype ye lymphoma yaunayo
- kana uchida kurapwa, uye kuti ucharapwa sei
- zera rako uye kugara zvakanaka
- network yako yekutsigira
- uri padanho ripi rehupenyu (uri kurega basa, kurera vana vadiki, kuroora kana kutenga imba)
- ungave uchigara muguta kana kumaruwa.
Pasinei nezvinhu zvose izvi, munhu wose ane lymphoma anoda kuita shanduko dzausingadi kuita. Kurarama nemhedzisiro iyi kunogona kunetsa uye kugadzira matambudziko matsva muhupenyu hwako.
Zvikamu zvinotevera zvinopa mazano anobatsira ekuti ungaita sei zviitwa zvemazuva ese uye zvinhu zvekufunga nezvazvo kuitira kuti ugoronga mberi.
Kufambisa hurongwa hwehutano hwehutano
Kufamba nehurongwa hwekuchengetedza hutano kunogona kuve kwakaoma, kunyanya kana chipatara chega chega chakasiyana uye zviitiko zvemunhu wese zvinosiyana zvakanyanya.
Muvhidhiyo iri pasi apa, Andrea Patten uyo ari mukuru wevashandi vezvemagariro evanhu anotaura nezvekodzero dzako uye zvimwe zvakakosha zvinofungwa, kana iwe pachako kana mudiwa akaonekwa kuti ane lymphoma.
Mavhesi eruzhinji Private Hospital uye Nyanzvi
Zvakakosha kunzwisisa sarudzo dzehutano hwako paunotarisana ne lymphoma kana CLL kuongororwa. Kana uine inishuwarenzi yehutano yakazvimirira, ungangoda kufunga kuti unoda here kuona nyanzvi mune yakavanzika system kana yeruzhinji system. Kana Chiremba weChiremba achikutumira nekutumwa, kurukurai navo. Kana usina inishuwarenzi yehutano yakazvimirira, ita shuwa kuti ita kuti Chiremba wako azivewo izvi, sezvo vamwe vangangokutumira kune yakavanzika system kana vasingazive kuti ungada hurongwa hweveruzhinji. Izvi zvinogona kuguma nekubhadhariswa kuti uone nyanzvi yako.
Unogona kugara uchichinja pfungwa dzako wodzokera kune yakavanzika kana yeruzhinji kana ukachinja pfungwa dzako.
Dzvanya misoro iri pazasi kuti udzidze nezve mabhenefiti uye pasi pekuva nekurapwa muhurongwa hweveruzhinji uye hwakavanzika.
Mabhenefiti ePublic System
- Iyo yeruzhinji sisitimu inovhara mutengo wePBS yakanyorwa lymphoma kurapwa uye kuferefetwa kwe
lymphoma yakadai sePET scans uye biopsy's. - Iyo yeruzhinji system inovharawo mutengo weimwe mishonga isina kunyorwa pasi pePBS
kufanana nedacarbazine, iyo chemotherapy mishonga inowanzoshandiswa mune
kurapwa kweHodgkin's lymphoma. - Mari inongobuda muhomwe yekurapwa muhurongwa hweveruzhinji kazhinji ndeyevanorwara vari kunze
zvinyorwa zvemishonga yaunotora nemuromo kumba. Izvi zvinowanzova zvishoma uye ndizvo
kunyange kupa rubatsiro zvakare kana uine hutano hwehutano kana kadhi repenjeni. - Zvipatara zvakawanda zvehurumende zvine chikwata chenyanzvi, vanamukoti uye vashandi vehutano vakabatana, vanonzi the
Chikwata cheMDT chinotarisira kukuchengeta. - Zvipatara zvakawanda zvakakura zvedzidzo yepamusoro zvinokwanisa kupa nzira dzekurapa dzisiri kuwanikwa mu
private system. Semuenzaniso mamwe marudzi ekutapurirana, CAR T-cell therapy.
Downsides yeruzhinji system
- Iwe haugone kugara uchiona nyanzvi yako kana iwe uine maaphoyintimenti. Zvipatara zvizhinji zvehurumende ndezvekudzidzira kana zvikoro zvepamusoro. Izvi zvinoreva kuti unogona kuona maregistrar kana maregistrars epamusoro ari mukiriniki, uyo anozoudza nyanzvi yako.
- Pane mitemo yakasimba pamusoro pekubhadhara-kubhadhara kana kubvisa mazita ekuwana mishonga isingawanikwe paPBS. Izvi zvinoenderana nehutano hwehutano hwako uye zvinogona kunge zvakasiyana pakati penyika. Nekuda kweizvozvo, mimwe mishonga inogona kunge isipo kwauri. Iwe uchiri kukwanisa kuwana akajairwa, akatenderwa marapirwo echirwere chako zvakadaro.
- Iwe unogona kusakwanisa kuwana zvakananga kuhematologist yako asi ungangoda kubata nyanzvi mukoti kana receptionist.
Benefits of the private system
- Iwe unogara uchiona iyematologist mumwechete sezvo pasina vanachiremba vanodzidzira mumakamuri akavanzika.
- Iko hakuna mitemo yakatenderedza co-pay kana off label kuwana kumishonga. Izvi zvinogona kunyanya kubatsira kana uine zvirwere zvakawanda zvakadzokera shure kana lymphoma subtype iyo isina maitiro akawanda ekurapa. Nekudaro, inogona kudhura zvakanyanya nemari yakakosha yekunze-yehomwe yauchazoda kubhadhara.
- Mimwe bvunzo kana kuyedza bvunzo dzinogona kuitwa nekukurumidza muzvipatara zvakazvimiririra.
Pazasi pezvipatara zvehurumende
- Mari yakawanda yekuchengetedza hutano haibhadhare mutengo weyese bvunzo uye/kana kurapwa. Izvi zvinoenderana nehomwe yehutano hwako wega, uye zvinogara zvakanaka kutarisa. Iwe zvakare uchaunza mubhadharo wegore wekubvumidzwa.
- Havasi vese nyanzvi vanobhadhara mari yakawanda uye vanogona kubhadharisa pamusoro pekepisi. Izvi zvinoreva kuti panogona kunge pasina mari yekuona chiremba wako.
- Kana iwe uchida kubvumidzwa panguva yekurapwa kwako, huwandu hwehukoti hwakakwira zvakanyanya munzvimbo yakavanzika muzvipatara. Izvi zvinoreva kuti mukoti muchipatara chakazvimiririra kazhinji ane varwere vakawanda vekutarisira kupfuura muchipatara chehurumende.
- Hematologist yako haisi nguva dzose panzvimbo pachipatara, vanowanzoshanyira kwenguva pfupi kamwe chete pazuva. Izvi zvinogona kureva kuti kana ukarwara kana uchida chiremba nekukasika, haasi mazvikokota wako.
basa
Iwe unogona kukwanisa kuramba uchishanda kana kudzidza ne lymphoma. Nekudaro, izvi zvinoenderana nekuti unonzwa sei, kurapwa kupi kwaunayo uye kuti une chero zviratidzo kubva kune lymphoma, kana mhedzisiro kubva mukurapwa.
Vamwe vanhu vanoramba vachishanda sezvavaimboita uye vanongotora nguva yekurovha, vamwe vanodzikisira basa renguva isina kuzara uye vamwewo vanotora nguva yekusava pabasa zvachose.
Taura newe chiremba, vadiwa uye kubasa
Taura newe chiremba nezve zvavanotaura kana zvasvika kubasa uye nguva inodiwa kubva kubasa. Vanozokwanisa kukunyorerai gwaro rekurapa kana zvichidiwa.
Taura nemhuri yako, vadikani uye kubasa kwako kuti uuye nehurongwa. Ita shuwa kuti munhu wese anoziva kuti dzimwe nguva zvirongwa zvinogona kuchinja usingatarisire kana uchifanira kuenda kuchipatara, kunonoka pakugadzwa kana kunzwa kusanzwa zvakanaka uye kuneta.
Vamwe vanhu vanoona kuti kuramba vachishanda kunovabatsira kuchengetedza zvakajairwa mumaitiro avo uye kunovabatsira kurarama zviri nani panguva yekurapwa. Vamwe vanhu vanowana basa rinonetesa muviri nepfungwa uye vanosarudza kumbozorora.
Zvingangoitika shanduko pabasa kufunga
Kana ukaramba uchishanda, dzimwe shanduko dzinogona kuitwa nebasa rako kukutsigira dzinosanganisira:
- Kubvumira nguva yekuenda kumisangano yekurapwa uye kurapwa
- Kuderedza kana kushandura maawa aunoshanda (mazuva mapfupi kana kuderedzwa vhiki yebasa)
- Kushanda kubva kumba
- Kugadzirisa rudzi rwebasa, semuenzaniso kuchinjisa kuita basa risinganyanyi kunetsa kana kudzivirira utachiona
- Kuchinja nzvimbo yebasa
- Kushandura kudzokera kuchirongwa chebasa: izvi zvinogona kusanganisira kudzokera kubasa zvishoma nezvishoma zvishoma nezvishoma zvinowedzera nekufamba kwenguva.
Iyi inotevera link ndeyeCentrelink's 'Verification of Medical Conditions Form'. Iri fomu rinowanzodikanwa nemasangano ezvidzidzo kana nzvimbo dzebasa kuti agadzirise zvine musoro pazvisungo zvebasa kana kudzidza.
Yokudzidza
Kuva nelymphoma kunogona kukanganisa kudzidza, kungave kuchikoro, kuyunivhesiti kana zvidzidzo zvine chekuita nebasa Izvi zvinogona kukanganisa iwe kana uri mudzidzi, mubereki kana muchengeti. Ungangoda kutora nguva kana kushandura chirongwa chako chekufunda.
Vamwe vanhu vanosarudza kuenderera mberi nezvidzidzo zvavo vachirapwa, kana kuchengeta munhu ane lymphoma. Kune vamwe vanhu, kuenderera mberi nekudzidza kunogona kupa chimwe chinhu chekushandira uye kutarisa pakati pekugamuchirwa muchipatara uye nguva refu yekumirira pakati pekugadzwa. Vamwe vanhu vanoona kuti kuenderera mberi nekudzidza kunopa kumanikidzwa kusingakoshi uye kunetseka, uye vanosarudza kumbomira dhigirii ravo rekuyunivhesiti kana kutora nguva yekusaenda kuchikoro.
Kana iwe kana mwana wako achiri kuchikoro, taura nechikoro/yunivhesiti uye kurukurai kuti ndedzipi nzira dzekutsigira dziripo.
Zvingango chinja paurongwa hwako hwekudzidza kuti utarise
- Kudzidzisa kumba kana kubatana nebasa rekudzidzisa muchipatara (kazhinji Zvipatara zvevana zvinopa chirongwa chekutsigira chikoro uko vadzidzisi vechipatara vanogona kushanya muchipatara)
- Taura nechikoro pamusoro pemutoro wakadzikiswa wekuongorora kana chirongwa chekudzidza chakagadziridzwa uko kudzidza kunogona kuenderera asi paine zvishoma zvinodiwa zvekuongorora.
- Ramba uchiramba wakabatana nechikoro uye vadzidzi, izvi zvichabatsira kuchengetedza hukama uye kudzivirira kunyanyoparadzaniswa neshamwari dzekuchikoro.
Sangana nemusimboti wechikoro kana chipangamazano chedzidzo
Kana uri kudzidza dhigirii kuyunivhesiti, sangana nemunyori wekoreji uye chipangamazano wezvidzidzo kuti ukurukure mamiriro ako. Kuregedza zvidzidzo zvako zvachose inogona kunge iri sarudzo, asi kudzikisa mutoro wako wekufunda nekudonha kubva kuzere-nguva kuenda kune chikamu-nguva inogona kuve sarudzo.
Unogonawo kushandura mazuva akafanira emabasa ako kana bvunzo dzakapoteredza kurapwa kwako. Ungangoda gwaro rekurapa saka bvunza chiremba wako kana GP kana vachikwanisa kukuitira rimwe.
Iyi inotevera link ndeyeCentrelink's 'Verification of Medical Conditions Form'. Iri fomu rinowanzodikanwa nemasangano ezvidzidzo kana nzvimbo dzebasa kuti agadzirise zvine musoro pazvisungo zvebasa kana kudzidza.
Mari
Kuongororwa kwe lymphoma uye kurapwa kwayo kunogona kugadzira dambudziko rezvemari; Kunyanya iwe haugone kushanda kwenguva yakareba.
Kuwana rubatsiro rwemari kunogona kuve kwakaoma, asi kune dzimwe mari dzekutsigira mari dzinowanikwa kuburikidza nemasangano ehurumende akasiyana-siyana akaita seCentrelink, Medicare uye Child Support. Iwe unogona zvakare kuwana imwe mari yekubhadhara kuburikidza nehomwe yako ye Superannuation.
Kana iwe uine chipangamazano wezvemari, ita kuti vazive nezve lymphoma yako kuitira kuti vakubatsire kuronga mashandisiro emari yako. Kana iwe usina chipangamazano wezvemari, unogona kuwana imwe kuburikidza neCenterlink. Tsanangudzo yekuti ungawana sei Centrelink zvemari chipangamazano zviri pazasi pasi pemusoro Financial Information service.
Centrelink
Vanhu vakaremara, kurwara kana kukuvara, uye vachengeti vavo vanogona kufonera Centrelink 13 27 17 kubvunza nezvekubhadhara uye masevhisi aripo. Dzvanya pane iyi link kuti uverenge: Nhungamiro Yekubhadhara Hurumende yeAustralia.
Mamwe eCenterlink kubhadhara masevhisi anosanganisira:
- Mhosva yehurwere: Muripo wekutsigira mari kana mumwe munhu asingakwanisi kushanda kana kudzidza kwenguva yakati nekuda kwehurwere, kukuvara kana kuremara.
- Carer allowance: yekuwedzera mubhadharo (bhonasi) inotsigira muripo wemuchengeti (mune-wedzero) anogona kuwana mari inosvika mazana maviri nemakumi mashanu ezviuru / gore (zvingangoita $250,000/masvondo maviri) anogona kushanda maawa makumi maviri nemashanu uye achiri pane izvi.
- Muripo wemuchengeti: Muripo werutsigiro wemuhoro kana ukaramba uchichengeta kune mumwe munhu akaremara zvakanyanya, anorwara kana kuti akura asina simba.
- Dzvanya iyi link kuti udzidze zvakawanda nezve Carer Payments.
- Dzvanya iyi link kuti uverenge Maitiro ekukumbira Carer Payments.
- Pension yekutsigira vakaremara: Rutsigiro rwemari rwekuremara kwechigarire chepfungwa, chemuviri kana chepfungwa chinomisa varwere kushanda.
- Download uye zadza fomu re'Claim for Disability Support Pension'
- Mabhenefiti ekuremara: Pane miripo uye masevhisi ekubatsira kana uchirwara, kukuvara kana kuremara.
- Kubhadhara kwevana
- Mobility allowance: Unogona kuwana mari yekufambisa kana uine lymphoma uye usingakwanise kushandisa public transpont. Izvi zvinogona kushandiswa kuda kufamba kunodzidza, basa rekudzidzira (kusanganisira kuzvipira) kana kutsvaga basa. See more by nekudzvanya pano.
- Mvumo yeMutsvaki Webasa: Kana uri paJob Seeker allowance uye usingakwanise kutsvaga basa nekuda kwe lymphoma yako kana marapirwo ayo, bvunza chiremba wako - GP kana hematologist kuti vazadze Centrelink Medical Certificate - fomu SU415. Iwe unogona kusvika kune fomu nekudzvanya pano.
Vashandi veHurumende
Kana uchida rubatsiro kuti unzwisise kana kuwana centerlink masevhisi, unogona kukumbira kutaura kune mumwe wevashandi vavo vezvemagariro evanhu anogona kukubatsira kuona zvaungave nekodzero, uye kuti ungazviwana sei. Unogona kubata Centrelink Social Worker nekufona 13 27 17. Kumbira kutaura nemushandi wezvemagariro evanhu pavanopindura uye vachakupinza. Iwe unogona zvakare kutarisa webhusaiti yavo pano Social work services – Services Australia.
Financial Information service
Rimwe basa rinopihwa neCenterlink iFinancial Information service yekukubatsira kuronga mashandisiro emari yako zvakanyanya. Vafonera 13 23 00 kana kuona peji ravo rewebhu pano Financial Information Service - Services Australia
Medicare
Medicare inogona kubatsira kuvhara mari yekurapa uye kuraira kuti ungachengeta sei mitengo yakaderera. Ruzivo rwekusiyana kweMedicare kubhadhara uye masevhisi aripo anogona kuwanikwa pano.
Tsigiro Yemwana
- Carer kugadzirisa Payment imari yekubhadhara kamwe chete. Inobatsira mhuri kana mwana ari pasi pemakore matanhatu akaonekwa aine chimwe chezvinotevera:
- chirwere chakakomba
- chiremba mamiriro
- kuremara kukuru
- Kubhadhara Rubatsiro Rwekuremara Kwevana muripo wegore negore wokubatsira vabereki nemari dzokuchengeta mwana akaremara.
- Essential Medical Equipment Kubhadhara mubhadharo wepagore wekubatsira nekuwedzera kumitengo yesimba remba. Izvi zvinogona kubva mukushandiswa kwemidziyo yakakosha yekurapa kubatsira kubata hurema kana chirwere chekurapa.
Superannuation
Nepo mari yemwedzi yakawanda ichiwanzochengetedzwa kutozosvikira wasvitsa makore makumi matanhatu nemashanu, mune mamwe mamiriro ezvinhu unogona kuwana imwe yacho 'nezvikonzero zvetsitsi'. Mamwe mamiriro ezvinhu anogona kutorwa sezvikonzero zvetsitsi anosanganisira:
- Kubhadharira kurapwa (kana kutakura kuenda nekudzoka kurapwa).
- Kubatsira nemari yako yemba kana bhangi rave kuda kuvharisa (kutora imba yako).
- Kugadziridza kana iwe uchida kugadzirisa imba yako nekuda kwekukuvara kana kurwara.
- Bhadhara kurapwa.
- Bhadhara mari ine chekuita nerufu rwemumwe wevaunovimba navo - semari yemariro kana yekuvigwa.
Unogona kuwana rumwe ruzivo nezve kuwana mari yako yepenjeni nezvikonzero zvetsitsi, nekufonera Federal Department of Human Services pa. 1300 131 060.
Inishuwarenzi inovakwa mukupedza mari
Mari zhinji yesupeannuation yakavakirwa mu'kuchengetedzwa kwemari' kana kubhadhara zvachose kwehurema mupolicy. Unogona kunge uine izvi usingazvizivi.
- Dziviriro yemuhoro inovhara chikamu chemuhoro wako wenguva dzose kana usingakwanise kushanda nekuda kwekurwara kana kukuvara.
- Kuremara zvachose imari inobhadharwa kwauri kana usingatarisirwi kudzoka kubasa nekuda kwehurwere hwako.
Inishuwarenzi yako ichaenderana nekambani yako yekubhadhara mari uye mutemo. Kana iwe usingakwanisi kushanda nekuda kwe lymphoma yako, taura nehomwe yako yekubhadhara mari uye bvunza kuti ndeupi rubatsiro uye inishuwarenzi dzakavakirwa mugwaro rako.
Kuwedzera rubatsiro neSuperannuation uye nemari
Kana uchinetseka kuwana mari yako yekubhadhara mari kana kuti inishuwarenzi yako, Cancer Council Australia ine chirongwa chepro bono chinogona kukubatsira nemazano ezvemutemo kana rumwe rutsigiro kuti ubatsirwe kuwana izvi. Unogona kuwana rumwe ruzivo nezve rutsigiro rwavanogona kupa narwo nekudzvanya pano.
Kana iwe uchiri usina rombo rakanaka, unogona kuita chichemo ne YeAustralia Mari Dzichemo. Zvimwe zvinobatsira zvinongedzo zvinogona kuva akawanikwa pano.
Mabasa Evanhu
Zviitiko zvekugarisana inzira yakanaka yekugara yakabatana nemhuri uye neshamwari, uye inogona kuva kuvhiringidza kunogamuchirwa kubva kune zvakasiyana-siyana zvinoshungurudza zvinouya nechirwere che lymphoma. Kuramba wakabatana kunofanira kuva chinangwa chikuru panguva ino.
Ungangoda kugadzirisa kana kushandura zvimwe zvezviitwa zvako kuti udzivise matambudziko akadai sekutapukirwa, kubuda ropa kana nekuti wakaneta zvakanyanya kuti usaite mabasa ako emazuva ese.
Pazasi tinonyora zvimwe zvinhu zvakajairika zvekufunga nezvazvo paunenge uchiita zvekushamwaridzana ne lymphoma.
Kuva neCentral Venous Access Device (CVAD)
Kana uine CVAD yakadai sePICC line kana CVC line hauzokwanisi kushambira kana kutora chikamu mumabasa emvura, uye iwe uchada kuvhara CVAD nekupfeka kusina mvura kuti ugeze. Izvi zvinodaro nekuti macatheter emidziyo iyi ari kunze kwemuviri wako uye anogona kukuvara kana kutapukirwa nemhando idzi dzezviitiko.
Zvipatara zvizhinji zvinofanirwa kukupa chivharo chisingapindi mvura - ingobvunza kana wachinja hembe dzako.
Kune vanoshambira mumagariro kana emakwikwi, unozofanirwa kumisa zviitiko izvi, kana unogona kusarudza kusarudza port-a-cath pachinzvimbo. A port-a-cath mudziyo wakazara pasi peganda rako, kunze kwekunge uchinge uchishandiswa uye une mutsara tsono uye mutsara wakanamirwa pairi.
Nyaya yemurwere - kuva neCVAD ari muchipatara
Peripherally yakaiswa pakati catheter (PICC)
Dual lumen HICKMAN - rudzi rweTunneled cuffed-chapakati yakaiswa pakati catheter (tc-CICC)
Triple lumen isina-tunnel yepakati catheter
Batirana nemitambo
Mitambo yekuonana yakaita senhabvu, hockey uye nhabvu inogona kukonzera kubuda ropa kwakanyanya uye maronda kana uine mazinga akaderera eplatelet, izvo zvinowanzoitika mushure mekurapwa, uye nedzimwe mhando dze lymphoma.
Uyewo kuva pedyo zvakanyanya nevanhu panguva yekurovedza muviri (izvo zvinogona kukonzera kufema zvakanyanya) zvinogona kuwedzera njodzi yako yekutapukirwa kana vaine chirwere chekufema kana kuti vasina kurwara.
Zviitiko zvakakura zvemagariro
Kurapa, kana iwe lymphoma kunogona kuita kuti immune system yako isashande zvakanaka kukudzivirira kubva kuutachiona. Saka zvinorairwa kudzivirira kuenda kumitambo mikuru yemagariro senge theatre, makontiti, fares uye makirabhu ehusiku, iwe uri neutropenic.
Kana usingakwanise kunzvenga chiitiko nekuda kwechimwe chikonzero, tora matanho ekushamwaridzana, pfeka mask, uye chete kumbundira nekutsvoda vanhu vaunoziva uye vasingarware neimwe nzira (kana kudzivirira kumbundirwa nekutsvoda kusvika masoja emuviri wako kana uchinzwa wakachengeteka. kuita izvi). Tora sanitiser yemaoko newe kuti ugone kuuraya maoko ako chero nguva.
Kushamwaridzana kwevanhu vanogona kuenderera mberi panguva yekurapa
Pane zvinhu zvakawanda zvaunogona kuramba uchiita kana uine lymphoma, kunyange paunenge uchirapwa. Nekudaro, iwe ungada kufunga nezve kutora mamwe matanho ekuzvidzivirira senge kushamwaridzana, kupfeka mask uye kutakura maoko sanitiser newe kune mamwe acho.
Taura nachiremba wako uye bvunza nezve chero zviitiko zvakakosha kwauri uye kana pane chero chinorambidzwa pane zvaunogona kuita.
- Kuenda kumabhaisikopo
- Kuenda kunodya kuresitorendi - dzivisa buffets uye ita chokwadi chekuti chikafu chichangobva kugadzirwa
- Kusangana neshamwari dzekofi
- Kufamba-famba neshamwari
- Kuva nepikiniki
- Kuenda kuchechi nemagungano ane chekuita nechitendero
- Kufamba rwendo rurefu
- Kuenda kugym
- Kuenderera mberi nemitambo yakadai sebhubhu kirabhu, kusimba kweboka kana kupenda
- Enda kune zuva
- Kuroora kana kuenda kumuchato
- Ita bonde kana kudanana nemumwe wako/wawakaroorana naye (Ona chinongedzo pazasi kuti uwane rumwe ruzivo).
Kutarisira hutano hwako hwepfungwa, manzwiro uye hutano hwakakwana
Kurarama nelymphoma kana CLL, kuve wakarinda uye kumirira, kurapwa uye kuve mukuregererwa zvese zvinouya nekunetseka kwakasiyana kunogona kukanganisa mafungiro ako uye hutano hwepfungwa. Zvakakosha kuva nehukama huri pachena nachiremba wepanzvimbo yako (general practitioner kana GP), uye kukurukura nezvauinazvo zvinokunetsa, kana shanduko kumanzwiro ako, manzwiro uye pfungwa.
Chiremba wezvirwere zvese achakwanisa kukutsigira uye kukuendesa kune rubatsiro rwakakodzera kana uchida rubatsiro.
Hurongwa hwehutano hwepfungwa
Chiremba wako achakwanisa kukuitira hurongwa hweutano hwepfungwa hunova nechokwadi chekuti unoona vanamazvikokota vakakodzera uye unokwanisa kuwana Medicare-inopihwa rubatsiro nachiremba wepfungwa, nyanzvi yeGP, mushandi wezvekugarisana nevamwe kana murapi wezvehutano wekiriniki. Nechirongwa ichi unogona kuwana anosvika gumi ekugadzwa kwemunhu uye gumi mapoka emapoka.
Usamirire kuti Chiremba weChiremba akupe izvi, kana uchifunga kuti zvingakubatsira, kumbira Chiremba weChiremba wako kuti akuitire chirongwa cheutano hwepfungwa.
GP manejimendi chirongwa
Chiremba weChiremba wako anogonawo kukuitira chirongwa chekutungamira naChiremba (GPMP). Chirongwa ichi chinovabatsira kuti vaone zvaunoda zvekuchengetedza hutano uye kuti vangakubatsira sei zvakanyanya. Vanogonawo kushandisa chirongwa ichi kuti vaone kuti ndeapi masevhisi munharaunda angave ekushandisa kwauri uye kuita hurongwa hwekutarisira zvaunoda kutarisira lymphoma.
Urongwa hwekutarisira timu
Hurongwa hwekutarisira timu hunoitwa naChiremba wezvirwere zvese uye hunoitwa kuti vakubatsire kuwana rubatsiro kubva kune vakasiyana mazvikokota vehutano. Izvi zvinogona kusanganisira:
- physiotherapist
- dieticians
- podiatrists
- occupational therapists.
Pets
Zvipfuyo zvinogona kuva chikamu chakakosha chehupenyu hwedu, uye kutarisira chipfuwo chako kana uine lymphoma zvinotora kumwe kuronga. Lymphoma uye marapirwo ayo anogona kuita kuti zvive nyore kwauri kuti ubatwe nezvirwere, kana kubuda ropa nekupwanya zvakanyanya kana ukarumwa netsaona, kukwenya kana kuita kuti mhuka inorema iuye kuzobatwa.
Iwe unozofanirwa kungwarira kumisa zvinhu izvi kuti zvisaitike uye pamwe shandura matambiro aunoita nemhuka dzako dzinovaraidza.
Zvinhu zvekuita
- Rega chiremba wako azive kana ukarumwa kana kukweshwa, kana ukaona maronda asina kujairika.
- Dzivisa kubata tsvina yemhuka sematireyi. Kumbira mumwe munhu kuti akubatsire nemabasa aya kana zvichiita. Kana pasina anobatsira, shandisa magirovhosi matsva (kana anogezeswa anogezwa mushure mekushandisa kwese), pfeka masiki kuti usafeme chero chinhu chinokuvadza uye geza maoko ako nesipo nemvura nekukurumidza mushure mekubata chero tsvina.
Iwe unogona zvakare kuve nekushanya kusingatarisirwe kuchipatara, unoda kunge usiri pamba nekusingaperi, kunonoka pakugadzwa kana kunzwa kuneta zvakanyanya uye kushaya simba rekutarisira zvipfuwo zvako.
Ronga pachine nguva uye tanga kufunga kuti ndiani angakwanisa kubatsira kuchengeta mhuka dzako dzinovaraidza iwe usingakwanise. Kuita kuti vanhu vazive pachine nguva kuti ungangoda rubatsiro, uye kubvunza kana vangada kubatsira zvisati zvadiwa zvingakupa rugare rwepfungwa uye kuita kuti kuronga kuve nyore zvikuru paunenge uchida rubatsiro.
Kuronga kurapwa
Kutarisana nemanzwiro uye emuviri kudzvinyirirwa kwekuva nelymphoma, uye kurapwa kunogona kunetesa. Zvakakosha kuti usvike uye uwane rubatsiro paunoda. Kazhinji tine vanhu muhupenyu hwedu vanoda kubatsira, asi vasingazive kuti sei. Vamwe vanhu vanonetsekawo nekutaura nezvekuti uri kufamba sei nekuti vane hanya kuti vachataura zvisirizvo, kukudarika kana kukugumbura. Izvi hazvirevi kuti havana basa nazvo.
Inogona kubatsira kuita kuti vanhu vazive zvaunoda. Nokuva akajeka pamusoro pezvaunoda, unogona kuwana betsero netsigiro zvaunoda, uye vadiwa vako vanogona kuva nomufaro wokukwanisa kukubatsira nenzira ine revo. Kune mamwe masangano akaisa pamwe zvirongwa zvaunogona kushandisa kuronga kumwe kwekuchengeta. Ungada kuedza:
Kuchengetedza kubereka kwako panguva yekurapa
Kurapa lymphoma kunogona kuderedza kubereka kwako (kukwanisa kuita vana). Kumwe kwekurapa uku kunogona kusanganisira chemotherapy, mamwe masoja ekudzivirira chirwere anonzi "immune checkpoint inhibitors" uye radiotherapy pachiuno chako.
Nyaya dzekubereka dzinokonzerwa nemishonga iyi dzinosanganisira:
- Kutanga kuenda kumwedzi (kuchinja kwehupenyu)
- Ovarian insufficiency (kwete kunyanya kuenda kumwedzi asi kuchinja kumhando kana nhamba yemazai aunayo)
- Kuderera kwembeu kana kunaka kwembeu.
Chiremba wako anofanira kutaura newe nezve izvo zvinokanganisa kurapwa kwako zvingangove nazvo pakubereka kwako, uye ndedzipi sarudzo dziripo kuti dzidzivirire. Kuchengetedza kubereka kunogona kuitika nemimwe mishonga kana kuburikidza nechando (mazai), urume, ovarian kana testicular tissue.
Kana chiremba wako asati aita hurukuro iyi newe, uye unoronga kuva nevana mune ramangwana (kana kana mwana wako ari kutanga kurapwa) vabvunze kuti ndezvipi zvingasarudzwa zviripo. Hurukuro iyi inofanira kuitika iwe kana mwana wako musati matanga kurapwa.
Kana iwe uri pasi pemakore makumi matatu ekuzvarwa unogona kuwana rutsigiro kubva kuSony foundation iyo inopa yemahara sevhisi yekuchengetedza mbereko muAustralia yose. Vanobatika pa30 02 9383 kana padandemutande ravo https://www.sonyfoundation.org/youcanfertility.
Kuti uwane rumwe ruzivo nezvekuchengetedza mbereko, tarisa vhidhiyo pazasi nenyanzvi yekuzvara, A/Prof Kate Stern.
Taxi Concession Programs
Kana iwe uchida rubatsiro rwekuwedzera kutenderera, unogona kunge uchikodzera kurongedzerwa tekisi chirongwa. Aya mapurogiramu anofambiswa nematunhu akasiyana uye matunhu uye anogona kubatsira kubhadhara mutengo wekombi yako yetekisi. Kuti uwane rumwe ruzivo tinya pane yako nyika pazasi.
Travel & Travel Inishuwarenzi
Mushure kana kunyange panguva yekurapa vamwe varwere vanogona kufarira kuenda kuzororo. Zororo rinogona kuve nzira inoshamisa yekupemberera kupedzisa kurapwa, kugadzira ndangariro nevadikani, kana kungovhiringidza kunofadza kubva mukushushikana kwakabatana nekenza.
Mune zvimwe zviitiko, ungangoda kana kuda kufamba panguva yekurapwa kwako, kana panguva yaunenge uchifanirwa kuve ne post kurapwa scans uye kuongororwa ropa. Taura nachiremba wako pamusoro pezvinogona kurongerwa iwe panguva ino. Kana uri kuenda kuAustralia, chikwata chako chekurapa chinogona kuronga kuti iwe unoongororwa kana kuvhenekwa kune chimwe chipatara - kunyangwe mune imwe nyika. Izvi zvinogona kutora nguva kuronga, saka zivisa iwe chiremba nekukurumidza sezvinobvira kana uri kuronga kufamba.
Kana uri kuenda kune imwe nyika, iwe uchada kuona kuti ndezvipi mari inobatanidzwa kana iwe uchida kuwana rubatsiro rwezvehutano maererano ne lymphoma yako ikoko. Taura nehematologist yako muAustralia uye ongorora makambani einishuwarenzi ekufambisa anogona kukuvhara. Iva nechokwadi chekubvunza kuti chii uye chisina kuvharwa mumainishuwarenzi.
Chii chinonzi inishuwarenzi yekufamba uye inovhara chii?
Inishuwarenzi yekufamba inovhara iwe kune chero zviitiko, kurasikirwa kana kukuvara kunogona kuitika paunenge uchifamba. Nepo inishuwarenzi yakawanda yekufamba ichikudzivirira pakufamba kune dzimwe nyika, mamwe marongero anogona kukuvhara iwe parwendo rwepamba zvakare.
Medicare ichavhara zvimwe (uye dzimwe nguva zvese) zvemitengo yako yekurapa uri kuAustralia.
Inishuwarenzi yekufamba inogona kukuvharira mikwende yakarasika, kukanganisa kufamba, mari yekurapa neyemazino, kuba uye mari yepamutemo uye nezvimwe zvakawanda zvinoenderana nekambani uye rudzi rwechivharo chaunotenga.
Inishuwarenzi yekufamba ndingaiwanepi?
Iwe unogona kuwana inishuwarenzi yekufamba kuburikidza nemumiriri wekufamba, kambani yeinishuwarenzi, inishuwarenzi broker kana kuburikidza neyako yakavanzika yehutano inishuwarenzi. Mamwe mabhangi anogona kutopa inishuwarenzi yemahara yekufamba kana iwe uchimisikidza chaiyo kadhi rechikwereti. Kana, iwe unogona kusarudza kutenga inishuwarenzi yekufamba online kwavanogona kuenzanisa mitengo uye marongero.
Chero nzira yaunosarudza kuita izvi, tora nguva yekuverenga nekunzwisisa mainishuwarenzi uye chero kusabvumirwa kunogona kushanda.
Ndinogona kuwana inishuwarenzi yekufamba kana ndine lymphoma/CLL?
Kazhinji kutaura, pane zvingasarudzwa zviviri kana zvasvika kune inishuwarenzi yekufamba uye cancer.
- Iwe unosarudza kutora inishuwarenzi iyo HAIKUBVIRI nokuda kwezvinetso zvine chokuita nekenza uye hurwere. Semuenzaniso, kana iwe waifamba mhiri kwemakungwa nemasero machena eropa akaderera zvakanyanya nekuda kwechemotherapy uye wabata hutachiona hwehupenyu hunoda kuendeswa kuchipatara kwenguva refu, waizofanira kubhadhara mari yacho iwe pachako.
- Iwe unosarudza kutora gwaro rakazara iro INOKUFIKIRA iwe kune zvine chekuita negomarara kana hurwere. Iwe uchafanirwa kunge wakagadzirira kubhadhara mari yepamusoro, uye kambani yeinishuwarenzi ingangoda kuunganidza ruzivo rwakadzama nezve lymphoma/CLL yako senge pachikuva, kurapwa, kuongororwa ropa nezvimwe. Iwe ungangodawo tsamba kubva kune yako. vehematologist vachikubvisira nzendo mhiri kwemakungwa.
Rumwe ruzivo rwauchazoda kuva narwo paunenge uchitaura neveshuwarenzi yekufamba:
- Yako lymphoma subtype
- Danho rako pakuongororwa
- Maitiro ako ekurapa
- Pawakapedza kurapwa kwako kwekupedzisira
- Kuongororwa ropa kwako kwazvino
- Mishonga yese yauri kunwa parizvino
- Kunyangwe zvimwe bvunzo / kuferefeta kwakarongwa kwemwedzi mitanhatu inotevera.
Reciprocal Health care zvibvumirano
Australia ine zvibvumirano zvehutano zvinowirirana nedzimwe nyika. Izvi zvinoreva kuti kana iwe ukaenda kune imwe nyika ine chibvumirano chekudzorera, iwe unogona kunge uine mari yekurapa inodiwa kurapwa yakavharwa neMedicare. Kuti uwane rumwe ruzivo nezve zvibvumirano izvi uye nyika dzeAustralia dzine chibvumirano chekudzorera ona Services Australia peji rewebhu pano.
Driving
Kuongororwa kwe lymphoma hakungoiti kuti ukwanise kutyaira. Vanhu vazhinji vanoramba vachityaira vakafanana nezvavasati vaonekwa. Zvisinei, mimwe mishonga inoshandiswa sechikamu chekurapa inogona kukonzera kurara, kunzwa kwekurwara kana kukanganisa kukwanisa kuisa pfungwa. Mumamiriro ezvinhu aya, kutyaira hakukurudzirwi.
Nepo varwere vazhinji vachiramba vachityaira semazuva ese panguva yerwendo rwavo rwegomarara zvakajairika kunzwa kuneta kana kuneta pamazuva anopiwa kurapwa.
Kana zvichiita, rongai nemhuri neshamwari kuti mumwe munhu akutakurei nemotokari kuenda nekudzoka kurapwa uye kana iri dambudziko munofanira kubvunza vezvehutano kana vaine mazano sezvo dzimwe nzira dzekufambisa dzingavapo.
Kana chiremba akataura zviri kunetsa maererano nekugona kutyaira kwemurwere izvi zvinoda kuziviswa kubazi rezvekutakurwa. Zvinokurudzirwawo kuti kambani yeinishuwarenzi iziswe nezvekuongororwa kwemurwere kana kuti chero zvinonetsa zvingave nachiremba maererano nekugona kwavo kutyaira.
Vamwe varwere vanosangana nemhedzisiro kubva mukurapwa iyo inogona kukanganisa kugona kwavo kutyaira:
- Yakanyanya peripheral neuropathy inogona kukanganisa manzwiro mutsoka dzako nemaoko.
- Chemo-brain inodzikisira kuisa pfungwa uye kuwedzera kukanganwa, vamwe vanhu vanotsanangura izvi semhute pamusoro pepfungwa dzavo. Zviitiko zvakakomba zveizvi zvingaita kuti zviite sekusagadzikana kutyaira.
- Kuneta, vamwe vanhu vanoneta zvakanyanya panguva yekurapa uye vanowana kunyangwe mabasa ezuva nezuva akadai sekutyaira achivapedza simba.
- Kunzwa kana kuona shanduko, kana paine shanduko mukuona kana kunzwa, taura nachiremba nezve kuti izvi zvingakanganisa sei kugona kutyaira.
Kugadzirisa zvinhu
Hupenyu Inishuwarenzi
Kuongororwa kutsva kwe lymphoma hakufaniri kukanganisa mararamiro ako ehupenyu huripo. Nekudaro, zvakakosha kuti ugare wakatendeseka neinishuwarenzi yako ichipa paunobvunzwa mibvunzo. Taura nekambani yako yeinishuwarenzi kana iwe uchida kuita chikumbiro panguva yekuongororwa, kurapwa uye kurapwa kwehupenyu.
Iwe unogona zvakare kuve neinishuwarenzi yehupenyu sechikamu chehomwe yako ye superannuation. Bata homwe yako yesupeannuation kuti uone kuti rinhi uye sei unogona kuwana izvi.
Kana iwe usati uine inishuwarenzi, asi uchida kuwana imwe, iwe uchada kuvazivisa kuti une lymphoma uye kupa chero ruzivo rwavanoda kuti vakupe quote.
Kunyora wiri
Hurumende yeAustralia inokurudzira kuti chero munhu ane makore anopfuura gumi nemasere, anyore wiri zvisinei nekuti 'unoda' here kana kuti kwete.
Wiri igwaro remutemo rinotaura kuti ungada kuti midziyo yako igoverwe sei kana ukafa. Iri zvakare gwaro remutemo rinonyora zvaunofarira kune zvinotevera:
- Waunogadza kuti ave muchengeti wevana chero vapi zvavo kana vanotarisira iwe une basa navo.
- Inogadza account yekutendwa yekupa chero vana kana vanovimba.
- Inotsanangura kuti unoda kuchengetedza sei zvinhu zvako.
- Inotsanangura kuti unoda kuti mariro ako arongwe sei.
- Inotaura chero zvipo zverudo zvaunoda kutsanangura (izvi zvinozivikanwa semubatsiri).
- Anogadza muiti wenhaka - uyu ndiye munhu kana sangano raunogadza kuti riite zvido zvechido chako.
Imwe neimwe nyika nenzvimbo muAustralia zvine maitiro akasiyana zvishoma ekunyora kuda kwako.
Read more nezve manyorerwo ewiro mudunhu rako kana dunhu rako.
Enduring Power of Attorney
Iri igwaro remutemo rinogadza munhu kana vamwe vanhu vanosarudza kuita sarudzo dzemari, kutonga zvinhu zvako uye kuita sarudzo dzekurapa pachinzvimbo chako kana ukatadza.
Izvi zvinogona kugadzwa kuburikidza nedunhu rako kana matunhu eruzhinji trustee. Simba regweta rinogara kwenguva refu rinogona kuitwa neAdvanced Health Directive.
Advanced Health Directive igwaro remutemo rinodonongodza zvaunofarira maererano nekurapwa nekupindira kwaunoita kana kusada.
Kuti uwane rumwe ruzivo nezve magwaro aya, tinya ma link ari pazasi.
Kushingirira Simba reGweta - tinya mudunhu rako kana dunhu pazasi.
Kuwedzera kutsigira
- Tinogona webhusaiti: https://wecan.org.au
- Varwere Vakura Tinogona webhusaiti: https://wecan.org.au/oldercan/
- UNOGONA Nzvimbo dzevadiki nevakuru vechidiki: https://www.sonyfoundation.org/you-can-centres
- Unganidza Vashandi Vangu: https://www.gathermycrew.org.au/
Shandisa purogiramu kurodha rubatsiro rwakadai sekudya, chokufambisa, kuchengeta vana, uye rubatsiro rwepamba. - Kurera kuburikidza neCancer: https://parentingthroughcancer.org.au/
