Uhambo lwam lwaqala ngesigaqa kwicala lasekunene lentamo yam yayiyiveki yokuqala ka-Agasti ka-2022.
Ekuqaleni uGqirha wam wayecinga ukuba lidlala lamathe elivaliweyo kwaye wandithumela kwi-ultrasound. Iziphumo zabonisa ukuba i-lymph node yam yayidumbile kancinci kwaye wayeyibalela ekulweni usulelo. Kwakungekho buhlungu nangona kunjalo ukudumba kwakhula ngesantya esothusayo kwaye emva kokudibana kunye ne-periodontist yam iiveki ezi-2 emva kokufunyanwa kweqhuma - wandithumela kwi-3D scan ukuze ndibone ukuba ndinesifo esingaphantsi kweentsini okanye ngamazinyo am.
Xa iskena safumanisa ukuba akukho mazinyo okanye usulelo lwesinus olubangele ukudumba ugqirha wam we periodontist owacinezela ukuba angalindi kwaye enze uphando ngokubhekele phaya, wathumela kum ingcali. Ndaye ndakwazi ukubona i-ENT yam ngosuku olulandelayo engazange ayithande into ayibonileyo kwi-tonsil yam kwaye wandibhukisha i-biopsy kwiintsuku ezi-3 kamva. Isiphumo esivela kwi-biopsy sasingaqondakali.
I-ENT yam ngokucokisekileyo kakhulu, ayizange indithumele ekhaya nedosi ye-steroids kodwa yandithumela kwingcali yoMhlaza oyiNtloko kunye neNeck kwisibhedlele sase-St Vincent.
Yayisisivunguvungu esisuka apho - kwisithuba seentsuku ezi-3 ndandibhukishelwe ukuhlolwa kwe-PET, uvavanyo lwegazi njl.njl kunye nokuqeshwa kweNgcali apho wacebisa ukuba ngokuqinisekileyo ndinohlobo oluthile lomhlaza, nokuba yi-Lymphoma okanye i-HPV- eyona nto intle yayikukuba i-PET scan khange ibonise ukusasazeka kwaye iimvavanyo zam zegazi "zilungile".
I-biopsy engundoqo entanyeni yam yaqinisekisa iziphumo kwiveki enye kamva Lymphoma kaHodgkin.
Kwiveki emva koko ndandibhukiselwe ukuqhawuka kwentamo ndisusa i-lymph node. Emva kweveki ndadibana nogqirha wegazi kwiZiko laseKinghorn sixoxa ngechemotherapy. Olunye umjikelezo wovavanyo, igazi, uxinzelelo lwemiphunga kunye novavanyo loxinzelelo lwentliziyo kwaye ndandikulungele ukuqala i-chemo.
Ndifumene iwebhusayithi yeLymphoma Australia iluncedo kakhulu apha, ndiye ndakwazi ukufunda kwaye ndafumana ulwazi olukwisiza lunolwazi. Ndithintele ukukhangela i-intanethi kwaye ndigxile ekwetyiseni kancinci lonke ulwazi olukwiwebhusayithi apha.
Ndonwabe kakhulu xa ndifumana ipakethe yam encinci yokhathalelo njengoko yayisisenzo esithandekayo kunye nazo zonke iimveliso apho ziluncedo njengoko iimpawu zam ezahlukeneyo zisenzeka kunyango lwam.
Ngomhla woku-1 kuNovemba ka-2022 ndaba ne-chemo yam yokuqala - uhambo lweenyanga ezine, rhoqo emva kweeveki ezimbini kunye ne-ABVD (doxorubicin, bleomycin, vinblastine, kunye ne-dacarbazine ngosuku loku-1 kunye nosuku lwe-15 lomjikelo ngamnye).
Ndandizimisele ukuba umhlaza awusoze undibethe, ndaza ndazama ukuba nethemba. Ndaba nethamsanqa kakhulu kuba ndandinentsapho exhasayo, abahlobo kunye nendawo yokusebenza. Ndikwazile ukusebenzela ekhaya kwaye ndibenoguquko kwiiyure endizisebenzayo nto leyo eyanciphisa uxinzelelo oluninzi: ezezimali.
Imiphumela…
Iziphumo ebezingalindelekanga bezincinci ngakumbi ekuqaleni. Eyona nto yayijongene kakhulu yayikukuphulukana neenwele zam emva konyango lwam lwesibini – ndiyacinga ukuba ngelo xesha kwathi qatha kum ukuba ndinomhlaza. I was devastated and nangoku ndiyayicaphukela ihairstyle yam (mampunge!!). Ndaye ndaphathwa yi-reflux ngoko ke ndaqalisa amayeza okuthomalalisa oko. I-Prednisone yayiyinxalenye yonyango kwiveki ye-Chemo kwaye yayindenza ndibe mahluko kakhulu, ndandingakwazi ukulala - ngoko ke ndaqalisa ngeepilisi zokulala ukunceda kuloo nto, emva koko kwiveki elandelayo ndandiza kuntlitheka kwaye ndichukumiseke kakhulu. Kwakunzima ke oku kuba ndandiye ndizibhaqe sele ndikhala ngokungalawulekiyo yaye iintombi zam zaziqalisa ukuxhalaba. Ndafumanisa kunzima ukujongana nawo onke amayeza endandiwasebenzisa njengoko ndandingathandi nokusela iPanadol ngenxa yentloko phambi koku. Ndakhe ndanezilonda emlonyeni. Ndakhe ndarhawuzelelwa ngamehlo arhawuzelelwa kwelinye inqanaba ndaziva ndifuna ukukrazula amehlo. Bendidiniwe ngokwasemoyeni nasemzimbeni kodwa ndizimisele ukuhamba yonke imihla-ndisela amanzi amaninzi ndizama ukugungxula inkqubo yam. Ndaqala ukujonga ngokwenene into endiyidlayo kwaye ndizama ukuba nempilo, imifuno eninzi kunye neziqhamo. Ndibe nethamsanqa lokuba andizange ndinciphe nabuphi na ubunzima (nangona bendinokwenza nokunye oko njengoko ndityebe kakhulu).
Imithambo yam ibitsala nzima kwaye bendizama ukufumana enye yecatheter bekubanzima. Ukuzama ukuba nesimo sengqondo esihle kwakunzima. Kwakusehlotyeni nexesha lokuphuma sihambe kodwa i-COVID yayilixhala elikhulu kwaye ke kwafuneka ndilumke. Ndazibekela umda kwizinto endandizenza, kodwa ndandizimisele ukuba andizisonge ngeqamza. Ndafumanisa ukuba kwakudandatheka kakhulu njengoko ndingumntu onomdla kakhulu kwaye ndiyakuthanda ukuphuma, ngoko akukho mithendeleko yasehlotyeni okanye iimarike kum!
Iskena sam se-PET esiphakathi sibonise ukuphucuka (kodwa bekukho shading kwitoni yam yasekhohlo ngoku ebonisa) ngoko bendinexhala malunga naloo nto.
Ekugqibeleni, unyango lwam lwe-chemo lwaluphelile, nge-27 kaFebruwari 2023. Iinyanga ezine zesihogo. I-PET yam scan kwiiveki ezi-3 emva kokuphela konyango ibonise ukuba akukho mkhondo womhlaza - haleluya!
Nangona kunjalo, kwakusekho i-shading ebonisa kwi-tonsil yam yasekhohlo, ngoko akukho mbhiyozo okwangoku. Enye iiveki ze-3 kunye nesinye i-PET scan yayisabonisa shading, ngoko ke i-ENT yam yagqiba ekubeni iqhubeke ne-tonsillectomy.
Ngomhla wama-20 kuJuni 2023, ugqirha wam wegazi wacebisa ZONKE ECACILE - iziphumo zazingalunganga kuwo nawuphi na umhlaza, nje i-tonsil esebenzayo kakhulu. Kwakusele kudlule iinyanga ezili-11 ndilibhaqe elo qhuma.
Abahlobo bam kunye nosapho lwam baququzelele itheko elothusayo - eli yayilelona xesha lihle nelichukumisayo kwaye ndinombulelo kuba ndibe neentombi zam, oodade wethu kunye nabahlobo bam abahle bandinika inkqubo yenkxaso emangalisayo.
Ngoku uhambo lwam lokuchacha lwaqala. Iintlungu kunye neentlungu, ukudinwa kodwa ndibhukishe iholide yam kwiziqithi zaseGreek, i-mantra yam kolu hambo endiya kuba seParos Island ndibhiyozela amawele am amantombazana angama-20 kunye nabo nge-10 kaJulayi kwaye ndayenza apho !! Ilanga, ulwandle, ukuqubha kunye nokuhamba. Ndibuyile kwaye ngoku ndisebenzela ukuchacha kunye nempilo yam. Ndisadinwa ngokulula, ndiseneentlungu kunye neentlungu kunye nokurhawuzelelwa kancinci, ke enye i-PET scan kule veki kwaye ilinde iziphumo. Ukuzama ukungagxininisi ngaloo nto.
Umhlaza sisigwebo sobomi kodwa ndizimisele ukuba awuzundibetha!
Yiyiphi ingcebiso onokuthi uyinike umntu osandul 'ukufumana ukuxilongwa kwe-lymphoma/CLL? Ingaba ikhona into onqwenela ukuba uyazi phambi konyango lwakho okanye izinto eziye zakunceda endleleni ofuna ukwabelana ngayo?
Thatha usuku ngalunye njengoko lusiza kwaye uzifumanele idesika ye-My Little Bag of Sweary Affirmations (oku kwandinceda uburharha bam kunye namandla am afanelekileyo! Zama ukuba ungajongi ulwazi oluninzi ngakumbi ukuba aluhambelani nohlobo lwakho lwe-lymphoma.
Ikuncede njani iLymphoma Australia kuhambo lwakho lomhlaza we-lymphoma? umz. ngokusebenzisa izixhobo, ukuya kwii-webinars, iipakethi zesigulane, amaqela enkxaso kwi-intanethi, amaqela e-Facebook, ukudibanisa nabongikazi, uncedo lokufikelela kwizilingo njl.
Ulwazi olukwiwebhusayithi belunolwazi kakhulu, ipakethe yezinto ezilungileyo ezifunyenweyo ibintle kakhulu. bakwiqela likaFacebook Lymphoma Phantsi Ngaphantsi incede kakhulu njengoko ndifunda okuninzi malunga nokuba abanye abantu bahlangabezana na kwaye amaxesha amaninzi ndikwazi ukuchonga kwaye oko kwandinceda ukwazi ukuba andindedwa.
Enkosi uClare ngokwabelana nathi ngebali lakho le-lymphoma. Sinqwenela ukuba uqhubeke nempilo entle!
