Ukuba ngumnakekeli womntu one-lymphoma kunokuba nomvuzo kunye nomngeni. Kwaye, nangona ungumkhathaleli, uya kufuna inkxaso ukuze uzigcine uphilile kwaye uphumle, ngelixa ulawula iimfuno zeemvakalelo nezomzimba zokuba ngumkhathaleli.
Ubomi abumi xa uba ngumnakekeli, okanye xa umntu omthandayo efunyaniswa ene-lymphoma. Kusenokufuneka ulawule umsebenzi, isikolo, abantwana, imisebenzi yasekhaya kunye nolunye uxanduva. Eli phepha liza kunika ulwazi malunga noko kufuneka ukwazi ukuxhasa umntu wakho nge-lymphoma, kwaye ufumane inkxaso efanelekileyo kuwe.
Amaphepha ahambelanayo
Yintoni ekufuneka ndiyazi?
Ukuba uya kukhathalela umntu one-lymphoma kukho ezinye izinto malunga ne-lymphoma kunye nonyango oluya kufuneka ukwazi. Ngezantsi kukho ikhonkco kwamanye amaphepha kule webhusayithi sicebisa ukuba uphonononge njengoko ufunda malunga nokuba loluphi uhlobo lokhathalelo umntu omthandayo anokuthi alufune.
Iintlobo zabongi
Kukho iindidi ngeendidi zabongi. Abanye benu banokuba ngabakhathaleli abahlawulwayo apho ekuphela komsebenzi wenu ikukonga umntu one-lymphoma, kodwa uninzi lwabongi ngamalungu osapho okanye abahlobo abangahlawulwayo. Unokuba nesivumelwano esisesikweni malunga nokuba yeyiphi na imisebenzi yakho njengomkhathaleli, okanye unokuba ngumhlobo, umyeni okanye inkosikazi, umzali womntwana okanye umntu one-lymphoma. Kule meko unokuba namalungiselelo angekho sikweni apho unikezela ngenkxaso eyongezelelweyo njengoko ifuneka kubudlelwane bakho obubodwa.
Nokuba uluhlobo luni na lomkhathaleli uya kufuna inkxaso eyongezelelweyo. Inkxaso oyidingayo iya kuba yeyodwa kuwe, kwaye iya kuxhomekeka koku:
- Imeko yomntu obathandayo,
- uhlobo oluncinane lwe-lymphoma abanalo,
- uhlobo lonyango abaya kulufuna,
- Nasiphi na esinye isigulo okanye iimeko umntu wakho one-lymphoma anayo, njengentlungu, iimpawu ze-lymphoma okanye iziphumo ebezingalindelekanga kunyango, ubunzima bokuhamba kunye nemisebenzi yemihla ngemihla,
- apho nihlala khona nobabini,
- Olunye uxanduva lwakho olunjengomsebenzi, isikolo, abantwana, umsebenzi wasekhaya, kunye namaqela asekuhlaleni,
- amava angaphambili onawo okanye ongazange ube nawo njengomkhathaleli (ukuba ngumkhathaleli akuzinzeli ngokwemvelo kubantu abaninzi),
- impilo yakho ngokwasemzimbeni, ngokweemvakalelo nangokwengqondo,
- uhlobo lobudlelwane onalo nomntu wakho nge-lymphoma,
- ezinye izinto ezininzi ezenza wena nomntu wakho nihluke.
Ukuba liqabane lakho, umfazi okanye umyeni one-lymphoma, abanakukwazi ukukunika uhlobo olufanayo lwenkxaso, intuthuzelo, uthando, amandla okanye intshiseko abanayo ngaphambili. Ukuba ngaphambili bebenegalelo kwimisebenzi yasekhaya, ngokwemali okanye ekukhuliseni abantwana, basenokuba namandla angaphantsi okwenza oku ngoku ukuze okungakumbi kwezi zinto kuwele kuwe.
Iqabane lakho, umfazi okanye umyeni wakho
Utshintsho kunye nokungalingani kwiindima zenu kuya kuba nefuthe leemvakalelo kuni nobabini. Nangona bengayibonakalisi ngamazwi, umntu wakho ophethe i-lymphoma unokuziva edibene neemvakalelo ezintle kunye nezibi njengoko behamba nge-lymphoma kunye nonyango lwayo.
Basenokuziva:
- benetyala okanye beneentloni kuba bengasakwazi ukuqhubeka nendlela yabo yokuphila eqhelekileyo kunye nemisebenzi,
- uloyiko lokuba iimvakalelo zakho ngabo zinokutshintsha,
- bazive beneentloni malunga nendlela unyango oluyitshintsha ngayo imizimba yabo,
- bekhathazekile ukuba ukulahlekelwa ngumvuzo wabo kuya kuthetha ntoni kusapho lwakho.
Ngako konke oku, kusenokwenzeka ukuba basenombulelo ongazenzisiyo ngokuba nawe ubanceda kule nxalenye yobomi babo.
Basenokucinga ngokufa kwabo okokuqala ebomini babo, kwaye oku kunokubangela uloyiko kunye nexhala, okanye ukuqonda njengoko belinganisa eyona nto ibalulekileyo kubo kwaye bacinge emva ngobomi babo. Nokuba banethuba elihle lokunyangwa, kuseyinto eqhelekileyo ukuba nezi ngcinga neemvakalelo.
Wena, umkhathaleli
Ukubukela iqabane lakho okanye iqabane lakho lihamba nge-lymphoma kwaye unyango lwayo aluyi kuba lula. Kwanokuba banamathuba amahle okunyangwa, usenokuqalisa ukucinga ngendlela ekunokubanjani ngayo ukuphulukana nabo, yaye oku kunokubangela uloyiko nokuxhalaba. Kuya kufuneka ubaxhase ngamaxesha athile anzima, kwaye nangona oku kunokuba luncedo kakhulu, kusenokudinwa ngokomzimba nangokweemvakalelo.
Uya kufuna eyakho inethiwekhi yenkxaso yabahlobo, usapho okanye abasebenzi bezempilo njengoko ulawula yonke imisebenzi yakho yesiqhelo kunye nomsebenzi ngelixa uxhasa iqabane lakho ngoku.
Unokuqaphela ukuguqulwa kwendima ethile kubudlelwane bakho ukuba iqabane lakho belisoloko lingumboneleli, okanye umkhathaleli, okanye owomeleleyo nolungelelanisiweyo. Kwaye ngoku kukuwe ukuba ugcwalise ezi ndima ngelixa begxile kunyango kunye nempilo yabo yomzimba. Oku kungathatha kancinci ukuqhela kuni nobabini.
Ukwabelana ngesondo kunye nobudlelwane obusondeleyo
Kuyinto eqhelekileyo ukuzibuza ngesondo kunye nobudlelwane obusondeleyo kunye nokuba oku kunokutshintsha njani xa ugcina iqabane lakho. Izinto zinokutshintsha okwethutyana kwaye ukufunda iindlela ezintsha zokusondelelana kuya kubaluleka ukugcina ukusondelana kubudlelwane bakho.
Kusalungile ukwabelana ngesondo ukuba wena neqabane lakho nobabini niyakufuna, nangona kunjalo kukho izilumkiso ezongezelelweyo ekufuneka uzithathe. Jonga ikhonkco elingezantsi ngolwazi oluthe kratya malunga nokuzikhusela, iqabane lakho kunye nobudlelwane bakho.
Ukwabelana ngesondo, ubulili kunye nobudlelwane obusondeleyo-Lymphoma Australia
Ukuba ngumkhathaleli xa usengumntwana okanye usemncinci ngokwakho kuluxanduva olukhulu. AWUKHO wedwa. Kukho malunga nama-230,000 abongi eOstreliya njengawe! Abaninzi bathi kunomvuzo ngokwenene, yaye baziva bevuya ngokukwazi ukunceda umntu abamthandayo.
Oko akuthethi ukuba kuya kuba lula. Uya kufunda okuninzi, kwaye mhlawumbi wenze iimpazamo ezimbalwa – Kodwa kulungile, kuba sonke siyazenza iimpazamo! Kwaye yonke le nto unokuba uyayenza ngelixa usesikolweni okanye e-uni, okanye ukhangela umsebenzi kwaye uzama ukuba nobomi obuqhelekileyo.
Ininzi inkxaso efumanekayo kuwe njengomkhathaleli. Sifake ezinye iilinki ngezantsi zeendawo ezinokunceda.
- Abakhathaleli abancinci - Abakhathaleli baseOstreliya
- Inkampu kunye neeRetreats zaBantwana abajongene noMhlaza | Umgangatho wenkampu
- UQhagamshelwano lwaseCanteen-Uluntu lwabantu abancinci abachatshazelwe nguMhlaza
- Cancer Hub | Iinkonzo zeNkxaso kwiiNtsapho ezijongene noMhlaza
- Fumana iNkxaso – umnqweno kaMama
Ukubukela umntwana wakho okanye umntwana osemtsha ehamba nge-lymphoma kwaye unyango lwayo lucelomngeni olungenakucingelwa kubazali abaninzi. Uzakubona umntwana wakho ehamba kwizinto ekungekho mntwana kufuneka ajongane nazo. Kwaye, ukuba unabanye abantwana, kuya kufuneka ubancede bafunde indlela yokuhlangabezana ne-lymphoma yomntakwabo okanye udade kwaye baqhubeke nobuntwana babo.
Ngelishwa, ngelixa kunqabile, i-lymphoma yintsholongwane yesithathu eqhelekileyo ebantwaneni, kunye nomhlaza oqhelekileyo kwabaselula kunye nabaselula base-Australia. Jonga ikhonkco elingezantsi kwi-Lymphoma kubantwana, abafikisayo kunye nabantu abadala abancinci ngolwazi oluthe kratya malunga ne-lymphoma kubantu abancinci.
Siphinde songeze amakhonkco angezantsi emibutho ezinikele ekuxhaseni abantwana kunye neentsapho xa umntu efunyaniswa enomhlaza. Abanye banikezela ngemisebenzi efana nohambo, ukukhempisha kunye nokunxibelelana nabanye abantwana abanomhlaza, okanye abanomzali onomhlaza, ngelixa abanye banokunika inkxaso ebonakalayo.
- I-Lymphoma kubantwana, abaselula kunye nabantu abadala
- Iingcebiso kubazali kunye nabagcini
- Isisa soMhlaza waBantwana kunye neNkxaso yoSapho eOstreliya | Redkite
- Inkampu kunye neeRetreats zaBantwana abajongene noMhlaza | Umgangatho wenkampu
- UQhagamshelwano lwaseCanteen-Uluntu lwabantu abancinci abachatshazelwe nguMhlaza
- Cancer Hub | Iinkonzo zeNkxaso kwiiNtsapho ezijongene noMhlaza
- Ukuba ngumzali ngomhlaza
- Uncedo lwemali kwiiNtsapho – Abantwana abanoMhlaza
- Isiseko sikaSony -ukunceda ekugcineni ukuchuma.
Isikolo kunye nokufundiswa
Ukuba umntwana wakho usesikolweni usenokuba nexhala lokuba baya kuqhubeka njani nesikolo ngelixa befumana unyango. Okanye mhlawumbi ubuxakeke yiyo yonke into eqhubekayo kangangokuba awukhange ubenalo nethuba lokucinga ngayo.
Abanye abantwana bakho banokuphinda baphoswe esikolweni ukuba intsapho yakho kufuneka ihambe imigama kwaye ihlale kude nekhaya ngelixa umntwana wakho one-lymphoma esibhedlele.
Kodwa ukucinga ngesikolo kubalulekile. Uninzi lwabantwana abane-lymphoma banokuphiliswa kwaye baya kufuna ukubuyela esikolweni ngexesha elithile. Izibhedlele ezininzi zabantwana zinenkonzo yokufundisa okanye isikolo apho umntwana wakho one-lymphoma kunye nabanye abantwana bakho banokuya ngelixa umntwana wakho efumana unyango okanye esibhedlele.
Ezi zibhedlele zingezantsi zineenkonzo zesikolo ngaphakathi kwenkonzo yazo. Ukuba umntwana wakho ufumana unyango kwisibhedlele esahlukileyo kunesi zidweliswe apha, mbuze malunga nenkxaso yesikolo ekhoyo kumntwana/abantwana bakho.
QLD. - Isikolo saBantwana seSibhedlele saseQueensland (eq.edu.au)
VIC. - IVictoria, iziko lezeMfundo: Iziko lezeMfundo (rch.org.au)
SA - Isikolo seSibhedlele seenkqubo zemfundo yezibhedlele zaseMzantsi Ostreliya
WA - Isikolo esibhedlele (health.wa.gov.au)
NSW - Isikolo esibhedlele | Uthungelwano lweZibhedlele zaBantwana zaseSydney (nsw.gov.au)
Nokuba ungumzali onyamekela umntwana omdala one-lymphoma, okanye umntu omdala okhathalele umzali wakho one-lymphoma, okanye umhlobo onyamekela umhlobo wakho, kuya kubakho utshintsho kutshintsho kubudlelwane bakho.
Abakhathaleli babazali
Njengomzali onyamekela unyana okanye intombi yakho esele ikhulile kusenokufuneka wenze iinguqulelo ezininzi kwindlela ophila ngayo. Oku kunokuba nzima ukuba unezinye izibophelelo. Ukutshintsha kobudlelwane bakho nako kunokutshintsha njengoko umntwana wakho omdala ephinda exhomekeke kwinkathalo nenkxaso yakho. Kwabanye oku kunokukusondeza, kwabanye kunokuba ngumngeni. Ugqirha wakho angakunika inkxaso enkulu. Ezinye iinkonzo banokukwazi ukukuthumela kuzo zidweliswe ngakumbi ezantsi kwephepha.
imfihlo
Umntwana wakho osele ekhulile unelungelo lokuba neerekhodi zakhe zempilo zibe yimfihlo. Bakwanalo nelungelo lokukhetha ukuhamba bodwa kwidinga, okanye bakhethe nabani na.
Kunokuba nzima kakhulu njengomzali ukukwamkela oku, kodwa abanye abantu bahlangabezana bhetele xa bengenakwabelana ngayo yonke into. Kubalulekile ukwamkela isigqibo sabo malunga nokuba lungakanani ulwazi abafuna ukwabelana nawe nawe. Nangona kunjalo, ukuba bafuna ukuba uhambe nabo, yindlela entle yokubonisa inkxaso kwaye uhlale unolwazi malunga noko banokukufuna.
Babuze ukuba yintoni abaya kuyikhetha uze usihlonele isigqibo sabo.
Ukunyamekela umzali one-lymphoma
Ukunyamekela umzali one-lymphoma kunokuba luncedo kakhulu kwaye kuyindlela yokubonisa uthando lwakho kunye nombulelo ngayo yonke into abakwenzele yona. Nangona kunjalo, inokuza nemingeni.
Indima yomzali kukukhusela abantwana babo, ngoko ngamanye amaxesha kunokuba nzima kumzali ukuthembela ebantwaneni babo – nkqu nabantwana abasele bekhulile. Basenokufuna ukukukhusela kubunyani bento abatyhubela kuyo okanye indlela abaziva ngayo, kwaye basenokungakwazi ukwabelana nabo ngalo lonke ulwazi ovakalelwa kukuba ufuna ukubaxhasa.
Abantu abadala abaninzi abafuni lwazi luninzi kwaye bangathanda ukushiya kusenziwa izigqibo kugqirha wabo oyingcali. Oku kunokuba nzima xa ungumkhathaleli wabazali.
Kubalulekile ukuba ulihlonele ilungelo labazali bakho lokugcina iimfihlo nokuzimela geqe.
Sele uyithethile loo nto, usafuna ulwazi olwaneleyo ukuze ukwazi ukukhathalela nokuthethelela umzali wakho. Ukufumana ibhalansi ngokufanelekileyo kunokuba nzima kwaye kuthatha ixesha kunye nokuziqhelanisa. Ukuba umzali wakho uyavuma, zama ukuya kumaxesha amaninzi amiselweyo kunye naye. Oku kuya kukunika ithuba lokubuza imibuzo kwaye ube nombono ongcono wento eyenzekayo. Yazi ukuba akunyanzelekanga ukuba umzali wakho avume kule nto, kodwa ukuba benza njalo, yindlela entle yokwakha unxulumano neqela lezempilo kwaye uhlale usexesheni.
Inkxaso eyongezelelweyo iyafumaneka ngoGqirha wakho.
Ukunyamekela umhlobo
Ukunyamekela umhlobo nge-lymphoma kuya kutshintsha ubuhlobo bakho. Into enidibanise njengabahlobo kunye nezinto ebenizenza kunye ziya kutshintsha. Oku kunokuba ngumngeni, kodwa abantu abaninzi bafumana ubuhlobo babo bunzulu ngakumbi kunokuba kwakunjalo ngaphambi kwe-lymphoma.
Kuya kufuneka ukuba uzikhathalele nawe kwaye wazi ukuba umhlobo wakho akasayi kukwazi ukunika inkxaso nobuqabane obufanayo njengoko ebesenza ngaphambili. Ubuncinci hayi okwethutyana. Sinezinye iingcebiso ezintle ngakumbi ezantsi kwiphepha malunga nendlela yokuxhasa umhlobo wakho kwaye ugcine ubuhlobo bakho ngelixa ungumkhathaleli wabo.
Ukulungelelanisa ukukhathalela nomsebenzi, abantwana kunye nolunye uxanduva
Ukuxilongwa kwe-lymphoma ngokuqhelekileyo kuza ngaphandle kwesilumkiso. Kwaye okulusizi kukuba, bambalwa kakhulu abo banokuba ngabakhathaleli abazizityebi ngokuzimeleyo. Usenokuba uyaphangela, uyafunda okanye ukhangela umsebenzi. Kwaye sonke kufuneka sihlawule amatyala. Usenokuba nendlu yakho ofanele uyigcine ngocwangco, mhlawumbi abantwana bakho nezinye iimbopheleleko.
Akukho nanye kwezi mbopheleleko ezitshintshileyo xa ukuxilongwa kwe-lymphoma engalindelekanga kwenzeka kumntu omthandayo, okanye xa impilo yabo iguquka kwaye bafuna inkxaso engaphezulu kuwe kunangaphambili. Kufuneka uzinike ixesha lokucwangcisa ngokusengqiqweni ukuba lingakanani ixesha onalo lokunyamekela lowo umthandayo.
Kusenokufuneka ufumane iqela labantu, abazalwana noodade, abahlobo okanye abanye abanokwabelana ngomthwalo. Nokuba abathabathi indima esemthethweni yokuba ngukhathalelo, ngokuqinisekileyo banokunceda ngeminye imiba yenkathalo efana noncedo ngomsebenzi wasekhaya, ukuchola abantwana, ukupheka ukutya okanye ukuya ezivenkileni.
Ngaphaya phantsi kwephepha phantsi kwecandelo Iingcebiso kubakhathaleli ngamanye amanqaku amachaphaza adibanisa kwiiwebhusayithi ezahlukeneyo okanye ii -apps ezinokunceda ukulungelelanisa inkxaso onokuyidinga.
Impembelelo yemvakalelo ye-lymphoma
I-Lymphoma inempembelelo yeemvakalelo kuye wonke umntu ochaphazelekayo kuyo. Kodwa ngokuqhelekileyo kubonakala kuchaphazela isigulane kunye nabathandekayo babo ngokuhlukileyo, kwaye ngamanye amaxesha ngamaxesha ahlukeneyo.
Kungakhathaliseki ukuba uzama kangakanani, awusoze uqonde ngokupheleleyo ukuba kunjani kumntu wakho one-lymphoma. Ngokunjalo, nokuba bazama kangakanani na, abanakuze bayiqonde ngenene into yokuba kunjani na ukuba ubabukele bedlula kwi-lymphoma, lunyango kunye nohlengahlengiso lokunyanzelwa kubomi bokuskena, uvavanyo, unyango kunye nokuziva ungaphilanga okanye ungakhuselekanga.
Ngokuxhomekeke kubudlelwane bakho nomntu wakho one-lymphoma, impembelelo enayo kubudlelwane bakho iya kuza nemingeni eyahlukeneyo.
Ukufunyaniswa ukuba unomhlaza asiyonto eqhelekileyo. Okubuhlungu kukuba, iya ixhaphaka, kodwa ngokuqinisekileyo ayiqhelekanga. Ngoko ke akukho ndlela eqhelekileyo yokuphendula kwiindaba zomhlaza okanye imingeni ezisa yona.
Amava omntu ngamnye aya kwahluka. Nangaphakathi kwiintsapho, ilungu ngalinye losapho liya kuba neengcinga, iimvakalelo kunye nokusabela okwahlukileyo kwiindaba zabo okanye zomntu omthandayo onomhlaza.
Unyango lusoloko lunzima kumkhathaleli – Ukugqiba unyango kudla ngokuba nzima kumntu one-lymphoma!
Ukuxilongwa kwe-lymphoma kunzima kuwo wonke umntu! Ubomi buza kutshintsha okwethutyana, kwaye kunokwenzeka ngonaphakade ukusa kwinqanaba elithile. Ngelixa ingenguye wonke umntu one-lymphoma ofuna unyango kwangoko, abantu abaninzi bayayenza. Kodwa nangona unyango alufuneki ngoko nangoko, kusekho iimvakalelo malunga nokuxilongwa, kwaye kusekho iimvavanyo ezongezelelweyo kunye nokuqeshwa okufunekayo okunokubangela ixhala kunye noxinzelelo.
Ukuba umntu wakho akaqalisi unyango ngoko nangoko, ungafumana eli phepha lewebhu lingezantsi liluncedo.
Ngaphambi kokuxilongwa ngokusesikweni kwaye emva koko kwenziwe iimvavanyo kunye nokuqalisa unyango, ubomi buya kuxakeka. Njengomkhathaleli, kunokufuneka ukuba ukhokele kwizinto ezininzi, ukwenza amadinga, ukuqhuba ukuya kwidinga kunye nokuba kunye nomntu wakho ngexesha leendaba ezinzima kakhulu abaya kuziva kunye nezigqibo ekufuneka bazenze.
Ngeli xesha, umntu wakho one-lymphoma unokungena kwimodi yeshishini. Okanye unokukhanyela, okanye ugule kakhulu ukuba ujongane neemvakalelo zento eyenzekayo. Okanye mhlawumbi baya kulila baze bafune ukuba usecaleni kwabo ukuze ubathuthuzele uze ubaxhase njengoko besamkela indlela abavakalelwa ngayo. Basenokushiya yonke into kuwe ngelixa begxile ekuqhubekeni nonyango.
Iingcebiso kubakhathaleli kukhokelela, kwaye ngexesha lonyango
- Yiba nencwadi, idayari okanye ifolda kwisixhobo sakho ukugcina umkhondo wazo zonke iindibano.
- Gcwalisa Connect kunye nathi ifomu lokuqinisekisa ukuba wena kunye nomntu wakho one-lymphoma unokufikelela kulwazi oluhlaziyiweyo kwi-lymphoma subtype, unyango, iziganeko kunye nekiti yokuxhasa unyango xa unyango luqala. Ungazalisa ifom nge nqakraza apha.
- Thatha amashwamshwam asempilweni kunye neziselo ukuya kwidinga - ngamanye amaxesha ulibaziseko lunokwenzeka kwaye iintsuku zonyango zinokude.
- Buza umntu wakho ukuba lungakanani ulwazi angathanda ukwabelana nabanye ngalo. Abanye abantu bathanda ukwabelana ngayo yonke into ngelixa abanye bethanda ukugcina izinto ziyimfihlo. Cinga ngendlela yokwabelana ngolwazi, ezinye izimvo zinokubandakanya:
- Qala i-Facebook yangasese (okanye enye imidiya yoluntu) iphepha onokuthi wabelane ngalo nabantu ofuna ukubagcina behlaziyiwe.
- Qala incoko yeqela kwinkonzo yemiyalezo efana ne-WhatsApp, Facebook Messenger okanye efanayo ukuthumela uhlaziyo olukhawulezayo kuyo.
- Qala iBlog ekwi-intanethi (idayari) okanye iVLOG (idayari yevidiyo) ukuze wabelane ngayo.
- Thatha amanqaku ngexesha lokuqeshwa ukuze ubuyele emva kwexesha, okanye mhlawumbi ubuze ugqirha ukuba ungarekhoda idinga kwifowuni yakho okanye esinye isixhobo sokurekhoda.
- Bhala phantsi kwincwadi yakho, idayari okanye fowunela eyomntu wakho i-subtype ye-lymphoma, i-allergies, iimpawu, igama lonyango kunye nemiphumo emibi.
- Shicilela okanye ukhuphele Imibuzo yokubuza ugqirha wakho ukuya kumadinga akho - kwaye wongeze nayiphi na into eyongezelelweyo wena okanye umntu wakho onokuba nayo.
- Yiba nebhegi epakishwe nakuphi na ukuhlala esibhedlele ngokungalindelekanga ukuba uyigcine emotweni okanye ngasemnyango. Pakisha:
- izindlu zangasese
- pajamas
- iimpahla ezikhululekileyo ezikhululekileyo
- izicathulo ezingatyibiliki kakuhle
- ifowuni, ilaptop, ithebhulethi kunye neetshaja
- izinto zokudlala, iincwadi, iiphazili okanye eminye imisebenzi
- izimuncumuncu.
- Umthunywa - tsalela wena usapho kunye namaqela oluntu ukuze ubone ukuba ngubani onokukwazi ukukunceda ngezinto eziphathekayo ezinjengokuthenga, ukupheka ukutya, ukutyelela, ukucoca indlu, ukuyolanda abantwana esikolweni. Ezinye zezi apps zilandelayo zinokuba luncedo:
- Qokelela abasebenzi bam
- Uloliwe wokutya
- ULotsa unceda izandla
- Ibhulorho yokuKhathalela
- Ilali enenkathalo
Ngaba umntu wakho one-lymphoma unabantwana?
- Isisa soMhlaza waBantwana kunye neNkxaso yoSapho eOstreliya | Redkite
- Inkampu kunye neeRetreats zaBantwana abajongene noMhlaza | Umgangatho wenkampu
- UQhagamshelwano lwaseCanteen-Uluntu lwabantu abancinci abachatshazelwe nguMhlaza
- Cancer Hub | Iinkonzo zeNkxaso kwiiNtsapho Ukujongana noMhlaza
Kwaye ke unyango luqala!
Sihlala sisiva kwizigulana ukuba unyango belulula xa luthelekisa nobomi emva konyango. Oko akuthethi ukuba unyango lulula. Basaza kudinwa kwaye babe neziphumo ebezingalindelekanga ezivela kunyango. Kodwa abantu abaninzi baxakeke kakhulu kwaye baxakeke kukufumana unyango kangangokuba bangabinalo ixesha lokujonga okwenzekayo - Lude luphele unyango.
Njengomongi, ukuba ubomi babungaxakekanga ngokwaneleyo ngaphambili, ngokuqinisekileyo buya kuba kanye xa unyango luqalile! Kukho iintlobo ezahlukeneyo zonyango kubantu abahlukeneyo kunye neentlobo ezahlukeneyo ze-lymphoma. Kodwa uninzi lwezonyango luhlala iinyanga (iinyanga ezi-4-6) ubuncinci, kwaye ezinye zinokuhlala iminyaka.
Ukuqeshwa okuqhubekayo
Kunye nonyango, umntu wakho uya kufuna uvavanyo lwegazi rhoqo, adibane nogqirha wakhe wegazi okanye i-oncologist KUNYE noGqirha wasekuhlaleni (GP) kunye ne-PET/CT rhoqo okanye ezinye izikena ngokunjalo. Basenokude bafune olunye uvavanyo lokujonga ukuba intliziyo, imiphunga kunye nezintso zabo zihlangabezana njani na nonyango.
Imiphumela
Lonke unyango luneziphumo ebezingalindelekanga ezinokwenzeka, uhlobo lweziphumo ebezingalindelekanga lunokwahluka ngokuxhomekeke kuhlobo lonyango. Abantu abohlukeneyo abanonyango olufanayo banokuba neziphumo ebezingalindelekanga ezahlukileyo okanye ubuzaza beziphumo ebezingalindelekanga bunokwahluka.
Njengomongi, kuya kufuneka wazi ngezi ziphumo ebezingalindelekanga ukuze ukwazi ukukuxhasa umntu osekhaya, kwaye wazi ukuba ungadibana nini nogqirha okanye uye kwisebe likaxakeka. Qinisekisa ukuba ubuza malunga neziphumo ebezingalindelekanga zohlobo oluthile lonyango olufunyanwa ngumntu wakho. I-hematologist yabo okanye i-oncologist, umongikazi oyingcali okanye usokhemisti uya kuba nakho ukukunceda malunga noku. Ungakhalisa neenesi zethu 1800 953 081 ukufumana ngakumbi ukuba ufuna njalo.
Nje ukuba uyazi ukuba zeziphi iziphumo ebezingalindelekanga ezinokufunyanwa ngumntu wakho, ndwendwela iphepha lethu leziphumo ebezingalindelekanga ngokucofa ikhonkco elingezantsi ukuze ufunde ngakumbi ngazo.
Iyeza lisenokuchaphazela imo neemvakalelo zabo
Olunye unyango lwe-lymphoma, kunye namanye amayeza abanokuthi bawathathe, kunye noxinzelelo lwe-lymphoma kunokuchaphazela imo kunye neemvakalelo zabantu. Oku kunokubenza bakhale, babenomsindo okanye babe mfutshane, badane okanye babe lusizi kunesiqhelo. Funda ngakumbi malunga noku kwiphepha lethu lewebhu Impilo yengqondo kunye neemvakalelo.
Kubalulekile ukukhumbula ukuba olu tshintsho lwesimo kunye neemvakalelo alukho malunga nawe okanye ukuba uqhuba kakuhle kangakanani njengomkhathaleli. Yaye asiyombonakaliso yokwenene yeemvakalelo zabo zokwenene. Kukusabela kwindlela iyeza elichaphazela ngayo iihomoni ezahlukeneyo kunye nemiqondiso engqondweni.
Ukuba unenkxalabo malunga nendlela utshintsho lweemvakalelo kunye neemvakalelo zabo ezibachaphazela ngayo, wena nabanye, bakhuthaze ukuba bathethe nogqirha wabo malunga nalo. Ukuba uya kwidinga kunye nomntu wakho, unokuthetha nogqirha malunga nolu tshintsho. Kwiimeko ezininzi, oku kunokuphuculwa ngokutshintsha amayeza okanye umthamo.
imfihlo
Nangona oku kunokuba nzima, njengomongi awunalungelo lazo zonke iirekhodi zakho zonyango okanye ulwazi. Izibhedlele, oogqirha, abongikazi kunye nezinye iingcali zempilo zibotshelelwe yimithetho eyimfihlo kwaye abanako ukwabelana nawe ngolwazi lwezonyango okanye iirekhodi ngaphandle kwemvume ecacileyo, kwaye rhoqo ebhaliweyo evela kumntu wakho.
Umntu wakho naye unelungelo lokwabelana kuphela ngezinto akhululekileyo ukwabelana ngazo nawe. Kufuneka ukuhloniphe oku nokuba utshatile, kubudlelwane obuzinikeleyo okanye umzali okanye umntwana womntu one-lymphoma. Abanye abantu bafuna ixesha lokucubungula ulwazi olutsha kwaye benze isicwangciso entloko phambi kokuba bakhululeke ukwabelana ngolwazi. Abanye basenokufuna ukukukhusela kwiingcinezelo abaphantsi kwazo.
Ubungakanani okanye buncinane ababelana nawe nawe akubonisi ukuba bayakuthanda okanye bakuthembe kangakanani. Yindlela nje yokujongana nabantu abaninzi.
Ukuba ungathanda ulwazi oluthe kratya, vumela umntu wakho one-lymphoma azi ukuba xa sele elungile, ungathanda ukwazi ngakumbi ukuze ukwazi ukubaxhasa kangangoko kunokwenzeka, kwaye wenze naziphi na izicwangciso onokufuna ukuzenza. Kodwa kwakhona bazise ukuba uyalihlonela ilungelo labo lokuba neemfihlo.
Umntu wakho angakufumana ukugqiba unyango kunzima kunonyango ngokwalo!
Sihlala sisiva kubantu abane-lymphoma ukuba bebelungile ngelixa besiya kunyango, kodwa iinyanga emva kokugqiba unyango yayilucelomngeni lokwenene. Ukufumana apho babuyela khona ebomini, usapho, umsebenzi/isikolo okanye amaqela asekuhlaleni kunokuthatha ixesha. Abantu abaninzi basixelele ukuba baziva belahlekile kwiinyanga emva kokuphela konyango.
Abantu abaninzi abane-lymphoma baya kuba nokukhathala okuqhubekayo, kunye nezinye iimpawu okanye imiphumo emibi yonyango enokuhlala iinyanga emva kokunyanga. Abanye basenokuba neziphumo ebezingalindelekanga zexesha elide ezifuna ulawulo oluqhubekayo ubomi babo bonke. Ngoko amava e-lymphoma awapheli xa unyango luphela.
Kwabanye abantu, impembelelo yeemvakalelo yokufunyaniswa kwe-lymphoma kunye nonyango ayibetheki de kube semva kokuxakeka kokuqeshwa, ukuskena, iimvavanyo kunye nonyango.
Ulindelo olusengqiqweni
Enye yezinto esiziva kakhulu kwizigulana kukuba wonke umntu ulindele ukuba zibuyele esiqhelweni ngoku unyango luphelile. Olu lulindelo olungekho ngqiqweni!
Kwelinye icala, abanye abantu bakhathazwa kukuba abo babathandayo bengabavumeli ukuba babuyele kumgangatho othile wesiqhelo.
Babuze ukuba bafuna ntoni!
Ekuphela kwendlela yokwazi ukuba umntu wakho ufuna ntoni kukumbuza. Qonda ukuba kusenokuthatha ixesha ukuze baphinde bazithembe, kwaye basenokungaze babuyele kanye kwindawo ababekuyo ngaphambili. Kodwa oku akufuneki kube yinto embi. Lixesha elihle lokususa izinto ezibangela uxinzelelo olungeyomfuneko ebomini bakho kwaye ugxile kwizinto ezibalulekileyo.
Ukwenza izicwangciso
Abanye abantu bakufumanisa kuluncedo ukwenza izicwangciso zokujonga phambili kwinto ethile xa unyango luphela. Nangona kunjalo, abanye abantu banokuziva bengaqinisekanga ukucwangcisa nantoni na de babe nexesha elithile lokubuyisela kwaye baphinde bahlolisise ukuqinisekisa ukuba i-lymphoma iphilisiwe okanye ixolelwe. Nantoni na emsebenzelayo umntu wakho ilungile. Akukho ndlela ilungileyo yokusingatha oku.
Nangona kunjalo, usenokuvakalelwa kukuba kufuneka wenze izicwangciso nokuba umntu wakho akakakulungeli. Oku kusengqiqweni kakhulu, kwaye into ebalulekileyo kukuhlala ninxibelelana ukuze nifumane isicwangciso esinisebenzela nobabini.
Inkxaso ekhoyo
Akukho mboneleli kufuneka akhathalele yedwa. Kubalulekile ukuba uqhagamshelane nabantu abohlukeneyo - bobabini abahlobo kunye nosapho kunye neengcali zempilo.
Yazisa abantu into oyifunayo
Ukholelwa okanye awukholelwa, abantu abaninzi bafuna ukunceda. Ingxaki kukuba, abantu abaninzi abazi ukuba njani. Uninzi lwabantu alufumani qeqesho okanye amava malunga nendlela yokuthetha, okanye ukusingatha izinto ezinzima ezifana nokugula.
Abantu abaninzi banexhala lokuba xa bezama ukuthetha nawe ngemeko okuyo, basenokukucaphukisa, bakukhubekise okanye bakuphoxe. Abanye abazi ukuba mabathini. Abantu abaninzi bagqiba kwelokuba bathethe ngayo kuphela xa uyizisa. Oku akuthethi ukuba abakhathali.
Kodwa ubonakala ulungile!
Ukuba ufumana abahlobo kunye nosapho kuphela xa unamandla, ujongeka kakuhle kwaye ubaxelela yonke into ihamba kakuhle, ungalindela njani ukuba bazi ukuba ufuna uncedo?
Yazisa abantu into oyifunayo. Yazisa abantu ukuba uvulekile ukuncokola kunye nokwabelana ngeengxaki zakho. Oku kunokuthatha ukuziqhelanisa. Kwaye usenokungasoloko ufumana impendulo obuyilindele, kodwa awunakulindela ukuba abantu bayazi into oyifunayo ngaphandle kokuba ubazise.
Ungalindeli ukuba baqashele! Kuya kuba kuhle ukuba abantu bafunde iingqondo zethu, kodwa abanako kwaye akukho ngqiqweni ukulindela ukuba abantu bayazi into oyifunayo, kuba imeko kunye neemfuno zabo zahlukile.
Cinga ngezinye zezi nethiwekhi zingezantsi onokuthi ukwazi ukuthetha okanye ucele inkxaso kuzo.
Unako ukuthembela kwiinkokeli zokholo lwakho kunye nebandla ukuze ufumane uncedo ngokwasemoyeni, ngokwasemoyeni nangoncedo olusebenzayo. Thatha ixesha lokuthetha nabo kwaye ubazise ukuba ujongene nantoni kwaye ubuze ukuba yeyiphi inkxaso anokuthi akwazi ukuyinika.
Ukuba ukhululekile ngalo mbono, bacele ukuba bafake okuthile kwincwadana yabo okanye olunye unxibelelwano oluthe rhoqo namanye amalungu ukuze bacele uncedo oluphathekayo nokuba luqhutywa rhoqo okanye nje kube kanye. Usenokude ukwenze oku ungachazwanga ngamagama kuphela abo baya kwinkokeli yebandla banike iinkcukacha zakho.
Abantu abaninzi bangamalungu ezemidlalo okanye amanye amaqela asekuhlaleni. Ukuba uneqela kwaye unxibelelane kakuhle namanye amalungu, thetha nabo malunga nendlela obutshintsha ngayo ubomi bakho ngenxa yendima yakho entsha yokuba ngumkhathaleli. Baxelele ukuba ufuna uncedo ngantoni kwaye ubuze ukuba kukho nabani na abamaziyo onokunceda.
Ukuba ukhululekile ngalo mbono, bacele ukuba bafake okuthile kwincwadana yabo okanye olunye unxibelelwano oluthe rhoqo namanye amalungu ukuze bacele uncedo oluphathekayo nokuba luqhutywa rhoqo okanye nje kube kanye. Ungade ukwazi ukwenza oku ngokungaziwa kunye kuphela abo baya kwinkokeli yeqela banikwe iinkcukacha zakho.
Nangona ingenguwe one-lymphoma, kusabalulekile ukuba uqhagamshelane noGqirha. Oogqirha banokuba luhlobo olukhulu lwenkxaso kwaye bakuncede ulungelelanise ukhathalelo onokulufuna.
Sicebisa wonke umntu one-lymphoma kunye nabongi babo ukuba babe nesicwangciso sempilo yengqondo kunye noGqirha wakho. Oku kunokujonga uxinezeleko olongezelelekileyo kunye noxanduva onalo ngoku kwaye wenze isicwangciso sokuqinisekisa ukuba unenkxaso kwiingcebiso, isayikholojisti, amayeza okanye enye inkxaso onokuyidinga.
Usenokuba neemeko zonyango ngokwakho ekufuneka uzilawule ngelixa ukhathalela umntu wakho. Ugqirha wakho usenokwenza isicwangciso solawulo lukaGqirha ukuqinisekisa ukuba ezi zinto azikuphosi ngelixa uxakekile unyamekela lowo umthandayo. Basenokukunceda nokukunxulumanisa nemibutho yasekuhlaleni enokukunceda.
Iinkonzo ezongezelelweyo ugqirha wakho angakuthumela kuzo
Kubalulekile ukufumana uncedo olufunayo lokulawula olu tshintsho. Thetha nogqirha wakho malunga neenkonzo zenkxaso ezikhoyo kwingingqi yakho. Bangakunceda ukulungelelanisa ukhathalelo lwakho ngokukuthumela kwiinkonzo ezahlukeneyo kuluntu. Ezinye ezinokunceda ziquka ezi zilandelayo.
- Iingcali zengqondo okanye abacebisi ukuba bancede ngemingeni yeemvakalelo kunye nengqondo eza nokuxhasa umntu one-lymphoma.
- Iingcali zonyango zomsebenzi ezinokukunceda ukuvavanya iimfuno zakho kwaye uncede ufumane inkxaso efanelekileyo yomzimba yokunyamekela umntu wakho.
- Abasebenzi bezentlalontle abanokukunceda ukuba ufikelele kwiinkxaso ezahlukeneyo zentlalo kunye nezemali.
Uninzi lwezibhedlele zinesebe lentlalontle. Ungacela ukuthunyelwa kunontlalontle kwisibhedlele sakho. Ukuba isibhedlele sakho asinalo isebe loonontlalontle, ugqirha wakho wengingqi angakunceda anxulumanise nelinye elikwindawo ohlala kuyo.
Oonontlalontle banokunceda ngokucetyiswa, ukuthunyelwa kwiinkonzo ezahlukeneyo ukufumana inkxaso eyongezelelweyo, ukulungelelanisa inkathalelo yomntu omthandayo, kunye nokukumela.
Basenokukunceda ukuba ufikelele kwinkxaso yemali, uncedo lokuhamba kunye nendawo yokuhlala okanye ezinye iinkonzo zempilo kunye nezomthetho ukuba ziyafuneka.
ICarer Gateway yinkqubo kaRhulumente waseOstreliya ebonelela ngenkxaso yasimahla yeemvakalelo nebonakalayo kubakhathaleli. Ungafumana ulwazi oluninzi malunga nabo apha: Career Gateway.
Abongikazi bethu be-Lymphoma Australia bayafumaneka ngoMvulo-ngoLwesihlanu 9am ukuya 4:30pm.
Ungaqhagamshelana nabo ngomnxeba ku-1800 953 081 okanye uthumele i-imeyile ku-nurse@lymphoma.org.au.
Bangaphendula imibuzo yakho, bamamele iinkxalabo zakho kwaye bakuncede ufumane iinkonzo zenkxaso kumntu omthandayo okanye ngokwakho.
I-Lymphoma Phantsi Ngaphantsi liqela lenkxaso yoontanga kwi-intanethi kuFacebook. Imodareyithwa yiLymphoma Australia kodwa yeyezigulane kunye nabo babathandayo. Abantu abaninzi bafumana ukuncokola nabanye nge-lymphoma okanye ukukhathalela abo bane-lymphoma kunye nokuva amabali abo aluncedo ngokwenene.
Ungajoyina ngokuphendula imibuzo yobulungu kunye nokuvumelana nemithetho yeqela apha: Lymphoma Phantsi Ngaphantsi.
Uncedo lwemali kubakhathaleli
Usenokufumana isibonelelo kwiCenterlink ukukunceda njengoko ukhathalela lowo umthandayo. Nobabini wena, kunye nomntu omkhathalelayo kuya kufuneka ukuba ufezekise iimfuno ezithile ukuze uvumeleke.
Ulwazi malunga neentlawulo zomkhathaleli kunye nezibonelelo zononophelo zinokufumaneka kwiiNkonzo zeOstreliya kwiphepha lewebhu.
Ukugcina ubuhlobo kunye nobunye ubudlelwane
Abantu abaninzi baqaphela utshintsho kubuhlobo babo kunye neentsapho zabo xa behlala nomhlaza. Abanye abantu bafumanisa ukuba abo basondeleyo kubo baba kude, ngelixa abanye bebengasondelelani nabo, basondele.
Ngelishwa, abantu abaninzi abakafundiswa indlela yokuthetha ngokugula nezinye izinto ezinzima. Xa abantu bebuya umva, kudla ngokubangelwa kukuba bengazi ukuba mabathini, okanye boyika nantoni na abayithethayo, eya kukucaphukisa okanye yenze izinto zibe mbi ngakumbi.
Abanye banokuxhalaba malunga nokwabelana ngeendaba zabo ezilungileyo okanye ezimbi, okanye iimvakalelo kunye nawe. Basenokungafuni kukuthwalisa uxanduva ngoxa ungaphilanga. Okanye, basenokuziva benetyala xa izinto zibahambela kakuhle xa unokuninzi okwenzekayo.
Iingcebiso malunga nendlela yokugcina ubudlelwane kunye nabahlobo kunye nosapho
Unganceda abahlobo bakho kunye nosapho lwakho ukuba baqonde ukuba kulungile ukuthetha nge-lymphoma okanye unyango umntu omthandayo analo ukuba bayalufuna. Okanye bade bathethe ngezinto ezenzeka ebomini babo. Ukuba ukhululekile ukuthetha ngemeko yakho, buza imibuzo efana nale:
- Yintoni ongathanda ukuyazi malunga ne-lymphoma?
- Yeyiphi imibuzo onayo malunga nonyango (lomntu omthandayo) kunye neziphumo ebezingalindelekanga?
- Ufuna ukwazi kangakanani?
- Izinto zizohluka okwethutyana kum, singahlala njani sinxibelelana?
- Ndizakuxakeka nyani ndixhasa umntu endimthandayo okwethutyana. Ndisenokufuna uncedo kwizinto ezifana nokupheka, ukucoca, ukunyamekela abantwana. Unganceda ngantoni?
- Ndisafuna ukwazi ukuba kwenzeka ntoni ngawe – Ndixelele okuhle okubi nokubi – Kwaye yonke into phakathi!
- Andifuni kuthetha nge-lymphoma kodwa ndibuze ngayo (nantoni na ongathanda ukuthetha ngayo).
- Uyazi naziphi iziqhulo ezilungileyo? Ndifuna ukuhleka.
- Ungahlala apha nam ngelixa ndilila, okanye ucinga okanye ndiphumle?
- Ukuba unawo amandla, unokubabuza - Yintoni oyifunayo kum?
Yazisa abantu ukuba kulungile ukundwendwela, okanye ungakhetha njani ukuhlala unxibelelana
Unyango lunokwehlisa umxokomezelo wakho wokhuselo lomzimba. Kubalulekile ukwazisa abantu ukuba akusoloko kukhuselekile ukutyelela, kodwa ukuba xa bekwenza njalo basenako ukukwanga.
- Bazise ukuba bangahambi xa begula. Cinga ngezinye iindlela zokuhlala unxibelelana.
- Ukuba ukhululekile ukwanga abantu kwaye baphile, baxelele ukuba ufuna ukuwolwa.
- Bukelani imuvi kunye - kodwa kumakhaya enu ngokusondeza, ividiyo okanye umnxeba.
- Vula incoko yeqela kwenye yeenkonzo ezininzi zemiyalezo okanye zevidiyo ezikhoyo.
- Qala uluhlu, kuba xa undwendwelo lwamkelekile kwaye kufuneka wenze ntoni. Ezi apps zingentla zinganceda kule nto.
Kwaye ekugqibeleni, ukuba ubona ubudlelwane buguquka, thetha ngayo. Yazisa abantu ukuba basabalulekile, kwaye usafuna ukugcina ukusondelana owawunabo ngaphambili.
Ezinye izixhobo
isishwankathelo
- Indima yomnakekeli yeyomntu ngamnye ngokusekwe kubudlelwane bakho nomntu wakho one-lymphoma kunye neemfuno zabo.
- Abakhathaleli basenokuba ngamalungu osapho, abahlobo okanye abaphuma kwinkonzo ehlawulwayo.
- Nabani na unokuba ngumkhathaleli kuquka nabantwana kwaye unokuba nendima esesikweni okanye engekho sikweni.
- Njengomkhathaleli awuwedwa, kukho iinkonzo ezifumanekayo zokuxhasa, kwaye ezinye iintlawulo onokuthi ube uzifanelekele.
- Ukuqonda i-lymphoma, unyango lwayo, kunye nemiphumo emibi kuya kukunceda uqonde indlela yokuxhasa umntu wakho ngcono.
- Umntu wakho usenokufuna inkxaso yakho njengomkhathaleli ixesha elide emva kokuba unyango lugqityiwe.
- Nangona ungumkhathaleli, uya kufuna inkxaso nawe. Yazisa abantu into oyifunayo.
- Fumana ugqirha olungileyo kwaye uhlale unxibelelana naye rhoqo. Banokunceda ukulungelelanisa iinkonzo ezahlukeneyo zenkxaso onokuthi uzifune.
- Ungatsalela omnye wabongikazi ku-1800 953 081 ngoMvulo ukuya ngoLwesihlanu 9am-4:30 pm ngexesha laseBrisbane.
