Ukuphila ne-lymphoma kunye nonyango kunokuba lixesha elinzima kunye nemingeni emininzi eyahlukeneyo. Unokuzibuza ukuba yeyiphi inkxaso ekhoyo kubantu abane-lymphoma. Eli phepha liza kunika iingcebiso eziluncedo kunye nolwazi malunga neenkonzo zenkxaso onokuzifumana. Oku kuquka uncedo lwezothutho, inkxaso yemali, inkxaso yempilo yengqondo nokunye okuninzi.
Iluncedo Mihla le
Ukufumanisa ukuba wena okanye umntu omthandayo une-lymphoma kumothuko omkhulu kwaye uya kutshintsha izinto ezininzi malunga nendlela ohlala ngayo. Ukwazi into oyifunayo ekuqaleni kunokukunceda ucwangcise kwangaphambili ukuze uqiniseke ukuba ufumana inkxaso efanelekileyo xa uyifuna kakhulu.
Indlela i-lymphoma echaphazela ngayo ubomi bakho iya kuxhomekeka kwizinto ezininzi, ezifana:
- luluphi uhlobo lwe-lymphoma onayo
- nokuba ufuna unyango, kwaye loluphi unyango oya kuba nalo
- iminyaka yakho kunye nempilo yonke
- inethiwekhi yakho yenkxaso
- ukwesiphi inqanaba lobomi (ingaba uthatha umhlala-phantsi emsebenzini, ukhulisa abantwana abancinci, uyatshata okanye uthenga indlu)
- nokuba uhlala esixekweni okanye emaphandleni.
Kungakhathaliseki ukuba zonke ezi zinto, wonke umntu one-lymphoma kufuneka enze utshintsho ongeke ufune ukwenza. Ukujongana nale mpembelelo kunokuba uxinzelelo kwaye wenze imingeni emitsha ebomini bakho.
La macandelo alandelayo aya kunika iingcebiso eziluncedo malunga nendlela yokulawula imisebenzi yemihla ngemihla kunye nezinto onokucinga ngazo ukuze ube nokucwangcisa kwangaphambili.
Ukukhangela inkqubo yokhathalelo lwempilo
Ukuhamba ngenkqubo yokhathalelo lwempilo kunokuba ngumngeni kakhulu, ngakumbi xa isibhedlele ngasinye sahluke kakhulu kwaye namava wonke umntu ahluke kakhulu.
Kule vidiyo ingezantsi, u-Andrea Patten ongunontlalontle ophezulu uthetha ngamalungelo akho kunye neengqwalasela ezibalulekileyo, ukuba wena okanye othandekayo uye wafumanisa ukuba une-lymphoma.
Iivesi zikaRhulumente kwiSibhedlele saBucala kunye neeNgcali
Kubalulekile ukuqonda ukhetho lwakho lokhathalelo lwempilo xa ujongene ne-lymphoma okanye ukuxilongwa kwe-CLL. Ukuba une-inshurensi yezempilo yabucala, kungafuneka ukuba ucinge ukuba uyafuna na ukubona ingcali kwinkqubo yabucala okanye kwinkqubo karhulumente. Xa ugqirha wakho ekuthumelela umntu, xoxa naye ngoku. Ukuba awunayo i-inshorensi yezempilo yabucala, qiniseka ukuba umazisa ugqirha wakho ngale nto, njengoko abanye banokukuthumela ngokuzenzekelayo kwinkqubo yabucala ukuba abazi ukuba ungakhetha inkqubo karhulumente. Oku kunokukhokelela ekuhlawulisweni ukuze ubone ingcali yakho.
Ungasoloko utshintsha ingqondo yakho kwaye ubuyele umva nokuba ngasese okanye esidlangalaleni ukuba utshintsha ingqondo yakho.
Cofa izihloko ezingezantsi ukuze ufunde malunga neenzuzo kunye namahlantsi okuba nonyango kwiinkqubo zikawonke-wonke nezabucala.
Okuzuzwayo kwiNkqubo yoLuntu
- Inkqubo yoluntu ihlawula iindleko ze-PBS ezidweliswe zonyango lwe-lymphoma kunye nophando lwe
i-lymphoma efana ne-PET scans kunye ne-biopsy's. - Inkqubo yoluntu ikwahlawula iindleko zamanye amayeza angadweliswanga phantsi kwe-PBS
njenge-dacarbazine, eliyeza le-chemotherapy elisetyenziswa ngokuqhelekileyo kwi-
unyango lwe-Hodgkin's lymphoma. - Ekuphela kweendleko eziphuma epokothweni zonyango kwinkqubo kawonke-wonke idla ngokuba yeyesigulana esingalaliswanga
imibhalo yamayeza owathatha ngomlomo ekhaya. Oku kuqhelekile kuncinci kwaye kunjalo
nokuba unenkxaso yezempilo okanye ikhadi lomhlalaphantsi. - Uninzi lwezibhedlele zikarhulumente zineqela leengcaphephe, abongikazi kunye nabasebenzi bezempilo abamanyeneyo, ababizwa ngokuba yi
Iqela le-MDT elijongene nenkathalo yakho. - Uninzi lwezibhedlele ezikhulu eziphezulu zinokubonelela ngonyango olungafumanekiyo kwi
inkqubo yabucala. Umzekelo iintlobo ezithile zokufakelwa, unyango lwe-CAR T-cell.
Amazantsi enkqubo yoluntu
- Usenokungasoloko ubona ingcali yakho xa unedinga. Uninzi lwezibhedlele zikarhulumente zingamaziko oqeqesho okanye amaziko emfundo ephakamileyo. Oku kuthetha ukuba unokubona irejistra okanye ababhalisi abaqeqeshwayo abakwikliniki, abaya kuthi ke banike ingxelo kwingcali yakho.
- Kukho imigaqo engqongqo malunga ne-co-pay okanye ukufikelela kweleyibhile kumayeza angafumanekiyo kwi-PBS. Oku kuxhomekeke kwinkqubo yakho yokhathalelo lwempilo karhulumente kwaye inokwahluka phakathi kwamazwe. Ngenxa yoko, amanye amayeza asenokungafumaneki kuwe. Useza kukwazi ukufumana umgangatho, unyango oluvunyiweyo lwesifo sakho nangona kunjalo.
- Usenokungakwazi ukufikelela ngokuthe ngqo kwi-hematologist yakho kodwa kungafuneka uqhagamshelane nonesi oyingcali okanye umamkeli.
Izibonelelo zenkqubo yabucala
- Uyakuhlala ubona i-hematologist efanayo njengoko kungekho gqirha abaqeqeshwayo kumagumbi abucala.
- Akukho mithetho malunga ne-co-pay okanye yokuvala ukufikelela kwilebhile kumayeza. Oku kunokuba luncedo ngakumbi ukuba unesifo esiphindaphindiweyo okanye i-lymphoma subtype engenalo unyango oluninzi. Nangona kunjalo, unokubiza kakhulu ngeendleko ezibalulekileyo eziphuma epokothweni kuya kufuneka uzihlawule.
- Iimvavanyo ezithile okanye iimvavanyo ze-work up zingenziwa ngokukhawuleza kwizibhedlele zabucala.
Ngaphantsi kwezibhedlele zabucala
- Uninzi lwenkxaso-mali yokhathalelo lwempilo ayikhuphi iindleko zazo zonke iimvavanyo kunye/okanye nonyango. Oku kusekelwe kwingxowa-mali yakho yezempilo, kwaye kusoloko kungcono ukujonga. Uya kufumana umrhumo wokungena ngonyaka.
- Ayizizo zonke iingcaphephe zetyala elikhulu kwaye zinokubiza ngaphezulu kwe-cap. Oku kuthetha ukuba kukho iindleko eziphuma epokothweni zokubona ugqirha wakho.
- Ukuba ufuna ukwamkelwa ngexesha lonyango lwakho, umlinganiselo wabongikazi uphezulu kakhulu kwindawo yabucala ezibhedlele. Oku kuthetha ukuba umongikazi kwisibhedlele sabucala unezigulane ezininzi ekufuneka azijongile kunesibhedlele sikarhulumente.
- I-hematologist yakho ayisoloko ikwisiza esibhedlele, ikholisa ukundwendwela ixesha elifutshane kanye ngemini. Oku kusenokuthetha ukuba awuphilanga okanye ufuna ugqirha ngokukhawuleza, asiyongcali yakho yesiqhelo.
umsebenzi
Uyakwazi ukuqhubeka nokusebenza okanye ukufunda nge-lymphoma. Nangona kunjalo, oku kuya kuxhomekeka kwindlela oziva ngayo, loluphi unyango onalo kunye nokuba unazo naziphi na iimpawu ze-lymphoma, okanye iziphumo ebezingalindelekanga ezivela kunyango.
Abanye abantu bayaqhubeka nokusebenza njengoko bebenjalo ngaphambili kwaye bathatha ixesha lokuya kwidinga kuphela, abanye banciphisa umsebenzi wabo ukuba bawenze okwethutyana kwaye abanye bathathe ixesha emsebenzini ngokupheleleyo.
Thetha nawe ugqirha, abantu obathandayo kunye nendawo yokusebenza
Thetha nogqirha wakho malunga nokuba bacebisa ntoni xa kuziwa emsebenzini kunye nexesha elifunekayo emsebenzini. Baza kukwazi ukukubhalela isiqinisekiso sonyango ukuba siyafuneka.
Thetha nosapho lwakho, abantu obathandayo kunye nendawo osebenza kuyo ukuze wenze isicwangciso. Qinisekisa ukuba wonke umntu uyazi ukuba ngamanye amaxesha izicwangciso zinokutshintsha ngokungalindelekanga ukuba ufuna ukuya esibhedlele, ulibazisekile kwidinga okanye uzive ungaphilanga kwaye udiniwe.
Abanye abantu bafumanisa ukuba ukuqhubeka nokusebenza kubanceda bagcine ukuqheleka okuthile kwindlela yabo yesiqhelo kwaye kubanceda bamelane bhetele ngexesha lonyango. Abanye abantu bafumana umsebenzi onzima kakhulu ngokomzimba nangokwengqondo kwaye bagqibe kwelokuba bathathe ikhefu lokungabikho.
Utshintsho olunokwenzeka emsebenzini ekufuneka luqwalaselwe
Ukuba uyaqhubeka nokusebenza, ezinye iinguqu onokuzenza ukuze uxhase umsebenzi wakho ziquka:
- Ukuvumela ixesha lokuphumla ukuya kwidinga kunye nonyango
- Ukunciphisa okanye ukutshintsha iiyure ozisebenzayo (iintsuku ezimfutshane okanye ukunciphisa iveki yokusebenza)
- Ukusebenza ekhaya
- Ukulungelelanisa uhlobo lomsebenzi, umzekelo ukutshintshela kwindima engafuneki kangako ngokwasemzimbeni okanye ukuphepha izinto zosulelo
- Ukutshintsha indawo yokusebenza
- Ukutshintshela kwiprogram yomsebenzi: oku kunokubandakanya ukubuyela kancinci kancinci emsebenzini ngesakhono esicuthiweyo esonyuka kancinci ngokuhamba kwexesha.
Elikhonkco lilandelayo liku Centrelink's 'Ukuqinisekiswa kweFom yeeMeko zezoNyango'. Le fomu isoloko ifunwa ngamaziko okufunda okanye kwiindawo zokusebenza ukwenza uhlengahlengiso olufanelekileyo kwizibophelelo zomsebenzi okanye zokufunda.
Study
Ukuba ne-lymphoma kunokuba nefuthe kufundo, nokuba kusesikolweni, eyunivesithi okanye kwizifundo ezinxulumene nomsebenzi Le mpembelelo inokukuchaphazela ukuba ungumfundi, umzali okanye umkhathaleli. Kusenokufuneka uthathe ikhefu okanye utshintshe isicwangciso sakho sokufunda.
Abanye abantu bakhetha ukuqhubeka nesifundo sabo ngelixa befumana unyango, okanye bekhathalela umntu one-lymphoma. Kwabanye abantu, ukuqhubeka nokufunda kunokubonelela ngento enokusebenzela kwaye kugxininiswe phakathi kokwamkelwa esibhedlele kunye namaxesha amade okulinda phakathi kwedinga. Abanye abantu bafumanisa ukuba ukufunda okuqhubekayo kubonelela ngoxinzelelo olungeyomfuneko kunye noxinzelelo, kwaye bakhetha ukuhlehlisa isidanga sabo saseyunivesithi okanye ukuthatha ikhefu esikolweni.
Ukuba wena okanye umntwana wakho usesesikolweni, thetha nesikolo/iyunivesithi nixoxe ngenkxaso eninokuyikhetha.
Utshintsho olunokwenzeka kwisicwangciso sakho sokufunda ukuze uqwalaselwe
- Ukufundiswa ekhaya okanye ukunxibelelana nenkonzo yokufundisa esibhedlele (ihlala izibhedlele zabantwana zibonelela ngenkqubo yenkxaso yesikolo apho ootitshala basesibhedlele banokundwendwela esibhedlele)
- Thetha nesikolo malunga nomthwalo ocuthiweyo wovavanyo okanye iprogram yokufunda ehlengahlengisiweyo apho ukufunda kunokuqhubeka khona kodwa kukho iimfuneko zovavanyo olungekho sikweni.
- Qhubeka unxibelelana nesikolo kunye nabafundi, oku kuya kunceda ukugcina unxibelelwano kwaye uphephe ukuba likheswa kakhulu kubahlobo besikolo.
Dibana nomgaqo wesikolo okanye umcebisi wezemfundo
Ukuba ufunda isidanga eyunivesithi, dibana nombhalisi wekholeji kunye nomcebisi wezemfundo ukuxoxa ngemeko yakho. Ukurhoxisa izifundo zakho ngokupheleleyo kunokuba lukhetho, nangona kunjalo ukunciphisa umthwalo wakho wokufunda ngokuyeka ixesha elizeleyo ukuya kwisigxina kunokuba yinto enokukhetha kuyo.
Ungakwazi kwakhona ukutshintsha imihla emiselweyo yezabelo zakho okanye iimviwo malunga nonyango lwakho. Mhlawumbi uya kufuna isiqinisekiso soogqirha ngoko ke cela ugqirha oyincutshe okanye ugqirha wakho ukuba bangakwenzela na esinye.
Elikhonkco lilandelayo liku Centrelink's 'Ukuqinisekiswa kweFom yeeMeko zezoNyango'. Le fomu isoloko ifunwa ngamaziko okufunda okanye kwiindawo zokusebenza ukwenza uhlengahlengiso olufanelekileyo kwizibophelelo zomsebenzi okanye zokufunda.
ZeMali
Ukuxilongwa kwe-lymphoma kunye nokunyangwa kwayo kunokudala ubunzima bezemali; Ngokukodwa awukwazi ukusebenza ixesha elide.
Ukufumana inkxaso yemali kunokuba nzima, kodwa kukho ezinye iintlawulo zenkxaso zemali ezifumaneka kwimibutho eyahlukeneyo karhulumente efana ne-Centerlink, i-Medicare kunye neNkxaso yaBantwana. Usenokukwazi ukufikelela kwiintlawulo ezithile ngengxowa-mali yakho yempesheni.
Ukuba unomcebisi wezezimali, bazise malunga ne-lymphoma yakho ukuze bakuncede ucwangcise indlela yokulawula imali yakho. Ukuba awunaye umcebisi wezezimali, ungafikelela komnye ngeCenterlink. Iinkcukacha malunga nendlela yokufikelela kumcebisi wezezimali we-Centerlink zingezantsi phantsi kwesihloko Inkonzo yoLwazi lwezeMali.
ICentrelink
Abantu abakhubazekileyo, abagulayo okanye abonzakeleyo, kunye nabongi babo banokutsalela i-Centerlink 13 27 17 ukubuza malunga neentlawulo kunye neenkonzo ezikhoyo. Cofa kwilinki ilandelayo ukufunda: Isikhokelo kwiiNtlawulo zikaRhulumente wase-Australia.
Ezinye zeenkonzo zentlawulo zeCenterlink ziquka:
- Isibonelelo sokugula: Intlawulo yenkxaso yomvuzo ukuba umntu akakwazi ukusebenza okanye ukufunda ixesha elithile ngenxa yokugula, ukwenzakala okanye ukukhubazeka.
- Isibonelelo somkhathaleli: intlawulo eyongezelelweyo (ibhonasi) izibonelelo intlawulo yomnakekeli (ukongeza) unomvuzo ukuya kuthi ga kwi-250,000 / ngonyaka (malunga ne-131 yeedola / iiveki ezimbini) unokusebenza iiyure ezingama-25 kwaye usekule nto.
- Intlawulo yomkhathaleli: Intlawulo yenkxaso yomvuzo ukuba unikezela ngenkathalo rhoqo kumntu okhubazeke kakhulu, ogulayo okanye obuthathaka.
- Cofa ikhonkco elilandelayo ukuze ufunde ngakumbi malunga Iintlawulo zabakhathaleli.
- Cofa eli khonkco lilandelayo ukufunda Indlela yokwenza ibango Iintlawulo zabakhathaleli.
- Umhlalaphantsi wenkxaso yokukhubazeka: Inkxaso yemali yokukhubazeka ngokwasengqondweni, emzimbeni okanye ngokwasengqondweni ethintela izigulane ukuba zingasebenzi.
- umxokozelo uze ugcwalise ifomu 'yeBango leNkxaso yoMhlalaphantsi'
- Izibonelelo zokukhubazeka: Kukho iintlawulo kunye neenkonzo zokunceda ukuba uyagula, wonzakele okanye ukhubazekile.
- Iintlawulo zabantwana
- Isibonelelo sokuhamba: Unganakho ukufikelela kwisibonelelo sokuhamba ukuba une-lymphoma kwaye awukwazi ukusebenzisa i-transpont yoluntu. Oku kunokusetyenziswa imfuneko yokuhamba ukuya kufunda, umsebenzi woqeqesho (kubandakanywa nevolontiya) okanye ukukhangela umsebenzi. Bona ngakumbi nge nqakraza apha.
- Isibonelelo sokufuna umsebenzi: Ukuba ukwisibonelelo sokufuna umsebenzi kwaye awukwazi ukukhangela umsebenzi ngenxa ye-lymphoma okanye unyango , cela ugqirha wakho - ugqirha okanye i-hematologist ukuba agcwalise Centrelink Medical Certificate - ifom SU415. Ungafumana ifom nge ngokunqakraza apha.
Abasebenzi beNtlalo
Ukuba ufuna uncedo lokuqonda okanye ukufikelela kwiinkonzo ze-centrelink, unokucela ukuthetha nomnye woonontlalontle onokukunceda ukuba ukhangele ukuba unelungelo lokukufumana ntoni, kunye nendlela yokufikelela kuyo. Ungaqhagamshelana noNontlalontle wakwaCenterlink ngokutsalela umnxeba 13 27 17. Cela ukuthetha nonontlalontle xa bephendula kwaye baya kukubeka. Ungajonga kwakhona kwiwebhusayithi yabo apha Iinkonzo zentlalontle - Iinkonzo zaseOstreliya.
Inkonzo yoLwazi lwezeMali
Enye inkonzo i-Centerlink ebonelela ngayo yinkonzo yoLwazi lwezeMali ukukunceda ucwangcise indlela yokwenza eyona mali yakho ininzi. Bafowunele 13 23 00 okanye bona iphepha labo lewebhu apha Inkonzo yoLwazi lwezeMali – Iinkonzo zaseOstreliya
LweMida
I-Medicare inokunceda zihlawule iindleko zonyango kwaye ucebise ngendlela yokugcina iindleko ziphantsi. Ulwazi malunga neentlawulo ezahlukeneyo zeMedicare kunye neenkonzo ezikhoyo zinokufumaneka Apha.
Inkxaso yomntwana
- Intlawulo yohlengahlengiso lomnakekeli yintlawulo enye. Inceda iintsapho xa umntwana ongaphantsi kweminyaka emi-6 efunyaniswa enenye yezi zilandelayo:
- isigulo esinzima
- imeko yonyango
- ukukhubazeka okukhulu
- Intlawulo yoNcedo lokuKhubazeka koMntwana yintlawulo yonyaka ukunceda abazali ngeendleko zokunyamekela umntwana onesiphene.
- Intlawulo yeZixhobo zoNyango eziBalulekileyo yintlawulo yonyaka ukunceda ukonyuka kweendleko zamandla ekhaya. Oku kunokuvela kusetyenziso lwezixhobo zonyango eziyimfuneko ukunceda ukulawula ukukhubazeka okanye imeko yonyango.
Imali yesibonelelo
Ngelixa imali yempesheni iqhele ukukhuselwa de ube neminyaka engama-65 ubudala, kwezinye iimeko usenokukwazi ukufikelela kuyo ngenxa 'yezizathu zovelwano'. Ezinye iimeko ezinokuthi zithathwe njengezizathu zovelwano ziquka:
- Ukuhlawulela unyango (okanye isithuthi sokuya nokubuya kunyango).
- Ukunceda ngemali-mboleko yakho ukuba ibhanki sele iza kukuhlutha (ithathe indlu yakho).
- Ukulungiswa ukuba ufuna ukuguqula indlu yakho ngenxa yokwenzakala okanye ukugula.
- Hlawula ukhathalelo lokuthomalalisa.
- Hlawula iindleko ezinxulumene nokusweleka komntu obexhomekeke kuwe - njengeendleko zokungcwaba okanye zokungcwaba.
Ungafumana ulwazi oluthe kratya malunga nokufikelela kwimali yakho yempesheni ngezizathu zovelwano, ngokutsalela umnxeba kwiSebe leeNkonzo zoLuntu 1300 131 060.
Ii-inshurensi ezakhelwe kwi-suepennuation
Iingxowa-mali ezininzi zempesheni ziye zakhelwe 'kukhuseleko lwengeniso' okanye intlawulo epheleleyo yokukhubazeka kwipolisi. Usenokuba nale nto ungazi nokuba uyazi.
- Ukhuseleko lomvuzo luquka inxalenye yomvuzo wakho wesiqhelo xa ungakwazi ukusebenza ngenxa yokugula okanye ukwenzakala.
- Iyonke yokukhubazeka okusisigxina sisixa-mali esihlawulwa kuwe ukuba akulindelekanga ukuba ubuyele emsebenzini ngenxa yesigulo sakho.
Iinshorensi zakho ziya kuxhomekeka kwinkampani yakho yempesheni kunye nepolisi. Ukuba awukwazi ukusebenza ngenxa ye-lymphoma yakho, qhagamshelana nengxowa-mali yakho ye-superannuation kwaye ubuze ukuba yeyiphi inkxaso kunye nee-inshurensi ezakhelwe kwipolisi yakho.
Uncedo olongezelelekileyo ngeSuperannuation kunye nezezimali
Ukuba unengxaki yokufikelela kwiipolisi zakho ze superpennuation okanye i-inshorensi, iCancer Council Australia inenkqubo yepro bono enokukwazi ukukunceda ngeengcebiso zomthetho okanye enye inkxaso ukukunceda ukuba ufikelele kwezi. Unokufumana ulwazi oluninzi malunga nenkxaso abanokubonelela ngayo nqakraza apha.
Ukuba awukabinalo ithamsanqa, ungenza isikhalazo kunye ne Igunya leZikhalazo zezeMali zase-Australia. Amanye amakhonkco aluncedo anokuba fu maneka apha.
ZeNtlalontle
Imisebenzi yentlalo yindlela elungileyo yokuhlala unxibelelene nosapho kunye nabahlobo, kwaye inokuba sisiphazamiso esamkelekileyo kuxinzelelo olwahlukeneyo oluza nokuxilongwa kwe-lymphoma. Ukuhlala uqhagamshelwe kufuneka kube yinjongo ephambili ngeli xesha.
Kusenokufuneka uhlengahlengise okanye utshintshe eminye yemisebenzi yakho ukuze uphephe iingxaki ezinjengosulelo, ukopha okanye ngenxa yokuba udinwe kakhulu ukuba wenze imisebenzi yakho yesiqhelo.
Ngezantsi sidwelisa izinto eziqhelekileyo ekufuneka ziqwalaselwe xa usenza imisebenzi yentlalo kunye ne-lymphoma.
Ukuba nesixhobo esiseMbindini sokuFikelela kwiVenus (CVAD)
Ukuba une-CVAD efana ne-PICC line okanye i-CVC line awuyi kukwazi ukuqubha okanye ukuthatha inxaxheba kwimisebenzi eyenziwa ngamanzi, kwaye kuya kufuneka ugqume i-CVAD ngesambatho esingangeni manzi xa uhlamba. Oku kungenxa yokuba iicatheter zezi zixhobo zingaphandle komzimba wakho kwaye zingonakala okanye zosuleleke ngolu hlobo lwemisebenzi.
Uninzi lwezibhedlele kufuneka zikwazi ukukunika i-inshorensi yokungangeni manzi - vele ubuze xa utshintsha iimpahla zakho.
Kubantu abaqubha ekuhlaleni okanye abakhuphisanayo, kuya kufuneka uyibeke phantsi le misebenzi, okanye ungakhetha ukukhetha i-port-a-cath endaweni yoko. I-port-a-cath sisixhobo esiphantsi ngokupheleleyo kwesikhumba sakho, ngaphandle kwaxa sisetyenziswa kwaye sinenaliti yomgca kunye nomgca oqhotyoshelwe kuyo.
Ibali lesigulane-ukuba ne-CVAD ngelixa esibhedlele
Icatheter ephakathi efakwe ecaleni (PICC)
I-Dual lumen HICKMAN – uhlobo lwe-Tunneled cuffed-central in the central catheter (tc-CICC)
Triple lumen non-tunneled central catheter
Imidlalo yokuthintana
Imidlalo yoQhagamshelwano efana nebhola ekhatywayo, ihoki kunye nebhola ekhatywayo inokubangela ukopha kakhulu kunye nokugruzuka ukuba unamanqanaba asezantsi eplatelet, eqhelekileyo emva konyango, kunye nezinye iintlobo ze-lymphoma.
Kwakhona ukuba kufutshane kakhulu nabantu ngexesha lokuzilolonga (okunokubangela ukuphefumla kakhulu) kunokonyusa umngcipheko wosulelo ukuba banesifo sokuphefumla okanye abaphilanga.
Iziganeko ezinkulu zentlalo
Unyango, okanye i-lymphoma inokubangela ukuba amajoni akho omzimba angasebenzi kakuhle ukukukhusela kwiintsholongwane. Ke kuyacetyiswa ukuba uphephe ukuya kwimisitho emikhulu yentlalo efana nethiyetha, iikonsathi, imali yokugibela kunye neeklabhu zasebusuku, ngelixa u-neutropenic.
Ukuba awukwazi ukuwuphepha umsitho ngesizathu esithile, thatha amanyathelo okhuseleko kumgama wasekuhlaleni, nxiba imaski, kwaye wange kwaye uphuze kuphela abantu obazi kakuhle kwaye abangaguli nangayiphi na indlela (okanye uphephe ukwanga kunye nokuncamisa de amajoni akho omzimba ukuba uziva ukhuselekile. ukwenza oku). Thatha i-sanitiser yesandla kunye nawe ukuze ukwazi ukubulala iintsholongwane ezandleni zakho nangaliphi na ixesha.
Iindibano zoluntu ezinokuqhubeka ngexesha lonyango
Kukho izinto ezininzi onokuqhubeka ukuzenza xa une-lymphoma, nangona unonyango. Nangona kunjalo, unokuthanda ukuthatha amanyathelo okhuseleko olongezelelweyo njengokuhamba kude ekuhlaleni, ukunxiba imaski kunye nokuphatha sanitiser yesandla kunye nawe kwezinye zazo.
Thetha nogqirha wakho kwaye ubuze malunga naziphi na iziganeko ezibalulekileyo kuwe kwaye ukuba kukho nawuphi na umqobo kwinto ongayenza.
- Ukuya kwiimuvi
- Ukuya kwisidlo sangokuhlwa kwindawo yokutyela - ziphephe ii-buffets kwaye uqinisekise ukuba ukutya kusanda kwenziwa
- Ukudibana nabahlobo bekofu
- Ukuthatha uhambo kunye nomhlobo
- Ukuba nepikiniki
- Ukuya ecaweni nakwiindibano zenkolo ezinxulumeneyo
- Ukuhamba uhambo olude
- Ukuya kwindawo yokuzivocavoca
- Ukuqhubeka nokuzonwabisa okunje ngeklabhu yeencwadi, ukomelela kweqela okanye ukupeyinta
- Yiya ngomhla
- Tshata okanye uye emtshatweni
- Yabelana ngesondo okanye usondelelane neqabane / iqabane lakho (Jonga ikhonkco elingezantsi ukuze ufumane ulwazi oluthe kratya).
Ukujonga impilo yakho yengqondo, iimvakalelo kunye nempilo yonke
Ukuphila ne-lymphoma okanye i-CLL, ukuhlala ulindile kwaye ulinde, ukufumana unyango kunye nokuba uxolelwe konke kuza noxinzelelo olwahlukeneyo olunokuchaphazela isimo sakho sengqondo kunye nempilo yengqondo. Kubalulekile ukuba nobudlelwane obuvulekileyo kunye nogqirha wakho wendawo (ugqirha jikelele okanye ugqirha), kwaye uxoxe kunye neenkxalabo onazo, okanye utshintsho kwimo yakho, iimvakalelo kunye neengcinga.
Ugqirha wakho uya kuba nakho ukukuxhasa kwaye akuthumele kwiinkonzo ezifanelekileyo ukuba ufuna inkxaso.
Isicwangciso sempilo yengqondo
Ugqirha wakho uya kuba nakho ukukwenzela isicwangciso sempilo yengqondo esiya kuqinisekisa ukuba ubonana neengcali ezifanelekileyo kwaye unokufikelela kwi-Medicare-inkxaso-mali yesayikholojisti yezonyango, ugqirha oyingcali, unontlalontle okanye ingcali yezonyango esebenza ekliniki. Ngesi sicwangciso unokufikelela kwi-10 yokuqeshwa komntu kunye neeseshoni zeqela ezili-10.
Musa ukulinda ukuba ugqirha wakho akunike le nto, ukuba ucinga ukuba ingaluncedo kuwe, cela ugqirha wakho ukuba akwenzele isicwangciso sempilo yengqondo.
Isicwangciso solawulo lweGP
Ugqirha wakho unokukwenzela isicwangciso solawulo lwe-GP (GPMP). Esi sicwangciso siyabanceda ukuba bachonge iimfuno zakho zokhathalelo lwempilo kunye nokuba bangakuxhasa njani na. Basenokusebenzisa esi sicwangciso ukuchonga ukuba zeziphi iinkonzo eluntwini ezinokuthi zisebenzise kuwe kwaye wenze isicwangciso sokulawula iimfuno zakho zokhathalelo lwe-lymphoma.
Amalungiselelo okhathalelo lweqela
Isicwangciso sokhathalelo lweqela lwenziwa nguGqirha wakho kwaye lwenziwa ukukunceda ukuba ufikelele kwinkxaso kwiingcali zempilo ezihlangeneyo. Oku kunokubandakanya:
- iingcali zonyango lomzimba
- iingcali zokutya
- oogqirha beenyawo
- Iingcali zonyango emsebenzini.
izilwanyana
Izilwanyana zasekhaya zinokuba yinxalenye ebaluleke kakhulu ebomini bethu, kwaye ukunyamekela isilwanyana sakho xa une-lymphoma kuya kuthatha isicwangciso esongezelelweyo. I-Lymphoma kunye nonyango lwayo lunokwenza ukuba kube lula ukuba ufumane usulelo, okanye wophe kwaye ugruzuke kakhulu ukuba uthe walunywa ngempazamo, wakrweleka okanye unesilo-qabane esinzima size kugonwa.
Kuya kufuneka ulumke ukuba ezi zinto zingenzeki kwaye mhlawumbi utshintshe indlela odlala ngayo nezilwanyana zakho zasekhaya.
Izinto zokwenza
- Yazisa ugqirha wakho ukuba uyalunywa okanye uyakrweleka, okanye ubona ukugruzuka okungaqhelekanga.
- Kuphephe ukuphatha inkunkuma yezilwanyana ezifana neetreyi zenkunkuma. Cela umntu akuncede ngale misebenzi ukuba kunokwenzeka. Ukuba akukho mntu uncedisayo, sebenzisa iiglavu ezintsha (okanye ezihlambekayo ezihlanjwa emva kokusetyenziswa kwayo yonke into), nxiba imaski ukuze uphephe ukuphefumla kuyo nayiphi na into enobungozi kwaye uhlambe izandla zakho ngesepha namanzi ngokukhawuleza emva kokuphatha nayiphi na inkunkuma.
Usenokuba notyelelo olungalindelekanga esibhedlele, kufuneka ungabikho ekhaya ngokungenammiselo, ulibazisekile kwidinga okanye uzive udiniwe kwaye ungenawo amandla okunyamekela izilwanyana zakho zasekhaya.
Cwangcisa kwangaphambili kwaye uqalise ukucinga malunga nokuba ngubani onokunceda ekunyamekeleni izilwanyana zakho zasekhaya xa ungakwazi. Ukwazisa abantu kwangethuba ukuba unokufuna uncedo, kwaye ukubuza ukuba bangakulungela na ukunceda ngaphambi kokuba ludingekile kunokukunika uxolo lwengqondo kwaye wenze ukucwangcisa kube lula kakhulu xa ufuna uncedo.
Ukucwangcisa unyango
Ukujongana noxinzelelo lweemvakalelo kunye nomzimba wokuba ne-lymphoma, kwaye unyango lunokuba nzima. Kubalulekile ukufikelela kwaye ufumane inkxaso xa uyifuna. Sihlala sinabantu ebomini bethu abafuna ukunceda, kodwa abazi ukuba njani. Abanye abantu baxhalabile ngokuthetha ngendlela ohamba ngayo kuba bexhalabile baya kuthetha into engalunganga, bagqithise okanye bakucaphukise. Oku akuthethi ukuba abakhathali.
Inokukunceda ukwazisa abantu into oyifunayo. Ngokuzicacela izinto ozifunayo, unokufumana uncedo nenkxaso oyidingayo, yaye abo ubathandayo banokukuvuyela ukukunceda ngendlela enenjongo. Kukho imibutho eye yahlanganisa izicwangciso onokuzisebenzisa ukulungelelanisa ezinye zenkathalo. Ungathanda ukuzama:
Ukukhusela ukuchuma kwakho ngexesha lonyango
Unyango lwe-lymphoma lunokunciphisa ukuchuma kwakho (ubuchule bokwenza abantwana). Olunye lolu nyango lunokubandakanya ichemotherapy, ezinye izilwa-buhlungu ze-monoclonal ezibizwa ngokuba “yi-immune checkpoint inhibitors” kunye ne-radiotherapy kwi-pelvis yakho.
Imiba yokuchuma ebangelwa olu nyango ibandakanya:
- Ukuyeka ukuya exesheni kwangoko (ukutshintsha kobomi)
- Ukungaphumeleli kwe-Ovarian (kungekhona ukuyeka ukuya exesheni kodwa utshintsho kumgangatho okanye inani lamaqanda onawo)
- Ukuncipha kwenani lamadlozi okanye umgangatho wedlozi.
Ugqirha wakho kufuneka athethe nawe malunga nokuba yintoni echaphazela unyango lwakho olunokuthi lube nalo kwinzala yakho, kwaye zeziphi iindlela ezikhoyo zokukunceda ukukhusela. Ukugcinwa kokuchuma kunokwenziwa ngamayeza athile okanye ngokukhenkceza kweqanda (amaqanda), isidoda, i-ovarian okanye izicubu zamatyhalarha.
Ukuba ugqirha wakho akazange abe nale ncoko nawe, kwaye uceba ukuba nabantwana kwixesha elizayo (okanye ukuba umntwana wakho omncinci uqala unyango) babuze ukuba zeziphi iindlela ezikhoyo. Le ncoko kufuneka yenzeke phambi kokuba wena okanye umntwana wakho aqalise unyango.
Ukuba ungaphantsi kweminyaka engama-30 ubudala usenokukwazi ukufumana inkxaso kwiSony Foundation ebonelela ngenkonzo yasimahla yogcino lokuchuma kulo lonke elaseOstreliya. Banokuqhagamshelwana nabo ku-02 9383 6230 okanye kwiwebhusayithi yabo https://www.sonyfoundation.org/youcanfertility.
Ukufumana ulwazi oluthe kratya malunga nokugcinwa kokuchuma, jonga ividiyo engezantsi kunye nengcali yokuchuma, A/Prof Kate Stern.
IiNkqubo zeMvume yeeteksi
Ukuba ufuna uncedo olongezelelekileyo lokujikeleza, ungakulungela ukufumana inkqubo yemvume yeeteksi. Ezi ziinkqubo eziqhutywa ngamazwe ahlukeneyo kunye nemimandla kwaye zinokukunceda ukubonelela ngeendleko zeteksi yakho. Ngolwazi oluthe vetshe cofa kwimo yakho ngezantsi.
I-Inshurensi yokuHamba kunye nokuHamba
Emva okanye nangethuba lonyango ezinye izigulane zinokuba nomdla wokuya kwiholide. Iholide ingaba yindlela emangalisayo yokubhiyozela ukugqiba unyango, ukudala iinkumbulo kunye nabathandekayo, okanye ukuphazamiseka nje okuvuyisayo kuxinzelelo olunxulumene nomhlaza.
Kwezinye iimeko, unokufuna okanye ufune ukuhamba ngexesha lonyango lwakho, okanye ngexesha apho kufuneka ube ne-post scans zonyango kunye novavanyo lwegazi. Thetha nogqirha wakho malunga nento enokuthi ilungiselelwe kuwe ngeli xesha. Ukuba uhamba eOstreliya, iqela lakho lezonyango lingakwazi ukukuququzelela ukuba uhlolwe okanye ukrweca kwisibhedlele esahlukileyo – nakwimeko eyahlukileyo. Oku kungathatha ixesha ukulungiselela, ngoko kwazisa ugqirha ngokukhawuleza ukuba uceba ukuhamba.
Ukuba uhamba kwelinye ilizwe, kuya kufuneka ubone ukuba zeziphi iindleko ezibandakanyekayo ukuba ufuna unyango olunxulumene ne-lymphoma yakho apho. Thetha ne-hematologist yakho e-Australia kwaye uphande iinkampani zeinshurensi yokuhamba ezinokukuhlawulela. Qinisekisa ukuba ubuza ukuba yintoni na kwaye ingabandakanywanga kwiipolisi ze-inshurensi.
Yintoni i-inshurensi yokuhamba kwaye ibandakanya ntoni?
I-inshorensi yokuhamba iyakuhlawulela naziphi na iziganeko, ilahleko okanye ukwenzakala okunokuthi kwenzeke ngelixa uhamba. Ngelixa uninzi lwe-inshurensi yokuhamba ikukhusela kuhambo lwamazwe ngamazwe, ezinye iipolisi zinokukuhlawulela uhambo lwasekhaya ngokunjalo.
I-Medicare iya kuhlawulela ezinye (kwaye ngamanye amaxesha zonke) zeendleko zakho zonyango ngelixa useOstreliya.
Iipolisi ze-inshorensi yokuhamba zinokukuhlawulela imithwalo elahlekileyo, ukuphazamiseka kokuhamba, iindleko zonyango kunye namazinyo, ubusela kunye neendleko zomthetho kunye nokunye okuninzi ngokuxhomekeke kwinkampani kunye nohlobo lwe-inshorensi oyithengayo.
Ndingayifumana phi i-inshurensi yokuhamba?
Unokufumana i-inshurensi yokuhamba nge-arhente yokuhamba, inkampani yeinshurensi, i-inshurensi ye-inshurensi okanye nge-inshurensi yakho yezempilo yabucala. Ezinye iibhanki zinokubonelela nge-inshurensi yokuhamba simahla xa uvula ikhadi elithile letyala. Okanye, unokukhetha ukuthenga i-inshurensi yokuhamba kwi-intanethi apho banokuthelekisa amaxabiso kunye nemigaqo-nkqubo.
Nokuba yeyiphi na indlela okhetha ukwenza ngayo oku, ziphe ixesha lokufunda nokuqonda imigaqo-nkqubo ye-inshorensi kunye naluphi na ukhululo olunokusebenza.
Ndingayifumana i-inshurensi yokuhamba ukuba ndine-lymphoma/CLL?
Ngokuqhelekileyo, kukho iindlela ezimbini zokukhetha xa kuziwa kwi-inshurensi yokuhamba kunye nomhlaza.
- Ukhetha ukuthatha ipolisi ye-inshorensi ESINGAkuhlawuleli kwiingxaki ezinxulumene nomhlaza kunye nokugula. Umzekelo, ukuba ubuhamba phesheya kweelwandle ngeeseli zegazi ezimhlophe eziphantsi kakhulu ngenxa yechemotherapy kwaye ufumene usulelo olubeka ubomi esichengeni olufuna ukwamkelwa esibhedlele ixesha elide, kuya kufuneka uzihlawulele iindleko zakho.
- Ukhetha ukuthatha umgaqo-nkqubo obanzi OKUKHUSELEYO kwiingxaki ezinxulumene nomhlaza okanye ukugula. Kuya kufuneka ulungele ukuhlawula intlawulo ephezulu kakhulu, kwaye inkampani yeinshorensi inokufuna ukuqokelela ulwazi olunzulu malunga ne-lymphoma / CLL yakho efana nenqanaba, unyango, uvavanyo lwegazi njl njl. Ugqirha wegazi ukucocela uhambo lwaphesheya kolwandle.
Olunye ulwazi kuya kufuneka ube nalo xa uthetha ne-inshurensi yokuhamba:
- Uhlobo lwakho lwe-lymphoma
- Inqanaba lakho lokuxilongwa
- Iiprothokholi zakho zonyango
- Xa ugqibe unyango lwakho lokugqibela
- Uvavanyo lwakho lwegazi lwamva nje
- Onke amayeza owathathayo ngoku
- Ingaba ezinye iimvavanyo/uphando zicwangciselwe iinyanga ezi-6 ezizayo.
Izivumelwano zokhathalelo lweMpilo ezibuyiselanayo
I-Australia inezivumelwano zempilo ezifanayo namanye amazwe. Oku kuthetha ukuba ukuba uhamba kwilizwe elinesivumelwano sokubuyisela, unokuba neendleko zokhathalelo oluyimfuneko lwezonyango olugutyungelwe yi-Medicare. Ngolwazi oluthe kratya ngezi zivumelwano kunye namazwe aseOstreliya anesivumelwano sokubuyisana jonga i Iinkonzo Ikhasi lewebhu le-Australia apha.
ukuqhuba
Ukuxilongwa kwe-lymphoma akuchaphazeli ngokuzenzekelayo amandla akho okuqhuba. Uninzi lwabantu luyaqhubeka nokuqhuba ngendlela efanayo nangaphambi kokuba bafunyanwe. Nangona kunjalo, amanye amayeza asetyenziswa njengenxalenye yonyango anokubangela ukozela, ukuziva ugula okanye kuchaphazele ukukwazi ukuzikisa ingqondo. Kwezi meko, ukuqhuba akukhuthazwa.
Ngelixa uninzi lwezigulana ziqhuba njengesiqhelo ngexesha lohambo lwazo lomhlaza kuqhelekile ukuziva udiniwe okanye udiniwe ngeentsuku apho unyango lunikwa ngalo.
Ukuba kuyenzeka, ququzelela nosapho kunye nabahlobo ukuba umntu akuqhube akuse kwaye akubuyise kunyango kwaye ukuba oku kuyingxaki kufuneka ubuze iqela lokhathalelo lwezempilo ukuba banalo na icebiso njengoko ezinye iindlela zokuhamba zisenokubakho.
Ukuba ugqirha uvakalisa inkxalabo malunga nokukwazi ukuqhuba kwesigulane oku kufuneka kuxelwe kwisebe lezothutho. Kukwacetyiswa ukuba inkampani yeinshorensi yaziswe ngoxilongo lwesigulana okanye naziphi na izinto ezibaxhalabisayo ugqirha anokuba nazo ngokuphathelele ubuchule baso bokuqhuba.
Ezinye izigulana zifumana iziphumo ebezingalindelekanga kunyango ezinokuchaphazela amandla azo okuqhuba:
- I-peripheral neuropathy emandla inokuchaphazela imvakalelo ezinyaweni nasezizandleni zakho.
- I-Chemo-brain iyancipha ukugxila kunye nokunyuka kokulibala, abanye abantu bachaza oku njengenkungu phezu kwengqondo yabo. Amava anzima oku anokwenza kubonakale kungakhululeki ukuqhuba.
- Ukudinwa, abanye abantu badinwa kakhulu ngexesha lonyango kwaye bafumanise nemisebenzi yemihla ngemihla enjengokuqhuba iyabagqiba.
- Ukuva okanye utshintsho lombono, ukuba kukho naluphi na utshintsho kumbono okanye ukuva, thetha nogqirha malunga nokuba oku kunokuchaphazela njani ukukwazi ukuqhuba.
Ukulungisa imicimbi
Inshorensi yobomi
Ukuxilongwa okutsha kwe-lymphoma akufanele kuchaphazele imigaqo-nkqubo ekhoyo ye-inshorensi yobomi. Nangona kunjalo, kubalulekile ukuba uhlale uthembekile kwi-inshurensi yakho ekubonelela xa ubuzwa imibuzo. Thetha nenkampani yakho ye-inshurensi ukuba ufuna ukwenza ibango ngexesha lokuxilongwa, unyango kunye nonyango emva kobomi.
Usenokuba nayo i-inshurensi yobomi njengenxalenye yengxowa-mali yakho yempesheni. Qhagamshelana nengxowa-mali yakho yempesheni ukubona ukuba ungafikelela nini kwaye njani oku.
Ukuba awunayo i-inshurensi, kodwa ungathanda ukufumana, kuya kufuneka ubazise ukuba une-lymphoma kwaye unikeze naluphi na ulwazi abaludingayo ukuze bakunike isicatshulwa.
Ukubhala umyolelo
URhulumente waseOstreliya ucebisa ukuba nabani na ongaphezu kweminyaka eli-18 ubudala, abhale umyolelo nokuba 'uyafuna' okanye hayi.
Umyolelo lixwebhu elisemthethweni elichaza ukuba ungathanda ukuba impahla yakho yabiwe njani xa unokusweleka. Ikwaluxwebhu olusemthethweni olurekhoda izinto ozikhethayo koku kulandelayo:
- Ngubani omtyumba ukuba abe ngumgcini wabo nabaphi na abantwana okanye abantu abaxhomekeke kuwe unoxanduva.
- Useka iakhawunti yetrasti ukubonelela nabaphi na abantwana okanye abantu abaxhomekeke kubo.
- Ichaza indlela onqwenela ukuyigcina ngayo impahla yakho.
- Ichaza indlela onqwenela ukulungiselelwa ngayo umngcwabo wakho.
- Ichaza nayiphi na iminikelo yesisa ofuna ukuyichaza (oku kwaziwa njengomxhamli).
- Useka umabi-lifa - lo ngumntu okanye umbutho owunyulileyo ukuba uphumeze iminqweno yomyolelo wakho.
Ilizwe ngalinye kunye nommandla waseOstreliya unenkqubo eyahlukileyo kancinane yokubhala umyolelo wakho.
Funda ngokugqithisileyo malunga nendlela yokubhala umyolelo kwindawo yakho okanye ummandla.
Amandla oGqwetha okunyamezelayo
Olu luxwebhu olusemthethweni olumisela umntu okanye abantu abathile abaza kwenza izigqibo zemali, balawule izinto zakho zexabiso kwaye benze izigqibo zonyango egameni lakho xa ungakwazi.
Oku kunokusekwa ngorhulumente wakho okanye imimandla ethenjwa yoluntu. Amandla okunyamezela kwezonyango angenziwa nge-Advanced Health Directive.
I-Advanced Health Directive luxwebhu olusemthethweni oluchaza ukhetho lwakho malunga nonyango lwezonyango kunye nongenelelo olwenzayo okanye ongafuniyo.
Ukufikelela kulwazi oluninzi kula maxwebhu, cofa amakhonkco angezantsi.
Ukunyamezela Amandla eGqwetha-cofa kwindawo yakho okanye ummandla ongezantsi.
Inkxaso eyongezelelweyo
- Singakwazi iwebhusayithi: https://wecan.org.au
- Izigulana eziDala Sinako iwebhusayithi: https://wecan.org.au/oldercan/
- UNOKWENZA Amaziko abantu abatsha kunye nabantu abadala abancinci: https://www.sonyfoundation.org/you-can-centres
- Qokelela Iqela Lam: https://www.gathermycrew.org.au/
Sebenzisa olu cwangciso ukwenza uluhlu loncedo olunjengokutya, isithuthi, ukunyamekela abantwana, noncedo lwasekhaya. - Ukuba ngumzali ngoMhlaza: https://parentingthroughcancer.org.au/
