Nge-9 kaSeptemba, 2022 ndaxelelwa nguGqirha wam ukuba ndineLymphoma. Kwakukho ithumba elalihleli kumthambo wam oyintloko kanye kufutshane nomqala wam, intliziyo kunye nemiphunga. Yanqanda ukuhamba kwegazi entliziyweni yam kwaye yanciphisa nokujikeleza komoya ukuze ndikwazi ukuphefumla.
NgoSuku lweHlabathi lokuQatshelwa kweLymphoma - nge-15 kaSeptemba - ndaxelelwa ukuba ukuxilongwa kwam kwi-biopsy yayikukuba ndinohlobo lweeseli ze-Non-Hodgkins Lymphoma B.
Uhambo lwam “lomhlaza” lwaqala ngokusemthethweni kwisithuba esingangonyaka ophelileyo xa iimpawu zam ezinzima zaqala nge-29 ka-Agasti ka-2022, kwaye Ngomhla we-15 kuSeptemba 2022 - usuku lwe-lymphoma - kwafunyaniswa ukuba ndine-Primary mediastinal B cell non-Hodgkins lymphoma (PMBCL).
Ekuqaleni kuka-2022, ndandiqaqanjelwa kakhulu esifubeni, ndandilala phezu kwemiqamelo emininzi kuba yayingathi kukho umntu ondikrwitshayo, egoba okanye ephakamisa izinto kwakungathi amalungu am aza kuwa esifubeni sam.
Ndandifunyaniswa kakubi rhoqo ngosulelo lwesifuba, ndibeka ityala i-covid, yonke into phantsi kwenyanga eluhlaza. Zide zabuya ezontlungu ngakumbi.
Ngomhla wama-28/08/22 ndaphinda ndaqala ngezo ntlungu zesifuba, ndikhohlela qho kodwa ndidumba nasebusweni. Kwezo veki zimbini, bendinama-paramedics, oogqirha abaninzi bayifumanisa gwenxa imeko yam, bendithumela emva naphambili kwizikena ezahlukeneyo, uvavanyo lwegazi ukuya kuthi ke ekupheleni kweeveki ezimbini, ubuso nomzimba wam udumbe kangangokuba andikwazanga. Nditsho ndibone okanye ndiphefumle kakuhle .. xa ngentsasa yangolwesiHlanu umhla we-9 kaSeptemba 2022 ndabizwa nguGqirha wam ukuba eze kumbona.
Ndangena ndedwa ndicinga ukuba lolunye usulelo lwesifuba kodwa wathi ndine-lymphoma… kwaye ndaya ngqo eRoyal Melbourne emva koko ndaya kuPeter Mac.
Ngecawe nge 11/08/2022 ndaleqiswa eICU ndiyoqatywa sele ndiyekile ukuphefumla. Phambi koko, kuye kwadalwa iqela phakathi kukaPeter Mac kunye neRoyal Melbourne ukundibamba ndimise ngemiqamelo eli-10 ukuze ugqirha weradiologist enze i-biopsy ukuze andixilonge. I was in ICU for 3 days, kwathi ngolwesine ndaxelelwa ukuba ndixilongile.
Lilonke ukuza kuthi ga ngoku ndidlule kunyango olu-6 kwaye nge-6 kaSeptemba 2023 ndiza kube ndisenza unyango lwam lwesi-7.
- Iiyure ezingama-700 ze-DA-R-EPOCH ichemotherapy
- Iiyure ezingama-200 ze-ICE chemotherapy
- Immunotherapy - pembrolizumab - isaqhuba imijikelo emi-3 ye-Pre chemo ye-CAR T
- Unyango lwe-CAR T luqale ekupheleni kukaMeyi.
- Kwaye emva kokuskena kwam iintsuku ezingama-90 kutsha nje umphandle we-mediastinal ukhulile, ke ngoku ndisenza nge-6 kaSeptemba 2023 iRobotic Thymectomy.
Imiceli mngeni ibiyeyokuba andinalo ulawulo, kwaye bekunzima kuba xa usenza unyango luyacutheka kwaye lukhule ngamandla xa lungekho kunyango. Ndilinde nje loo mini xa uGqirha wam endixelela igama elingu-R (remission).
Ndibe nethamsanqa njengoko ndinothungelwano olumangalisayo lwabantu abandixhasayo abandingqongileyo kunye neengcali ezimangalisayo ePeter Mac. Kodwa uhambo lwam lonyaka olude olusahambayo luyichaphazele kakhulu impilo yam yengqondo, kwaye luwudinisile umzimba wam kakhulu.
Yiyiphi ingcebiso onokuthi uyinike umntu osandul 'ukufumana ukuxilongwa kwe-lymphoma/CLL? Ingaba ikhona into onqwenela ukuba uyazi phambi konyango lwakho okanye izinto eziye zakunceda endleleni ofuna ukwabelana ngayo?
Qinisekisa ukuba uvulekile ukuncokola neengcali zengqondo kwaye ucele uncedo.
Ikuncede njani iLymphoma Australia kuhambo lwakho lomhlaza we-lymphoma? umz. ngokusebenzisa izixhobo, ukuya kwii-webinars, iipakethi zesigulane, amaqela enkxaso kwi-intanethi, amaqela e-Facebook, ukudibanisa nabongikazi, uncedo lokufikelela kwizilingo njl.
Ndiqhagamshelwe kwi-lymphoma ngomhlobo wam, kwaye ndincokola nabongikazi ngemidiya yoluntu.
Uhlaziyo-Okthobha 2023
Ngomhla wama-26 kuCanzibe, ngo-2023 ii-T seli zam zafakwa. Ndineentsuku ezimbalwa ezilungileyo kude kube yimini yesi-3 xa umkhuhlane wam wabetha. Ndavuya kakhulu ndade nda…. i-neurotoxicity yabetha. Kuqale oonesi bebenexhala lokuba ndingamelwa yintliziyo njengoko intliziyo yam ibibetha ngamandla kwaye neblood pressure ibisezantsi..ndiye ndabalekiselwa eICU. Ngomso wabuyiselwa kuPeter Mac kwaye emva kweeyure ze-3 emva koko, xa ndibuzwa igama likagqirha wam, ngubani oyinkulumbuso yethu ndafumana izithuba. Emva koko kwakufuneka kubhalwe isivakalisi kwaye konke kwakukrwelwe. Ndaye ndaleqiswa ndabuyela eICU ndahlala khona ezinye 3 days. Oku kwakusoyikeka ngokwenene.
Kodwa emva koko ingqondo yam yaqalisa ukuphola, kodwa ukutya kwakungeyonto ilungileyo. Ndahamba nge-15 ekhaya. Ndiyayixabisa lonke iqela kuPeter Mac kunye neqela lam le-CAR-T kuba ngoku ndingu-0.03 ekubeni ndixolelwe. NDIFANE KHONA!
Sibulela kakhulu kuwe Chantelle ngokubonelela ngebali lakho ukunika ithemba kunye nenkuthazo kwabanye abajongene ne-lymphoma. Ndininqwenelela okuhle kodwa.
Unokulandela uChantelle kunye nobomi bakhe kwi-Instagram @chantelleasciak
Ukuxhasa umsebenzi wethu, nceda ucinge ngomnikelo kwiSibheno sethu seKrisimesi. Inkxaso yakho ixabiswa kakhulu!
