Bekusekuqaleni kuka-2023 kwaye bendisaqala ukufunda iNursing. Emva konyaka ndingaphilanga kwaye ndingakwazi ukusebenza ndavuya kuba ndiziva ngcono. Kangangokuba ndiye ndabhalisela ikhosi yeNursing ukongeza ekubuyeleni emsebenzini njenge-Exercise Physiologist.
Kunyaka ophelileyo bendikhathazwa sisiqalo esingaqhelekanga seempawu zemithambo-luvo ezandishiya ndingakwazi ukwenza okuninzi kwaphela. Inxalenye yale meko yayibandakanya ukubila ebusuku okwathi ngelo xesha, ngenxa yeminyaka yam ndandicinga ukuba yayinokunxulumana nehomoni. Ndandibuyele emsebenzini iiveki ezimbini kunye neeveki ezimbalwa kwikhosi yam xa ndabona i-lymph node kwi-groin yam yasekhohlo. Ii-lymph nodes kuloo ndawo bezisoloko zivelele kodwa le yayahlukile, yayinkulu, ingenantlungu kwaye ayishukumi. Kwabonakala ngathi kubonakale ubusuku bonke.
Bendisoloko ndinexhala ngempilo yam kodwa ndagqiba ekubeni ndiyinike iiveki ezimbalwa phambi kokuba ndibonane noGqirha wam. Bendicinga ukuba inokuzisombulula ngokwayo. Kwiiveki ezimbalwa kamva emva kwe-ultrasound engacacanga kunye novavanyo lwe-antibiotics iqhuma lalingayi ndawo ngoko ndaya kubona ugqirha weplastiki ukuze ndihlolwe ngakumbi.
Ugqirha wakwazi uku-odola i-core inaliti biopsy kwaye kwakusemva kweentsuku ezintathu nge-2 ka-Matshi ndafumana umnxeba, andisoze ndiwalibale amagama, ikhangeleka ngathi yi-lymphoma kwaye ndikwenzele idinga kunye ne-hematologist.
Ngokukhawuleza phambili kwiimvavanyo ezininzi kunye nokususwa kwe-lymph node ndiye ndafumanisa ukuba ndine- uhlobo olunqabileyo lweLymphoma ebizwa ngokuba yi-Diffuse Follicular Lymphoma.
Olu hlobo lwe-lymphoma ludla ngokuba ne-lymph node enkulu ye-groin, eyayinjalo kanye kum. Ndafumanisa ukuba i-lymphoma yam yayikwibanga eliphantsi, kwaye yayikwinqanaba lokuqala.
Ndaziva ndinethamsanqa kakhulu njengoko iimvavanyo zazingenakufumana ubungqina be-lymphoma kwenye indawo emzimbeni wam. Ndibeneengxaki ezithile emva kokususwa kwe-lymph node ebingeyonto ixhaphakileyo kodwa ndiye ndalibazisa unyango lwam kangangeenyanga ezimbalwa.
Kuba i-lymphoma yam yayikwibakala eliphantsi oku kulibaziseka ngethamsanqa kwakungeyongxaki, nangona kunjalo ndiye ndasokola ngokwasengqondweni njengoko ndandiziva ngathi kufuneka ndibe kunyango ngoko nangoko!
Ngeli xesha ndabiza abongikazi be-lymphoma e-Lymphoma Australia abaphela bengengobutyebi bolwazi kuphela, kodwa nenkxaso yeemvakalelo emangalisayo.
Ndafunda ukuba i-follicular lymphoma ikhula ngokucothayo, ngokuphindaphindiweyo kwiminyaka, ngoko ke igama elithi indolent lisetyenziselwa ukuyichaza. Kwakhona ndafunda kugqirha wam wemithambo-luvo ukuba iimpawu zam zemithambo-luvo zibangelwa kukuba inkqubo yam yomzimba yokuzikhusela ifumanisa i<em>lymphoma ize izame ukuyihlasela, ngoxa yayichaphazela nemithambo-luvo yam.
Ngoku ndilugqibile unyango lwemitha kwaye sele ndiza kuqalisa unyango lwamajoni omzimba. Iimpawu zam zemithambo-luvo zihambile kwaye bendingazi nokuba ndiyagula. Ndibuyele kwinkqubo yam yokubaleka kunye nesiqhelo sokuzilolonga. Inxalenye yam ivakalelwa kukuba andilufuni unyango kodwa ndiyazi ukuba i-lymphoma ngoku iyinxalenye yomzimba wam nangona ndingenazo iimpawu.
Xa ucamngca ngalo nyaka ngokuqinisekileyo ibiyi-roller coaster yeemvakalelo. Ekuqaleni ndothukile, yaye ndiziva ndindindisholo, abantu bandixelela ukuba ndiziphethe kakuhle ezi ndaba! Ndaye ndangena kwisigaba esiphantsi kakhulu apho ndandingaliboni ikamva ndilila ixesha elininzi. Ndinabantwana abahlanu kwaye bendizibuza ukuba ndizakubakhona na emitshatweni yabo, abantwana njalo njalo. Kwakumnyama kakhulu.
Ngoku ndiye ndaphuma kwelinye icala kwaye andisaziva ngathi akukho themba. Enyanisweni ndiziva ndinethemba ngekamva lam kwakhona. Ndibe nethamsanqa neqela lam lonyango. Ukhathalelo endilufumene kuPeter Mac kunye nehematologist yam ibimangalisa.
Ekugqibeleni abongikazi be-lymphoma e-Lymphoma Australia baye bakhona ukunceda ukucacisa izinto kunye nokuvala izikhewu xa kuyimfuneko. Ndinombulelo ongazenzisiyo ngayo yonke inkxaso endiyifumeneyo.
Yiyiphi ingcebiso onokuthi uyinike umntu osandul 'ukufumana ukuxilongwa kwe-lymphoma/CLL? Ingaba ikhona into onqwenela ukuba uyazi phambi konyango lwakho okanye izinto eziye zakunceda endleleni?
Ndingumntu ogula kakhulu xa kuziwa kwimpilo yam ngenxa yexhala, kodwa inkqubo yokuxilongwa ithatha ixesha. Oku kuqhelekile ngokupheleleyo kwaye uzame ukungoyiki (kulula ukuthetha kunokukwenza!).
I-Lymphoma iyanyangeka kakhulu kwaye amayeza asetyenziselwa ukuyilawula ahambela phambili ngokukhawuleza. Kananjalo musa ukoyika ukufuna uluvo lwesibini okanye utshintshe oogqirha ukuba awonwabanga ngokhathalelo lwakho.
Ufanelwe ukuphathwa ngentlonipho kwaye kukho iingcali ezininzi ezilawula i-lymphoma eziya kukwazi ukukunceda.
Ikuncede njani iLymphoma Australia kuhambo lwakho lomhlaza we-lymphoma?
1. Amaqela enkxaso kwi-Intanethi, abongikazi balawula iqela kakuhle kakhulu ukuqinisekisa ukuba liqhuba ngendlela enika inkxaso kumalungu alo.
2. I-website ye-Lymphoma Australia iyindawo yesibini xa ifika kumhla, ulwazi oluneenkcukacha malunga ne-lymphoma.
3. Iipakethi zesigulane zonyango zisimahla kwaye zikwenza uzive ukhathalelwe ngokupheleleyo.
4. Abongikazi baye bandinceda kakhulu ngenkxaso yeemvakalelo, ngemfundo ngemeko yam kwakunye nokundinceda ndifune uluvo lwesibini.
5. Ukudibana kwezigulane ze-lymphoma kukwangumbono omkhulu. Ndiseza kuzimasa eyokuqala yam kodwa ndijonge phambili kuyo!
