Nantsi into encinci ngohambo lwam:
Yonke yaqala ngexesha lokuvalwa ngo-2020 kunye nerhashalala encinci kunye nolusu olurhawuzelayo. Ndayibeka phantsi ukuba ndihlale esantini elwandle kwaye ndilunywe. Emva kokuba irhashalala linyamalele ndiye ndaba nokhohlokhohlo olomileyo. Bendifundisa abantwana aba-2 ekhaya, ndiqhuba ishishini lam ekhaya kwaye ndizama nje ukusinda kwinombolo ye-lockdown owaziyo ukuba yintoni! Ekugqibeleni ndiye ndazama ukubona ugqirha wam ngenxa yokhohlokhohlo kodwa andafika kude kakhulu kuba yayiluphawu lwe-COVID ngoko akukho mntu wayefuna ukundibona. Ndazingisa ndisazi ukuba kukho into engahambi kakuhle, ndanikwa iX-ray yesifuba yalandelwa yiCT scan kwathiwa mandiye kwi emergency.
Umhla we-17 kaDisemba 2020 yayilusuku endingasokuze ndilulibale, ukufunyaniswa ukuba ndinalo Non Hodgkin Large B cell Lymphoma. Eli gama loyikekayo uC ongasoze ufune ukuliva… Ngaloo mzuzu wonke umhlaba wam njengoko ndandisazi waguqukela kum nosapho lwam. Ukuxelela umyeni wam nabantwana kwakubi kakhulu, ndaziva ndinetyala ngokudala uloyiko nenkxalabo kubo.
Ndiziva ndinomsindo ngenxa yoko yandibayo kwaye ndinombulelo kakhulu ngezifundo endizifundileyo endleleni kunye nenkxaso yabo bandingqongileyo.
Ndaqala ichemotherapy yam ngoko nangoko, imijikelo emi-6 ye-R – EPOCH ilandelwa yi-R ICE. Ngelishwa olu nyango aluzange lusebenze kwaye uhambo lwam olulandelayo yayilufakelo lwe-stem cell kodwa oko akuzange kwenzeke njengoko i-lymphoma yam yayikhula ngexa ndifumana unyango lweKhemo. Uluhlu lwam olulandelayo lonyango yayiyi-CAR T kwaye ndonwabile ukuthi ndiyibethe kwaye ndinombulelo kakhulu ngokuba ndifumene ithuba le-CAR T**.
Ufumana amandla ongazange wazi ukuba akhona kwaye uyazixabisa izinto ezincinci ngakumbi.
2023. Ngoku ndingaphezu konyaka ndiphumile eCAR T kwaye ndisecacile! Ndijonge phambili ku-2023 omnandi.
Ukuvuma amava am ngeLymphoma kunye nethemba lokunceda abanye, ndijoyina esona sizathu sibaluleke kakhulu "iLegs Out for Lymphoma" ukunyusa imali yeLymphoma Australia. Ndikwathatha inxaxheba "kwiNyanga kaSeptemba yokuQaphela iLymphoma" kwaye ndazingca ngokuba nguMmeli wezigulane eCanberra kulo nyaka ukunceda ukukhanya kwi-lymphoma kunye nokuthetha ngamava am e-CAR T.
** CAR T-cell Therapy - UTahli wayengomnye wezigulane zokuqala ukufikelela kwiprogram ye-Yescarta CAR T-cell exhaswa yi-PBS. Ukufumana banzi malunga nolu nyango lutsha kwaye ukuba lukulungele, yiya ku: www.lymphoma.org.au/media/new-cart-available-therapy/
