ʻO Gray Zone Lymphoma (GZL) – i kapa ʻia i kekahi manawa ʻo Mediastinal Gray Zone Lymphoma, he ʻano ʻano kakaʻikahi a koʻikoʻi o B-cell Non-Hodgkin Lymphoma. 'O ke 'ano o ka 'ino, 'o ia ka ulu koke 'ana, a hiki ke laha i kou kino. Hana ʻia ia i ka wā e hoʻololi ai kekahi ʻano o ke koko keʻokeʻo keʻokeʻo i kapa ʻia ʻo B-cell lymphocytes a lilo i maʻi kanesa.
ʻO nā lymphocytes B-cell (B-cells) he ʻāpana koʻikoʻi o kā mākou ʻōnaehana pale. Kākoʻo lākou i nā mea pale pale ʻē aʻe e hana maikaʻi, a hana i nā antibodies e kōkua i ke kaua ʻana i ka maʻi a me ka maʻi.
ʻO ka Lymphatic pūnaewele
Eia naʻe, ʻaʻole like me nā ʻāpana koko ʻē aʻe, ʻaʻole lākou e noho maʻamau i loko o ko mākou koko, akā i loko o kā mākou lymphatic system e komo pū ana me kā mākou:
- lymph aka wahi
- nā moku lymphatic a me ka wai lymph
- kāu thyma
- ʻāpala
- ʻiʻo lymphoid (e like me Peyer's Patches he mau pūʻulu lymphocytes i loko o ko mākou ʻōpū a me nā wahi ʻē aʻe o ko mākou kino)
- hoʻopau
- tonsons
ʻO ka ʻike no ka Lymphoma Wāhinahina
ʻO Gray Zone Lymphoma (GZL) he maʻi koʻikoʻi hiki ke paʻakikī ke mālama. Eia nō naʻe, hiki ke mālama ʻia me ka mālama maʻamau.
Hoʻomaka ka GZL ma waena o kou umauma ma kahi i kapa ʻia ʻo mediastinum. Ua manaʻo ʻia ʻo ka B-cell e noho ana i loko o kou thymus (thymic B-cells), e hoʻololi i ka maʻi kanesa. Eia naʻe, no ka mea hiki i nā pūnaʻi B ke hele i kekahi ʻāpana o ko mākou kino, hiki nō hoʻi iā GZL ke laha i nā wahi ʻē aʻe o kou kino.
ʻO ke kumu i kapa ʻia ai ʻo Gray Zone, no ka mea, loaʻa iā ia nā hiʻohiʻona o ka Lymphoma Hodgkin a me Non-Hodgkin Lymphoma, e lilo ana ia i waena o kēia mau papa nui ʻelua o ka lymphoma, a ʻoi aku ka paʻakikī o ka ʻike pololei ʻana.
ʻO wai ka Gray Zone Lymphoma?
Hiki i ka Gray Zone Lymphoma ke hoʻopilikia i kekahi o nā makahiki a i ʻole lāhui. Akā ʻoi aku ka maʻamau o ka poʻe ma waena o 20 a 40 mau makahiki, a ʻoi aku ka maʻamau o nā kāne ma mua o nā wahine.
ʻAʻole maopopo iā mākou ke kumu o ka hapa nui o nā ʻano lymphoma, a he ʻoiaʻiʻo nō kēia no GZL. Manaʻo ʻia ʻo ka poʻe i loaʻa i ka maʻi maʻi Epstein-Barr – ka maʻi e hoʻoulu ai i ka maʻi maʻi glandular, ke piʻi aʻe paha ka pilikia o ka hoʻomohala ʻana i ka GZL, akā hiki i ka poʻe i loaʻa ʻole ka maʻi i loaʻa i ka GZL. No laila, ʻoiai hiki i ka maʻi ke hoʻonui i kou pilikia, ʻaʻole ia ke kumu o GZL. No ka ʻike hou aku e pili ana i nā kumu pilikia a me nā kumu, e ʻike i ka loulou ma lalo nei.
Nā hōʻailona o Gray Zone Lymphoma
ʻO nā hopena ʻaoʻao mua āu e ʻike ai he puʻupuʻu e piʻi aʻe i loko o kou umauma (he ʻōpū i hana ʻia e ka thymus pehu a i ʻole nā lymp nodes i ka wā e hoʻopiha ai lākou i nā sela lymphoma cancerous). Hiki iā ʻoe ke:
- pilikia ka hanu
- hiki wawe ka hanu
- ʻike i nā loli i kou leo a haʻahaʻa
- ʻeha a ʻeha paha i loko o kou umauma.
Hana ʻia kēia i ka wā e nui aʻe ai ka ʻōpū a hoʻomaka e kau i ke kaomi ma kou mau māmā a i ʻole nā ala ea.
Nā hōʻailona maʻamau o ka lymphoma
Loaʻa kekahi mau hōʻailona ma nā ʻano lymphoma āpau no laila e loaʻa paha iā ʻoe kekahi o kēia mau hōʻailona:
ʻO nā puʻupuʻu lymph pehu e like me ka puʻupuʻu ma lalo o kou ʻili pinepine i kou ʻāʻī, ʻāʻī a i ʻole ka ʻāʻī.
Ka luhi - ʻaʻole i hoʻomaikaʻi ʻia ka luhi ma ka hoʻomaha a i ʻole ka hiamoe.
Pau ka ʻai - ʻaʻole makemake e ʻai.
ʻIli ʻili.
ʻO ke koko a i ʻole ka ʻeha ʻana i ʻoi aku ka maʻamau.
B-hōʻailona.
ʻO ka ʻike a me ka hoʻopaʻa ʻana o Gray Zone Lymphoma (GZL)
Ke manaʻo kāu kauka e loaʻa iā ʻoe ka lymphoma, e hoʻonohonoho lākou i nā hoʻokolohua koʻikoʻi. Na kēia mau ho'āʻo e hōʻoia a hoʻopau paha i ka lymphoma ke kumu o kāu mau hōʻailona.
ke koko ho'āʻo ai i
Lawe ʻia nā hoʻāʻo koko i ka wā e hoʻāʻo ai e hōʻoia i kāu lymphoma, akā i loko o kāu mālama ʻana e hōʻoia i ka hana pono ʻana o kāu mau kino, a hiki ke hoʻokō i ka mālama ʻana.
Nā Biopsies
Pono ʻoe i kahi biopsy no ka loaʻa ʻana o kahi hōʻailona maopopo o ka lymphoma. ʻO ka biopsy kahi hana e wehe ai i kahi ʻāpana, a i ʻole nā poʻo lymph i hoʻopilikia ʻia a/a i ʻole kahi laʻana o ka iwi iwi. A laila nānā ʻia ka biopsy e nā ʻepekema i loko o kahi keʻena hana e ʻike inā he mau loli e kōkua i ke kauka e ʻike i ka GZL.
Ke loaʻa iā ʻoe kahi biopsy, loaʻa paha iā ʻoe kahi maʻi anesthetic kūloko a i ʻole maʻamau. E pili ana kēia i ke ʻano o ka biopsy a me kahi ʻāpana o kou kino i lawe ʻia mai. Aia nā ʻano biopsies like ʻole a pono paha ʻoe i ʻoi aku ma mua o hoʻokahi no ka loaʻa ʻana o ka laʻana maikaʻi loa.
Biopsy kumu a i ʻole ka nila maikaʻi
Lawe ʻia nā biopsies koʻikoʻi a i ʻole ka nila maikaʻi no ka wehe ʻana i kahi laʻana o ka puʻupuʻu lymph pehu a i ʻole ka ʻōpū e nānā i nā hōʻailona o GZL.
Hoʻohana maʻamau kāu kauka i kahi anesthetic kūloko e hoʻopau i ka wahi i ʻole ʻoe e ʻeha i ka wā o ke kaʻina hana, akā e ala ʻoe i kēia biopsy. A laila e hoʻokomo lākou i kahi nila i loko o ka ʻōpū lymph pehu a i ʻole ka puʻupuʻu a wehe i kahi laʻana o ka ʻiʻo.
Inā hohonu i loko o kou kino ka pehu lymph node a puʻupuʻu paha, hiki ke hana ʻia ka biopsy me ke kōkua o ke ultrasound a i ʻole ke alakaʻi x-ray (kiʻi).
Loaʻa paha iā ʻoe kahi maʻi anesthetic maʻamau no kēia (kahi e hiamoe ai ʻoe no kahi manawa liʻiliʻi). Loaʻa paha iā ʻoe kekahi mau humuhumu ma hope.
ʻOi aku ka nui o nā biopsies o ka nila ma mua o ka biopsy nila maikaʻi, no laila, ʻoi aku ka maikaʻi o ka koho i ka wā e hoʻāʻo ai e ʻike i ka lymphoma.
ʻO ke kau ʻana o ka lymphoma
Ke ʻike ʻoe he Gray Zone Lymphoma ʻoe, makemake kāu kauka e hana hou i nā hoʻokolohua e ʻike inā aia wale ka lymphoma i kāu mediastinum, a i ʻole ua laha i nā wahi ʻē aʻe o kou kino. Kapa ʻia kēia mau hoʻokolohua he staging.
E nānā nā ho'āʻo ʻē aʻe i ka ʻokoʻa o kāu mau pūnaewele lymphoma mai kāu mau cell B maʻamau a me ka wikiwiki o ka ulu ʻana. Kapa ʻia kēia ka mākaʻikaʻi.
Kaomi ma nā poʻomanaʻo ma lalo no ka ʻike hou aku.
ʻO ka staging e pili ana i ka nui o kou kino i hoʻopilikia ʻia e kāu lymphoma a i ʻole, pehea ka lōʻihi o ka laha ʻana mai kahi i hoʻomaka mua ai.
Hiki i nā pūnae B ke hele i kekahi wahi o kou kino. 'O ia ho'i, hiki i nā pūnaewele lymphoma (nā ma'i 'a'ai B-cell), hiki ke hele i kekahi wahi o kou kino. Pono ʻoe e hoʻāʻo hou aʻe e ʻike i kēia ʻike. Kapa ʻia kēia mau hoʻokolohua he staging tests a ke loaʻa iā ʻoe nā hopena, e ʻike ʻoe inā loaʻa iā ʻoe ka pae mua (I), pae ʻelua (II), pae ʻekolu (III) a i ʻole pae ʻehā (IV) GZL.
E pili ana kāu pae o GZL ma:
- ʻEhia mau wahi o kou kino i loaʻa i ka lymphoma
- Aia ma kahi o ka lymphoma inā aia ma luna, ma lalo a ma nā ʻaoʻao ʻelua o kāu diaphragm (he ʻiʻo nui me ke ʻano dome ma lalo o kou iwi iwi ʻaoʻao e hoʻokaʻawale ana i kou umauma mai kou ʻōpū)
- Inā ua laha ka lymphoma i kou iwi iwi a i ʻole nā ʻano ʻē aʻe e like me ke ake, ka māmā, ka ʻili a i ʻole ka iwi.
Kapa ʻia nā pae I a me II 'o ka pae mua a i ʻole ka palena palena' (e pili ana i kahi ʻāpana o kou kino).
Ua kapa ʻia nā pae III a me IV he 'pae holomua' (ʻoi aku ka laulā).
Hana 1 | Hoʻopili ʻia kahi ʻāpana lymph node, ma luna a ma lalo paha o ka diaphragm |
Hana 2 | ʻelua a ʻoi aʻe paha nā wahi lymph node ma ka ʻaoʻao like o ka diaphragm |
Hana 3 | ma ka liʻiliʻi hoʻokahi wahi lymph node ma luna a ma ka liʻiliʻi hoʻokahi wahi lymph node ma lalo o ka diaphragm e hoʻopilikia ʻia |
Hana 4 | Aia ka lymphoma i loko o nā pūnana lymph he nui a ua laha i nā wahi ʻē aʻe o ke kino (e laʻa me ka iwi, ka māmā, ka ate) |
ʻO ka ʻike hoʻokūkū keu
Hiki i kāu kauka ke kamaʻilio e pili ana i kāu pae ma ka hoʻohana ʻana i kahi leka, e like me A,B, E, X a i ʻole S. Hāʻawi kēia mau leka i ka ʻike hou aku e pili ana i nā hōʻailona āu i loaʻa ai a i ʻole ka hopena o kou kino e ka lymphoma. Kōkua kēia ʻike a pau i kāu kauka e ʻimi i ka hoʻolālā lapaʻau maikaʻi loa no ʻoe.
palapala | Meaning | nui |
A a i ʻole B |
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|
E & X |
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S |
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(ʻO kou spleen he ʻōkana i loko o kāu ʻōnaehana lymphatic e kānana a hoʻomaʻemaʻe i kou koko, a he wahi ia e hoʻomaha ai kou mau cell B a hana i nā antibodies) |
Nā hoʻāʻo no ke kahua
No ka ʻike ʻana i ka pae āu e loaʻa ai, e noi ʻia paha ʻoe e loaʻa i kekahi o kēia mau hoʻokolohua staging:
Ka pākuʻina o ka tomography (CT)
Lawe kēia mau kiʻi i nā kiʻi o loko o kou umauma, ka ʻōpū a i ʻole ke pelvis. Hāʻawi lākou i nā kiʻi kikoʻī e hāʻawi i ka ʻike hou aku ma mua o kahi X-ray maʻamau.
ʻO ka ʻōmole helu Positron emoate (PET)
He scan kēia e kiʻi i nā kiʻi o loko o kou kino holoʻokoʻa. E hāʻawi ʻia ʻoe i kahi lāʻau lapaʻau e hoʻopaʻa ʻia ai nā cell cancerous - e like me nā cell lymphoma. ʻO ka lāʻau lapaʻau e kōkua ana i ka PET scan e ʻike i kahi o ka lymphoma a me ka nui a me ke ʻano ma ke kuhikuhi ʻana i nā wahi me nā cell lymphoma. Ua kapa ʻia kēia mau wahi he "wela".
Pahu lumbar
ʻO ka ʻoki ʻana i ka lumbar kahi hana i hana ʻia e nānā inā ua laha ka lymphoma iā ʻoe ʻōnaehana ʻōnaehana waena (CNS), e pili ana i kou lolo, spinal cord a me kahi wahi a puni kou mau maka. Pono ʻoe e noho mālie i ka wā o ke kaʻina hana, no laila e loaʻa i nā pēpē a me nā keiki kahi maʻi maʻi maʻamau e hoʻomoe iā lākou i ka wā e hana ʻia ai ke kaʻina hana. Pono ka hapa nui o ka poʻe mākua i kahi anesthetic kūloko no ke kaʻina hana e hoʻopau ai i ka wahi.
Na kāu kauka e hoʻokomo i ka nila ma kou kua, a e lawe i kahi wai liʻiliʻi i kapa ʻia ʻo "ka wai o ke kuamoʻo o ka lolo” (CSF) mai a puni kou iwi kuamoʻo. ʻO ka CSF kahi wai e hana like me ka mea hoʻopuʻi i kou CNS. Lawe pū ia i nā protein like ʻole a me nā maʻi e hakakā ana i nā cell immune e like me nā lymphocytes e pale i kou lolo a me ke kuamoʻo. Hiki nō hoʻi iā CSF ke kōkua i ka hoʻokahe ʻana i kekahi wai ʻē aʻe i loaʻa iā ʻoe i loko o kou lolo a i ʻole a puni kou iwi kuamoʻo e pale ai i ka pehu ʻana ma ia mau wahi.
A laila e hoʻouna ʻia ka laʻana CSF i ka pathology a nānā ʻia no nā hōʻailona o ka lymphoma.
Biopsy iwi ʻōiwi
- ʻO ka aspirate iwi iwi (BMA): lawe ʻia kēia hoʻāʻo ʻana i kahi wahi liʻiliʻi o ka wai i loaʻa ma ka hakahaka o ka iwi.
- ʻO ka iwi aspirate trepine (BMAT): lawe kēia ho'āʻo i kahi laʻana liʻiliʻi o ka ʻiʻo iwi iwi.
Hoʻouna ʻia nā laʻana i ka pathology kahi e nānā ʻia ai nā hōʻailona o ka lymphoma.
Hiki ke ʻokoʻa ke kaʻina hana no nā biopsies iwi iwi ma muli o kahi āu e mālama ai, akā e hoʻokomo pinepine ʻia kahi anesthetic kūloko e hoʻopau i ka wahi.
Ma kekahi mau haukapila, hiki ke hāʻawi ʻia iā ʻoe i ka hoʻomaha māmā e kōkua iā ʻoe e hoʻomaha a hiki ke kāpae iā ʻoe mai ka hoʻomanaʻo ʻana i ke kaʻina hana. ʻAʻole pono ka nui o ka poʻe i kēia a loaʻa paha i kahi "whistle green" e omo ai. He lāʻau hōʻeha ʻeha ko loko o kēia puʻupuʻu ʻōmaʻomaʻo (i kapa ʻia ʻo Penthrox a i ʻole methoxyflurane), āu e hoʻohana ai e like me ka mea e pono ai i ke kaʻina hana.
E hōʻoia ʻoe e nīnau i kāu kauka i nā mea i loaʻa e hōʻoluʻolu iā ʻoe i ka wā o ke kaʻina hana, a e kamaʻilio pū me lākou e pili ana i kou manaʻo he koho maikaʻi loa ia no ʻoe.
Hiki ke loaʻa ka ʻike hou aku e pili ana i nā biopsies iwi ma kā mākou ʻaoʻao pūnaewele ma aneʻi
He ʻokoʻa ka ulu ʻana o kāu mau sela lymphoma, a ʻokoʻa ka nānā ʻana i nā cell maʻamau. ʻO ka pae o kāu lymphoma ka wikiwiki o ka ulu ʻana o kāu mau sela lymphoma, e pili ana i ka nānā ʻana ma lalo o kahi microscope. ʻO nā papa he 1-4 (haʻahaʻa, waena, kiʻekiʻe). Inā loaʻa iā ʻoe kahi lymphoma papa kiʻekiʻe, ʻokoʻa loa ke ʻano o kāu mau pūnaewele lymphoma mai nā pūnaewele maʻamau, no ka mea ke ulu wikiwiki nei lākou e ulu pono. Aia ma lalo kahi ʻike o nā māka.
- G1 - papa haʻahaʻa - ke nānā aku nei kāu mau cell i kahi maʻamau, a ulu lākou a pālahalaha mālie.
- G2 – papa waena – ke hoʻomaka nei kāu mau cell e nānā ʻokoʻa akā aia kekahi mau cell maʻamau, a ulu a laha lākou ma kahi wikiwiki.
- G3 – papa kiʻekiʻe – ʻokoʻa ke ʻano o kāu mau cell me kekahi mau cell maʻamau, a ulu lākou a pālahalaha wikiwiki.
- G4 - papa kiʻekiʻe - ʻokoʻa loa kāu mau cell i ka mea maʻamau, a ulu a palahalaha loa lākou.
Hoʻohui kēia ʻike āpau i ke kiʻi holoʻokoʻa a kāu kauka i kūkulu ai e kōkua i ka hoʻoholo ʻana i ke ʻano o ka lāʻau lapaʻau maikaʻi loa no ʻoe.
He mea nui e kamaʻilio me kāu kauka e pili ana i kāu mau mea pilikia ponoʻī i hiki iā ʻoe ke ʻike maopopo i ka mea e manaʻo ai mai kāu mau lapaʻau.
Ke kali nei i nā hualoaʻa
ʻO ke kali ʻana i kāu hopena he manawa kaumaha a hopohopo. He mea nui e kamaʻilio e pili ana i kou manaʻo. Inā he hoaaloha hilinaʻi a ʻohana paha kāu hiki ke kamaʻilio me lākou. Akā, inā ʻaʻole ʻoe manaʻo hiki iā ʻoe ke kamaʻilio me kekahi i kou ola pilikino, e kamaʻilio me kāu kauka kūloko, hiki iā lākou ke kōkua i ka hoʻonohonoho ʻana i ka ʻōlelo aʻoaʻo a i ʻole ke kākoʻo ʻē aʻe i ʻole ʻoe hoʻokahi i kou hele ʻana i nā manawa kali a me ka mālama ʻana no GZL.
Hiki iā ʻoe ke hoʻokaʻaʻike i kā mākou Lymphoma Care Nurses ma ke kaomi ʻana i ke pihi Hoʻokaʻaʻike iā mākou ma lalo o ka pale. A i ʻole inā aia ʻoe ma Facebook a makemake e hoʻopili i nā maʻi ʻē aʻe e noho ana me ka lymphoma hiki iā ʻoe ke hui pū me mākou Lymphoma i lalo palapala.
Ma mua o kou hoʻomaka ʻana i ka lāʻau lapaʻau
ʻO Gray Zone Lymphoma he mea koʻikoʻi a hiki ke laha koke, no laila pono ʻoe e hoʻomaka i ka lapaʻau ma hope koke o kou ʻike ʻia ʻana. Eia naʻe, aia kekahi mau mea e noʻonoʻo ai ma mua o kou hoʻomaka ʻana i ka mālama ʻana.
Māmā
Hiki i kekahi mau lāʻau lapaʻau no ka lymphoma ke hoʻopilikia i kou ulu ʻana, e paʻakikī ai ka hāpai ʻana, a i ʻole ka hāpai ʻana i kekahi. Hiki i kēia ke hana me kekahi mau ʻano lāʻau anticancer e like me:
- chemotherapy
- radiotherapy (inā he nui kou pelvis)
- nā lāʻau lapaʻau antibody (monoclonal antibodies a me nā mea hoʻopaʻa hoʻopaʻa pale pale)
- ka hoʻololi ʻana i ke kelepona (no ka chemotherapy nui e pono ai ʻoe ma mua o ka hoʻololi ʻana).
Nā nīnau e nīnau i kāu Kauka
Lapaʻau no Gray Zone Lymphoma (GZL)
E noʻonoʻo ana kāu kauka i nā ʻike āpau i loaʻa iā lākou ke hoʻoholo i nā koho lapaʻau maikaʻi loa e hāʻawi iā ʻoe. E komo pū ana kēia mau mea:
- ka subtype a me ka pae o kāu lymphoma
- nā hōʻailona āu e loaʻa nei
- kou mau makahiki a me kou ola kino holoʻokoʻa
- nā pilikia olakino ʻē aʻe āu e loaʻa ai, a me nā lāʻau lapaʻau āu e loaʻa ai no lākou
- kou makemake ke loaʻa iā ʻoe nā ʻike āpau āu e pono ai, a loaʻa iā ʻoe ka manawa e nīnau ai.
Nā koho lapaʻau maʻamau e hāʻawi ʻia iā ʻoe
- DA-EPOCH-R (ʻo ka chemotherapy i hoʻoponopono ʻia me ka etoposide, vincristine, cyclophosphamide a me doxorubicin, kahi antibody monoclonal i kapa ʻia he rituximab, a me kahi steroid i kapa ʻia prednisolone).
- ʻO ke kelepona (maʻa mau ma hope o ka chemotherapy).
- Ke kuʻi ʻana o ke koʻokoʻo autologous (ka hoʻololi ʻana i ke ʻano o ke kino me ka hoʻohana ʻana i kāu mau pūnaewele ponoʻī). Hiki ke hoʻolālā ʻia kēia ma hope o ka mālama ʻana o kāu chemotherapy iā ʻoe i ke kala lōʻihi a hiki ke hoʻōki i ka hoʻi ʻana mai o ka lymphoma (hoʻi hou ʻana).
- Choʻāʻo linical
Hoʻonaʻauao maʻi ma mua o kou hoʻomaka ʻana i ka lapaʻau
Ke hoʻoholo ʻoe a me kāu kauka i ke koho lapaʻau maikaʻi loa e hāʻawi ʻia iā ʻoe ka ʻike e pili ana i kēlā lapaʻau kikoʻī, me nā pilikia a me nā pōmaikaʻi o ka mālama ʻana, nā hopena ʻaoʻao āu e nānā ai a hōʻike i kāu hui lapaʻau, a me nā mea e manaʻo ai. mai ka lapaau ana.
Pono ka hui lapaʻau, kauka, kahu maʻi maʻi a i ʻole lāʻau lapaʻau, e hāʻawi i ka ʻike e pili ana i:
- He aha kāu e hana ai.
- Nā hopena maʻamau a koʻikoʻi paha e loaʻa iā ʻoe.
- I ka wā e kelepona ai i kāu kauka a kahu hānai paha e hōʻike i nā hopena ʻaoʻao a i ʻole nā hopohopo.
- Nā helu hoʻokaʻaʻike, a me kahi e hele ai inā pilikia 7 lā o ka pule a me 24 mau hola i kēlā me kēia lā.
Nā hopena maʻamau o ka lāʻau lapaʻau
Nui nā hopena ʻaoʻao o ka lāʻau anti-cancer a pili kēia i ke ʻano o kāu lapaʻau. Hiki i kāu kauka lapaʻau a/a i ʻole kahu maʻi maʻi ke wehewehe i nā hopena ʻaoʻao o kāu lapaʻau kikoʻī. ʻO kekahi o nā hopena ʻaoʻao maʻamau o nā lāʻau lapaʻau i helu ʻia ma lalo nei. Hiki iā ʻoe ke aʻo hou e pili ana iā lākou ma ke kaomi ʻana iā lākou.
- Anemia (ʻulaʻula liʻiliʻi ʻulaʻula e lawe ana i ka oxygen a puni kou kino)
- ʻO ka Thrombocytopenia (nā platelets haʻahaʻa e kōkua ana i ke kahe koko e hoʻōki i ka ʻeha a me ke koko)
- ʻO Neutropenia (ke koko keʻokeʻo haʻahaʻa e kōkua i ke kaua ʻana i ka maʻi maʻi)
- ʻO nā ʻeha waha a me nā ʻeha
- Pau ka lauoho (alopecia)
- ʻO ka naʻi a me ka luaʻi
- ʻO ka maʻi maʻi a i ʻole ka constipation
- 'Oloke (ka luhi a me ka nele o ka ikehu)
- ʻO ke kino neuropathy (hoʻololi i nā manaʻo i loko o kou mau lima, nā wāwae, nā ʻōpū)
- Hoemi i ka momona.
ʻO ka lāʻau lapaʻau ʻelua no Relapsed a i ʻole Refractory GZL
Ma hope o ka lapaʻau ʻana e hele paha ʻoe i ke kala ʻana. ʻO ke kala ʻana kahi manawa i koe ʻole ai nā hōʻailona o GZL i loko o kou kino, a i ʻole i ka wā e hoʻomalu ʻia ai ka GZL a ʻaʻole pono e mālama ʻia. Hiki ke kala ʻia no nā makahiki he nui, akā i kekahi manawa, hiki i ka GZL ke hoʻi hou (hoʻi mai). Inā loaʻa kēia, pono ʻoe e mālama hou aku. ʻO ka lāʻau lapaʻau e loaʻa iā ʻoe he lāʻau lapaʻau lua.
I nā hihia koʻikoʻi ʻaʻole hiki iā ʻoe ke loaʻa ke kala ʻana me kāu lāʻau lapaʻau mua. Ke hana ʻia kēia, kapa ʻia ka lymphoma "refractory". Inā loaʻa iā ʻoe ka GZL refractory, makemake kāu kauka e hoʻāʻo i kahi ʻano lapaʻau ʻē aʻe. Ua kapa ʻia kēia lāʻau lapaʻau lua, a nui ka poʻe e pane maikaʻi i ka lāʻau lapaʻau lua.
ʻO ka pahuhopu o ka lāʻau lapaʻau ʻelua ʻo ia ke hoʻokuʻu iā ʻoe i ke kala ʻana (hou) a hiki ke hoʻokomo i nā ʻano like ʻole o ka chemotherapy, immunotherapy, hoʻōla ʻia a i ʻole ka hoʻololi ʻana i nā cell cell.
Pehea e hoʻoholo ʻia ai kāu lāʻau lapaʻau lua
I ka manawa o ka hoʻihoʻi hou ʻana, e hilinaʻi ke koho ʻana i ka lāʻau lapaʻau i nā kumu he nui e like me:
- Pehea ka lōʻihi o kou kala ʻana
- ʻO kou olakino a me kou mau makahiki
- He aha nā lāʻau GZL i loaʻa iā ʻoe ma mua
- ʻO kāu mau makemake.
Nā ho'āʻo hoʻokolohua
Manaʻo ʻia ʻo kēlā me kēia manawa e pono ai ʻoe e hoʻomaka i nā lāʻau lapaʻau hou, e nīnau ʻoe i kāu kauka e pili ana i nā hoʻokolohua lapaʻau āu e ʻae ai. He mea nui nā hoʻokolohua lapaʻau no ka loaʻa ʻana o nā lāʻau lapaʻau hou, a i ʻole nā hui pū ʻana o nā lāʻau e hoʻomaikaʻi ai i ka mālama ʻana iā GZL i ka wā e hiki mai ana.
Hiki iā lākou ke hāʻawi iā ʻoe i kahi manawa e hoʻāʻo ai i kahi lāʻau hou, hui pū ʻana o nā lāʻau lapaʻau a i ʻole nā lāʻau lapaʻau ʻē aʻe āu e hiki ʻole ke loaʻa ma waho o ka hoʻokolokolo.
Nui nā lāʻau lapaʻau a me nā hui hoʻoponopono hou e hoʻāʻo ʻia nei i nā hoʻokolohua lapaʻau a puni ka honua no nā poʻe maʻi me ka maʻi hou a me ka relapsed GZ.L.
He aha kāu e manaʻo ai ke pau ka mālama ʻana
Ke hoʻopau ʻoe i kāu mālama ʻana, makemake mau kāu kauka hematologist e ʻike mau iā ʻoe. E loaʻa iā ʻoe nā mākaʻikaʻi maʻamau me nā hoʻāʻo koko a me nā scans. ʻEhia ka manawa e loaʻa ai kēia mau hoʻāʻo ʻana ma muli o kou kūlana ponoʻī, a hiki i kāu kauka haematologist ke haʻi iā ʻoe i ka nui o ko lākou makemake e ʻike iā ʻoe.
He manawa hoʻohauʻoli a pilikia paha ke hoʻopau ʻoe i ka mālama ʻana - i kekahi manawa ʻelua. ʻAʻohe ala kūpono a hewa ʻole. Akā, he mea nui e kamaʻilio e pili ana i kou mau manaʻo a me kāu mea e pono ai me kāu poʻe aloha.
Loaʻa ke kākoʻo inā pilikia ʻoe i ka hoʻopau ʻana i ka lāʻau lapaʻau. E kamaʻilio me kāu hui lapaʻau - kāu kauka haematologist a i ʻole kahu maʻi maʻi maʻi kūikawā no ka mea hiki iā lākou ke kuhikuhi iā ʻoe no nā lawelawe aʻoaʻo i loko o ka haukapila. Hiki i kāu kauka kūloko (ke kauka lapaʻau - GP) ke kōkua pū me kēia.
Nā kahu hānai Lymphoma
Hiki iā ʻoe ke hāʻawi i kekahi o kā mākou Lymphoma Care Nurses a i ʻole leka uila. E kaomi wale i ka pihi "Contact Us" ma lalo o ka pale no nā kikoʻī pili.
Nā hopena hope
I kekahi manawa hiki ke hoʻomau ʻia ka hopena ʻaoʻao mai ka mālama ʻana, a i ʻole e ulu aʻe nā mahina a i ʻole mau makahiki ma hope o kou hoʻopau ʻana i ka mālama ʻana. Kapa ʻia kēia a hope-hopena. He mea nui e hōʻike i nā hopena hope loa i kāu hui lapaʻau i hiki iā lākou ke loiloi iā ʻoe a aʻo iā ʻoe pehea e hoʻokele maikaʻi ai i kēia mau hopena. Hiki i kekahi mau hopena hope ke komo:
- Hoʻololi i kou puʻuwai puʻuwai a i ʻole ke kūkulu ʻana
- Nā hopena i kou māmā
- ʻO ke kino neuropathy
- Hiki i nā hoʻololi Hormonal
- Hoʻololi ke ʻano.
Inā ʻike ʻoe i kekahi o kēia mau hopena hope loa, hiki i kāu haematologist a i ʻole kauka lapaʻau ke ʻōlelo aku iā ʻoe e ʻike i kekahi loea e hoʻokele i kēia mau hopena a hoʻomaikaʻi i kou ola maikaʻi. He mea nui naʻe e hōʻike i nā hopena hou a i ʻole nā hopena mau loa i ka hikiwawe no nā hopena maikaʻi loa.
Ola - Noho me a ma hope o ka maʻi kanesa
ʻO ke ola olakino, a i ʻole kekahi mau loli ola maikaʻi ma hope o ka mālama ʻana he mea kōkua nui ia i kou ola hou ʻana. Nui nā mea hiki iā ʻoe ke hana e kōkua iā ʻoe e noho maikaʻi me GZL.
He nui ka poʻe i ʻike ma hope o ka hōʻoia ʻana i ka maʻi maʻi a i ʻole ka mālama ʻana, e loli ana kā lākou mau pahuhopu a me nā mea nui i ke ola. ʻO ka ʻike ʻana i ke ʻano o kāu 'maʻamau hou' hiki ke hoʻolōʻihi i ka manawa a hoʻonāukiuki. He ʻokoʻa paha nā manaʻolana o kou ʻohana a me kou mau hoaaloha. Hiki paha iā ʻoe ke kaʻawale, luhi a i ʻole kekahi mau manaʻo like ʻole e loli i kēlā me kēia lā.
Nā pahuhopu nui ma hope o ka mālama ʻana i kāu GZL
- e ʻeleu i kāu hana, ʻohana, a me nā kuleana ola ʻē aʻe
- e hoʻemi i nā hopena ʻaoʻao a me nā hōʻailona o ka maʻi kanesa a me ka mālama ʻana
- ʻike a mālama i nā hopena hope loa
- kōkua iā ʻoe e kūʻokoʻa e like me ka hiki
- hoʻomaikaʻi i kou maikaʻi o ke ola a mālama i ke olakino noʻonoʻo maikaʻi.
Hiki ke hāʻawi ʻia iā ʻoe nā ʻano hoʻolaʻa maʻi kanesa. Hiki i kēia ke manaʻo i kekahi o ka laulā ākea o na lawelawe e like me:
- kino kino, hooponopono eha
- hoʻolālā meaʻai a me ka hoʻoikaika kino
- ka manaʻo, ka ʻoihana a me ke aʻo kālā.
Hiki ke kōkua pū i ke kamaʻilio ʻana me kāu kauka kūloko e pili ana i nā papahana olakino kūloko e loaʻa ana no ka poʻe e hoʻōla ana mai kahi maʻi maʻi maʻi. Nui nā wahi kūloko e holo i ka hoʻoikaika kino a i ʻole nā hui kaiaulu a i ʻole nā papahana olakino ʻē aʻe e kōkua iā ʻoe e hoʻi i kāu hoʻomaʻamaʻa mua.
hōʻuluʻulu manaʻo
- ʻO Gray Zone Lymphoma (GZL) he subtype o Non-Hodgkin Lymphoma me nā hiʻohiʻona o ʻelua Hodgkin, a me Non-Hodgkin Lymphoma.
- Hoʻomaka ka GZL i kāu mediastinum (waena o kou umauma) akā hiki ke laha i kekahi wahi o kou kino.
- Hiki ke loaʻa nā hōʻailona ma muli o ka ulu ʻino ʻana o nā pūnaʻi B e hoʻonui ana i kou thymus a i ʻole lymph nodes o kou umauma, a me ka hoʻokau ʻana i kou māmā a i ʻole nā ala ea.
- kekahi nā hōʻailona He mea maʻamau i ka hapa nui o nā ʻano lymphoma - B-hōʻailona pono e hōʻike mau i kāu hui lapaʻau
- Aia nā ʻano lapaʻau like ʻole no GZL a na kāu kauka e kamaʻilio iā ʻoe ma o nā koho maikaʻi loa no kou kūlana.
- Nā nā ʻaoʻao hiki ke hoʻomaka koke ma hope o kou hoʻomaka ʻana i ka mālama ʻana, akā hiki iā ʻoe ke loaʻa nā hopena hope loa. Pono e hōʻike ʻia nā hopena mua a me nā hopena hope i kāu hui lapaʻau no ka loiloi.
- Hiki ke ho'ōla pinepine ʻia ka pae 4 GZL, ʻoiai pono paha ʻoe i ʻoi aku ma mua o hoʻokahi ʻano lāʻau lapaʻau e hoʻokō ai i kēia.
- E nīnau i kāu kauka i ke ʻano o kou ola ʻana.
- ʻAʻole ʻoe wale nō, hiki i ke kauka kūikawā a i ʻole ke kauka kūloko (GP) ke kōkua iā ʻoe e hoʻopili iā ʻoe me nā lawelawe a me ke kākoʻo like ʻole. Hiki iā ʻoe ke hoʻokaʻaʻike i kā mākou Lymphoma Care Nurses ma ke kaomi ʻana i ke pihi Hoʻokaʻaʻike iā mākou ma lalo o kēia ʻaoʻao.
