ʻO ka poho o ka lauoho he hopena ʻaoʻao maʻamau o kekahi chemotherapy a me ka radiotherapy lapaʻau no ka lymphoma. ʻOiai he wā pōkole ka nalowale o ka lauoho mai ka chemotherapy, pili ia i ka lauoho a puni kou kino. Eia naʻe, paʻa mau ka lauoho lauoho mai ka radiotherapy, akā pili wale i kahi o kou kino e mālama ʻia me ka radiotherapy.
Inā he pōkole a mau loa paha kou lauoho, he hopena manaʻo paha ia. He nui ka poʻe i ʻōlelo ʻo ka lilo ʻana o ko lākou lauoho ka mea i hana ai manao, a nana e like me ka maʻi maʻi kanesa. ʻO ka lilo ʻana o kou lauoho he manaʻo makaʻu a hoʻonāukiuki paha. He mea maʻamau ka hopohopo no kēia.
Ma luna aʻe o ke ʻano o ko mākou lauoho e nānā a ʻike ai, hāʻawi pū ia i ka pale mai ke anuanu a i ʻole ka lā o ka lā, a hāʻawi i kahi pale i pale ʻia ko mākou mau poʻo mai ka hakakā.
Ma kēia ʻaoʻao e kūkākūkā mākou i nā mea e manaʻo ai, a me nā manaʻo e pili ana i ka mālama ʻana i ka lauoho lauoho.
He aha ka mea e hāʻule ai ka lauoho?
ʻO ka Chemotherapy a me ka radiotherapy ke kumu o ka nalowale o ka lauoho no ka mea ua hoʻouka lākou i nā cell ulu wikiwiki. Eia naʻe, ʻaʻole hiki i ka chemotherapy a i ʻole radiotherapy ke haʻi i ka ʻokoʻa ma waena o nā pūnaewele ulu wikiwiki a olakino. Ke ulu mau nei ko mākou lauoho no laila ke kumu o kā mākou lauoho no kēia mau lapaʻau.
ʻO nā lāʻau lapaʻau a pau ke kumu o ka poho lauoho?
ʻAʻole. He nui nā lāʻau lapaʻau ʻaʻole e lilo ka lauoho. ʻO kekahi mau chemotherapies e hoʻomaloʻo wale i ka lauoho, ʻaʻole naʻe i ka poho holoʻokoʻa. Hiki i nā Immunotherapies a me nā lāʻau lapaʻau i hoʻopaʻa ʻia ke hoʻoheheʻe ʻia ka lauoho, akā ʻo ka hapa nui o kēia mau lapaʻau ʻaʻole e lilo ka lauoho.
ʻO ke ʻano o ka nalowale o ka lauoho he lymphoma ʻoi aʻe koʻu?
ʻAʻole - aia ma mua o 80 mau ʻano subtypes o lymphoma. ʻO ka mālama ʻana i ka lymphoma e pili ana i nā mea he nui me ka subtype. ʻOiai ʻaʻole ʻoe e nalowale kou lauoho, loaʻa iā ʻoe ka lymphoma, ʻo ia ka maʻi kanesa. Nui nā lāʻau lapaʻau hou i manaʻo ʻia, hiki ke hōʻemi i kekahi mau hōʻailona e like me ka lauoho lauoho.
He aha ka lauoho e lilo ai au?
Nā mea āpau!
E pili ana ka Chemotherapy i kou lauoho a pau, e like me ka lauoho ma kou poʻo, nā kuʻemaka, nā maka maka a me ka lauoho maka, ka lauoho pubic a me ka lauoho ma kou mau wāwae. E hoʻomaka ana kou lauoho e ulu hou i loko o nā pule ma hope o ka hoʻopau ʻana i ka mālama ʻana.
Eia nō naʻe, inā ʻaʻole ʻoe e loaʻa i ka chemotherapy, akā ke mālama nei ʻoe me ka radiotherapy, e nalowale paha ʻoe i kahi ʻāpana lauoho ma kahi e mālama ʻia ai, akā ʻaʻole e ulu hou kēia lauoho. Inā ulu hou, ʻoi aku ka lahilahi ma mua o ka mālama ʻana.
Pehea ke ʻano?
Hiki paha iā ʻoe ke ʻike i kou poʻo e hoʻomaka ana e kani, ʻāʻī, a ʻeha paha ke mākaukau kou lauoho e hāʻule i waho. Ua ʻōlelo kekahi poʻe he ʻeha ko lākou e like me ka huki ʻana o ko lākou lauoho. ʻOiai ʻaʻohe pilikia ʻē aʻe. Inā ʻoi aku ka nui o ka ʻeha a i ʻole ka hopohopo, makemake paha ʻoe e ʻoki pōkole loa i kou lauoho a i ʻole e kahi i ka lauoho, ma mua o ka pau ʻana.
Pehea a me ka wā hea e hāʻule ai ka lauoho?
ʻO ka hapa nui o ka poʻe e nalowale ko lākou lauoho i loko o 2-3 mau pule ma hope o ka mālama mua ʻana. Hoʻomaka pinepine ia e hāʻule i loko o nā puʻupuʻu, i ʻike ʻoe ma kou uluna a i ʻole ke kāhili a holoi ʻana i kou lauoho.
Ma kāu pōʻai ʻelua o ka chemo, ua nalowale paha ka lauoho a pau ma kou poʻo. Ke hala ka lauoho ma kou poʻo, hiki iā ʻoe ke ʻike i ke anu ma mua o ka mea maʻamau. Hiki ke kōkua ke komo ʻana i ka beanie palupalu, scarf a wig paha.
Nā protocols maʻamau a me ka alopecia
Nui nā lāʻau lapaʻau no ka lymphoma. ʻO kekahi e hoʻopololei i ka lauoho, a ʻo nā mea ʻē aʻe e wiwi i kou lauoho a ʻaʻole i piha. ʻAʻohe hopena o nā mea ʻē aʻe i kou lauoho.
Nā protocols maʻamau e hopena i ka lauoho lauoho
- CHOP a me R-CHOP
- CHEOP a me R-CHEOP
- DA-R-EPOCH
- Hyper CVAD
- ESHAP
- DHAP
- ICE a i ʻole RICE
- KA BEAM
- ABVD
- eBEACOPP
- IGEV
Nā kuʻina i hiki ke hoʻomaloʻo i ka lauoho a i ʻole ka poho lauoho
- BR a i ʻole BO
- GDP
- ʻO nā antibodies monoclonal e like me rituximab, obinutuzumab, brentuximab, pembrolizumab a i ʻole nivolumab (Ke ʻole i hāʻawi ʻia me kahi chemotherapy e hoʻopau ai i ka lauoho)
- ʻO nā lāʻau lapaʻau i manaʻo ʻia e like me ka BTK inhibitors, PI3k inhibitors, HDAC inhibitors a i ʻole BCL2 inhibitors.
Ka hopena o ka lilo ʻole o kou lauoho
Hiki i nā pāpale malū ke pale i ka nalowale o ka lauoho?
ʻAʻole ʻōlelo ʻia nā pāpale maloʻo no ka poʻe e mālama ana i ka lymphoma.
Hiki i kekahi poʻe me kekahi mau maʻi maʻi maʻi ke kau i ka pāpale anu ma ko lākou poʻo e kōkua i ka hōʻemi ʻana i ka nui o ka chemotherapy e loaʻa i ko lākou poʻo. Hoʻemi a pale paha kēia i ka nalowale o ka lauoho. Eia nō naʻe, ʻo ka lymphoma he maʻi maʻi maʻi ʻōnaehana, ʻo ia hoʻi hiki ke ulu ma kekahi ʻāpana a i ʻole kou kino, e like me nā ʻōpū lymph, ʻili, iwi, a me nā ʻōpū.
No kēia kumu, ʻaʻole kūpono nā pāpale maloʻo no ka hapa nui o ka poʻe e mālama ana i ka lymphoma. ʻO ke kau ʻana i kahi pāpale ʻoluʻolu hiki ke pale i ka chemotherapy i hiki i kekahi mau pūnaewele lymphoma, e alakaʻi ana i ka hoʻihoʻi mua ʻana o kāu lymphoma. ʻO ka hoʻi hou ʻana ke hoʻi mai kāu lymphoma.
Aia paha kekahi nā mea ʻokoʻa. Inā ʻike ʻia kāu lymphoma a ʻaʻole i manaʻo ʻia ua laha (a i ʻole e laha paha), hiki iā ʻoe ke ʻaʻahu i hoʻokahi. E nīnau i kāu kauka haematologist a i ʻole oncologist inā ʻo ia ka hihia iā ʻoe.
Ka hopena o ka nalo ʻana o kou lauoho
Hiki paha iā ʻoe ke hopohopo e pili ana i ka lilo ʻana o kou lauoho no ke ʻano o ka hoʻololi ʻana i ke ʻano āu e nānā ai; A ʻo ke ʻano o kou nānā ʻana he mea nui paha ia o kou ʻike. Inā he lauoho ma kou poʻo, he ʻumiʻumi a/a he ʻumi paha a he lauoho ʻē aʻe paha āu e nalowale ai; ʻO kahi hoʻololi makemake ʻole i kou ʻano, a i ʻole hoʻololi i kou helehelena hiki ke hoʻoulu i ka makaʻu, hopohopo a me ke kaumaha.
No kekahi, ʻo ia paha ka mea e hana ai iā ʻoe manaʻo a i ʻole e like me ka maʻi kanesa.
He mea nui ka poho lauoho!
Pehea e mālama ai i nā manaʻo
E ʻike a hoʻomaopopo i ke ʻano o ka lilo ʻana o kou lauoho. Hāʻawi iā ʻoe iho i ka manawa e kaumaha ai a kamaʻilio me nā poʻe a puni ʻoe e pili ana i kou ʻano, a me ko lākou manaʻo.
Makemake paha ʻoe e ʻoki i kou lauoho a ʻokiʻoki i kou ʻumiʻumi/mau ʻumi ma mua o ka hāʻule ʻana, a i ʻole ma mua o kou hoʻomaka ʻana i ka mālama ʻana. Hāʻawi kēia iā ʻoe i kahi mana ma luna o ka nalowale o ka lauoho, a hiki iā ʻoe ke maʻa mālie i ka loli o kou helehelena. E ʻae iā ʻoe iho e pāʻani me nā hiʻohiʻona like ʻole a leʻaleʻa me ia.
- Wai kou lauoho i ke kala āu i manaʻo ʻole ai - no ka leʻaleʻa wale nō
- E ho'āʻo i kahi hana lauoho hou
- E hoʻāʻo me nā wigs, turbans a me nā scarf
- E kahi hui - e kiʻi i kou mau hoaaloha a me kou ʻohana e hele lauoho ʻole
- Hoʻopili i kāu ʻōhule hou - hiki paha i ka puke no ke kiʻi kiʻi ʻoihana.
- E hoʻāʻo me nā lōʻihi like ʻole o kou ʻumiʻumi, ʻumiʻumi me ka ʻumiʻumi ʻole a me ka ʻumiʻumi ʻole
- Hoʻokaʻaʻike E ʻoluʻolu e aʻo i nā ʻōlelo aʻoaʻo e pili ana i ke kaha ʻana i nā kuʻemaka, ka mālama ʻili a me ka uhi ʻana i nā pāpale (E hoʻokaʻaʻike i nā kikoʻī ma lalo o kēia ʻaoʻao).
- E hoʻokaʻaʻike aku i ka lawelawe wig a ka Cancer Council (E hoʻokaʻaʻike i nā kikoʻī ma lalo o kēia ʻaoʻao).
Hoʻopili i nā keiki
Inā he mau keiki liʻiliʻi kāu i loko o kou ola, ʻike paha lākou he mea ʻē i ka wā e hāʻule ai kou lauoho, a paʻakikī paha ke ʻike mua iā ʻoe. E noʻonoʻo pehea e hiki ai iā ʻoe ke hoʻopili iā lākou a hoʻolilo i kou lauoho i mea leʻaleʻa no nā keiki i kou ola.
Inā ʻo kāu keiki liʻiliʻi e mālama ana i ka lymphoma, e nīnau i kāna kula a i ʻole ke kula mālama lā pehea e hiki ai iā lākou ke komo i ka lilo ʻana o ka lauoho i mea leʻaleʻa.
ʻO kekahi mau manaʻo leʻaleʻa no ka hoʻokomo ʻana i nā keiki:
- La lauoho pupule
- Aloha lauoho pāʻina
- Pena a ʻālohilohi paha e hoʻonani i ke poʻo
- E pāʻani ana me nā ʻaʻahu a me nā wig
- Paʻi kiʻi me nā hiʻohiʻona like ʻole
Koolelo
Inā pili kou kaumaha a hopohopo paha no ka lilo ʻana o kou lauoho i kou ola i kēlā me kēia lā, hiki ke kōkua ke kamaʻilio ʻana me ke kākāʻōlelo e hana pū ana me ka poʻe me ka maʻi kanesa. E noi i kāu kauka no kahi kuhikuhi. Aia kekahi mau lawelawe aʻoaʻo kelepona hiki iā ʻoe ke hoʻokaʻaʻike me ka ʻole o ka haʻi ʻana. E ʻimi i nā kikoʻī ma lalo o nā kumuwaiwai ʻē aʻe ma lalo o kēia ʻaoʻao.
Laina kākoʻo maʻi
Hiki iā ʻoe ke kelepona aku i kā mākou Lymphoma Care Nurses ma 1800 953 081 a i ʻole ma ka leka uila. kahu@lymphoma.org.au
ʻO ka mālama ʻana i kou ʻili a me ke poʻo ma hope o ka nalowale o ka lauoho
Ke lilo kou lauoho, inā mai kou poʻo, ka maka a i ʻole ke kino, pono ʻoe e mālama i ka ʻili i ʻike ʻia i kēia manawa. Hiki i ka ʻili ke maloʻo, ʻili a ʻoi aku ka maʻalahi i ka lewa a me ka pā māmā. Hiki i ka lāʻau lapaʻau ke hoʻonāukiuki i kou ʻili i ka hopena o nā ʻōpala a me kahi ʻano o ka lā.
Nā mea e noʻonoʻo ai:
- E loaʻa i nā ua mehana luke - ʻoi aku ka maʻalahi o kou ʻili a me kou poʻo i ka wai wela a me ke anuanu.
- E hoʻohana i ka moisturizer maikaʻi ʻole ma kou poʻo a me kou ʻili.
- E ʻaʻahu i nā pāpale palupalu, nā pīni a i ʻole nā ʻulaʻula - e pale aku i nā mea humuhumu no ka mea he ʻeleʻele loa kēia.
- E pale iā ʻoe iho mai ka lā - e ʻaʻahu i nā lole pulu maoli lima lima lōʻihi, a e hoʻokomo i ka holika lā.
- E hoʻohana i kahi pahu uluna i hana ʻia mai nā pulu maoli e like me ka pulupulu, ke olonā a i ʻole ka ʻohe.
I ka manawa hea e ulu hou ai koʻu lauoho?
Hoʻomaka ka lauoho e ulu hou i loko o nā pule ma hope o ka pau ʻana o ka mālama ʻana me ka chemotherapy. Eia nō naʻe, i kona wā e ulu hou ai, ʻeleʻele loa ia - e like me nā pēpē hou. Hiki ke hāʻule hou kēia wahi lauoho mua ma mua o ka ulu hou ʻana.
Ke hoʻi hou mai kou lauoho, ʻokoʻa paha ka waihoʻoluʻu a i ʻole ke ʻano like ma mua. He ʻoi aku paha ka lauoho, ʻeleʻele a hina paha ke kala hope. Ma hope o 2 mau makahiki, e like paha ia me ka lauoho i loaʻa iā ʻoe ma mua o ka mālama ʻana.
Ulu ka lauoho ma kahi o 15cm i kēlā me kēia makahiki. ʻO kēia ma kahi o ka hapalua o ka lōʻihi o ka lula maʻamau. No laila, 4 mau mahina ma hope o kou hoʻopau ʻana i ka mālama ʻana, hiki iā ʻoe ke piʻi i ka 4-5cm o ka lauoho ma kou poʻo.
Inā loaʻa iā ʻoe ka radiotherapy, ʻaʻole hiki ke ulu hou ka lauoho o ka ʻili i mālama ʻia. Inā pēlā, hiki i nā makahiki ke hoʻomaka e ulu hou, ʻaʻole naʻe e ulu hou i ke ʻano maʻamau ma mua o ka mālama ʻana.
Ma hea e loaʻa ai ka wig a i ʻole ka ʻāpana poʻo
ʻO Look good feel better kahi hui hoʻomanawanui e kōkua iā ʻoe e ʻimi i nā ala e manaʻo maikaʻi ai iā ʻoe iho e like me ka loli ʻana o kou helehelena i ka wā o ka mālama ʻana i ka maʻi kanesa. Ua hoʻonohonoho lākou i kahi papa inoa o nā wahi e kūʻai aku ai a hāʻawi aku i nā wigs a me nā ʻāpana ʻē aʻe i kēlā me kēia mokuʻāina. Hana pū lākou i nā haʻawina e aʻo iā ʻoe e pili ana i ka hana ʻana (me ke kaha ʻana i nā kuʻemaka) a pehea e ʻaʻahu ai i nā ʻāpana poʻo like ʻole.
Kaomi i ka loulou ma lalo no ka papa inoa o nā hui a me nā papa hana.
hōʻuluʻulu manaʻo
- ʻO ka lapaʻau ʻana me ka hapa nui o nā chemotherapies e lilo ka lauoho i pohō ma kou poʻo, ka maka a me ke kino, akā no ka manawa pōkole - e ulu hou kou lauoho ma hope o ka mālama ʻana.
- Hiki i ka lāʻau lapaʻau ke hoʻopau i ka lauoho, akā ma kahi o kou kino e mālama ʻia. Paʻa paha kēia lauoho lauoho.
- ʻAʻole e lilo ka lauoho i kekahi mau lapaʻau. ʻAʻole kēia manaʻo he emi ke koʻikoʻi o kāu lymphoma.
- E mālama i kou poʻo a me kou ʻili i lilo i mea maʻalahi i ka wela a hoʻopā i ka wā i hala ai kou lauoho.
- E hoʻohana i nā kopa a me nā moisturizer ʻole.
- He mea maʻamau ka manaʻo hopohopo e pili ana i kou lauoho lauoho. E kāhea i kā mākou Lymphoma Care Nurses inā makemake ʻoe i kekahi e kamaʻilio e pili ana i kou ʻano.
- Inā he manawa ma mua o ka hoʻomaka ʻana o ka mālama ʻana, e hoʻāʻo e hana i nā mea leʻaleʻa me kou lauoho, hoʻokolohua a hoʻokomo i nā hoaaloha a me ka ʻohana.
- ʻO ka ʻoki pōkole ʻana i kou lauoho, a i ʻole kahi kahi e hiki ai ke kōkua inā lilo kou poʻo i mea maʻalahi i ka wā e hoʻomaka ai ka piha, a hāʻawi iā ʻoe i ka mana e mālama i kou lauoho.
- Mai kahaha inā ʻokoʻa ke ʻano o kou lauoho ke ulu hou.
