Ukuphila ne-lymphoma kanye nokwelashwa kungase kube isikhathi esicindezelayo nezinselele eziningi ezahlukene. Ungase uzibuze ukuthi yiluphi usizo olutholakalayo kubantu abane-lymphoma. Leli khasi lizohlinzeka ngezeluleko ezisebenzayo nolwazi mayelana nezinsiza zokusekela ongase uzithole. Lokhu kubandakanya usizo lwezokuthutha, ukwesekwa ngezimali, ukwesekwa ngokwengqondo nokunye okuningi.
Iwusizo Nsuku Zonke
Ukuthola ukuthi wena noma othandekayo une-lymphoma kuwukushaqeka okukhulu futhi kuzoshintsha izinto eziningi mayelana nendlela ophila ngayo. Ukwazi okudingayo ekuqaleni kungakusiza ukuthi uhlele kusenesikhathi ukuze uqiniseke ukuthi uthola ukwesekwa okufanele lapho ukudinga kakhulu.
Ukuthi i-lymphoma iyithinta kanjani impilo yakho izoncika ezintweni eziningi, njenge:
- yiluphi uhlobo lwe-lymphoma onayo
- noma ngabe udinga ukwelashwa, nokuthi yikuphi ukwelashwa ozokuthola
- iminyaka yakho kanye nempilo yonke
- inethiwekhi yakho yosekelo
- ukusiphi isigaba sempilo (ingabe uyeka emsebenzini, ukhulisa izingane ezincane, uyashada noma uthenga indlu)
- noma ngabe uhlala edolobheni noma emaphandleni.
Kungakhathaliseki ukuthi zonke lezi zinto, wonke umuntu one-lymphoma udinga ukwenza izinguquko obungeke udinge ukuzenza. Ukubhekana nalo mthelela kungase kukucindezele futhi kudale izinselele ezintsha ekuphileni kwakho.
Izigaba ezilandelayo zizokunikeza izeluleko eziwusizo zendlela yokuphatha imisebenzi yansuku zonke kanye nezinto okufanele ucabange ngazo ukuze ukwazi ukuhlela kusenesikhathi.
Ukuzulazula ohlelweni lokunakekelwa kwezempilo
Ukuzulazula ohlelweni lokunakekelwa kwezempilo kungaba yinselele enkulu, ikakhulukazi uma isibhedlela ngasinye sihluke kakhulu futhi umuzwa wawo wonke umuntu uhluka kakhulu.
Kule vidiyo engezansi, u-Andrea Patten ongusonhlalakahle ophezulu ukhuluma ngamalungelo akho kanye nokunye okucatshangelwayo okubalulekile, uma wena noma othandekayo etholwe ukuthi une-lymphoma.
Amavesi omphakathi Isibhedlela Esizimele kanye Nochwepheshe
Kubalulekile ukuqonda izinketho zakho zokunakekelwa kwezempilo lapho ubhekene ne-lymphoma noma ukuxilongwa kwe-CLL. Uma unomshwalense wezempilo ozimele, kungase kudingeke ucabangele ukuthi uyafuna yini ukubonana nochwepheshe ohlelweni oluzimele noma ohlelweni lukahulumeni. Uma udokotela wakho ekuthumela ngokudluliselwa, xoxa naye ngalokhu. Uma ungenawo umshwalense wezempilo ozimele, qiniseka ukuthi wazisa udokotela wakho ngalokhu, njengoba abanye bangase bakuthumele ohlelweni oluzimele uma bengazi ukuthi ungakhetha uhlelo lukahulumeni. Lokhu kungaholela ekukhokhisweni ukuze ubone uchwepheshe wakho.
Ungakwazi ukushintsha umqondo wakho futhi ubuyele kokuyimfihlo noma esidlangalaleni uma ushintsha umqondo wakho.
Chofoza izihloko ezingezansi ukuze ufunde mayelana nezinzuzo kanye nobubi bokuthola ukwelashwa ezinhlelweni zikahulumeni nezizimele.
Izinzuzo Zohlelo Lomphakathi
- Uhlelo lomphakathi luhlanganisa izindleko zokwelashwa kwe-lymphoma esohlwini lwe-PBS nophenyo lwazo
i-lymphoma efana ne-PET scan kanye ne-biopsy's. - Uhlelo lomphakathi luphinde luhlanganise izindleko zeminye imithi engabaliwe ngaphansi kwe-PBS
njenge-dacarbazine, okuwumuthi we-chemotherapy ovame ukusetshenziswa ku-
ukwelashwa kwe-Hodgkin's lymphoma. - Izindleko eziphuma ephaketheni zokwelashwa ohlelweni lukahulumeni ngokuvamile ezeziguli ezilaliswayo
imibhalo yemithi oyiphuza ngomlomo ekhaya. Lokhu ngokuvamile kuncane kakhulu futhi kuncane
ngisho nokuxhaswa okwengeziwe uma unekhadi lokunakekelwa kwezempilo noma lempesheni. - Izibhedlela eziningi zikahulumeni zinethimba lochwepheshe, abahlengikazi kanye nabasebenzi bezempilo abahlangene, ababizwa ngokuthi
Ithimba le-MDT elibhekele ukunakekelwa kwakho. - Izibhedlela eziningi ezinkulu zemfundo ephakeme zingahlinzeka ngezinketho zokwelapha ezingatholakali
uhlelo lwangasese. Isibonelo izinhlobo ezithile zokufakelwa, i-CAR T-cell therapy.
Ububi besistimu yomphakathi
- Ungase ungahlali ubona uchwepheshe wakho uma unama-aphoyintimenti. Izibhedlela eziningi zikahulumeni ziyizikhungo zokuqeqesha noma zemfundo ephakeme. Lokhu kusho ukuthi ungase ubone umbhalisi noma ababhalisi abaseqophelweni eliphezulu abaqeqeshwayo abasemtholampilo, abazobe sebebika kuchwepheshe wakho.
- Kunemithetho eqinile mayelana nokukhokha ngokubambisana noma ukuvala ukufinyelela kwelebula emithini engatholakali ku-PBS. Lokhu kuncike ohlelweni lwakho lwezempilo lombuso futhi kungase kwehluke phakathi kwezifunda. Ngenxa yalokho, eminye imithi ingase ingatholakali kuwe. Usazokwazi ukuthola ukwelashwa okujwayelekile, okugunyaziwe kwesifo sakho.
- Ungase ungakwazi ukufinyelela ngokuqondile kudokotela wakho wegazi kodwa ungase udinge ukuthintana nomhlengikazi onguchwepheshe noma umamukeli.
Izinzuzo zesistimu yangasese
- Uyohlala ubona i-hematologist efanayo njengoba bengekho odokotela abasaqeqeshwa emakamelweni azimele.
- Ayikho imithetho mayelana nokukhokha ngokubambisana noma ukuvala ukufinyelela kwelebula emithini. Lokhu kungasiza ikakhulukazi uma unesifo esiningi esibuyele emuva noma i-lymphoma subtype engenazo izindlela eziningi zokwelapha. Kodwa-ke, ingabiza kakhulu ngezindleko ezinkulu eziphuma ephaketheni ozodinga ukuzikhokha.
- Ukuhlolwa okuthile noma ukuhlola okusebenzayo kungenziwa ngokushesha ezibhedlela ezizimele.
Ngaphansi kwezibhedlela ezizimele
- Izimali eziningi zokunakekelwa kwezempilo azikhokhi zonke izindleko zokuhlolwa kanye/noma ukwelashwa. Lokhu kusekelwe esikhwameni sakho sezempilo ngasinye, futhi kuhle ngaso sonke isikhathi ukuhlola. Uzophinda uthole imali yokungena minyaka yonke.
- Akubona bonke ochwepheshe abayinqwaba yebhili futhi abangakhokhisa ngaphezu kwekepisi. Lokhu kusho ukuthi kungase kuphume izindleko zokubona udokotela wakho.
- Uma udinga ukwamukelwa ngesikhathi sokwelashwa kwakho, izilinganiso zabahlengikazi ziphezulu kakhulu ezindaweni ezizimele ezibhedlela. Lokhu kusho ukuthi unesi esibhedlela esizimele ngokuvamile uneziguli eziningi okufanele azibheke kunasesibhedlela sikahulumeni.
- I-hematologist yakho ayihlali isendaweni esibhedlela, ijwayele ukuvakashela isikhashana kanye ngosuku. Lokhu kungasho ukuthi uma ugula noma udinga udokotela ngokushesha, akuyena uchwepheshe wakho ojwayelekile.
Work
Ungakwazi ukuqhubeka nokusebenza noma ukufunda nge-lymphoma. Kodwa-ke, lokhu kuzoncika ekutheni uzizwa kanjani, yikuphi ukwelashwa onakho nokuthi unazo yini izimpawu ze-lymphoma, noma imiphumela emibi yokwelashwa.
Abanye abantu bayaqhubeka nokusebenza njengakuqala futhi bathatha isikhathi sokuphumula kuphela ukuze bathole ama-aphoyintimenti, abanye banciphisa umsebenzi wabo ukuze babe yitoho kanti abanye bathatha isikhathi sokuphumula ngokuphelele.
Khuluma nawe dokotela, obathandayo nendawo yokusebenza
Khuluma nodokotela mayelana nokuthi basikiselani uma kuziwa emsebenzini nesikhathi esidingekayo sokungayi emsebenzini. Bazokwazi ukukubhalela incwadi kadokotela uma kudingeka.
Khuluma nomndeni wakho, obathandayo kanye nendawo osebenzela kuyo ukuze wenze isu. Qiniseka ukuthi wonke umuntu uyazi ukuthi ngezinye izikhathi izinhlelo zingashintsha ngokungalindelekile uma udinga ukuya esibhedlela, ukubambezeleka ngezikhathi ezithile noma uzizwe ungaphilile futhi ukhathele.
Abanye abantu bathola ukuthi ukuqhubeka nokusebenza kubasiza ukuthi bagcine ukujwayelekile esimisweni sabo futhi kubasize ukuthi babhekane kangcono ngesikhathi sokwelashwa. Abanye abantu bathola umsebenzi ubakhandla kakhulu ngokomzimba nangokwengqondo futhi banquma ukuthatha ikhefu.
Izinguquko ezingenzeka emsebenzini okufanele zicatshangelwe
Uma uqhubeka nokusebenza, ezinye izinguquko umsebenzi wakho ongakwazi ukuzenza ukuze zikusekele zihlanganisa:
- Ukuvumela isikhathi sokuphumula ukuze uhambele ama-aphoyintimenti nokwelashwa
- Ukunciphisa noma ukuguqula amahora owasebenzayo (izinsuku ezimfushane noma isonto elincishisiwe lomsebenzi)
- Ukusebenza ekhaya
- Ukulungisa uhlobo lomsebenzi, isibonelo ukudlulisela endimeni engadingi kakhulu ngokomzimba noma ukugwema izinto ezingenwa izifo
- Ukushintsha indawo yokusebenza
- Ukushintshela kuhlelo lokusebenza: lokhu kungase kuhlanganise ukubuyela kancane kancane emsebenzini ngomthamo oncishisiwe okhula kancane ngokuhamba kwesikhathi.
Isixhumanisi esilandelayo siya ku-Centrelink's 'Ukuqinisekiswa Kwefomu Lemibandela Yezokwelapha'. Leli fomu livame ukufunwa yizikhungo zokufunda noma izindawo zokusebenza ukuze zenze izinguquko ezifanele emsebenzini noma ezibophezelweni zokufunda.
Study
Ukuba ne-lymphoma kungenzeka kube nomthelela esifundweni, kungakhathaliseki ukuthi kusesikoleni, enyuvesi noma ezifundweni ezihlobene nomsebenzi Lo mthelela ungakuthinta uma ungumfundi, umzali noma umnakekeli. Ungase udinge ukuthatha ikhefu noma ushintshe uhlelo lwakho lokufunda.
Abanye abantu bakhetha ukuqhubeka nesifundo sabo ngenkathi belashwa, noma benakekela umuntu one-lymphoma. Kwabanye abantu, ukuqhubeka nokufunda kunganikeza okuthile okumele kusetshenzwe futhi kugxile kukho phakathi kokungeniswa esibhedlela kanye nezikhathi zokulinda ezinde phakathi kwama-aphoyintimenti. Abanye abantu bathola ukuthi ukuqhubeka nokufunda kunikeza ingcindezi nokucindezeleka okungadingekile, futhi bakhethe ukuhlehlisa iziqu zabo zasenyuvesi noma bathathe isikhathi sokungayi esikoleni.
Uma wena noma ingane yakho isesikoleni, khuluma nesikole/inyuvesi futhi nixoxe ngokuthi yiziphi izindlela zokwesekwa ezitholakalayo.
Izinguquko ezingaba khona ohlelweni lwakho lokufunda okufanele uzicabangele
- Ukufundisa ekhaya noma ukuxhumana nensizakalo yokufundisa esibhedlela (ngokuvamile Izibhedlela zezingane zihlinzeka ngohlelo lokusekelwa esikoleni lapho othisha basesibhedlela bengavakashela khona esibhedlela)
- Khuluma nesikole mayelana nomthwalo wokuhlola oncishisiwe noma uhlelo lokufunda olushintshiwe lapho ukufunda kungaqhubeka kodwa kunezidingo zokuhlola ezingahlelekile.
- Qhubeka uxhumene nesikole nabafundi, lokhu kuzosiza ukugcina ukuxhumana futhi ugweme ukuhlukaniswa kakhulu nabangane besikole.
Hlangana nomgomo wesikole noma umeluleki wezemfundo
Uma ufunda iziqu enyuvesi, hlangana nombhalisi wekolishi kanye nomeluleki wezemfundo ukuze nixoxe ngesimo sakho. Ukuhlehlisa izifundo zakho ngokuphelele kungaba inketho, nokho ukunciphisa umthwalo wakho wokufunda ngokuyeka isikhathi esigcwele ukuya kwesinye isikhathi kungaba inketho.
Ungakwazi futhi ukushintsha izinsuku ezinqunyiwe zezabelo zakho noma izivivinyo mayelana nokwelashwa kwakho. Cishe uzodinga isitifiketi sikadokotela ngakho cela udokotela wakho onguchwepheshe noma udokotela wakho ukuthi angakwenzela yini esisodwa.
Isixhumanisi esilandelayo siya ku-Centrelink's 'Ukuqinisekiswa Kwefomu Lemibandela Yezokwelapha'. Leli fomu livame ukufunwa yizikhungo zokufunda noma izindawo zokusebenza ukuze zenze izinguquko ezifanele emsebenzini noma ezibophezelweni zokufunda.
Ezezimali
Ukuxilongwa kwe-lymphoma kanye nokwelashwa kwayo kungadala ubunzima bezezimali; Ikakhulukazi awukwazi ukusebenza isikhathi eside.
Ukuthola usizo lwezezimali kungase kube inkimbinkimbi, kodwa kunezinye izinkokhelo zokusekela ngokwezimali ezitholakala ngezinhlangano ezihlukahlukene zikahulumeni njenge-Centerlink, Medicare kanye neChild Support. Ungase ukwazi nokufinyelela ezinye izinkokhelo ngesikhwama sakho sempesheni.
Uma unomeluleki wezezimali, bazise nge-lymphoma yakho ukuze bakusize uhlele ukuthi ungayiphatha kanjani imali yakho. Uma ungenaye umeluleki wezezimali, ungafinyelela kuye nge-Centerlink. Imininingwane yokuthi ungamthola kanjani umeluleki wezezimali we-Centerlink ingezansi ngaphansi kwesihloko Isevisi yolwazi lwezezimali.
ICentrelink
Abantu abakhubazekile, abagulayo noma abalimele, kanye nabanakekeli babo bangashayela i-Centerlink 13 27 17 ukubuza mayelana nezinkokhelo namasevisi atholakalayo. Chofoza isixhumanisi esilandelayo ukuze ufunde: Umhlahlandlela Wezinkokhelo Zikahulumeni Wase-Australia.
Ezinye zezinsizakalo zokukhokha ze-Centerlink zifaka:
- Isibonelelo sokugula: Inkokhelo yokusekela iholo uma umuntu engakwazi ukusebenza noma ukufunda isikhathi esithile ngenxa yokugula, ukulimala noma ukukhubazeka.
- Isibonelelo somnakekeli: inkokhelo eyengeziwe (ibhonasi) yoxhaso inkokhelo yomnakekeli (ngaphezu kwalokho) ingazuza kufika ku-250,000/ngonyaka (cishe u-$131/ngobusuku obubili) ingasebenza amahora angu-25 futhi iselokhu ikulokhu.
- Inkokhelo yomnakekeli: Inkokhelo yesibonelelo semali engenayo uma unakekela njalo umuntu onokukhubazeka okukhulu, ogulayo noma obuthaka.
- Chofoza isixhumanisi esilandelayo ukuze ufunde kabanzi mayelana Izinkokhelo Zabanakekeli.
- Chofoza isixhumanisi esilandelayo ukuze ufunde Indlela Yokufaka Isicelo Izinkokhelo Zabanakekeli.
- Impesheni yokusekela ukukhubazeka: Ukwesekwa ngokwezimali kokukhubazeka ngokomqondo, ngokomzimba noma ngokwengqondo unomphela okuvimbela iziguli ukuthi zisebenze.
- Thwebula bese ugcwalisa ifomu elithi 'Isimangalo Sempesheni Yokusekela Ukukhubazeka'
- Izinzuzo zokukhubazeka: Kunezinkokhelo nezinsiza ezizokusiza uma ugula, ulimele noma ukhubazekile.
- Izinkokhelo Zezingane
- Isibonelelo sokuhamba: Ungakwazi ukufinyelela isibonelelo sokuhamba uma une-lymphoma futhi ungakwazi ukusebenzisa i-transpont yomphakathi. Lokhu kungasetshenziswa isidingo sokuhamba uyofunda, umsebenzi wokuqeqesha (okuhlanganisa nokuvolontiya) noma ukufuna umsebenzi. Bona okuningi nge ngokuchofoza lapha.
- Isibonelelo Sokufuna Umsebenzi: Uma usebenzisa i-Job Seker allowance futhi ungakwazi ukufuna umsebenzi ngenxa ye-lymphoma noma ukwelashwa kwayo, cela udokotela wakho - GP noma i-hematologist ukuthi agcwalise ifomu lethu. I-Centerlink Medical Certificate - ifomu SU415. Ungafika efomini nge ngokuchofoza lapha.
Abasebenzi bezenhlalakahle
Uma udinga usizo lokuqonda noma lokufinyelela izinsiza ze-centrelink, ungacela ukukhuluma nomunye wosonhlalakahle wabo ongakusiza ukuthi uthole ukuthi yini ongase ube nelungelo layo, nokuthi ungayifinyelela kanjani. Ungathintana nosonhlalakahle wakwa-Centerlink ngokumshayela ucingo 13 27 17. Cela ukukhuluma nosonhlalakahle lapho bephendula futhi bazokubeka. Ungabheka futhi iwebhusayithi yabo lapha Izinkonzo zezenhlalakahle - Services Australia.
Isevisi yolwazi lwezezimali
Enye insizakalo i-Centerlink eyinikezayo isevisi Yolwazi Lwezezimali ukuze ikusize uhlele ukuthi ungayenza kanjani ngokugcwele imali yakho. Bashayele ucingo 13 23 00 noma ubone ikhasi labo lewebhu lapha Isevisi Yolwazi Lwezezimali - Izinsizakalo zase-Australia
Medicare
I-Medicare ingasiza khokhela izindleko zezokwelapha futhi ucebise ngokuthi ungagcina kanjani izindleko ziphansi. Ulwazi mayelana nezinkokhelo ezihlukahlukene ze-Medicare nezinsizakalo ezitholakalayo zingatholakala lapha.
Ukusekelwa kwabantwana
- Inkokhelo yokulungisa umnakekeli iyinkokhelo ephuma kanye. Isiza imindeni lapho ingane engaphansi kweminyaka engu-6 itholakala nokukodwa kwalokhu okulandelayo:
- isifo esinzima
- isimo sezokwelapha
- ukukhubazeka okukhulu
- Inkokhelo Yosizo Lokukhubazeka Kwengane iyinkokhelo yaminyaka yonke yokusiza abazali ngezindleko zokunakekela ingane ekhubazekile.
- Inkokhelo Yempahla Yezokwelapha Ebalulekile iyinkokhelo yaminyaka yonke yokusiza ngokukhuphuka kwezindleko zamandla asekhaya. Lokhu kungaba kusukela ekusetshenzisweni kwemishini yezokwelapha ebalulekile ukusiza ukuphatha ukukhubazeka noma isimo sezokwelapha.
Imali yempesheni
Nakuba imali yempesheni ngokuvamile ivikelekile uze uhlanganise iminyaka engu-65 ubudala, kwezinye izimo ungase ukwazi ukuyifinyelela 'ngezizathu zozwelo'. Ezinye izimo ezingathathwa njengezizathu zozwelo zihlanganisa:
- Ukukhokhela ukwelashwa (noma ukuthutha ukuya nokubuya ekwelashweni).
- Ukusiza nge-mortgage yakho uma ibhange selizoyidla (lithathe indlu yakho).
- Ukulungiswa kabusha uma udinga ukulungisa indlu yakho ngenxa yokulimala noma ukugula.
- Khokhela ukunakekelwa kwe-palliative.
- Khokha izindleko ezihlobene nokushona komunye wabondli bakho - njengezindleko zomngcwabo noma zokungcwaba.
Ungathola ulwazi olwengeziwe ngokufinyelela impesheni yakho ngezizathu zozwelo, ngokushayela uMnyango Wezinsizakalo Zabantu ucingo ku-Federal Department of Human Services 1300 131 060.
Imishwalense yakhelwe empeshenini
Izimali eziningi zempesheni yakhelwe 'kukuvikela imali engenayo' noma isamba senkokhelo yokukhubazeka unomphela kumshwayilense. Ungase ube nalokhu ungazi.
- Ukuvikela iholo kuhlanganisa ingxenye yomholo/umholo wakho ojwayelekile lapho ungakwazi ukusebenza ngenxa yokugula noma ukulimala.
- Isamba sokukhubazeka unomphelo siyisamba esikhokhelwa wena uma ungalindelekile ukuthi ubuyele emsebenzini ngenxa yokugula kwakho.
Imishwalense yakho izoncika enkampanini yakho yempesheni kanye nenqubomgomo. Uma ungakwazi ukusebenza ngenxa ye-lymphoma yakho, thintana nesikhwama sakho sempesheni bese ubuza ukuthi yiluphi usizo kanye nemishwalense eyakhelwe kumshwalense wakho.
Usizo olwengeziwe nge-Superannuation kanye nezezimali
Uma unenkinga yokufinyelela izimali zakho zempesheni noma umshwalense, iCancer Council Australia inohlelo lwe-pro bono olungakwazi ukukusiza ngezeluleko zezomthetho noma okunye ukwesekwa ukuze ukusize ufinyelele lezi. Ungathola ulwazi olwengeziwe mayelana nokusekelwa abangakunikeza ngakho ngokuchofoza lapha.
Uma usengenayo inhlanhla, ungenza isikhalazo ne I-Australian Financial Complaints Authority. Ezinye izixhumanisi eziwusizo zingaba utholwe lapha.
Imisebenzi yomphakathi
Imisebenzi yezenhlalo iyindlela enhle yokuhlala uxhumene nomndeni nabangane, futhi ingaba isiphazamiso esamukelekayo ekucindezelekeni okuhlukahlukene okuza nokuxilongwa kwe-lymphoma. Ukuhlala uxhumekile kufanele kube umgomo oyinhloko ngalesi sikhathi.
Nokho kungase kudingeke ukuthi ulungise noma uguqule eminye yemisebenzi yakho ukuze ugweme izinkinga ezinjengokutheleleka, ukopha noma ngenxa yokuthi ukhathele kakhulu ukuba wenze imisebenzi yakho evamile.
Ngezansi sibala izinto ezivamile okufanele zicatshangelwe lapho uhlanganyela emisebenzini yezenhlalo ne-lymphoma.
Ukuba ne-Central Venous Access Device (CVAD)
Uma une-CVAD efana nolayini we-PICC noma ulayini we-CVC ngeke ukwazi ukubhukuda noma ukuhlanganyela emisebenzini esekelwe emanzini, futhi uzodinga ukumboza i-CVAD ngempahla engangeni manzi ukuze ushawe. Lokhu kungenxa yokuthi ama-catheter alawa madivaysi angaphandle komzimba wakho futhi angalimala noma atheleleke ngalezi zinhlobo zemisebenzi.
Izibhedlela eziningi kufanele zikwazi ukukuhlinzeka ngekhava engangeni manzi - vele ubuze lapho ushintsha izingubo zakho zokugqoka.
Kubabhukudi bomphakathi noma abaqhudelanayo, uzodinga ukumisa le misebenzi, noma ungakhetha ukukhetha i-port-a-cath esikhundleni salokho. I-port-a-cath idivayisi engaphansi kwesikhumba sakho ngokugcwele, ngaphandle uma isetshenziswa futhi inenaliti yomugqa nomugqa onamathiselwe kuso.
Indaba yesiguli - ukuba ne-CVAD ngenkathi ngisesibhedlela
I-peripherally inserted central catheter (PICC)
I-Dual lumen HICKMAN – uhlobo lwe-Tunneled cuffed-central catheter emaphakathi (tc-CICC)
I-lumen ephakathi kathathu engafakwanga
Imidlalo yokuxhumana
Imidlalo yokuxhumana efana nebhola likanobhutshuzwayo, ihokhi kanye nebhola likanobhutshuzwayo ingabangela ukopha okukhulu kanye nemihuzuko uma unamazinga aphansi e-platelet, okuyinto evamile ngemva kokwelashwa, kanye nezinye izinhlobo ze-lymphoma.
Nokusondelana kakhulu nabantu ngesikhathi sokuzivocavoca (okungabangela ukuphefumula kanzima) kungandisa ingozi yokutheleleka uma benesifo sokuphefumula noma bengaphilile.
Imicimbi emikhulu yezenhlalo
Ukwelashwa, noma wena lymphoma kungaholela ekutheni amasosha akho omzimba angasebenzi kahle ukuze akuvikele emagciwaneni. Ngakho-ke kuyalulekwa ukuthi ugweme ukuhambela imicimbi emikhulu yezenhlalo njengenkundla yemidlalo yaseshashalazini, amakhonsathi, imali yokugibela nama-nightclub, kuyilapho u-neutropenic.
Uma ungeke ukwazi ukugwema umcimbi ngesizathu esithile, thatha izinyathelo zokuphepha ukuze uqhelelane nabantu, gqoka imaski, futhi wange futhi uqabule abantu obazi kahle futhi abangaguli nganoma iyiphi indlela (noma gwema ukwanga nokuqabula kuze kube amasosha akho omzimba uma uzizwa uphephile. ukwenza lokhu). Hamba ne-sanitiser yesandla ukuze ukwazi ukubulala amagciwane ezandleni zakho noma kunini.
Ukuxoxisana komphakathi okungaqhubeka phakathi nokwelashwa
Kunezinto eziningi ongaqhubeka ukuzenza uma une-lymphoma, ngisho nalapho uthola ukwelashwa. Kodwa-ke, ungase uthande ukucabanga ngokuthatha izinyathelo zokuphepha ezengeziwe ezifana nokuqhelelana nomphakathi, ukugqoka imaskhi kanye nokuphatha isibulali-magciwane ngesandla kwezinye zazo.
Khuluma nodokotela wakho futhi ubuze nganoma yiziphi izenzakalo ezithile ezibalulekile kuwe futhi uma kukhona ukuvinjelwa kulokho ongakwenza.
- Ukuya kumamuvi
- Ukuphuma uyodla esitolo sokudla - gwema ama-buffet futhi uqiniseke ukuthi ukudla kusanda kwakhiwa
- Ukuhlangana nabangani ngekhofi
- Ukuhamba nomngane
- Ukuba nepikiniki
- Ukuhambela imihlangano yesonto nenkolo ehlobene
- Ukuhamba ngedrayivu ende
- Ukuya ejimini
- Ukuqhubeka nokuzilibazisa okufana neklabhu yezincwadi, ukuqina kweqembu noma ukudweba
- Hamba ngedethi
- Shada noma uye emshadweni
- Yenza ucansi noma usondelane nomlingani/oshade naye (Bheka isixhumanisi esingezansi ukuze uthole ulwazi olwengeziwe).
Ukunakekela impilo yakho yengqondo, imizwa kanye nempilo yonke
Ukuphila ne-lymphoma noma i-CLL, ukuhlala uqaphile futhi ulindile, ukwelashelwa kanye nokuba sengozini konke kuza nezingcindezi ezihlukene ezingathinta isimo sakho sengqondo nempilo yengqondo. Kubalulekile ukuba nobudlelwano obuvulekile nodokotela wangakini (udokotela ojwayelekile noma udokotela), futhi nixoxe ngezinto ezikukhathazayo, noma izinguquko esimweni sakho semizwa, imizwa nemicabango.
Udokotela wakho uzokwazi ukukusekela futhi akudlulisele ezinsizeni ezifanele uma udinga ukwesekwa.
Uhlelo lwezempilo yengqondo
Udokotela wakho uzokwazi ukukwenzela uhlelo lwezempilo yengqondo oluzoqinisekisa ukuthi uthola ukubonana nochwepheshe abafanelekile futhi ukwazi ukufinyelela ku-Medicare-exhaswe ngudokotela wezengqondo, uchwepheshe we-GP, usonhlalakahle noma umelaphi wezempilo. Ngalolu hlelo ungakwazi ukufinyelela izikhathi ezi-10 zabantu ngabanye kanye nezikhathi zamaqembu eziyi-10.
Ungalindi ukuthi udokotela wakho akunikeze lokhu, uma ucabanga ukuthi kungase kube usizo kuwe, cela udokotela wakho ukuba akwenzele uhlelo lwezempilo yengqondo.
Uhlelo lokuphatha lwe-GP
Udokotela wakho angakwenzela i-GP management plan (GPMP). Lolu hlelo lubasiza ukuthi babone izidingo zakho zokunakekelwa kwezempilo nokuthi bangakweseka kanjani kangcono. Bangasebenzisa futhi lolu hlelo ukuhlonza ukuthi yiziphi izinsiza emphakathini ezingakusiza futhi benze uhlelo lokuphatha izidingo zakho zokunakekelwa kwe-lymphoma.
Amalungiselelo okunakekelwa kweqembu
Uhlelo lohlelo lokunakekelwa kwethimba lwenziwa ngudokotela wakho futhi lwenziwa ukuze akusize uthole ukwesekwa okuvela kochwepheshe abahlukene bezempilo abambisene nabo. Lokhu kungafaka:
- abelaphi
- odokotela bokudla
- odokotela bezinyawo
- abelaphi bomsebenzi.
Pets
Izilwane ezifuywayo zingaba yingxenye ebaluleke kakhulu yokuphila kwethu, futhi ukunakekela isilwane sakho lapho une-lymphoma kuzothatha ukuhlela okwengeziwe. I-Lymphoma kanye nokwelashwa kwayo kungakwenza kube maningi amathuba okuba uthole izifo, noma wophe futhi ulimele kabi uma ulunywe ngephutha, ukuklwejwa noma isilwane esifuywayo esisindayo size sizokwanga.
Kuzodingeka uqikelele ukuyeka lezi zinto ukuthi zingenzeki futhi mhlawumbe ushintshe indlela odlala ngayo nezilwane ezifuywayo.
Izinto okumelwe zenziwe
- Yazisa udokotela wakho uma ulunywa noma ukuklwejwa, noma ubona imihuzuko engavamile.
- Gwema ukuphatha imfucuza yezilwane njengamathileyi kadoti. Cela othile ukuthi akusize ngale misebenzi uma kungenzeka. Uma kungekho ozokusiza, sebenzisa amagilavu amasha (noma awashayo uwashwayo ngemva kokuwasebenzisa), gqoka imaski ukuze ugweme ukuphefumula kunoma yini eyingozi futhi ugeze izandla zakho ngensipho namanzi ngokushesha ngemva kokuphatha noma iyiphi imfucuza.
Ungase futhi ube nokuvakasha okungalindelekile esibhedlela, udinga ukuba ungabikho ekhaya unomphela, ubambezeleke ngesikhathi esimisiwe noma uzizwe ukhathele kakhulu futhi ungenawo amandla okunakekela izilwane ezifuywayo.
Hlela kusengaphambili futhi uqale ukucabanga ngokuthi ubani ongase akwazi ukusiza ukunakekela izilwane ezifuywayo lapho ungakwazi. Ukwazisa abantu kusenesikhathi ukuthi ungase udinge usizo, futhi ukubuza ukuthi bangazimisela yini ukusiza ngaphambi kokuba ludingeke kungase kukunike ukuthula kwengqondo futhi kwenze ukuhlela kube lula kakhulu lapho udinga usizo.
Ukuhlela ukwelashwa
Ukubhekana nezingcindezi ezingokomzwelo nezomzimba zokuba ne-lymphoma, futhi ukwelashwa kungakhandla. Kubalulekile ukufinyelela futhi uthole ukwesekwa lapho ukudinga. Ngokuvamile sinabantu ezimpilweni zethu abafuna ukusiza, kodwa abazi kahle ukuthi kanjani. Abanye abantu baphinde bakhathazeke ngokukhuluma ngokuthi uhamba kanjani ngoba bekhathazekile bazokhuluma okungeyikho, bakweqe noma bakucasule. Lokhu akusho ukuthi abanandaba.
Kungasiza ukwazisa abantu ukuthi yini oyidingayo. Ngokucacisa lokho okudingayo, ungathola usizo nokusekelwa okudingayo, futhi obathandayo bangaba nenjabulo yokukwazi ukukusiza ngendlela ezuzisayo. Kukhona ezinye izinhlangano ezihlanganise izinhlelo ongazisebenzisa ukuxhumanisa okunye ukunakekelwa. Ungase uthande ukuzama:
Ukuvikela ukuzala kwakho ngesikhathi sokwelashwa
Ukwelashwa kwe-lymphoma kunganciphisa inzalo yakho (ikhono lokwenza abantwana). Okunye kwalokhu kwelashwa kungabandakanya ukwelashwa ngamakhemikhali, amanye amasosha omzimba e-monoclonal abizwa ngokuthi “ama-immune checkpoint inhibitors” kanye ne-radiotherapy okhalweni lwakho.
Izinkinga zokuzala ezibangelwa yilokhu kwelashwa zihlanganisa:
- Ukunqamuka kokuya esikhathini kwangaphambi kwesikhathi (ushintsho lwempilo)
- Ukungasebenzi kahle kwe-Ovarian (hhayi ukunqamuka kokuya esikhathini kodwa izinguquko kwikhwalithi noma inani lamaqanda onawo)
- Isibalo sesidoda esinciphile noma ikhwalithi yesidoda.
Udokotela wakho kufanele akhulume nawe mayelana nokuthi yini ethinta ukwelashwa kwakho okungenzeka ibe nayo ekuzaleni kwakho, nokuthi yiziphi izinketho ezitholakalayo zokukusiza ukuyivikela. Ukulondoloza inzalo kungenzeka ngemithi ethile noma ngokuqanda iqanda (amaqanda), isidoda, i-ovary noma izicubu zamasende.
Uma udokotela wakho engazange abe nale ngxoxo nawe, futhi uhlela ukuba nezingane esikhathini esizayo (noma uma ingane yakho encane iqala ukwelashwa) mbuze ukuthi yiziphi izinketho ezitholakalayo. Le ngxoxo kufanele yenzeke ngaphambi kokuthi wena noma ingane yakho niqale ukwelashwa.
Uma ungaphansi kweminyaka engama-30 ubudala ungase ukwazi ukuthola ukwesekwa kwaSony foundation abahlinzeka ngesevisi yamahhala yokulondoloza inzalo kulo lonke elase-Australia. Bangathintwa ku-02 9383 6230 noma kusizindalwazi sabo https://www.sonyfoundation.org/youcanfertility.
Ukuze uthole ulwazi olwengeziwe ngokulondolozwa kokuzala, bukela ividiyo engezansi nochwepheshe wenzalo, u-A/Prof Kate Stern.
Izinhlelo Zemvume Yamatekisi
Uma udinga usizo olwengeziwe ngokuhambahamba, ungase ufaneleke ukuthola uhlelo lwemvume yamatekisi. Lezi yizinhlelo eziqhutshwa yizifunda nezindawo ezahlukahlukene futhi zingasiza ukuxhasa izindleko zemali yokugibela itekisi. Ukuze uthole ulwazi olwengeziwe chofoza kusifunda sakho ngezansi.
I-Travel & Travel Insurance
Ngemva noma ngisho nangesikhathi sokwelashwa ezinye iziguli zingase zibe nesithakazelo sokuya eholidini. Iholide lingaba indlela enhle yokugubha ukuqeda ukwelashwa, ukudala izinkumbulo nabantu obathandayo, noma nje ukuphazamiseka okujabulisayo okuvela ekucindezelekeni okuhlobene nomdlavuza.
Kwezinye izimo, ungase udinge noma ufune ukuhamba phakathi nokwelashwa kwakho, noma ngesikhathi lapho kufanele uhlolwe ngemva kokwelashwa kanye nokuhlolwa kwegazi. Khuluma nodokotela wakho mayelana nokuthi yini engahle ihlelelwe wena ngalesi sikhathi. Uma uya e-Australia, ithimba lakho lezokwelapha lingakwazi ukukuhlelela ukuthi uhlolwe noma ukuskena esibhedlela esihlukile - ngisho nasezimweni ezihlukile. Lokhu kungathatha isikhathi ukuhlela, ngakho yazisa udokotela ngokushesha ngangokunokwenzeka uma uhlela ukuhamba.
Uma uya kwelinye izwe, uzodinga ukubona ukuthi yiziphi izindleko ezihilelekile uma udinga ukuthola usizo lwezokwelapha oluhlobene ne-lymphoma yakho lapho. Khuluma ne-hematologist yakho e-Australia futhi uphenye izinkampani zomshwalense wokuhamba ezingase zikukhave. Qiniseka ukuthi uyabuza ukuthi yini ehlanganisiwe nengafakwanga kumapholisi omshwalense.
Uyini umshwalense wokuhamba futhi uhlanganisani?
Umshwalense wokuhamba ukhokhela wena kunoma yiziphi izigameko, ukulahlekelwa noma ukulimala okungenzeka ngenkathi usohambeni. Yize umshwalense omningi wokuhamba ukuvikela ekuhambeni kwamanye amazwe, ezinye izinqubomgomo zingakukhava nangohambo lwasekhaya.
I-Medicare izokhokhela ezinye (futhi ngezinye izikhathi zonke) zezindleko zakho zokwelashwa ngenkathi use-Australia.
Imishwalense yezokuvakasha ingakukhokhela imithwalo elahlekile, iziphazamiso zokuhamba, izindleko zokwelashwa nezamazinyo, izindleko zokweba nezomthetho nokunye okuningi kuye ngenkampani kanye nohlobo lwekhava oyithengayo.
Ngingawutholaphi umshwalense wokuhamba?
Ungathola umshwalense wokuhamba nge-ejenti yezokuvakasha, inkampani yomshwalense, umdayisi womshwalense noma ngomshwalense wakho wezempilo ozimele. Amanye amabhange angase anikeze ngisho nomshwalense wokuhamba wamahhala uma usebenzisa ikhadi elithile lesikweletu. Noma, ungakhetha ukuthenga umshwalense wokuhamba ku-inthanethi lapho ungaqhathanisa khona amanani nezinqubomgomo.
Noma ngabe iyiphi indlela okhetha ukwenza ngayo lokhu, zinike isikhathi sokufunda nokuqonda imishwalense kanye nanoma yikuphi ukukhululwa okungase kube khona.
Ngingathola umshwalense wokuhamba uma ngine-lymphoma/CLL?
Ngokuvamile, kunezindlela ezimbili ongakhetha kuzo uma kuziwa kumshwalense wokuhamba nomdlavuza.
- Ukhetha ukuthatha umshwalense OKUNGAKUKHAVIZI ngezinkinga ezihlobene nomdlavuza kanye nokugula. Isibonelo, uma ubuvakashela phesheya kwezilwandle namangqamuzana amhlophe egazi aphansi kakhulu ngenxa yokwelashwa ngamakhemikhali futhi wangenwa isifo esisongela ukuphila esidinga ukulaliswa isikhathi eside esibhedlela, uzodinga ukukhokhela izindleko ngokwakho.
- Ukhetha ukuthatha inqubomgomo ebanzi IYAKUMBOZA ngezinkinga noma ukugula okuhlobene nomdlavuza. Kuzodingeka ulungele ukukhokha iprimiyamu ephakeme kakhulu, futhi inkampani yomshwalense ingase idinge ukuqoqa ulwazi olujulile mayelana ne-lymphoma/CLL yakho njengesiteji, ukwelashwa, ukuhlolwa kwegazi njll. Cishe uzodinga nencwadi evela kudokotela wakho. i-hematologist ekulungisela uhambo lwaphesheya kwezilwandle.
Olunye ulwazi ozodinga ube nalo lapho ukhuluma nomshwalense wokuvakasha:
- I-lymphoma subtype yakho
- Isiteji sakho ekuxilongweni
- Imithethonqubo yakho yokwelashwa
- Lapho uqeda ukwelashwa kwakho kokugcina
- Ukuhlolwa kwakho kwegazi kwakamuva
- Yonke imithi oyisebenzisayo njengamanje
- Ukuthi ukuhlolwa/uphenyo okwengeziwe hlelelwe izinyanga eziyisi-6 ezizayo.
Izivumelwano zokunakekelwa kwezempilo okuhambisanayo
I-Australia inezivumelwano zezempilo ezifanayo namanye amazwe. Lokhu kusho ukuthi uma uya ezweni elinesivumelwano esivumelanayo, ungase ube nezindleko zokunakekelwa okudingekile ngokwezempilo ezihlanganiswa yi-Medicare. Ukuze uthole ulwazi olwengeziwe ngalezi zivumelwano kanye namazwe i-Australia inesivumelwano esivumelanayo bheka Ikhasi lewebhu lezinsizakalo lase-Australia lapha.
Ukushayela
Ukuxilongwa kwe-lymphoma akuthinti ngokuzenzakalelayo ikhono lakho lokushayela. Abantu abaningi bayaqhubeka nokushayela ngendlela efanayo nangaphambi kokuba baxilongwe. Kodwa-ke, eminye imithi esetshenziswa njengengxenye yokwelapha ingabangela ukozela, umuzwa wokugula noma ithinte ikhono lokugxilisa ingqondo. Kulezi zimo, ukushayela akunconywa.
Nakuba iziguli eziningi ziqhubeka nokushayela njengokujwayelekile phakathi nohambo lwazo lomdlavuza kuvamisile ukuzwa ukukhathala noma ukukhathala ngezinsuku lapho ukwelashwa kunikezwa khona.
Uma kungenzeka, hlela nomndeni nabangane ukuthi kube khona ozokuyisa noma ukubuya ekwelashweni futhi uma lokhu kuyinkinga kufanele ubuze ithimba lokunakekelwa kwezempilo ukuthi linazo yini izeluleko njengoba ezinye izinto zokuhamba zingaba khona.
Uma udokotela ezwakalisa ukukhathazeka mayelana nekhono lokushayela lesiguli lokhu kudingeka kubikwe emnyangweni wezokuthutha. Kuyatuswa futhi ukuthi inkampani yomshwalense yaziswe ngokuxilonga kwesiguli nanoma yikuphi ukukhathazeka udokotela angase abe nakho mayelana nekhono laso lokushayela.
Ezinye iziguli ziba nemiphumela engemihle yokwelashwa engase ibe nomthelela endleleni yazo yokushayela:
- I-peripheral neuropathy enzima ingathinta umuzwa ezinyaweni nasezandleni zakho.
- I-Chemo-brain iyancipha ukugxila kanye nokukhohlwa okukhulayo, abanye abantu bachaza lokhu njengenkungu phezu kwengqondo yabo. Izigigaba ezinzima zalokhu zingenza kubonakale kungakhululekile ukushayela.
- Ukukhathala, abanye abantu bakhathala kakhulu ngesikhathi sokwelashwa futhi bathole ngisho nemisebenzi yansuku zonke efana nokushayela ibaqeda amandla.
- Ukuzwa noma ukubona kuyashintsha, uma kukhona izinguquko embonweni noma ezindlebeni, khuluma nodokotela mayelana nokuthi lokhu kungalithinta kanjani ikhono lokushayela.
Ukulungisa izinto
Umshwalense Wokuphila
Ukuxilongwa okusha kwe-lymphoma akufanele kuthinte izinqubomgomo zakho ezikhona zekhava yempilo. Kodwa-ke, kubalulekile ukuthi uhlale uthembekile kumshwalense wakho ohlinzekayo lapho ubuzwa imibuzo. Khuluma nenkampani yakho yomshwalense uma udinga ukufaka isicelo ngesikhathi sokuxilongwa, ukwelashwa kanye nokwelashwa kwangemuva kokuphila.
Ungase futhi ube nomshwalense wempilo njengengxenye yesikhwama sakho sempesheni. Xhumana nesikhwama sakho sempesheni ukuze ubone ukuthi ungakuthola nini futhi kanjani lokhu.
Uma ungakabi nawo umshwalense, kodwa ungathanda ukuwuthola, uzodinga ukubazisa ukuthi une-lymphoma futhi unikeze noma yiluphi ulwazi abaludingayo ukuze bakunikeze isilinganiso.
Ukubhala incwadi yefa
Uhulumeni wase-Australia uncoma ukuthi noma ubani oneminyaka engaphezu kuka-18, abhale incwadi yefa kungakhathaliseki ukuthi 'uyayidinga' noma cha.
Incwadi yefa yincwadi esemthethweni eshoyo ukuthi ungathanda ukuthi impahla yakho yabiwe kanjani uma kwenzeka udlula emhlabeni. Futhi kuyidokhumenti yomthetho erekhoda okuncamelayo kokulandelayo:
- Omqoka ukuthi abe ngumnakekeli wanoma yiziphi izingane noma abantu abondlayo unesibopho sabo.
- Isungula i-akhawunti ye-trust ukuze ihlinzekele noma yiziphi izingane noma abondliwe.
- Ichaza indlela ofisa ukulondoloza ngayo impahla yakho.
- Ichaza indlela ofisa ukuhlelwa ngayo umngcwabo wakho.
- Isho noma yimiphi iminikelo yenhlangano esiza abantulayo ofuna ukuyicacisa (lokhu kwaziwa njengomzuzi).
- Isungula umabi wefa - lo ngumuntu noma inhlangano oyikhethayo ukuba ifeze izifiso zefa lakho.
Isifunda nesifunda ngasinye e-Australia sinenqubo ehluke kancane yokubhala incwadi yakho yefa.
Funda kabanzi mayelana nendlela yokubhala incwadi yefa esifundeni sakho noma endaweni yangakini.
Amandla Abekezelela Ommeli
Lena idokhumenti yomthetho eqoka umuntu noma abantu abathile abakhethiwe ukuthi benze izinqumo zezezimali, baphathe izimpahla zakho futhi benze izinqumo zezokwelapha egameni lakho uma ungakwazi.
Lokhu kungasungulwa ngomphathiswa womphakathi wesifunda sakho noma izindawo. Amandla ommeli ahlala njalo ezokwelapha angenziwa nge-Advanced Health Directive.
I-Advanced Health Directive yidokhumenti yomthetho echaza izinto ozikhethayo mayelana nokwelashwa nokungenelela okwenzayo noma ongakufuni.
Ukuze uthole ukwaziswa okwengeziwe ngale mibhalo, chofoza izixhumanisi ezingezansi.
Amandla Ommeli Obekezelela - chofoza kusifunda sakho noma indawo ngezansi.
Ukwesekwa okwengeziwe
- Singakwazi iwebhusayithi: https://wecan.org.au
- Iwebhusayithi Yeziguli Ezikhulile Esingakwazi: https://wecan.org.au/oldercan/
- UNGAKWAZI Izikhungo zabantu abasha kanye nabantu abadala: https://www.sonyfoundation.org/you-can-centres
- Qoqa Iqembu Lami: https://www.gathermycrew.org.au/
Sebenzisa uhlelo ukuhlela usizo olufana nokudla, ezokuthutha, ukunakekelwa kwezingane, nosizo lwasekhaya. - Ukukhulisa Ngomdlavuza: https://parentingthroughcancer.org.au/
