Ukuqeda ukwelashwa kwe-lymphoma kuyinto enkulu! Uzinqobile izinselele okungenzeka awukaze ucabange ukuthi ungabhekana nazo, futhi mhlawumbe ufunde okuningi ngawe nokuthi yini ebalulekile kuwe.
Nokho, ukuqeda ukwelashwa kungafika nezinselele zakhona. Ungase ube nemizwa exubile lapho uqala ukuzitholela ukuthi ungubani ngemva komdlavuza - noma ukhathazeke ngokuthi ungase uxolelwe isikhathi esingakanani, nokuthi ungakujabulela kanjani ukuphila.
Leli khasi lizoxoxa ngokuthi yini ongayilindela uma ukwelashwa kuphela, kanye namathiphu okuthi ungayiphatha kanjani impilo njengoba injalo manje.
Yini ongayilindela ngemva kokuqeda ukwelashwa?
Ukulungisa ukuphila ngemva kokwelashwa kwe-lymphoma kungaba isikhathi esinzima kubantu abaningi. Nakuba ukuqeda ukwelashwa kungaba yimpumuzo, abantu abaningi bathi babe nezinselele emasontweni, ezinyangeni ngisho neminyaka ngemva kokuphela kokwelashwa.
Ngemva kwezinyanga zokuya esibhedlela nokuxhumana njalo nethimba lakho lezokwelapha, kungase kubaxake kakhulu abanye, babonakale kanye kuphela ngemva kwezinyanga ezimbalwa noma ngaphezulu. Ukuthi uqhubeka kangakanani nokubonana ne-oncologist noma i-hematologist yakho kuzoncika ezintweni ezimbalwa ezihlanganisa lokhu okungezansi.
- I-subtype ye-lymphoma yakho nanoma yikuphi ukuguqulwa kofuzo onakho.
- Ukuthi umzimba wakho usabele kanjani ekwelashweni futhi uma unemiphumela engemihle edinga ukuqashwa okuqhubekayo.
- Kunini waqeda ukwelashwa.
- Kungakhathaliseki ukuthi une-lymphoma enolaka noma engenzi lutho.
- Skena kanye nemiphumela yokuhlolwa.
- Izidingo zakho ngabanye.
Yiluphi usekelo olukhona?
Ngenxa yokuthi ungeke umbone udokotela wakho wezifo zomdlavuza noma i-hematologist kaningi, akusho ukuthi uwedwa. Kuningi ukwesekwa okusatholakala kuwe, nakuba kungase kuvele kubantu abahlukene.
Udokotela Ojwayelekile (GP)
Uma ungakamtholi udokotela wendawo ojwayelekile (GP), manje yisikhathi sokukwenza. Uzodinga udokotela ojwayelekile nothembekile ukuze akusekele ngokwelashwa kwakho, aqondise ukunakekelwa kwakho futhi akunikeze ukunakekelwa okubalulekile kokulandelela ngemva kokuqeda ukwelashwa.
Odokotela bangasiza ngokukuyalela imithi ethile futhi bakuthumele kochwepheshe abahlukene kanye nochwepheshe bezempilo. Bangakwazi futhi ukuhlanganisa uhlelo lokunakekela ukuze ube nomhlahlandlela wokuthi ungakuthola nini futhi kanjani ukwesekwa okudingayo onyakeni ozayo. Izinhlelo zokunakekela zingabuyekezwa minyaka yonke. Khuluma nodokotela wakho mayelana nalezi zinhlelo nokuthi zingasiza kanjani ezimweni zakho ngazinye.
Chofoza isihloko esingezansi ukuze ufunde kabanzi mayelana nalezi zinhlelo zokunakekela.
Umdlavuza uthathwa njengesifo esingelapheki ngoba uhlala isikhathi esingaphezu kwezinyanga ezi-3. Uhlelo lokuphatha i-GP likuvumela ukuthi ufinyelele othintana nabo bezempilo abangaba ngu-5 ngonyaka ngaphandle kwezindleko, noma kancane kakhulu ephaketheni lakho. Lezi zingabandakanya ama-physiotherapists, ama-physiologists okuzivocavoca, abelaphi basemsebenzini nokunye.
Ukuze ufunde kabanzi mayelana nokuthi yini ehlanganiswe yi-allied health, sicela ubheke isixhumanisi esingezansi.
Izisebenzi zezempilo ezihlangene - I-Allied Health Professions Australia (ahpa.com.au)
Wonke umuntu onomdlavuza kufanele abe nohlelo lwezempilo yengqondo. Ziyatholakala futhi kumalungu omndeni wakho futhi zikunikeze ukuvakashelwa okungu-10 noma ukuqokwa ngocingo nodokotela wezengqondo. Lolu hlelo lusiza futhi wena nodokotela wakho ukuthi nixoxe ngokuthi izidingo zenu ziyoba yini phakathi nonyaka, futhi nenze uhlelo lokubhekana nezingcindezi ezengeziwe ezihlobene nokulungisa impilo ngemva kwe-lymphoma, nanoma yikuphi okunye okukukhathazayo.
Thola ulwazi olwengeziwe ngokuthi yikuphi ukunakekelwa kwezempilo yengqondo okutholakala lapha Ukunakekelwa kwezempilo yengqondo kanye neMedicare - Medicare - Services Australia.
Uhlelo lokunakekelwa kwabasindile lusiza ukuxhumanisa ukunakekelwa okudingayo ngemuva kokuxilongwa komdlavuza. Ungase wenze okukodwa kwalokhu ngaphambi kokuba uqedele ukwelashwa, kodwa hhayi njalo.
Uhlelo lokusinda luyindlela enhle yokubheka ukuthi uzophatha kanjani ngemva kokuphela kokwelashwa, okuhlanganisa nokuphatha imiphumela engemihle, ukukhathazeka, ukufaneleka kanye nempilo enhle iyonke.
Abahlengikazi Be-Lymphoma Care
Abahlengikazi bethu be-Lymphoma Care bayatholakala NgoMsombuluko kuya kuLwesihlanu 9am kuya ku-4:30pm EST (Isikhathi Samazwe AseMpumalanga) ukuze sikhulume nawe ngezinto ezikukhathazayo futhi sikunikeze izeluleko. Ungaxhumana nabo ngokuchofoza inkinobho ethi “Xhumana nathi”Inkinobho engezansi kwesikrini.
Umqeqeshi wempilo
Umqeqeshi wezempilo ngumuntu ongakusiza ukuthi uzibekele imigomo engokoqobo futhi wenze uhlelo olulawulekayo lokuyifinyelela. Ababona izazi zokusebenza kwengqondo futhi abakwazi ukunikeza ukwesekwa kwengqondo, kodwa bangasiza ngokugqugquzela, ukuhlela nokuhlela njengoba ulungisa impilo ngemva kwe-lymphoma noma ukwelashwa. Ukuze ufunde kabanzi mayelana nesevisi yokuqeqesha impilo bheka isixhumanisi esingezansi.
Ukwesekwa kontanga
Ukuba nomuntu ongakhuluma nawe owedlule ekwelashweni okufanayo kungasiza. Sineqembu eliku-inthanethi lokusekela ontanga ku-Facebook kanye namaqembu okusekelana aqhubekayo ku-inthanethi noma ubuso nobuso. Ukuze ufinyelele lezi, sicela ubheke izixhumanisi ezingezansi.
Izikhungo zokusinda noma zezempilo
Izibhedlela eziningi noma odokotela baxhumene nezikhungo zokusinda noma zezempilo. Buza i-hematologist yakho ukuthi yiziphi izikhungo zokusinda noma zezempilo ezitholakala endaweni yangakini. Abanye bangadinga ukudluliselwa udokotela wakho angakusiza ngakho.
Lezi zikhungo zokweseka zivame ukuhlinzeka ngemithi yokwelapha enconyiwe, amakilasi okuzivocavoca kanye nendlela yokuphila (njengokupheka okunempilo noma ukuqaphela). Bangase futhi babe nokusekelwa ngokomzwelo njengokusekelwa kontanga, ukwelulekwa noma izinsizakalo zokuqeqesha impilo.
Ukwelashwa nemiphumela emibi
Imiphumela eminingi emibi yokwelashwa kwe-lymphoma kwenzeka ngesikhathi sokwelashwa. Nokho, kwezinye izimo imiphumela emibi ingase ihlale izinyanga noma ngisho neminyaka ngemva kokuphela kokwelashwa. Imiphumela engemihle evela ekwelashweni okuqinile okufana nethamo eliphezulu lokwelapha ngamakhemikhali elisetshenziswa ngaphambi kokufakelwa kwe-stem cell cishe ingathatha isikhathi eside ukuba ngcono.
Imiphumela yakamuva
Kwezinye izimo, ungase uthole imiphumela sekwephuzile yokwelashwa eqala izinyanga noma ngisho neminyaka ngemva kokuphela kokwelashwa. Nakuba eziningi zalezi zingavamile, kubalulekile ukuqaphela ubungozi bakho ukuze ube nokuhlolwa okufanele kokulandelela nokuhlola futhi uthole noma yisiphi isimo esisha kusenesikhathi ukuze uthole izinketho zokwelashwa ezingcono kakhulu.
Ukuze uthole ulwazi olwengeziwe ngemiphumela emibi kanye nemiphumela yakamuva yokwelashwa kwe-lymphoma, chofoza isixhumanisi esingezansi.
Uzozizwa nini kangcono?
Ukululama ekwelashweni kuthatha isikhathi. Ungalindeli ukuthi uzobuyela emandleni aphelele noma ube nempilo ngokushesha. Kwabanye abantu kungathatha izinyanga ukuthi balulame emiphumeleni emibi eqhubekayo. Kwabanye, ungase ungaphinde ubuyele kumazinga akho aphelele namandla njengangaphambi kokuba ube ne-lymphoma.
Ukufunda imikhawulo yakho emisha nokuthola izindlela ezintsha zokuphila kuzobaluleka kuwe. Nokho, ngenxa yokuthi ukuphila manje kungase kuhluke, akusho ukuthi awukwazi ukubheka phambili ekuphileni okuhle. Abantu abaningi basebenzisa lesi sikhathi ukuze bahlole kabusha ukuthi yini enenjongo kubo futhi baqale ukuyeka ukucindezeleka okwengeziwe ekuphileni esivame ukubambelela kukho kungenasidingo.
Izinto ezingaba nomthelela ekululameni kwakho zihlanganisa:
- I-subtype ye-lymphoma owawunayo / onayo nokuthi ibe nomthelela kanjani emzimbeni wakho
- Impatho obunayo
- Imiphumela emibi owaba nayo ngesikhathi sokwelashwa
- Iminyaka yakho yobudala, ukufaneleka okuvamile kanye namaleveli omsebenzi
- Ezinye izimo zezempilo noma zezempilo
- Indlela ozizwa ngayo kuwena kokubili ngokwengqondo nangokomzwelo.
Ukubuyela emsebenzini noma esikoleni
Uma uhlela ukubuyela emsebenzini, izifundo, kungase kungahambi njalo ukuhlela. Kubalulekile ukuba neqiniso futhi uzinike isikhathi sokululama. Chofoza amabhokisi okuskrola angezansi ukuze uthole amacebiso okubuyisela emsebenzini noma esikoleni.
Work
Uma indawo yakho yokusebenzela inomnyango Wezabasebenzi (HR), thintana nabo kusenesikhathi ukuze uxoxe ngezidingo zakho nokuthi yiluphi usizo ongaluthola.
Kungumqondo omuhle ukukhuluma nabo ngaphambi kokuthi ubuyele emsebenzini ukuze uqale ukuhlela inguquko yakho yokubuyela emsebenzini. Uma ungenawo umnyango wakwa-HR, khuluma nomphathi wakho ngokuthi angakusiza kanjani ukuthi ubuyele emsebenzini ngendlela ephephile nesekelwe.
Amathiphu okubuyela emsebenzini
Amahora ancishisiwe, noma ezinye izinsuku.
Sebenza ngezinketho zasekhaya.
Ukuqhelelana nomphakathi ngenkathi amasosha akho omzimba esalulama.
Ukufinyelela kalula kumamaski nesicoci sezandla.
Ukugwema izinto ezingadala izifo ezifana nemfucuza yezilwane, inyama eluhlaza, imfucuza ethathelwanayo.
Indawo ethule yokuphumula uma ukhathele kakhulu.
Ukwelashwa komsebenzi ukuze ubuyekeze indawo yakho yokusebenza nezidingo.
School
Khuluma nomgomo wakho (noma wengane yakho) kanye nothisha/nothisha mayelana nokuthi ulindele ukubuyela nini esikoleni. Uma unomhlengikazi nomeluleki wesikole khuluma nabo mayelana nokuhlanganisa isu lokwenza ukubuyela esikoleni kube lula.
Amathiphu okubuyela esikoleni
Umsebenzi wesikole oncishisiwe.
Izinketho zokuqedela umsebenzi wesikole ekhaya noma ngemfundo yebanga
Ikilasi eliqhelelene nomphakathi.
Ukufinyelela kalula kumamaski nesicoci sezandla.
Indawo ethule, ephephile yokuphumula uma ukhathele kakhulu.
Imfundo yofunda nabo kanye nesikole nge-lymphoma ( mema abahlengikazi be-Lymphoma Care ukuthi beze bazokhuluma).
Nweba izinsuku zokugcina zokuhlola.
Ukwesaba ukubuya (relapse)
Nakuba i-lymphoma ivame ukuphendula kahle kakhulu ekwelashweni, abanye benu bazotshelwa ukuthi kungenzeka ukuthi i-lymphoma yakho izophinde ibuyele esikhathini esithile. Kwezinye izimo, udokotela wakho angase athi ingase ibuye kodwa ayikho indlela yokusho ukuthi izobuya nini, noma izobuya nini. Noma ngabe utshelwe ukuthi welashiwe futhi mancane amathuba okuthi ubuye, ungase uzithole ukhathazekile ngakho.
Kungokwemvelo ukukhathazeka ngalokhu kancane. Usudlule ezintweni eziningi, futhi ungase ube nomuzwa wokuthi umzimba wakho usuvele wehlulekile kanye, ngakho ungase ube nokuncane ukuthembela emandleni omzimba wakho wokukugcina uphephile futhi uphilile.
Lokhu kungabangela ukuqaphela ngokweqile, lapho ubona khona LONKE ushintsho emzimbeni wakho futhi uqale ukugxila kakhulu kulokho okwenzekayo, wesaba ukuthi kuhlobene ne-lymphoma. Abanye abantu bakuthola kuthinta ikhono labo lokujabulela ukuphila nokwenza izinhlelo.
Ukuqwashisa ngokumelene nokuqwashisa okukhulu
Ukuqaphela ingozi yakho yokuphinda ugule kubalulekile ngoba kukusiza ukuthi ubone izimpawu ezintsha futhi uthole izeluleko zezokwelapha kusenesikhathi. Kodwa-ke, i-hyperawareness iphumela ekukhathazekeni nokwesaba okungalawuleki, futhi inomthelela omubi eqophelweni lakho lempilo.
Ukuthola ibhalansi phakathi kokuqaphela ingozi yakho nokujabulela ukuphila ngokugcwele kungase kuthathe isikhathi. Abantu abaningi bathi, uma sebexolile kuba lula ukuphila nokungaqiniseki. Finyelela futhi uthole ukwesekwa lapho ukudinga, noma uma ufuna ukukhuluma ngalokho okuzwayo, noma okwenzeka emzimbeni wakho.
Thola ukusekelwa
Ungakhuluma nodokotela wakho, Abahlengikazi bethu Be-Lymphoma Care, umeluleki noma isazi sokusebenza kwengqondo. Bonke bangakusiza ukuthi usebenze ngokwesaba kwakho futhi uthuthukise amasu okuphila neqiniso lempilo ngemva kokwelashwa kwe-lymphoma, kuyilapho usajabulela ukuphila.
Bika udokotela wakho izimpawu ezintsha
Njengoba ufunda ukuthi yini manje esejwayelekile kuwe (ngemuva kokwelashwa kwe-lymphoma), kubalulekile ukubika zonke izimpawu ezintsha noma eziqhubekayo kudokotela wakho. Kubalulekile ukuthi udokotela wakho ovamile kanye nodokotela wakho wegazi noma i-oncologist bazi nganoma yiziphi izimpawu ezintsha noma eziqhubekayo. Bangakwazi-ke ukuzihlola futhi bakwazise ukuthi kuyinto edinga ukulandelelwa noma cha.
Buza udokotela wakho:
- Yini okufanele ngiyibheke?
- Yini okufanele ngiyilindele emasontweni/ezinyangeni ezimbalwa ezizayo?
- Kufanele ngixhumane nawe nini?
- Kufanele ngiye nini emnyangweni wezimo eziphuthumayo noma ngishayele i-ambulensi?
Umthelela ongokomzwelo
Kuvamile ukuba nengxube yemizwa, nokuba nezinsuku ezinhle nezimbi. Abanye abantu bachaza ukuthola umdlavuza, ukwelashwa nokululama, noma ukufunda ukuphila i-lymphoma 'njengokugibela i-rollercoaster'.
Ungase ufune ukubuyela ngokushesha ezindleleni zakho ezivamile, noma ungase udinge isikhathi sokuphumula ngemva kokuqeda ukwelashwa futhi ucubungule lokho odlule kukho. Nakuba abanye abantu bekhetha 'ukuqhubeka nakho', abanye bathi bafuna ukufunda ukwazisa izinto kakhulu futhi babeke kuqala okubalulekile ekuphileni kwabo.
Noma ngabe ithini indlela yakho, imizwa nemicabango yakho iyasebenza, futhi akekho omunye ongakutshela ukuthi yini elungile noma engalungile kuwe. Nokho, uma imizwa noma imicabango yakho ikwenza kube nzima ngawe ukujabulela ukuphila noma ikwenza wesabe, finyelela futhi uthole ukwesekwa. Kunamasevisi amaningi okusekela kanye nokwelulekwa kwamahhala okutholakalayo kuwe.
Buka ividiyo engenhla ukuze uthole amanye amathiphu okuphila nemithelela engokomzwelo yokukhathazeka nokungaqiniseki.
Okulindelekile kwabanye
Ungase ube nabantu empilweni yakho abacabanga ukuthi manje ukwelashwa sekuphelile kufanele "uqhubeke nempilo", futhi ungaqondi ukuthi usenokulinganiselwa ngokomzimba nangokomzwelo. Noma ngokuphambene nalokho, ungaba nabantu empilweni yakho abazama ukukuvimba ngoba besaba ukuthi kukhona okwenzeka kuwe, noma "ukwenza ngokweqile".
Ngaphandle uma umuntu eselashelwa umdlavuza, ayikho indlela yokuthi aqonde ngokweqiniso lokho obhekene nakho, - futhi kungaba okungenangqondo ukulindela ukuba enze kanjalo. Bangase bangawuqondi ngempela umthwalo oqhubekayo wemiphumela engemihle noma bakhathazeke ohlala nabo.
Ngisho nabantu abake baba nomdlavuza bangase bangaqondi kahle okuhlangenwe nakho kwakho, njengoba umdlavuza nokwelashwa kwawo kuthinta abantu ngendlela ehlukile.
Kungakhathaliseki ukuthi bazama kangakanani, ayikho indlela yokuthi bazi kahle ukuthi ubhekene nani, ukuthi yini oshikashikana nayo, noma yini ongakwazi ukuyenza.
Yazisa abantu
Ngokuvamile abantu bazama kuphela ukubamba abanye lapho bezizwa bephilile. Noma, mhlawumbe lapho ubuzwa ukuthi uzizwa kanjani, ucwebezela izinto ezinzima bese uthi wenza kahle, noma kulungile.
Uma ungethembekile kubantu mayelana nendlela owenza ngayo, indlela ozizwa ngayo nokuthi udonsa kanzima kangakanani, ngeke bakwazi ukuqonda ukuthi ungase usakudinga ukwesekwa - noma ukwazi ukuthi bangasiza kanjani.
Thembeka kubantu osondelene nabo. Bazise uma udinga ukwesekwa nokuthi ulwazi lwakho nge-lymphoma alukakapheli.
Ezinye zezinto ongase uthande ukuzicela zihlanganisa:
- Ukupheka ukudla ungakugcina efrijini.
- Usizo ngomsebenzi wasendlini noma ngokuthenga.
- Umuntu ozohlala naye nixoxe, noma nibuke umdlalo/imuvi, noma nijabulele into yokuzilibazisa ndawonye.
- Ihlombe lokukhala.
- Ukulanda noma ukushiya izingane esikoleni noma ngezinsuku zokudlala.
- Ukuhamba ngezinyawo ndawonye.
Kwenzekani uma i-lymphoma yami iphinda?
Into yokuqala okudingeka uyazi ukuthi ngisho nama-lymphomas amaningi abuyele emuva angelashwa ngempumelelo.
Akuvamile ukuthi amanye ama-lymphomas abuyele emuva. I-lymphoma ebuyele emuva ingelashwa ngempumelelo, okuholela ekwelapheni noma okunye ukuxolelwa. Uhlobo lokwelashwa ozonikezwa lona luncike ezintweni ezimbalwa ezihlanganisa:
- Iluphi uhlobo lwe-lymphoma onayo,
- Mingaki imigqa yokwelashwa onayo,
- Indlela ophendule ngayo kwezinye izindlela zokwelapha,
- Kunini uxolelwe,
- Noma yimiphi imiphumela eqhubekayo, noma sekwephuzile ongaba nayo ekwelashweni kwangaphambilini,
- Okuthandayo uma usunalo lonke ulwazi oludingayo ukuze ukhethe unolwazi.
Ukuze ufunde kabanzi mayelana ne-lymphoma ephindaphindiwe, sicela ubheke isixhumanisi esingezansi.
Imibuzo ebuzwa njalo (ama-FAQ)
Izinwele ngokuvamile ziqala ukukhula emasontweni ambalwa ngemva kokuqeda ukwelashwa nge-chemotherapy. Kodwa-ke, uma ikhula ingase ibe izacile kakhulu - ifane nengane esanda kuzalwa. Lezi zinwele zokuqala zingahle ziwe futhi ngaphambi kokuba zikhule.
Uma izinwele zakho zibuya, zingase zibe nombala ohlukile noma ukuthungwa kunangaphambili. Kungase kube izinwele eziphothene, ezimpunga noma ezimpunga zingase zibe nombala othile emuva. Cishe ngemva kweminyaka emi-2, kungase kufane nezinwele obunazo ngaphambi kokwelashwa.
Izinwele ngokuvamile zikhula cishe ngo-15cm ngonyaka. Lokho kucishe kube yingxenye yobude berula elimaphakathi. Ngakho, ezinyangeni ezi-4 ngemva kokuqeda ukwelashwa, ungase ube nezinwele ezifika ku-4-5cm ekhanda lakho.
Uma une-radiotherapy, izinwele ezisesiqeshaneni sesikhumba zingase zingakhuli. Uma kwenzeka, kungase kuthathe iminyaka ukuqala ukukhula futhi, futhi kungaphinde kukhule kubuyele ngendlela evamile eyayiyikho ngaphambi kokwelashwa.
Ukuze uthole ulwazi olwengeziwe ngokuqothuka kwezinwele, sicela uchofoze isixhumanisi esingezansi.
Kuthatha isikhathi esingakanani ukuthi amasosha omzimba wakho abuyele kokujwayelekile kuya ngokuthi hlobo luni lokwelashwa obunalo kanye ne-subtype ye-lymphoma obunayo/noma onayo.
Neutrophils
Ama-neutrophils akho ngokuvamile azobuyela kokujwayelekile phakathi namaviki angu-2-4 wokuqeda ukwelashwa ngamakhemikhali. Kodwa-ke, ezinye izindlela zokwelapha ezinjengama-monoclonal antibodies, i-radiotherapy noma ukufakelwa kwe-stem cell kungase kubangele ukululama kancane, noma i-neutropenia yokuqala sekwephuzile.
Uma ama-neutrophils akho engasindisi i-hematologist yakho noma i-oncologist ingakunikeza izici zokukhula ukuze ukhuthaze umnkantsha wakho ukuthi wenze okwengeziwe. Kuzodingeka uqhubeke uthatha izinyathelo zokuphepha ukuze ugweme ukutheleleka, futhi wazise udokotela wakho uma ungaphathekile kahle. Iya esimeni esiphuthumayo ngokushesha uma unezinga lokushisa elingu-38° noma ngaphezulu. Ukuze uthole ulwazi olwengeziwe mayelana nokuphatha i-neutropenia Chofoza lapha.
Ama-Lymphocyte
Ama-B-cell lymphocyte enza amasosha omzimba, kodwa adinga ama-T-cell ukuze awasize enze amasosha omzimba. Ngakho-ke, noma ngabe ubune-B noma i-T-cell lymphoma ungase ube namasosha omzimba amancane ngemva kokwelashwa.
Amasosha omzimba ayingxenye ebalulekile yamasosha ethu omzimba, anamathela emagciwaneni namaseli agulayo ukuze ahehe amaseli omzimba amaningi ukuthi eze azoqeda amangqamuzana agulayo noma alimele. Abantu abaningi bayoba nokubuya kwamasosha omzimba njengoba ama-lymphocyte akho anesifo (amaseli e-lymphoma) ebhujiswa futhi ama-lymphocyte amasha, anempilo ethatha indawo yawo. Kodwa-ke, inani elincane lenu lizoba nezinkinga eziqhubekayo ngama-antibodies aphansi. Lokhu kubizwa nge-hypogammaglobulinemia.
Uma une-hypogammaglobulinemia, ungase ungadingi noma yikuphi ukwelashwa. Kodwa-ke, uma uthola izifo eziningi, ungase unikezwe ukwelashwa nge-immunoglobulin enikezwa emthanjeni wakho noma njengomjovo esiswini sakho. Ukuze uthole ulwazi olwengeziwe nge-hypogammaglobulinemia Chofoza lapha.
Ukukhathala kuwuphawu oluvamile lwe-lymphoma, kanye nomphumela ongemuhle wemithi yayo. Kuphinde kube yizimpawu abantu abajwayele ukubhekana nazo ngemuva kokwelashwa.
Khumbula ukuthi umzimba wakho uke wabhekana nokulwa ne-lymphoma kanye nokululama ekwelashweni. Hamba kalula futhi uvumele umzimba wakho isikhathi sokululama.
Ukukhathala okuqhubekayo nokho kungaba nomthelela empilweni yakho esezingeni eliphezulu kanye nekhono lokubuyela emsebenzini, esikoleni noma emisebenzini yokuphila kwansuku zonke.
Ukukhathala kufanele kuthuthuke ezinyangeni ngemva kokuqeda ukwelashwa. Kodwa-ke, kwabanye abantu, ukukhathala kungathatha iminyaka eminingana, futhi abanye abantu bangase bangaphinde babuyele emazingeni abo angaphambi kwe-lymphoma. Uma ukukhathala kuwudaba oluqhubekayo kuwe, khuluma nodokotela wakho mayelana nokuthi yiluphi usizo ongaluthola.
Futhi, ukuze uthole amathiphu okulawula ukukhathala nokulala kahle, bheka izixhumanisi ezingezansi.
I-peripheral neuropathy ibangelwa ukulimala ekugcineni kwamangqamuzana ezinzwa angaphandle kobuchopho bakho nomgogodla. Izindawo ezivame kakhulu ukuzwa i-peripheral neuropathy iseminweni nasezinzwaneni zakho, nokho inganweba izingalo nemilenze yakho. Kungase futhi kuthinte isitho sakho sangasese, amathumbu nesinye.
Amaseli ezinzwa ngokuvamile athatha isikhathi eside ukululama kunamanye amaseli emizimbeni yethu, ngakho i-peripheral neuropathy ingathatha izinyanga eziningi ukuba ngcono.
Uma usheshe ubika izimpawu futhi uthole ukwelashwa (noma ukunciphisa umthamo we-chemotherapy ngesikhathi sokwelashwa) maningi amathuba okuba i-peripheral neuropathy yakho ibe ngcono. Nokho, kwezinye izimo i-peripheral neuropathy ingase ibe unomphela.
Uzodinga amasu okuphatha ukuze unciphise ingozi yakho yokuzilimaza ngenxa ye-neuropathy njengokusha noma ukuwa ngenxa yokushintsha kokuzwa. Ungase futhi udinge ukungenelela kwezokwelapha ukuze uthuthukise ubuhlungu nokungakhululeki okuzwayo. ukuze uthole ulwazi olwengeziwe nge-peripheral neuropathy nokuthi ungayilawula kanjani, bheka isixhumanisi esingezansi.
I-peripheral neuropathy - iLymphoma Australia
Ungase ungadingi izikena ngemva kokuqeda ukwelashwa. I-hematologist yakho noma i-oncologist inezinye izindlela zokuqapha inqubekelaphambili yakho kanye nokubheka noma yiziphi izimpawu zokubuya kwe-lymphoma yakho.
Ngaphambi koku-oda izikena ezengeziwe ezifana ne-PET noma i-CT scan, bazokala ubungozi nezinzuzo. Ngaso sonke isikhathi uma wenza okukodwa kwalokhu kuhlola ubhekana nesilinganiso esincane semisebe. Ngokuhamba kwesikhathi, ukuskena okuphindaphindiwe kungandisa ingozi yokuba ngomunye umdlavuza.
Uma i-CVAD yakho isusiwe izoncika kulokhu:
- Uhlobo lwe-CVAD onalo.
- Ukwelashwa okuqhubekayo okusekelayo ongase ukudinge.
- Uzodinga ukuhlolwa kwegazi kangaki nokuthi lokhu kungenziwa ngaphandle kwe-CVAD.
- Ubude bohlu lokulinda lokungena ethiyetha ukuze lususwe (uma une-port-a-cath etshaliwe).
- Izintandokazi zakho siqu.
Uma ulangazelela ukukhishwa kwe-CVAD yakho, khuluma nodokotela wakho wegazi okwelaphayo noma udokotela oncologist mayelana nokuthi yisiphi isikhathi esingcono kakhulu esingaba ngaso.
I-port-a-caths etshaliwe idinga ukususwa ngokuhlinzwa ngakho ngokuvamile kuthatha isikhathi eside ukususwa, kuye ngezikhathi zokulinda zasetiyetha. Amanye ama-CVAD adinga i-oda likadokotela ukuze akhishwe, ngakho abahlengikazi bakho ngeke bakwazi ukuyisusa ngaphandle kwesiyalezo sikadokotela.
Kwezinye izimo ungase ukwazi ukuba nolayini wakho we-PICC noma okunye okungafakwanga I-CVAD ikhishwe ngosuku olufanayo, ngemva kokwelashwa kwakho kokugcina.
Uzodinga ukuqhubeka nokusebenzisa ukuvikela okuvimbayo okufana namakhondomu noma amadamu amazinyo anamafutha okuthambisa izinsuku ezingu-7 ngemva kokugcina ukwelashwa ngamakhemikhali. Ngemva kwezinsuku ezingu-7 awudingi ukusebenzisa amakhondomu noma amadamu amazinyo, kodwa kungase kudingeke ukuthi usasebenzisa ezinye izindlela zokuvimbela inzalo ukuze ugweme ukukhulelwa.
I-libido yakho (i-sex drive) ingase ithathe isikhathi ukubuya njengoba kunezinto eziningi ezingayithinta. Ukukhathala, ubuhlungu, isicanucanu, ukukhathazeka kanye nendlela ozizwa ngayo ngezinguquko emzimbeni wakho konke kungathinta i-libido yakho. Ukwengeza, ezinye zezindlela zokwelapha zakho zingase zibangele ukomisa kwesitho sangasese sowesifazane noma kube nzima ukuthola noma ukugcina ukuqhanyelwa okuqinile. Ungase futhi ube nobunzima obuningi bokufinyelela izitho zomzimba. Zonke lezi zinto zingathinta i-libido yakho.
Uma unezinkinga eziqhubekayo ezifana nalezi ezibalwe ngenhla, khuluma nodokotela wakho. Kunosizo olutholakalayo lokuthuthukisa lezi zinto. Bona futhi wethu ucansi, ezocansi kanye nekhasi lewebhu lokusondelana ngokuchofoza lapha ukuthola amathiphu amaningi.
Ukwelashwa kwe-lymphoma kungenza ukukhulelwa noma ukukhulelwa omunye umuntu kube nzima kakhulu. Nokho, abanye abantu basengase bazuze ukukhulelwa ngokwemvelo. Uma ukukhulelwa kwemvelo kungenakwenzeka, kunezinye izinketho ezitholakalayo zokukusiza ukuthi ukhulelwe.
Yisiphi isikhathi esiphephile sokuhlela ukukhulelwa?
Uzoba nokucatshangelwa okwengeziwe ngaphambi kokuhlela ukukhulelwa. Ezinye izici ezingase zibe nomthelela lapho ungaqala ukuhlela ukukhulelwa ngokuphepha zihlanganisa:
- Uhlobo lwe-lymphoma owawunalo/onalo.
- Hlobo luni lokwelashwa oke waba nalo.
- Noma yiziphi izindlela zokwelapha eziqhubekayo ezisekelayo noma zokunakekela ozidingayo.
- Imiphumela engemihle yemithi oye waba nayo.
- Ithuba lokuthi i-lymphoma yakho ibuyele futhi udinga ukwelashwa okusebenzayo.
- Impilo yakho engokomzimba, engokomzwelo neyengqondo iyonke.
- Indlela yokukhulelwa.
Khuluma nodokotela wakho wezifo zenhliziyo noma i-oncologist mayelana nezifiso zakho zokuba nomntwana futhi ubuze iseluleko sabo sokuthi yisiphi isikhathi esiphephile sokuqala ukuzama. Bangakusiza ukukweluleka ngokuthi yisiphi isikhathi esingcono kakhulu, futhi bakudlulisele emtholampilo wenzalo noma ukuze uthole ukwelulekwa ngenzalo uma kudingeka.
Ukuze uthole ukwaziswa okwengeziwe ngenzalo ngemva kokwelashwa chofoza isixhumanisi esingezansi.
Iziguli zethu eziningi zithi zithole induduzo, nokuzethemba ukubhekana nalokho okwakuseza ngokufunda ngolwazi lwabanye abantu nge-lymphoma. Uma ungathanda ukwabelana ngendaba yakho, noma ufunde izindaba zabanye Chofoza lapha noma i-imeyili enquiries@lymphoma.org.au.
Kunezindlela eziningi ongazibandakanya ukuze uthuthukise izimpilo zabanye abaphila ne-lymphoma. Chofoza lapha ukuze ufunde ngezinye zezindlela ongazibandakanya ne-Lymphoma Australia.
Isifinyezo
- Ukuqeda ukwelashwa kwe-lymphoma kuyinto enkulu, futhi ungase ube nemizwa exubile isikhathi esithile ngemva kokwelashwa kwakho kokugcina.
- Udinga udokotela ojwayelekile ukuze anikeze ukwesekwa okuqhubekayo nokunakekelwa kokulandelela.
- Usengase ube nemiphumela engemihle ngemva kokuphela kokwelashwa. Eminye ingase ibe imiphumela emibi eqhubekayo, futhi eminye ingase iqale izinyanga noma iminyaka ngemva kokuphela kokwelashwa. Bona izixhumanisi ezingenhla ukuze uthole ukuthi ungayiphatha kanjani imiphumela emibi.
- Buza udokotela wakho mayelana nohlelo lokuphatha luka-GP, uhlelo lwezempilo yengqondo kanye nohlelo lokusinda ukuze usize ukuhlela izidingo zakho eziphathelene nempilo onyakeni olandelayo.
- Ukubuyela emsebenzini noma esikoleni kungase kudinge ukuhlela okwengeziwe. Sebenzisa amathiphu angenhla ukusiza ukwenza inguquko ibuye.
- Ukwesaba ukubuyela emuva kuvamile, kodwa uma kuthinta izinga lakho lempilo futhi kukuyekise ukuhlela ikusasa, khuluma nodokotela wakho, isazi sokusebenza kwengqondo noma Abahlengikazi Be-Lymphoma Care.
- Umqeqeshi wezempilo angakusiza ukuthi ubeke futhi ufinyelele imigomo engokoqobo.
- Bika zonke izimpawu ezintsha, noma ezihlala njalo kudokotela wakho kanye nodokotela wegazi noma i-oncologist.
- Yazisa abantu abaseduze kwakho ukuthi uyabadinga ukuze bakweseke.
