Ukuba umnakekeli womuntu one-lymphoma kungaba kokubili okuvuzayo futhi kuyinselele. Futhi, nakuba ungumnakekeli, uzodinga futhi ukwesekwa ukuze uzigcine uphilile futhi uphumule, kuyilapho ulawula izidingo zomzwelo nezomzimba zokuba umnakekeli.
Impilo ayimi lapho uba umnakekeli, noma lapho umuntu omthandayo kutholakala ukuthi une-lymphoma. Kungase kudingeke uphathe umsebenzi, isikole, izingane, imisebenzi yasekhaya kanye neminye imithwalo yemfanelo. Leli khasi lizohlinzeka ngolwazi ngalokho okudingeka ukwazi ukuze usekele umuntu wakho one-lymphoma, futhi uzitholele izinsiza ezifanele.
Amakhasi ahlobene
Yini engidinga ukuyazi?
Uma uzonakekela umuntu one-lymphoma kunezinto ezithile mayelana ne-lymphoma kanye nokwelashwa kwayo okuzodingeka ukwazi. Ngezansi kunezixhumanisi eziya kwamanye amakhasi kule webhusayithi sincoma ukuthi ubuyekeze njengoba ufunda ngohlobo lokunakekelwa othandekayo wakho angase akudinge.
Izinhlobo zabanakekeli
Kunezinhlobo ezahlukene zabanakekeli. Abanye benu bangaba ngabanakekeli abakhokhelwayo lapho okuwukuphela komsebenzi wenu ukunakekela othile one-lymphoma, kodwa abanakekeli abaningi bangamalungu omndeni angakhokhelwa noma abangani. Ungase ube nesivumelwano esisemthethweni mayelana nokuthi iyini imisebenzi yakho njengomnakekeli, noma ungaba umngane, umyeni noma unkosikazi, umzali wengane noma othile one-lymphoma. Kulokhu ungase ube nelungiselelo elingakahleleki lapho unikeza khona ukwesekwa okwengeziwe njengoba kudingeka phakathi kobudlelwane bakho obuhlukile.
Kungakhathaliseki ukuthi uluhlobo luni lomnakekeli uzodinga ukwesekwa okwengeziwe. Ukwesekwa okudingayo kuzohluka kakhulu kuwe, futhi kuzoncika kulokhu:
- isimo somuntu obathandayo,
- uhlobo oluncane lwe-lymphoma abanalo,
- uhlobo lokwelashwa abazoludinga,
- noma yisiphi esinye isifo noma izimo umuntu wakho one-lymphoma anazo, njengobuhlungu, izimpawu ze-lymphoma noma imiphumela emibi yokwelashwa, ubunzima bokuhamba kanye nemisebenzi yansuku zonke,
- lapho nihlala khona nobabili,
- eminye izibopho zakho ezifana nomsebenzi, isikole, izingane, umsebenzi wasendlini, namaqembu omphakathi,
- ulwazi oludlule onalo noma ongakaze ube nalo njengomnakekeli (ukuba umnakekeli akuzenzekeli kubantu abaningi),
- impilo yakho ngokomzimba, ngokomzwelo nangokwengqondo,
- uhlobo lobudlelwano onabo nomuntu wakho one-lymphoma,
- ezinye izinto eziningi ezenza wena nomuntu wakho nihluke.
Uma kungumlingani wakho, unkosikazi noma umyeni wakho one-lymphoma, bangase bangakwazi ukukunikeza uhlobo olufanayo lokusekela, induduzo, uthando, amandla noma umdlandla ababenawo esikhathini esidlule. Uma ngaphambili bebenikela emisebenzini yasekhaya, ezezimali noma ekukhuliseni izingane, bangase babe namandla amancane okwenza lokhu manje ukuze eziningi zalezi zinto ziwele phezu kwakho.
Umlingani wakho, unkosikazi noma umyeni wakho
Ushintsho nokungalingani ezindimeni zenu kuzoba nomthelela ongokomzwelo kinina nobabili. Ngisho noma bengayivezi ngamagama, umuntu wakho one-lymphoma angase azizwe ehlangene nemizwelo emihle nemibi njengoba ehamba nge-lymphoma kanye nokwelashwa kwayo.
Bangase bazizwe:
- banecala noma banamahloni okuthi ngeke besakwazi ukuhambisana nendlela yabo yokuphila evamile nemisebenzi,
- wesaba ukuthi imizwa yakho ngabo ingase ishintshe,
- bazizwa benokuzinyeza ngokuthi izindlela zokwelapha ziwushintsha kanjani umzimba wabo,
- bekhathazekile ngokuthi ukulahlekelwa umholo wabo kungase kusho ukuthini emndenini wakho.
Ngakho konke lokhu, cishe basazobonga kakhulu ngokuba nawe ukubasiza kule ngxenye yempilo yabo.
Bangase futhi bakucabangele ukufa kwabo okokuqala ngqa ekuphileni kwabo, futhi lokhu kungase kubangele ukwesaba nokukhathazeka, noma ukuqonda lapho belinganisa lokho okubaluleke ngempela kubo futhi bacabange emuva ngempilo yabo. Ngisho noma benethuba elihle lokwelapha, kusejwayelekile ukuba nale micabango nemizwa.
Wena, umnakekeli
Ukubuka umlingani wakho noma oshade naye edlula i-lymphoma futhi ukwelashwa kwayo ngeke kube lula. Ngisho noma benethuba elihle lokwelapha, ungase uqale ukucabanga ngokuthi kungaba njani ukulahlekelwa yizo, futhi lokhu kungabangela ukwesaba nokukhathazeka. Kuzodingeka ubasekele ezikhathini ezinzima, futhi nakuba lokhu kungaba nomvuzo omkhulu, kungase futhi kukhathaze ngokomzimba nangokomzwelo.
Uzodinga inethiwekhi yakho yokwesekwa yabangani, umndeni noma abasebenzi bezempilo njengoba ulawula yonke imisebenzi yakho evamile nomsebenzi kuyilapho manje weseka umlingani wakho.
Ungase uqaphele ukuguqulwa kwendima ethile ebudlelwaneni bakho uma umlingani wakho ehlala engumhlinzeki, noma umnakekeli, noma eqinile futhi ehlelekile. Futhi manje kukuwe ukuthi ugcwalise lezi zindima ngenkathi zigxile ekwelashweni kanye nempilo yazo engokomzimba. Lokhu kungathatha isikhashana ukujwayela nobabili.
Ucansi nokusondelana
Kungokwemvelo ukuzibuza ngocansi kanye nokusondelana nokuthi lokhu kungashintsha kanjani uma uba umnakekeli womlingani wakho. Izinto zingase zishintshe isikhashana futhi ukufunda izindlela ezintsha zokusondelana kuzobaluleka ukuze ugcine ukusondelana ebudlelwaneni bakho.
Kusalungile ukuya ocansini uma wena nomlingani wakho nobabili nilufuna, nokho kunezinye izindlela zokuphepha okufanele nizithathe. Bheka isixhumanisi esingezansi ukuze uthole ulwazi olwengeziwe mayelana nokuzivikela, umlingani wakho kanye nobudlelwano bakho.
Ukuba umnakekeli useyingane noma usemusha wena ngokwakho kuwumthwalo omkhulu. Awuwedwa. Kunabanakekeli ababalelwa ku-230,000 e-Australia njengawe! Abaningi bathi kuyazuzisa ngempela, futhi bazizwa bejabule ngokukwazi ukusiza umuntu abamthandayo.
Lokho akusho ukuthi kuzoba lula. Uzofunda okuningi, futhi mhlawumbe wenze amaphutha ambalwa – Kodwa lokho kulungile, ngoba sonke siyawenza amaphutha! Futhi konke lokhu kungenzeka ukuthi uyakwenza usesikoleni noma e-Uni, noma ufuna umsebenzi futhi uzama ukuba nokuphila okujwayelekile.
Kuningi ukwesekwa okutholakalayo kuwe njengomnakekeli. Sifake ezinye izixhumanisi ngezansi zezindawo ezingasiza.
- Abanakekeli Abancane - Abanakekeli base-Australia
- Ikamu kanye Nezindawo Zokuhlala Zezingane Ezibhekene Nomdlavuza | Ikhwalithi Yekamu
- ICanteen Connect – Umphakathi Wentsha Ehlaselwe Umdlavuza
- Ihabhu lomdlavuza | Izinsizakalo Zokusekela Imindeni Ebhekene Nomdlavuza
- Thola Ukusekelwa - isifiso sikaMama
Ukubuka ingane yakho noma ingane yakho idlula ku-lymphoma futhi ukwelashwa kwayo kuyinselele engacabangeki kubazali abaningi. Uzobona ingane yakho idlula ezintweni okungamele ingane ibhekane nazo. Futhi, uma unezinye izingane, kuzodingeka uzisize zifunde indlela yokubhekana ne-lymphoma yomfowabo noma udadewabo futhi ziqhubeke nobuntwana bazo.
Ngeshwa, nakuba ingavamile, i-lymphoma iwumdlavuza wesithathu ovame kakhulu ezinganeni, kanye nomdlavuza ovame kakhulu entsheni nasebancane abadala e-Australia. Bheka isixhumanisi esingezansi se-Lymphoma ezinganeni, intsha kanye nabantu abadala ukuze uthole ulwazi olwengeziwe nge-lymphoma kubantu abasha.
Siphinde sengeze izixhumanisi ngezansi zezinhlangano ezizinikele ekusekeleni izingane nemindeni uma othile etholakala enomdlavuza. Abanye banikeza imisebenzi efana nohambo, ukukhempa nokuxhumana nezinye izingane ezinomdlavuza, noma ezinomzali onomdlavuza, kuyilapho ezinye zinganikeza ukwesekwa okungokoqobo.
- I-Lymphoma ezinganeni, intsha kanye nabantu abadala
- Amathiphu abazali nababheki
- I-Kids Cancer Charity & Family Support Australia | I-Redkite
- Ikamu kanye Nezindawo Zokuhlala Zezingane Ezibhekene Nomdlavuza | Ikhwalithi Yekamu
- ICanteen Connect – Umphakathi Wentsha Ehlaselwe Umdlavuza
- Ihabhu lomdlavuza | Izinsizakalo Zokusekela Imindeni Ebhekene Nomdlavuza
- Ukuba umzali ngomdlavuza
- Usizo Lwezezimali Lwemindeni - Izingane ezinomdlavuza
- Isisekelo sikaSony - ukusiza ngokulondoloza inzalo.
Isikole nokufundisa
Uma ingane yakho ineminyaka yesikole ungase ukhathazeke ngokuthi izoqhubeka kanjani nesikole ngenkathi ithola ukwelashwa. Noma mhlawumbe, ubumatasa ngakho konke okwenzekayo kangangokuthi awuzange ube nethuba lokucabanga ngakho.
Ezinye izingane zakho nazo zingase ziphuthe esikoleni uma umndeni wakho kufanele uhambe amabanga futhi ungahlali ekhaya ngesikhathi ingane yakho ene-lymphoma isesibhedlela.
Kodwa ukucabanga ngesikole kubalulekile. Izingane eziningi ezine-lymphoma zingelapheka futhi zizodinga ukubuyela esikoleni ngesikhathi esithile. Izibhedlela eziningi zezingane ezinkulu zinesevisi yokufundisa noma isikole ingane yakho ene-lymphoma kanye nezinye izingane zakho ongaya kuso ngenkathi ingane yakho ilashwa noma isesibhedlela.
Izibhedlela ezinkulu ezingezansi zinezinsiza zesikole ngaphakathi kwenkonzo yazo. Uma ingane yakho ithola ukwelashwa esibhedlela esihlukile kunalezi ezibalwe lapha, yibuze mayelana nokusekelwa kwesikole okutholakalayo kwengane/abantwana bakho.
I-QLD. - Isikole Sesibhedlela Sezingane sase-Queensland (eq.edu.au)
VIC. - I-Victoria, Isikhungo Sezemfundo: Isikhungo Sezemfundo (rch.org.au)
SA - Izinhlelo zemfundo yeSikole Sesibhedlela saseNingizimu Australia
WA - Isikole esisesibhedlela (health.wa.gov.au)
I-NSW - Isikole esibhedlela | I-Sydney Children Hospitals Network (nsw.gov.au)
Kungakhathaliseki ukuthi ungumzali onakekela ingane endala ene-lymphoma, noma umuntu omdala onakekela umzali wakho one-lymphoma, noma umngane onakekela umngane wakho, kuzoba nezinguquko ekuguquguqukeni kobudlelwane benu.
Abanakekeli babazali
Njengomzali onakekela indodana noma indodakazi yakho endala kungase kudingeke wenze izinguquko eziningi endleleni yakho yokuphila. Lokhu kungaba nzima uma unezinye izibopho. Ukuguquguquka kobudlelwano bakho nakho kungashintsha njengoba ingane yakho endala iphinda incike ekunakekelweni nasekusekelweni kwakho. Kwabanye lokhu kungase kukusondeze, kwabanye kungase kube inselele. Udokotela wakho angaba ukusekela okukhulu. Ezinye izinkonzo abangase bakwazi ukukubhekisa kuzo zibalwe ngezansi ekhasini.
luyimfihlo
Ingane yakho endala inelungelo lokugcinwa kuyimfihlo kwamarekhodi ayo ezempilo. Futhi banelungelo lokukhetha ukuhamba ngama-aphoyintimenti bodwa, noma nobani abamkhethayo.
Kungaba nzima kakhulu njengomzali ukwamukela lokhu, kodwa abanye abantu babhekana kangcono nesimo lapho kungadingeki babelane ngakho konke. Kubalulekile ukwamukela isinqumo sabo sokuthi lungakanani ulwazi abafuna ukwabelana nawe. Kodwa-ke, uma befuna ukuthi uhambe nabo, kuyindlela enhle yokubonisa ukusekela futhi uhlale unolwazi lwakamuva ngalokho abangase bakudinge.
Babuze ukuthi yini abangayikhetha futhi uhloniphe isinqumo sabo.
Ukunakekela umzali one-lymphoma
Ukunakekela umzali one-lymphoma kungaba okuzuzisa kakhulu futhi kuyindlela yokubonisa uthando lwakho nokwazisa ngakho konke akwenzele kona. Nokho, kungase futhi kufike nezinselele.
Indima yomzali ukuvikela izingane zabo, ngakho ngezinye izikhathi kungaba nzima kumzali ukuthembela ezinganeni zabo - ngisho nezingane esezikhulile. Bangase bafune ukukuvikela eqinisweni lalokho ababhekene nakho noma umuzwa wabo, futhi bangase bangabelani ngalo lonke ulwazi onomuzwa wokuthi uludinga ukuze ubasekele.
Abantu abaningi asebekhulile abafuni ulwazi oluningi futhi bangathanda ukushiyela izinqumo kudokotela wabo onguchwepheshe. Lokhu kungaba nzima uma ungumnakekeli wabazali.
Kubalulekile ukuhlonipha ilungelo labazali bakho lokugcinwa kuyimfihlo kanye nokuzimela kwabo.
Sengikushilo lokho, usadinga ulwazi olwanele ukuze ukwazi ukunakekela nokumela umzali wakho. Ukuthola ibhalansi efanele kungaba nzima futhi kuthathe isikhathi nokuzijwayeza. Uma umzali wakho evuma, zama ukuya ezikhathini eziningi amisiwe nabo. Lokhu kuzokunika ithuba lokubuza imibuzo futhi ube nombono ongcono walokho okwenzekayo. Yazi ukuthi umzali wakho akudingeki avumelane nalokhu, kodwa uma benza kanjalo, kuyindlela enhle yokwakha ubuhlobo nethimba lokunakekelwa kwezempilo futhi uhlale unolwazi lwakamuva.
Ukwesekwa okwengeziwe kuyatholakala ngodokotela wakho.
Ukunakekela umngane
Ukunakekela umngane nge-lymphoma kuzoshintsha ukuguquguquka kobungani bakho. Okunihlanganise njengabangani nezinto enajwayele ukuzenza ndawonye zizoshintsha. Lokhu kungaba yinselele, kodwa abantu abaningi bathola ubungane babo bujula kakhulu kunangaphambili kwe-lymphoma.
Uzodinga ukuzinakekela nawe futhi wazi ukuthi umngane wakho ngeke akwazi ukukunikeza ukwesekwa nobungane obufanayo njengoba enza ngaphambili. Okungenani hhayi okwesikhashana. Sinamanye amathiphu amahle kakhulu phansi kwekhasi okuthi ungamsekela kanjani umngane wakho futhi ulondoloze ubungane bakho kuyilapho ungumnakekeli wabo.
Ukulinganisa ukunakekela nomsebenzi, izingane kanye neminye imithwalo yemfanelo
Ukuxilongwa kwe-lymphoma kuvame ukufika ngaphandle kwesixwayiso. Futhi ngokudabukisayo, bambalwa kakhulu abanakekeli abangaba abacebile abazimele. Kungenzeka ukuthi uyasebenza, uyafunda noma ufuna umsebenzi. Futhi sonke sinezikweletu okufanele sizikhokhe. Ungase ube nendlu yakho ongayigcina ihlelekile, mhlawumbe izingane zakho kanye neminye imithwalo yemfanelo.
Ayikho yalezi zibopho ezishintshayo lapho ukuxilongwa kwe-lymphoma okungalindelekile kwenzeka kothandekayo wakho, noma lapho impilo yakhe ishintsha futhi edinga ukwesekwa okwengeziwe okuvela kuwe kunangaphambili. Kudingeka uzinike isikhathi sokuhlela ngendlela enengqondo ukuthi singakanani isikhathi onaso sokunakekela othandekayo wakho.
Ungase udinge ukuthola iqembu labantu, abafowethu nodadewethu, abangani noma abanye abangabelana ngomthwalo. Ngisho noma bengathathi indima yokuba ngumnakekeli osemthethweni, ngokuqinisekile bangasiza ngezinye izici ezingokoqobo zokunakekela njengokusiza ngomsebenzi wasendlini, ukucosha izingane, ukupheka ukudla noma ukuyothenga.
Ngokuqhubekayo phansi kwekhasi ngaphansi kwesigaba Amathiphu abanakekeli amanye amaphoyinti amachashazi axhuma kumawebhusayithi ahlukahlukene noma izinhlelo zokusebenza ezingasiza ukuxhumanisa usekelo ongaludinga.
Umthelela womzwelo we-lymphoma
I-Lymphoma inomthelela ongokomzwelo kuwo wonke umuntu othintekayo. Kodwa ngokuvamile kubonakala kuthinta isiguli nabathandekayo baso ngendlela ehlukile, futhi ngezinye izikhathi ngezikhathi ezihlukene.
Kungakhathaliseki ukuthi uzama kangakanani, awusoze waqonda ngokugcwele ukuthi kunjani kumuntu wakho one-lymphoma. Ngokunjalo, kungakhathaliseki ukuthi bazama kangakanani, ngeke baqonde ngempela ukuthi kunjani kuwena ubabuka bedlula i-lymphoma, kungukwelashwa kanye nokuzijwayeza ukuphoqwa empilweni yokuskena, ukuhlolwa, ukwelashwa nokuzizwa ungaphilile noma ungavikelekile.
Ngokuya ngobudlelwano bakho nomuntu wakho one-lymphoma, umthelela onawo ebudlelwaneni bakho uzoza nezinselelo ezahlukene.
Ukutholakala nomdlavuza akuyona into evamile. Ngokudabukisayo, kuya ngokuya kuvame, kodwa ngokuqinisekile akuyona into evamile. Ngakho-ke ayikho indlela evamile yokusabela ezindabeni zomdlavuza noma izinselelo ozilethayo.
Isipiliyoni somuntu ngamunye sizohluka. Ngisho naphakathi kwemindeni, ilungu ngalinye lomndeni lizoba nemicabango, imizwa kanye nokusabela okuhlukile ezindabeni zabo noma zothandekayo onomdlavuza.
Ukwelashwa kuvame ukuba nzima kakhulu kumnakekeli - Ukuqeda ukwelashwa kuvame ukuba nzima kumuntu one-lymphoma!
Ukuxilongwa kwe-lymphoma kunzima kuwo wonke umuntu! Ukuphila kuzoshintsha isikhashana, futhi mhlawumbe kuze kube phakade ngezinga elithile. Nakuba kungeyena wonke umuntu one-lymphoma odinga ukwelashwa ngokushesha, abantu abaningi bayakwenza. Kodwa ngisho nalapho ukwelashwa kungadingeki ngokushesha, kusekhona imizwa ezungeze ukuxilongwa, futhi kusadingeka ukuhlolwa okwengeziwe nokuqokwa okungabangela ukukhathazeka nokucindezeleka.
Uma umuntu wakho engaqali ukwelashwa ngokushesha, ungathola leli khasi lewebhu elingezansi liwusizo.
Lapho kuholela ekuxilongweni okusemthethweni bese kwenziwa izivivinyo nokuqala ukwelashwa, impilo izoba matasa. Njengomnakekeli, kungase kudingeke ukuba uhole kulezi zinto eziningi, ukwenza ama-aphoyintimenti, ukushayela uye ezindaweni ezimisiwe kanye nokuba nomuntu wakho phakathi nezindaba ezinzima kakhulu azozizwa kanye nezinqumo okufanele bazithathe.
Ngalesi sikhathi, umuntu wakho one-lymphoma angase angene kwimodi yebhizinisi. Noma kungenzeka ukuphika, noma ukugula kakhulu ukubhekana nemizwa yalokho okwenzekayo. Noma mhlawumbe bayokhala futhi bakudinge ukuba ubaduduze futhi ubasekele njengoba beqala ukuzwa indlela abazizwa ngayo. Bangase bakushiyele konke ngesikhathi begxile ekwelashweni.
Amathiphu abanakekeli ekuholeni, nangesikhathi sokwelashwa
- Yiba nencwadi, idayari noma ifolda kudivayisi yakho ukuze ulandelele wonke ama-aphoyintimenti.
- Gcwalisa Xhumana nathi ukwenza isiqiniseko sokuthi wena nomuntu wakho one-lymphoma niyakwazi ukufinyelela olwazini olubuyekeziwe lohlobo oluncane lwe-lymphoma, izindlela zokwelapha, izehlakalo kanye nesethi yokwesekwa kokwelashwa lapho ukwelashwa kuqala. Ungagcwalisa ifomu ngokuthi ngokuchofoza lapha.
- Thatha ukudla okulula okunempilo neziphuzo uye kuma-aphoyintimenti - ngezinye izikhathi ukubambezeleka kungenzeka futhi izinsuku zokwelashwa zingase zibe zinde.
- Buza umuntu wakho ukuthi lungakanani ulwazi angathanda ukwabelana ngalo nabanye. Abanye abantu bathanda ukwabelana ngakho konke kuyilapho abanye bethanda ukugcina izinto ziyimfihlo. Cabanga ngendlela yokwabelana ngolwazi, eminye imibono ingabandakanya:
- Qala ikhasi eliyimfihlo le-Facebook (noma enye inkundla yezokuxhumana) ongabelana ngayo nabantu ofuna ukubagcina benolwazi.
- Qala ingxoxo yeqembu kusevisi yemiyalezo efana ne-WhatsApp, i-Facebook Messenger noma okufanayo ukuze uthumele izibuyekezo ezisheshayo kuyo.
- Qala Ibhulogi eku-inthanethi (idayari) noma i-VLOG (idayari yevidiyo) ukuze wabelane ngayo.
- Thatha amanothi ngesikhathi se-aphoyintimenti ukuze ubuyele emuva kamuva, noma ubuze udokotela ukuthi ungakwazi yini ukurekhoda i-aphoyintimenti ocingweni lwakho noma kwenye idivayisi yokurekhoda.
- Bhala phansi encwadini yakho, idayari noma shayela ucingo lomuntu wakho uhlobo oluncane lwe-lymphoma, ukungezwani komzimba nezinto ezithile, izimpawu, igama lokwelashwa kanye nemiphumela engemihle.
- Phrinta kuvaliwe noma landa Imibuzo okufanele uyibuze udokotela wakho ukuya kuma-aphoyintimenti akho - futhi wengeze noma yini eyengeziwe wena noma umuntu wakho eningaba nayo.
- Iba nesikhwama esipakishiwe sanoma yikuphi ukulala esibhedlela okungalindelekile ukuze usigcine emotweni noma ngasemnyango. Iphakethe:
- izindlu zangasese
- ama-pajamas
- izingubo ezikhululekile ezikhululekile
- izicathulo ezingasheleli ezilingana kahle
- ifoni, ikhompuyutha ephathekayo, ithebhulethi namashaja
- amathoyizi, izincwadi, iphazili noma eminye imisebenzi
- ukudla okulula.
- Isithunywa - shayela wena umndeni kanye namaqembu omphakathi ukuze ubone ukuthi ubani ongakwazi ukukusiza ngezinto ezithile ezingokoqobo njengokuthenga, ukupheka ukudla, ukuvakasha, ukuhlanza indlu, ukulanda izingane esikoleni. Ezinye zalezi zinhlelo zokusebenza ezilandelayo zingase zibe usizo:
Ingabe umuntu wakho one-lymphoma unezingane?
- I-Kids Cancer Charity & Family Support Australia | I-Redkite
- Ikamu kanye Nezindawo Zokuhlala Zezingane Ezibhekene Nomdlavuza | Ikhwalithi Yekamu
- ICanteen Connect – Umphakathi Wentsha Ehlaselwe Umdlavuza
- Ihabhu lomdlavuza | Izinsizakalo Zokusekela Zemindeni Ukubhekana Nomdlavuza
Bese kuqala ukwelashwa!
Sivame ukuzwa ngeziguli ukuthi ukwelashwa bekulula uma kuqhathaniswa nempilo yangemva kokwelashwa. Lokho akusho ukuthi ukwelashwa kulula. Basazokhathala futhi babe nemiphumela engemihle yokwelashwa. Kodwa abantu abaningi bakhungathekile futhi bamatasa ngokuthola ukwelashwa kangangokuthi bangase bangabi naso isikhathi sokucubungula okwenzekayo - Kuze kuphele ukwelashwa.
Njengomnakekeli, uma impilo ibikade ingekho matasatasa ngokwanele, kuzoba uma sekuqala ukwelashwa! Kunezinhlobo ezahlukene zokwelapha kubantu abahlukene kanye nezinhlobo ezahlukene ze-lymphoma. Kodwa ukwelashwa okuningi kuthatha izinyanga (izinyanga ezi-4-6) okungenani, kanti ezinye zingahlala iminyaka.
Ama-aphoyintimenti aqhubekayo
Kanye nokwelashwa, umuntu wakho uzodinga nokuhlolwa kwegazi njalo, abonane nodokotela wakhe wegazi noma i-oncologist KANYE nodokotela wendawo (GP) kanye ne-PET/CT noma ezinye izikena ezivamile. Bangase badinge nokunye ukuhlola ukuze kuqashwe ukuthi inhliziyo, amaphaphu nezinso kubhekana kanjani nokwelashwa.
Okuqhamuka uma udla imishanguzo
Konke ukwelashwa kunemiphumela engemihle engaba khona, uhlobo lomphumela ungase wehluke kuye ngohlobo lokwelashwa. Abantu abahlukene abathola ukwelashwa okufanayo bangaba nemiphumela engemihle ehlukene noma ubukhali bemiphumela engemihle bungase buhluke.
Njengomnakekeli, uzodinga ukwazi ngale miphumela engemihle ukuze ukwazi ukukweseka umuntu osekhaya, futhi wazi ukuthi ungathintana nini nodokotela noma uye emnyangweni wezimo eziphuthumayo. Qiniseka ukuthi uyabuza mayelana nemiphumela engemihle yohlobo oluthile lokwelashwa umuntu wakho alutholayo. I-hematologist yabo noma i-oncologist, umhlengikazi onguchwepheshe noma usokhemisi bazokwazi ukukusiza ngalokhu. Ungaphinde ushayele onesi bethu 1800 953 081 ukuze uthole okwengeziwe uma udinga.
Uma usuwazi ukuthi yimiphi imiphumela emibi umuntu wakho angase ayithole, vakashela ikhasi lethu lemiphumela emibi ngokuchofoza isixhumanisi esingezansi ukuze ufunde kabanzi ngayo.
Umuthi ungathinta imizwa nemizwelo yabo
Eminye imithi yokwelapha i-lymphoma, kanye neminye imithi okungenzeka ukuthi bayayithatha, kanye nokucindezeleka kwe-lymphoma kungathinta imizwa nemizwelo yabantu. Lokhu kungabenza bakhale, bathukuthele noma babe nolaka olufushane, bakhungatheke noma badabuke kakhulu kunokujwayelekile. Funda kabanzi ngalokhu ekhasini lethu lewebhu Impilo yengqondo nemizwelo.
Kubalulekile ukukhumbula ukuthi lezi zinguquko zesimo sengqondo nemizwa aziphathelene nawe noma ukuthi wenza kahle kangakanani njengomnakekeli. Futhi akukhona ukubonakaliswa kweqiniso kwemizwa yabo yangempela. Kuwukusabela kokuthi umuthi uthinta kanjani amahomoni ahlukene namasignali ebuchosheni.
Uma ukhathazekile ngokuthi ukushintsha kwemizwa nemizwelo kubathinta kanjani, wena nabanye, bakhuthaze ukuba bakhulume nodokotela wabo ngakho. Uma uya kuma-aphoyintimenti nomuntu wakho, ungakwazi futhi ukukhuluma nodokotela mayelana nalezi zinguquko. Ezimweni eziningi, lokhu kungathuthukiswa ngokushintsha imithi noma umthamo.
luyimfihlo
Nakuba lokhu kungase kube nzima, njengomnakekeli awunalungelo lawo wonke amarekhodi akho ezokwelapha noma ulwazi. Izibhedlela, odokotela, abahlengikazi kanye nabanye abasebenzi bezempilo baboshwe yimithetho yokugcinwa kwemfihlo futhi abakwazi ukwabelana nawe ngolwazi lwezokwelapha noma amarekhodi ngaphandle kwemvume ecacile, futhi ngokuvamile ebhaliwe evela kumuntu wakho.
Umuntu wakho futhi unelungelo lokwabelana kuphela ngalokho akhululekile ukwabelana nawe ngakho. Udinga ukukuhlonipha lokhu ngisho noma ushadile, usebudlelwaneni obuzibophezele noma umzali noma ingane yomuntu one-lymphoma. Abanye abantu badinga isikhathi sokucubungula ulwazi olusha futhi benze uhlelo ekhanda labo ngaphambi kokuba bakhululeke ukwabelana ngolwazi. Abanye bangase bafune ukukuvikela ezintweni ezibacindezelayo.
Ukuthi babelana nawe kungakanani noma okuncane kangakanani akubonisi ukuthi bayakuthanda noma bakwethemba kangakanani. Kumane kuyindlela yomuntu yokubhekana nayo kubantu abaningi.
Uma ungathanda ulwazi olwengeziwe, yazisa umuntu wakho one-lymphoma ukuthi uma eselungile, ungathanda ukwazi okwengeziwe ukuze ukwazi ukumsekela ngokusemandleni akho, futhi wenze noma yiziphi izinhlelo ongase udinge ukuzenza. Kodwa futhi ubazise ukuthi uyalihlonipha ilungelo labo lokuba yimfihlo.
Umuntu wakho angase athole ukuqeda ukwelashwa kunzima kunokwelashwa ngokwakho!
Sivame ukuzwa kubantu abane-lymphoma ukuthi babelungile ngenkathi bethola ukwelashwa, kodwa izinyanga ngemva kokuqeda ukwelashwa kwakuyinselele yangempela. Ukuthola ukuthi zingena kuphi empilweni, umndeni, umsebenzi/isikole noma amaqembu okuxhumana nabantu kungathatha isikhathi. Abantu abaningi basitshele ukuthi bazizwa belahlekile phakathi nezinyanga ngemuva kokuphela kokwelashwa.
Abantu abaningi abane-lymphoma bazoba nokukhathala okuqhubekayo, nezinye izimpawu noma imiphumela emibi yokwelashwa engathatha izinyanga ngemva kokwelashwa. Abanye bangase babe nemiphumela engemihle yesikhathi eside edinga ukuphathwa okuqhubekayo ukuphila kwakho konke. Ngakho isipiliyoni se-lymphoma asipheli lapho ukwelashwa kwenzeka.
Kwabanye abantu, umthelela ongokomzwelo wokutholakala ne-lymphoma kanye nokwelashwa awushayi kuze kube ngemva kokuphela kokuba matasa kwama-aphoyintimenti, ukuskena, ukuhlolwa nokwelashwa.
Ukulindela okunengqondo
Okunye esikuzwa kakhulu ezigulini ukuthi wonke umuntu ulindele ukuthi zibuyele kwesijwayelekile manje ukwelashwa sekuphelile. Lokhu ukulindela okungenangqondo!
Ngakolunye uhlangothi, abanye abantu bakhungatheka ngenxa yabathandekayo babo abangabavumeli ukuba babuyele ezingeni elithile lesimo esivamile.
Babuze ukuthi badingani!
Okuwukuphela kwendlela yokwazi ukuthi umuntu wakho udingani ukumbuza. Qonda ukuthi kungase kuthathe isikhathi ukuze baphinde babe nokuzethemba, futhi bangase bangaphinde babuyele lapho ababekhona ngaphambili. Kodwa lokhu akufanele kube yinto embi. Yisikhathi esihle sokususa izingcindezi ezingadingekile empilweni yakho futhi ugxile ezintweni ezibalulekile.
Ukwenza izinhlelo
Abanye abantu bakuthola kuyasiza ukwenza izinhlelo zokubheka phambili kokuthile lapho ukwelashwa kuphela. Kodwa-ke, abanye abantu bangase bangabi nesibindi sokuhlela noma yini kuze kube yilapho sebenesikhathi esithile sokululama futhi baphinde bahlole ukuze baqiniseke ukuthi i-lymphoma yelaphekile noma ixolelwe. Noma yini esebenzela umuntu wakho ilungile. Ayikho indlela efanele yokusingatha lokhu.
Nokho, ungase ube nomuzwa wokuthi udinga ukwenza izinhlelo ngisho noma umuntu wakho engakakulungeli. Lokhu kunengqondo kakhulu, futhi okubalulekile ukuthi niqhubeke nikhulumisana ukuze nithole uhlelo oluzonisebenzela nobabili.
Usekelo luyatholakala
Akekho umnakekeli okufanele anakekele yedwa. Kubalulekile ukuthi uxhumane nabantu abahlukene - abangani bomuntu siqu nomndeni kanye nabasebenzi bezempilo.
Yazisa abantu ukuthi yini oyidingayo
Uyakholwa noma ungakholwa, abantu abaningi bafuna ukusiza. Inkinga iwukuthi, abantu abaningi abazi ukuthi kanjani. Iningi labantu alikutholi ukuqeqeshwa noma ulwazi mayelana nendlela yokukhuluma, noma ukuphatha izinto ezinzima njengokugula.
Abantu abaningi bakhathazekile ngokuthi uma bezama ukukhuluma nawe ngesimo sakho, bangase bakucasule, bakuphathe kabi noma bakuphoxe. Abanye abazi ukuthi bazothini. Ngakho-ke abantu abaningi banquma ukukhuluma ngakho kuphela uma ukuveza. Lokhu akusho ukuthi abanandaba.
Kodwa ubonakala ulungile!
Uma uhlangana nabangane nomndeni kuphela lapho unamandla, ubukeka kahle kakhulu futhi ubatshela ukuthi konke kuhamba kahle, ungalindela kanjani ukuthi bazi ukuthi udinga usizo?
Yazisa abantu ukuthi yini oyidingayo. Yazisa abantu ukuthi ukulungele ukuxoxa nokwabelana ngezinkinga zakho. Lokhu kungathatha ukuzijwayeza. Futhi ungase ungayitholi njalo impendulo obuyilindele, kodwa awukwazi ukulindela ukuthi abantu bazi okudingayo ngaphandle kokuba ubazise.
Ungalindeli ukuthi baqagele! Kungaba kuhle uma abantu bengafunda izingqondo zethu, kodwa abakwazi futhi okungenangqondo ukulindela ukuthi abantu bazi okudingayo, ngoba isimo nezidingo zawo wonke umuntu zihlukile.
Cabanga ngamanye amanethiwekhi angezansi ongakwazi ukukhuluma nawo noma ucele ukwesekwa kuwo.
Ungase ukwazi ukuncika kubaholi benkolo yakho kanye nebandla ukuze uthole usizo olungokomzwelo, lomoya kanye nolungokoqobo. Zinike isikhathi sokukhuluma nabo futhi ubazise ukuthi ubhekene nani futhi ubuze ukuthi yiluphi usizo abangalunikeza.
Uma ukhululekile ngalowo mbono, babuze ukuthi bangakwazi yini ukufaka okuthile ephephandabeni labo noma okunye ukuxhumana njalo namanye amalungu ukuze bacele usizo olungokoqobo noma ngabe luvamile noma nje kanye. Ungakwazi ngisho ukukwenza lokhu ngokungaziwa ukuthi kuphela labo abaya kumholi webandla banikezwe imininingwane yakho.
Abantu abaningi bangamalungu ezemidlalo noma amanye amaqembu omphakathi. Uma uneqembu futhi uxhumene kahle namanye amalungu, khuluma nawo ngokuthi impilo yakho ishintsha kanjani ngenxa yendima yakho entsha njengomnakekeli. Bazise ukuthi udinga usizo ngani futhi ubuze ukuthi kukhona yini amaziyo ongasiza.
Uma ukhululekile ngalowo mbono, babuze ukuthi bangakwazi yini ukufaka okuthile ephephandabeni labo noma okunye ukuxhumana njalo namanye amalungu ukuze bacele usizo olungokoqobo noma ngabe luvamile noma nje kanye. Ungakwazi ngisho ukukwenza lokhu ngokungaziwa nalabo abaya kumholi weqembu unikezwe imininingwane yakho.
Ngisho noma kungewena one-lymphoma, kusabalulekile ukuthi uxhunywe nodokotela. Odokotela bangaba uhlobo oluhle lokusekela futhi bakusize uhlanganise ukunakekelwa ongase ukudinge.
Sincoma ukuthi wonke umuntu one-lymphoma kanye nabanakekeli babo babe nohlelo lwezempilo yengqondo olwenziwe nodokotela wakho. Lokhu kungabheka izingcindezi ezengeziwe kanye nezibopho onazo manje futhi wenze uhlelo lokuqinisekisa ukuthi wesekwa ngokwelulekwa, isazi sokusebenza kwengqondo, umuthi noma okunye ukwesekwa ongase ukudinge.
Ungase ube nezimo zezokwelapha ngokwakho okudingeka uzilawule ngenkathi unakekela umuntu wakho. Udokotela wakho angakwazi futhi ukwenza uhlelo lokuphatha lukaGP ukuze aqinisekise ukuthi lezi zinto aziphuthelwa ngenkathi umatasa unakekela othandekayo wakho. Bangakwazi futhi ukukuxhumanisa nezinhlangano zasendaweni ezingakusiza.
Izinkonzo Ezengeziwe Udokotela wakho angakudlulisela kuwo
Kubalulekile ukuthola usizo oludingayo ukuze ukwazi ukuphatha lezi zinguquko. Khuluma nodokotela wakho mayelana nezinsiza ezitholakala endaweni yangakini. Bangasiza ukuhlanganisa ukunakekelwa kwakho ngokukubhekisa ezinsizeni ezahlukene emphakathini. Okunye okungasiza kubandakanya okulandelayo.
- Izazi zokusebenza kwengqondo noma abeluleki ukusiza ngezinselele ezingokomzwelo nezengqondo eziza nokweseka umuntu one-lymphoma.
- Abelaphi basemsebenzini abangasiza ukuhlola izidingo zakho futhi bakusize uthole ukwesekwa ngokomzimba okufanele ukuze unakekele umuntu wakho.
- Osonhlalakahle abangakusiza ukuthi ufinyelele ukwesekwa okuhlukene kwezenhlalo nezezimali.
Izibhedlela eziningi zinomnyango wezenhlalakahle. Ungacela ukudluliselwa kusonhlalakahle esibhedlela sakho. Uma isibhedlela sakho singenawo umnyango wosonhlalakahle, udokotela wasendaweni yangakini angakwazi ukukuxhumanisa nomphakathi wakini.
Osonhlalakahle bangasiza ngokwelulekwa, ukudlulisela ezinsizeni ezahlukene ukuze uthole ukwesekwa okwengeziwe, ukuxhumanisa ukunakekelwa komuntu omthandayo, kanye nokukumela.
Bangakusiza futhi ukuthi ufinyelele ukwesekwa kwezezimali, usizo lokuhamba kanye nendawo yokuhlala noma ezinye izinsiza zezempilo nezomthetho uma kudingeka.
I-Carer Gateway iwuhlelo lukaHulumeni wase-Australia olunikeza ukusekelwa kwamahhala ngokomzwelo nokungokoqobo kubanakekeli. Ungathola ulwazi olwengeziwe ngabo lapha: Career Gateway.
Abahlengikazi bethu be-Lymphoma Australia bayatholakala ngoMsombuluko - ngoLwesihlanu 9am kuya ku-4:30pm.
Ungaxhumana nabo ngocingo ku-1800 953 081 noma nge-imeyili nurse@lymphoma.org.au.
Bangaphendula imibuzo yakho, balalele okukukhathazayo futhi bakusize uthole izinsiza zokwesekwa zothandiweyo wakho noma wena ngokwakho.
I-Lymphoma Down Under iyiqembu eliku-inthanethi lokusekela ontanga ku-Facebook. Inganyelwe yi-Lymphoma Australia kodwa eyeziguli nabathandekayo bazo. Abantu abaningi bathola ukuxoxa nabanye abane-lymphoma noma ukunakekela labo abane-lymphoma nokuzwa izindaba zabo kuwusizo ngempela.
Ungajoyina ngokuphendula imibuzo yobulungu futhi uvumelane nemithetho yeqembu lapha: I-Lymphoma Phansi Ngaphansi.
Usizo lwezezimali lwabanakekeli
Ungase ukwazi ukuthola isibonelelo ku-Centerlink ukuze usize njengoba unakekela othandekayo wakho. Kokubili wena, nomuntu omnakekelayo kuzodingeka nihlangabezane nezidingo ezithile ukuze nifaneleke.
Ulwazi ngezinkokhelo zomnakekeli kanye nezibonelelo zabanakekeli zingatholakala ekhasini lewebhu le-Services Australia.
Ukugcina ubungane nobunye ubudlelwano
Abantu abaningi baqaphela izinguquko ebunganini babo kanye nezinguquko zomndeni lapho bephila nomdlavuza. Abanye abantu bathola ukuthi abasondelene kakhulu nabo baba kude, kanti abanye abebengasondelene nabo, basondele.
Ngeshwa, abantu abaningi abazange bafundiswe ukukhuluma ngokugula nezinye izinto ezinzima. Lapho abantu behlehla, ngokuvamile kungenxa yokuthi abazi ukuthi bathini, noma besaba noma yini abayoyisho, izokucasula noma yenze izinto zibe zimbi nakakhulu.
Abanye bangase bakhathazeke ngokwabelana ngezindaba zabo ezinhle noma ezimbi, noma imizwa nawe. Bangase bangafuni ukukuthwalisa kanzima ngesikhathi ungaphilile. Noma, bangase bazizwe benecala lapho izinto zibahambela kahle lapho unokuningi okwenzekayo.
Amathiphu okuthi ungabugcina kanjani ubudlelwano nabangane nomndeni
Ungasiza abangani bakho nomndeni ukuthi baqonde ukuthi kulungile ukukhuluma nge-lymphoma noma ukwelashwa othandekayo wakho aba nakho uma efuna. Noma ngisho ukukhuluma ngalokho okwenzekayo ekuphileni kwabo. Uma ukhululekile ukukhuluma ngesimo sakho, buza imibuzo efana nalena:
- Yini ongathanda ukuyazi nge-lymphoma?
- Imiphi imibuzo onayo mayelana nokwelashwa (kothandekayo wakho) kanye nemiphumela engemihle?
- Kungakanani ofuna ukukwazi?
- Izinto zizohluka kimi okwesikhashana, singahlala kanjani sithintana?
- Ngizoba matasatasa ngokweseka othandiweyo wami okwesikhashana. Ngingase ngidinge usizo oluthile ngezinto ezinjengokupheka, ukuhlanza, ukunakekela izingane. Ungasiza ngani?
- Ngisafuna ukwazi ukuthi kwenzekani ngawe - Ngitshele okuhle nokubi - Futhi konke okuphakathi!
- Angifuni ukukhuluma nge-lymphoma kodwa ngibuze mayelana (noma ngabe yini ongathanda ukukhuluma ngayo).
- Uyawazi amahlaya amahle? Ngidinga ukuhleka.
- Ungakwazi yini ukuhlala lapha nami ngenkathi ngikhala, noma ngicabanga noma ngiphumule?
- Uma unamandla, ungababuza ukuthi - Yini oyidingayo kimi?
Yazisa abantu uma kulungile ukuvakasha, noma ukuthi ungathanda ukuhlala uthintana kanjani
Ukwelashwa kungehlisa amasosha akho omzimba obathandayo. Kubalulekile ukwazisa abantu ukuthi kungase kungaphephile ngaso sonke isikhathi ukuvakasha, kodwa ukuthi uma kwenzeka bangakwazi ukugona.
- Kwazise bangahambi uma begula. Cabangela ezinye izindlela zokuxhumana.
- Uma ukhululekile ukwanga abantu futhi bephilile, bazise ukuthi udinga ukwanga.
- Bukelani imuvi ndawonye - kodwa emakhaya enu ngokusondeza, ividiyo noma ucingo.
- Vula ingxoxo yeqembu kweyodwa yezinsiza zemiyalezo noma zevidiyo ezitholakalayo.
- Qala uhlelo, ngoba uma ukuvakasha kwamukelekile nokuthi yini okudingeka yenziwe. Izinhlelo zokusebenza ezingenhla zingasiza ngalokhu.
Futhi ekugcineni, uma ubona ubudlelwano buyashintsha, khuluma ngakho. Yazisa abantu ukuthi basabalulekile, futhi usafuna ukulondoloza ukusondelana owawunakho ngaphambilini.
Okunye Resources
Isifinyezo
- Indima yomnakekeli ingeyomuntu ngamunye ngokusekelwe ebudlelwaneni bakho nomuntu wakho one-lymphoma kanye nezidingo zakhe ngabanye.
- Abanakekeli kungenzeka kube amalungu omndeni, abangani noma bevela ezinsizeni ezikhokhelwayo.
- Noma ubani angaba umnakekeli kuhlanganise nezingane futhi ungase ube nendima yokunakekela ehlelekile noma engakahleleki.
- Njengomnakekeli awuwedwa, kunezinsizakalo ezitholakalayo zokukusekela, futhi ezinye izinkokhelo ongase uzifanelekele.
- Ukuqonda i-lymphoma, ukwelashwa kwayo, kanye nemiphumela engemihle kuzokusiza uqonde indlela yokusekela umuntu wakho kangcono.
- Umuntu wakho angase adinge ukwesekwa kwakho njengomnakekeli isikhathi eside ngemva kokuphela kokwelashwa.
- Noma ungumnakekeli, uzodinga ukwesekwa nawe. Yazisa abantu ukuthi yini oyidingayo.
- Thola udokotela omuhle futhi uhlale uxhumana naye njalo. Bangasiza ukuhlanganisa izinsiza ezihlukene zosekelo ongase uzidinge.
- Ungashayela omunye wabahlengikazi bethu ku-1800 953 081 ngoMsombuluko - ngoLwesihlanu 9am-4:30 pm ngesikhathi saseBrisbane.
