Parliament 2 Opera 2015 kicked off our World Lymphoma Awareness month campaign

Parliament 2Opera 2015 kicked off our World Lymphoma Awareness month campaign.

This is the fifth year that P20 (an annual bike ride for Lymphoma Australia) has brought together patients, carers and supporters to raise awareness and support for Lymphoma. The 330 km ride takes place over 3 days and this year amongst the 27 riders were 6 patients and 13 year old Jack Ruhan who was cycling in memory of his dad Jason.  

Image: Former Prime Minister Tony Abbott with 5 of our lymphoma patients   

This event starts at Parliament House in Canberra and finishes at the Sydney Opera House.This year the team was farewelled by our former Prime Minister Tony Abbott and Lymphoma Australia was very grateful that he gave up his time to know more about our cause and to meet our wonderful team.

Image Left: 13 year old Jack Ruhan was joined by his family when he cycled more than 300kms in memory of his dad Jason. Image Right: Twin brothers Nik and Jovan founded P2O after Jovan was diagnosed with NHL                                                                                         

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Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.