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We will never let anyone face Lymphoma/CLL alone

Each day 20 Australian’s receive a Lymphoma diagnosis and if you or a loved one has been touched by Lymphoma you can call the National Lymphoma Nurse Support Line, join our closed Facebook group – Lymphoma Down Under, sign up for our e news or request our free resources to ensure you have the information you need.

Our Lymphoma Australia Nurses are professional, qualified nurses who care for patients across Australia. These Lymphoma specialist nurses deliver an essential service to patients and cancer nurses. Lymphoma Australia nurses can help you navigate the lymphoma journey and connect you with others and the appropriate support networks

With more than 80 different subtypes of Lymphoma, both diagnosis and treatment options can be confusing. Lymphoma Australia, in conjunction with our medical advisory board, helps patients and their families to understand their diagnosis and treatment options. We provide information packs to patients and hospitals and host education days and webinars to help people better understand Lymphoma.

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Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.