World Lymphoma Day announcement

On World Lymphoma Awareness Day, we would like to acknowledge and thank everyone who has helped and supported Australian Lymphoma patients on what can be a difficult and challenging journey.

Despite Lymphoma being the 6th most common cancer with over * 80 different subtypes we often feel that we are the forgotten cancer.  However, over the last decade, research, clinical trials, and the tireless work of our clinicians, nurses, patients and caregivers has resulted in Australian patients having access to many new medicines.


On the eve of World Lymphoma Day 2018 our Health Minister, Greg Hunt MP, announced that Gazyva will be available in Australia for eligible Non-Hodgkin Lymphoma Follicular patients from the 1st of October.

This now gives us a grand total of 12 new treatments that have been approved for the PBS by the government for Australian patients over the last 2 years. (This also incudes some very rare sub types).

Clinical trials and access to new medicines gives patients hope for the future and we will continue to advocate for the gold standard of care for our Australian patients.

Blood cancer drugs added to PBS: https://www.9news.com.au/national/2018/09/14/21/38/pbs-affordable-blood-cancer-drugs

 

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Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.