Tracking Long-term Effects of Cancer Treatment

Roughly 800 people are diagnosed with Hodgkin Lymphoma each year in Australia, and both adults and children can be affected.

Hodgkin Lymphoma is a type of cancer that effects blood cells called lymphocytes, and it effects the immune and lymphatic systems of the body. About 8 out of every 10 people (80%) diagnosed with Hodgkin Lymphoma are cured after their first-line therapy. In some cases, people may need more treatment.

However, what is not well understood, is how treatments for Hodgkin Lymphoma can cause long-term, or late side-effects.

A team of health professionals and patients at Concord Hospital have a plan to fix this. They have developed an app called MyHodgkin MyHealth to help track these to improve long-term outcomes and experiences for those affected by Hodgkin Lymphoma.

Click the link below to listen to Dr Nicole Wong Doo, a haematologist from Concord Hospital and Lara Meli, a Hodgkin Survivor and patient investigator as they discuss this with the ABC Radio National Health Report team.

Click to listen to
Tracking the long-term effects of cancer treatment

Other useful links

For more info see
Hodgkin Lymphoma
For more info see
Long-term and late side-effects of treatment
For more info see
Understanding the lymphatic & Immune systems
For more info see
MyHodgkin MyHealth information and Download
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Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.