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Patient Newsletter – May 2025

May 2025

Inside this edition, we will be covering the following topics:

  • Upcoming Support Groups 
  • Exercise and Lymphoma: Free Online Session
  • Save the date: Patient Education Melbourne
  • Follicular Lymphoma Webinar Recording
  • The benefits of staying active
  • Legs Out for Lymphoma
  • CAR -T Therapy: Why Some Still Miss Out
  • New Treatments for Lymphoma
  • Go Dry this July
  • Nurse Support Line 1800 953 081 
An image of a group of people wearing lime green at a park with Lymphoma Australia Banners celebrating Legs out for Lymphoma.

Click here to read the May 2025 Patient Newsletter

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Lymphoma Australia is the only incorporated charity in Australia dedicated to solely providing education, support, awareness and advocacy initiatives for Australians touched by lymphoma and chronic lymphocytic leukemia (CLL).
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Contact Lymphoma Australia Today!

Patient Support Hotline

General Enquiries

Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.