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September 1st 2025 – Lymphoma Awareness Month

Welcome to the Latest Edition of the Lymphoma Australia Newsletter

September is World Lymphoma Awareness Month

Lymphoma Matters too. Let’s put Lymphoma in the LIMELIGHT!

Raising awareness for lymphoma is vital. Not only because it fosters understanding of this cancer but also encourages early detection and advances in treatment options. By sharing your stories, educating our communities, and advocating for treatment access, we can continue to put lymphoma in the spotlight.

In this edition you will find:

  • Shine a light on lymphoma
  • World CLL day
  • Help shape the future of CLL treatment and support in Australia
  • Register now for one of our upcoming support groups
  • Meet Anthony Rocca and read about his experience with Follicular Lymphoma
  • Meet Josh – our new Lymphoma Australia Ambassador and Hodgkin Lymphoma survivor
  • Register for upcoming patient and carer education events
  • Download new factsheets on fertility and lymphoma
  • Discounts on Gloup (discount code inside)

Click here to read the full newsletter.

 

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Contact Lymphoma Australia Today!

Patient Support Hotline

General Enquiries

Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.