Donate

News

 

Patient Newsletter – September 2023

September 2023

Inside this edition, we will be covering the following topics:

  • Put Lymphoma in the LIMELIGHT
  • We want to hear about your experience
  • Recent CAR-T Advocacy at Parliament House
  • Sydney In-Person Patient Education – Wellness and Clinical Trials – October
  • Navigating Hair Loss & Look Good Feel Better
  • Spotlight on a clinical trial
  • PBAC Medication approvals
  • Missed our Session – Talking to Children and Young People about Lymphoma
  • Support groups upcoming dates
  • Nurse Support Line 1800 953 081 
Lymphoma Australia staff putting Lymphoma in the LIMELIGHT in retro lime wigs, glasses and matching colourful jackets

Click here to read the September 2023 Patient Newsletter

Download
Patient Online Forum

Find Out More

Order Our Resources

Find Out More

Fundraise for us

Get started

Share This
Cart
Checkout - $0.00
  • 0
  • 1

Contact Lymphoma Australia Today!

Patient Support Hotline

General Enquiries

Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.