World CLL Day

On 1 September 2021, the CLL community is launching World CLL Day to give those affected by a diagnosis of CLL a much needed voice, raise awareness and improve understanding of the challenges involved in living with CLL. It is the opportunity to come together and raise awareness about the vulnerability of CLL patients and other immune compromised people during the pandemic.

CLL was reclassified in 2016 by the WHO (World Health Organisation) to be known as a lymphoma as it is a cancer of the B lymphocytes.

In 2021 we are marking this date in our calendars for the very first time. On this first World CLL Day, we wish to send a message of THANKS to those with healthy immunities for protecting our community. During the COVID-19 pandemic many people experienced isolation, fear and the difficulty of keeping safe – an insight into the life of a CLL patient.

The umbrella, a form of shield, is chosen as the central campaign image. You can hold it over someone else, emphasising the aspect of proactive choice to protect others.

#wclld21 #meandmyumbrella #immunitycommunity

 

What is Chronic lymphocytic leukaemia (CLL) & small lymphocytic lymphoma (SLL)?

CLL & SLL are both indolent (slow growing) B-cell non-Hodgkin lymphomas. CLL is the second most common indolent lymphoma accounting for around 15% of all lymphoma cases and affects around 1000 Australians each year. SLL accounts for around 5% of all lymphomas and affects over 300 Australians each year.

More about CLL: https://www.lymphoma.org.au/types-of-lymphoma/chronic-lymphocytic-leukaemia-cll/

 

World CLL Day immunity community

 

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Contact Lymphoma Australia Today!

Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.