Your Life Matters

NEW CAMPAIGN!

Are you living (or caring for someone) with Chronic Lymphocytic Leukaemia or Small Lymphocytic Leukaemia?

A government committee wants to hear from you!

Whether you are newly diagnosed or have undergone therapy, please help us improve treatment options for people with CLL / SLL.

A government committee is considering whether to recommend a PBS listing for a new combination of tablets that would allow people with newly diagnosed CLL / SLL to be treated for a fixed period and then halt treatment.

It’s important that Australians with CLL / SLL (and their families) let the committee know the difference this new treatment approach could have.

Please review the videos and Frequently Asked Questions below – and please have your say before the consultation closes on 31 January 2024.

Please select IBRUTINIB Imbruvica® Chronic Lymphocytic Leukaemia or Small Lymphocytic Lymphoma’ from the drop-down menu provided on the survey.

CLL patients, Andrew and Rebecca, tell how the new combination of medication has changed their lives.

Professor Constantine Tam talks about the effects Ibrutinib and Venetoclax can have for CLL patients.

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Lymphoma Australia is the only incorporated charity in Australia dedicated to solely providing education, support, awareness and advocacy initiatives for Australians touched by lymphoma and chronic lymphocytic leukemia (CLL).

Contact Lymphoma Australia Today!

Patient Support Hotline

General Enquiries

Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
Relapsed: This means the lymphoma came back after being gone for a while after treatment.
2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here.

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.