Lymphoma in the limelight

“No cancer is a good cancer” – New
research brings stigma of Lymphoma to the limelight

ABC TV Weekend News interview with Lymphoma Care Nurse Manager Donna Gairns

 

Sky News Australia interview with CEO Sharon Winton

Lymphoma claims ‘just as many lives as skin cancer’  – Sky News Australia. New research has shown that lymphoma is often referred to as the “good  cancer” – a public misconception we are aiming to demystify this Lymphoma Awareness Day.

Social Media campaign

No cancer is a good cancer. Lymphoma is Australia’s #1 blood cancer, is common, and complex. This September patients want other Australians to understand that Lyphoma is NOT a good cancer and is serious. Thank you to all our patients and families for sharing their stories.

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Contact Lymphoma Australia Today!

Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.