CAR T-Cell Therapy – Why Some Australians Still Miss Out

CAR T-cell therapy (short for Chimeric Antigen Receptor T-cell therapy) is a special treatment for some types of Non-Hodgkin Lymphoma. It is used when the cancer comes back (relapses) or doesn’t get better (refractory) after other treatments.

This therapy has been available in Australia for a few years. It is also funded by the government. For some people with relapsed or refractory Large B-cell Lymphoma or Follicular Lymphoma, it is now the standard treatment.

But even though it is approved and funded, not everyone in Australia can easily get it.

Why Are People Missing Out?

CAR T-cell therapy is only offered in a few states. Right now, it is available in:

  • New South Wales

  • Queensland

  • Western Australia

  • Victoria

This means people living in other states, like South Australia, must travel far to get the treatment. Some have to leave their home for several months. This can be hard for both the patient and their family. Being away from loved ones and support can be stressful and lonely.

One Family’s Story

Sharon Millman, the CEO of Lymphoma Australia, spoke on ABC Radio SA about this issue. She was joined by Steph Walker whose father had to travel from South Australia to Melbourne for CAR T-cell therapy.

Steph shared how difficult it was for her family and why access to treatment closer to home is so important.

What’s Happening in South Australia?

Professor Keith McNeil, who is the Commissioner for the Commission on Excellence and Innovation in Health, also joined the radio interview. He explained the steps needed to bring CAR T-cell therapy to South Australia.

Right now, there are plans to prepare the Royal Adelaide Hospital to become an approved CAR T-cell therapy provider, with hopes it will be available by the end of the year. This is a big step that could help more people get the care they need without leaving their state. 

Listen to the Full Interview

You can hear the full 18-minute interview on ABC Radio SA Mornings with Rory McClaren. The discussion starts at 2 minutes and 14 seconds into the recording.

Click here to listen to the interview on ABC Listen


CAR T-cell Therapy Brochure

For more info see
Relapsed and Refractory Lymphoma
For more info see
Diffuse Large B-cell Lymphoma
For more info see
Follicular Lymphoma
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Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.