Our Faces of Change

Our Faces of Change –
Thank you!

Lymphoma Australia was founded in 2003 by a group of
volunteers and became incorporated in 2004. The mission is simple and Lymphoma
Australia is the only charity in Australia solely dedicated to raising
awareness, support and research for lymphoma.

Over the last decade, volunteers have devoted thousands of hours
to making a difference for the past, current and future Australians who will be
touched by this cancer. Whilst we can never thank all of our supporters enough we would like to
acknowledge three amazing and inspirational Australians who have tirelessly
supported this cause over many years and were awarded with Life memberships

Ray Culpan – Awarded Life Membership for Lymphoma Australia in 2013

After his wife Ros was diagnosed with lymphoma Ray became a
very active and dedicated member of the Lymphoma Australia Board. Ray was
Chairman, Secretary and Treasurer during our formative years and due to Ray’s
support and leadership we had the opportunity to raise national awareness and
support for this cancer

 

Ted Winton – Awarded Life Membership for Lymphoma Australia in 2014

Ted joined the Lymphoma Australia Board in 2005 after losing
his wife Shirley to lymphoma. Shirley Winton OAM was also the founding
President of Lymphoma Australia and Ted has ensured her vision to advocate for
all Australians diagnosed with lymphoma received information and the best
possible care.

 

 

Gordon ShawAwarded Life Membership for Lymphoma
Australia in 2015

Gordon joined the Lymphoma Australia Board in 2006 after
losing his wife Kayleen to Lymphoma. Gordon’s previous business experience has
ensured Lymphoma Australia delivered exceptional and dedicated services and
projects for the national Lymphoma community. Thank you so much for all your hard work,
vision and commitment to our very important cause

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Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.