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Patient Newsletter – January 2023

January 2023

Inside this edition, we will be covering the following topics:

  • 2023 & What we have planned so far
  • Legs Out for Lymphoma
  • Our partnership with Dermal Therapy
  • Patient Treatment Support Kit
  • Welcome to our New Nurses
  • Sex, Intimacy & Sexual Health
  • EOI – Languages other than English
  • Latest PBS submissions
  • ALLG
  • Upcoming Support Groups 
  • Caryl’s Coaching
  • Nurse Support Line 1800 953 081 
Image of Lymphoma Australia morning tea in QLD with patients, carers and Lymphoma Australia staff.

Click here to read the January 2023 Patient Newsletter

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Contact Lymphoma Australia Today!

Patient Support Hotline

General Enquiries

Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.