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Navigating the Healthcare System as AYA -Social and Welfare considerations + Exercising – You Can Centre – Perth

Final Date TBA

Are you an adolescent or young adult (AYA) with lymphoma struggling to navigate the healthcare system?

The You Can team of experts will provide tailored advice on how to access appropriate health services and support, including social and welfare considerations that are specific to AYA patients. 

They will also discuss the importance of exercise during treatment and provide tips on how to safely incorporate physical activity into your routine, as well as strategies for staying active and taking care of your overall health and wellbeing.

There is limited availability for this event, so secure your spot quickly.
This event has already taken place.
Details
Date: Friday 2nd of June 2023
Time: 2:00pm AEST - 3:30pm AEST

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Lymphoma Australia is the only incorporated charity in Australia dedicated to solely providing education, support, awareness and advocacy initiatives for Australians touched by lymphoma and chronic lymphocytic leukemia (CLL).
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General Enquiries

Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.