No Cancer is a Good Cancer

Lymphoma is often referred to as a “good cancer” and during September we shared a series of patient experiences to break down this myth. No cancer is a good cancer. A very special thank you to each and every patient, those in remission, family members and carers for sharing your views and helping to put lymphoma in the limelight.

These images are a small collection of what we received.

Sophie was diagnosed with an aggressive form of Lymphoma – Diffuse Large B cell Lymphoma. As with any cancer patient constant fear looms, and to be deemed as ‘lucky’ for young 23 year old Sophie was frustrating beyond words.

Steve was diagnosed with mantle cell Lymphoma, that is 1 of the 80 types of Lymphoma. Many patients like Steve experience a physically and mentally draining journey that is sometimes interpreted as a ‘good cancer’.

Kevin had refractory DLBCL. When this photo was taken in February 2018, the lymphoma had relapsed a third time. All through the 3.5 years of treatment: “Oh wow, you look great, you look so well!” And Kevin did look great. What people couldn’t see was the raging, dangerous cancer that just would not go away.

Vale Kevin Michael Patrick Higgins, 05.07.19

Did you know Lymphoma claims the lives of 4 Australians a day? Without the support from the Australian community and Lymphoma support network, Clare and many others wouldn’t be able to cherish these special moments with their loved ones.

What would you say in response to being told you have a ‘good cancer’? Kylie was 1 of the 17 Australians diagnosed with Lymphoma each day; that is one person every two hours!

Meet 5 year old Archer who recently battled a form of Non-Hodgkin Lymphoma, Burkitt. Lymphoma affects males and females of any age, and for many parents this would be would be an unimaginable experience to encounter.

More stories can be viewed:

 

Our sincere thanks to the team at Red Havas for their support and work on this campaign with us.

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Contact Lymphoma Australia Today!

Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.