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Cancer. The Big C

Hi – I’m Kimberley and I will be getting my #legsout4lymphoma this March.

On the 11th March 2020 I was given the news that the lump I found on my neck two days prior was Hodgkin’s lymphoma.

Cancer, the big C.

In shock and while a global pandemic took place my parents came to take care of me.

I had 12 chemo sessions over 6 months with my last being on 7th September. I have now been in full remission since November. This honestly was one of the hardest experiences of my life, for me and my family.

Kimberley, neck lump

Because of this, I will be getting my Legs Out for Lymphoma. To spread awareness, and help fund an amazing cause. Knowledge is power and having someone to call to help when you’ve been diagnosed, going through chemo and/or in recovery would be incredible. Makes this new world a little less scary.

2 years ago I walked for Cancer Research in the UK and didn’t quite make the 26 miles but I did manage 23 miles (unknowingly I had cancer at the time).

I will be re-walking the 26 miles (42km from the 1st – 10th March). I will finish my walk a day before the 1 year anniversary of my diagnosis so it feels very right to come full circle, being diagnosed with Hodgkin’s lymphoma to then walking in remission raising awareness and funds.

Although recovery is hard, you’re not exactly the person you were before chemo, but this walk is giving me something amazing to focus on, and to try and get back physically to the person I was before, minus the cancer, so thank you.

Thank you to everyone that has already donated

Follow Kimberley’s walk and her journey: https://www.mycause.com.au/page/243867/kimberley-jones

Sign up to join us and get your Legs Out for Lymphoma too! It’s free to sign up, and as it is virtual you can choose where and when to take part. https://www.mycause.com.au/events/legsout4lymphoma

Kimberley, post chemo
Kimberley, treatment

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Lymphoma Australia is the only incorporated charity in Australia dedicated to solely providing education, support, awareness and advocacy initiatives for Australians touched by lymphoma and chronic lymphocytic leukemia (CLL).
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General Enquiries

Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.