Jovan’s Story – Stage 3 Follicular Lymphoma at 25 yrs of age

In March 2011, three friends Jovan Pejic, Nikola Pejic and Igor Fuentes decided to cycle from Sydney to Canberra purely for the challenge. However, just days before the ride in a distressing turn of events, Jovan was diagnosed with Stage 3 Follicular Non-Hodgkin Lymphoma at just 25. The diagnosis was a shock to everyone, as Jovan is known for his athleticism, good health and Ricky Martin looks.

In light of the situation and due to the resilience demonstrated by Jovan, the bike ride continued but with a hint of something extra! The inaugural Opera2Parliament ride raised awareness and funds for Lymphoma Australia.

Jovan and his twin brother Nic, wanted to help others going through the same experience.  “After watching the heartache, the unknown, the devastating delivery of the news I thought ‘how many other families are out there facing lymphoma?’. It was then I realised I want to help, not just my family but all the other people affected by this cancer as well,” said Nic.

Jovan and Nic are no strangers to hard work. Having both excelled in the sport of Judo, they made history as the first twins to take Nationals. Today Opera2Parliament has changed directions and Parliament2Opera is now an annual event and a unique physical challenge a cause close to many hearts. In 2014 Parliament2Opera raised over $60,000 to support Lymphoma Australia and patients across Australia.

Jovan is now remission from his lymphoma and along with his family has been riding Parliament2Opera for the last 3 years. Since his experience with Lymphoma Jovan has made a change in his life, he said “Lymphoma inspired me to change my lifestyle to be more active and more involved with my community.”

Jovan is now the owner and operator of a cold pressed juice business, through which he is able to reach out and assist those that a battling cancer and provide hope and support. His experience with lymphoma taught Jovan the importance of nutrition and the importance of taking responsibility for your health.

“Lymphoma taught me the importance of thinking outside the box, being inquisitive, challenging the norms and for never giving up on the quest for information. My experience inspired me to do what I want to do NOW, and not tomorrow; we picked up our backpacks and lived in Mongolia for 9 months. Thanks to our experience with Lymphoma there are now thousands of people in Canberra drinking cold pressed juice every day, learning about nutrition and building a healthier lifestyle.”

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Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.