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Patient Stories

We are honoured to share the stories of patients, carers, donors, and supporters about their experiences with lymphoma and CLL.

Hearing from others can be incredibly inspiring and comforting, especially during challenging times. A heartfelt thank you to everyone who has shared their journey, helping to raise awareness of lymphoma and CLL while offering support to others facing similar challenges. Together, we ensure no one faces lymphoma alone.

To share your own story, please complete our form by clicking the button below, or contact us at 1800 953 081 or email enquiries@lymphoma.org.au.

World Cancer Day

Rosemary’s Story: Mantle Cell Lymphoma (MCL)

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Ty’s Story: DLBCL

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Image of Lymphoma patient standing at paddock fence with her dog by her side. Two horses can be seen in the distance

Chantelle’s Story: PMBCL

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Monika’s Story: Follicular Lymphoma

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Clare’s Story: Hodgkin Lymphoma

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Tahli’s Story: Non Hodgkin Large B Cell Lymphoma

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What is CAR T-cell therapy?
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CAR T-cell therapy in Australia
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The CAR T-cell process
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T-cell Lymphomas & CAR T-cell therapy
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Possible side effects of CAR T-cell therapy
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Clinical Trials
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Support & Resources
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Summary & Frequently Asked Questions
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Patient Stories
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Lymphoma Australia is the only incorporated charity in Australia dedicated to solely providing education, support, awareness and advocacy initiatives for Australians touched by lymphoma and chronic lymphocytic leukemia (CLL).
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Contact Lymphoma Australia Today!

Patient Support Hotline

General Enquiries

Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.