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Tom’s Story (video)- Nodular Lymphocyte Predominant Hodgkin Lymphoma

“Am I Going To Survive The Next 6-7 Months To Meet My Son?”

Tom was interviewed as part of the ABC Science series for men’s health “Listen Up”.

Tom is a 34-year-old survivor of one of the rarer forms of Hodgkin Lymphoma. Tom was diagnosed shortly after finding out his partner was pregnant and was fighting the cancer all through her pregnancy. This was his reason to never give up.

 

Subtype: Nodular Lymphocyte Predominant Hodgkins Lymphoma with Large B-Cell and Hystiene T-Cell involvement

Treatment Location: Mater Public Brisbane

Chemo Protocol: ABVD then escalated to R-GDP and Radiation at the PA Hospital, Brisbane (Located inside Mater Grounds)

Stem Cell Transplant: Autologous Stem Cell Transplant

 

 

(Shared with permission from Australian Broadcasting Corporation)

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Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.